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Medical Forum / Diseases and Disorders / Herpes / August 2007

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Need help on severe Post Herpetic Neuralgia

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Terry - 26 Aug 2007 04:01 GMT
I'm a 56 year old man that had an outbreak of shingles two years ago on my
right chest side.  Since then, I've been dealing with the aftermath of PHN.
I've gone thru almost everything to help during this time.  I've done the
following:

Epidural and intercostal nerve blocks (the Lidocane works but the steroid
has no effect).
Spinal cord stimulator.
Intrathecal injections.
RFI on intercostal nerves (T5, T6 and T7)
Surgical cutting of intercostal nerves and sympathetic nerves.

Nothing has helped. My main pain is from T7 front and back.  One thing I did
notice is that when the doctor did the RFI on T7, she injected lidocane.
The lidocane took away all of the pain for about 2 hours, but the RFI did
nothing.

I don't understand how cutting T5, T6 and T7 intercostal nerves has had
absolutely no affect.

I'm currently taking Lyrica (doesn't seem to have any affect) and neurontin
(3000 to 4000 mg per day). The neurontin helps some as I take it in 100 mg
doses throughout the day.  Taking 1000 mg at once has the exact same effect
as taking 100 mg.  The relief takes about 10 minutes to start and lasts
about 15 minutes.

I also wear an Ace bandage around my chest.  This is to prevent the skin
from moving. If I walk, talk or do any other movement, it shakes the skin
and starts a severe spasm of pain that lasts for about 10-15 minutes at
about a 8-10 pain level.

Any help would greatly be appreciated.

Terry
M2slo2cht@nospam.invalid - 26 Aug 2007 04:49 GMT
I wish I could offer some help, but this is something way beyond my
skill set and, as far as I know, beyond our regular posters here too.
Although I've been occasionally surprised by the knowledge
demonstrated here in the past.
All I can suggest is to keep looking for a doctor that can help.  I
wouldn't even know where to start.
Good luck and Godspeed Terry.
M2

>I'm a 56 year old man that had an outbreak of shingles two years ago on my
>right chest side.  Since then, I've been dealing with the aftermath of PHN.
[quoted text clipped - 30 lines]
>
>Terry
Terry - 26 Aug 2007 16:23 GMT
I believe that the pain is conimg from the T7 muscle.  It feels very tight
when it spasms, much like a strap of iron or leather with small pins coming
from it. I can feel it tightening and slightly loosening when it spasmns.
The Neurontin is almost useless.  If the pain becomes more constant, I think
my body will get to ignore it. Also, maybe my doctor can RFI the nerve going
to the muscle instead of going to the skin.  That might be the fix. Does
anyone know if that is possible? I still remember her giving me the lidocain
when RFIng T7 and it definitely got rid of the pain.  I have an appointment
Thursday and I'll ask more questions.

Terry
 
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