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Medical Forum / Diseases and Disorders / Herpes / May 2004questions questions
About two years ago I had some intense burning and general uncomfortableness in my genitalia. I saw my doctor and was told it was a yeast infection. The yeast infection medication didn't seem to help, and the symptoms went away. A few months later, they came back. General malise, sore throat and intense burning, seemingly under my skin, around my labia and anus, sometimes on my inner thighs.. I did a lot of reading, and it sounded like I might have herpes (ive been tested for eveything else already). I went to my doctor so many times, and was told that there were no lesions, no weird skin, nothing looking like herpes at all. But the symptoms continued on and off. It took me forever, and I paid out of pocket, to find someone to test me. They did the pocket 20 minute test, and I was told I was negative for HSV2, they sent the blood off to do a HSV1, and I was told I was negative for that as well. This was good news, and I heard about the Herpes Vaccine trial a few months after this. I was retested at that time (western blot I believe) and was told I was negative for 2, but positive for 1. So. I know im positive for 1 (like lots of the population apparently) and negative for 2. To my knowledge ive never had an oral sore, or a genital one (and believe me, ive looked!) But I still have this awful burning sensation which comes and goes and lasts for weeks at a time. Ive seen many other doctors now, and am always told that it cant be herpes. Can it be herpes? Ive been single since all this weirdness started happening, and I know that there is no real way to determine if the HSV 1 is oral or genital, so when the time comes, how do I tell someone I MIGHT have genital herpes, but I don't know for sure. I don't think that will go over well!! Thank you for reading all this, ive been reading on this group for a while, finally thought id write and get your opinion. What you do is you tell your partner that you have herpes simplex type-1. Preferably *before* sex . . . Angela : ) www.yoshi2me.com > About two years ago I had some intense burning and general > uncomfortableness in my genitalia. I saw my doctor and was told it was [quoted text clipped - 29 lines] > Thank you for reading all this, ive been reading on this group for a > while, finally thought id write and get your opinion. >About two years ago I had some intense burning and general >uncomfortableness in my genitalia. I saw my doctor and was told it was [quoted text clipped - 10 lines] >HSV2, they sent the blood off to do a HSV1, and I was told I was >negative for that as well. >This was good news, and I heard about the Herpes Vaccine trial a few >months after this. I was retested at that time (western blot I >believe) and was told I was negative for 2, but positive for 1. >So. I know im positive for 1 (like lots of the population apparently) >and negative for 2. >To my knowledge ive never had an oral sore, or a genital one (and >believe me, ive looked!) But I still have this awful burning sensation [quoted text clipped - 5 lines] >someone I MIGHT have genital herpes, but I don't know for sure. I >don't think that will go over well!! >Thank you for reading all this, ive been reading on this group for a >while, finally thought id write and get your opinion. It doesn't *sound* like herpes, but I'm at a loss as to what it might be. You've certainly been poked and prodded by enough doctors. Would you describe the pain as a neuralgia, a pain similar to a mild sunburn? Or as something else? Mike Mike - I was under the impression that jane doe knew for a fact that she had herpes simplex type-1. What do you think? Angela : ) www.yoshi2me.com > It doesn't *sound* like herpes, but I'm at a loss as to what it > might be. You've certainly been poked and prodded by enough > doctors. > > Would you describe the pain as a neuralgia, a pain similar to a mild > sunburn? Or as something else? >Mike - Hi Angela. >I was under the impression that jane doe knew for a fact that she had herpes >simplex type-1. >What do you think? Well, she could have HSV1 orally. That wouldn't explain or cause the burning in the genital region. Not knowing more than the little I do (I know less and less every day) I just can't say more. Hence the questions on the type of pain. How are the little ones, Yosh? Mike Lauren is growing like a weed . . . she finishes up the 7th grade this year. I know that the next 5 years are going to fly by FAST!!! Fiona is already 5 months old and is as cute as a button. I have a photo posted of her on my herpes biography page over on www.yoshi2me.com if you are curious as to what the little button looks like. Thanks for asking Mike!!! : ) How are you doing? Angela > How are the little ones, Yosh? > > Mike >Lauren is growing like a weed . . . she finishes up the 7th grade this year. >I know that the next 5 years are going to fly by FAST!!! Fiona is already 5 >months old and is as cute as a button. I have a photo posted of her on my >herpes biography page over on www.yoshi2me.com if you are curious as to what >the little button looks like. Cute as a button! Cute as a speckled pup! Nice looking site, Yosh. Glad you and the crew are all doin' so well. >Thanks for asking Mike!!! : ) >How are you doing? I'm pretty swell, these days. I slapped up some pics on a Yahoo album, too. ;-) My most recent trip is there, and a bunch of family shots going way back. http://photos.yahoo.com/michaelito7 Take care, Mike Those are neat pictures!!! Thanks for sharing them with me. Angela :) > I'm pretty swell, these days. I slapped up some pics on a Yahoo > album, too. ;-) My most recent trip is there, and a bunch of [quoted text clipped - 5 lines] > > Mike > >Lauren is growing like a weed . . . she finishes up the 7th grade this year. > >I know that the next 5 years are going to fly by FAST!!! Fiona is already 5 [quoted text clipped - 21 lines] > > Mike C'mon, Mike, leave the tricks! Uncover that beer-belly, for us to see what a arginine-free diet did to you. Perl Molson Perl, Just make sure you don't forget to floss if you brush your teeth. Angela : ) www.yoshi2me.com > C'mon, Mike, leave the tricks! > Uncover that beer-belly, for us to see what a arginine-free diet did to you. > > Perl Molson > Perl, > [quoted text clipped - 8 lines] > > > > Perl Molson Is that right? Perl Molson > It doesn't *sound* like herpes, but I'm at a loss as to what it > might be. You've certainly been poked and prodded by enough [quoted text clipped - 4 lines] > > Mike Thank you for all of your comments! I have talked to so many doctors and it seems like the people here have more info than most of them! The pain is sorta like a mild sunburn. Its a burning sensation which seems to be slightly below the surface of my skin (does that make sense? like its inside rather than on the surface.) the weird thing is that it seems to come and go throughout the day. at times its painful to sit in jeans, and then later in the day ill realize im not in pain at all at that moment. > It doesn't *sound* like herpes, but I'm at a loss as to what it > might be. You've certainly been poked and prodded by enough [quoted text clipped - 4 lines] > > Mike Thank you for all of your comments! I have talked to so many doctors and it seems like the people here have more info than most of them! The pain is sorta like a mild sunburn. Its a burning sensation which seems to be slightly below the surface of my skin (does that make sense? like its inside rather than on the surface.) the weird thing is that it seems to come and go throughout the day. at times its painful to sit in jeans, and then later in the day ill realize im not in pain at all at that moment. >> It doesn't *sound* like herpes, but I'm at a loss as to what it >> might be. You've certainly been poked and prodded by enough >> doctors. >> Would you describe the pain as a neuralgia, a pain similar to a mild >> sunburn? Or as something else? >Thank you for all of your comments! I have talked to so many doctors >and it seems like the people here have more info than most of them! >The pain is sorta like a mild sunburn. Its a burning sensation which >seems to be slightly below the surface of my skin (does that make >sense? like its inside rather than on the surface.) the weird thing is >that it seems to come and go throughout the day. at times its painful >to sit in jeans, and then later in the day ill realize im not in pain >at all at that moment. I guess what I'm trying to get at, is the difference between say, muscle pain, and nerve pain. There could also be cellular damage pain, but there probably isn't any of that in this case, from what you've said. Pain could also be associated with hair follicles, or the sweat glands. There could be swelling or pain associated with the lymphatic system, ie. your glands. There could be assorted "female" pains, as caused by various infections or invasions, but you have, one way or another over time, ruled a large portion of those out. There are probably even other pains. Have you talked with any one of authoritah about herpetic neuralgia? Is the pain more likely on days that you wear tighter pants? I like to remind people, even those without herpes, that modern laundry soaps can be harsh and irritating. It's a simple thing, but one a lot of people probably don't think about. If you're sensitive that way, not only should you look for "scent free" detergents, but make sure your clothes are rinsed extra well. That's all I can think of at this hour. Take care, Mike >To my knowledge ive never had an oral sore, or a genital one (and >believe me, ive looked!) But I still have this awful burning sensation >which comes and goes and lasts for weeks at a time. Ive seen many >other doctors now, and am always told that it cant be herpes. Can it >be herpes? As long as you don't know what's causing it, then herp is one of several possibilities. Have none of these doctors taken an interest in finding out exactly what it is? Point being, it may not be herp but what ever it is, you need to know for sure because it just might be something serious <shrug> who knows? >I know that there is no real way to determine if the >HSV 1 is oral or genital, Depends on how much money you'd like to spend. I've recently learned that a serial PCR test is becoming more and more available for home testing. You do the swabs yourself over a couple of weeks to a month, even with no lesions present (but during your burning symptoms hopefully) and deliver them to a lab for PCR testing. I don't know much more about it than that yet but my understanding is that a two week daily test kit can run about $200-$250. So if that sounds like it's within range, you might check into it. I'd like to know more about it myself but just haven't had time to check into it. >so when the time comes, how do I tell >someone I MIGHT have genital herpes, but I don't know for sure. I think you might just have a discusson on STDs in general, and when the subject gets around to herpes in particular, just tell him what you just told us. And while you're at it, you can ask him about HIS status. If he's never had a fever blister and he's never been tested, then he can't be sure either. And in fact, he could be infected with both types for all you or he knows. So at that point, it'd be time for him to determine his status (with a test) as well. The results of his test would determine how you proceed from there. >don't think that will go over well!! Depends on his attitude and how you present the facts of the subject. With a little tact on your part and open mindedness on his, it shouldn't be a problem. If it is, you probably wouldn't have wanted him to stick around anyway. I mean, after all, how would he react down the road when an actual sticky situation presented itself. M2 |
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