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Medical Forum / Diseases and Disorders / Herpes / July 2007

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perraanonima@gmail.com - 09 Jul 2007 01:16 GMT
I really hope you guys will answer my questions this 3rd time cause
the last time nothing was answered and in fact all I was told was get
a valtrex script when I had stated I was already on one.
Please answer my questions. Its very hard to type on my cellphone (I
dont want my identity revealed, so Im not using my computer to post)
so its hard to post back replies.

I got oral to genital Type 1, 4-5 months ago.
Was put on 2 grams valtrex and it cleared it up totally.
Was feeling great after that. Got put on 500 mgs a day maintainance
and started feeling a constant low itch and pain, but no real break
out...
Dr put me up to 1 gram a day.
I was also taking 500 mg Lysine a day too.
The low itch and sparky pain never goes away totally.
If the tingle happens in my anal area I fart alot.
Its so annoying.

I thought Type 1 wasnt supposed to recur but 1 time every other year?
I thought it was "the one to get, if you do get it?"

Valtrex made my tummy ache and my hair start thinning (I usually get
all side effects of all meds I'm given) so recently I had to stop. Im
still low itch and sparky pain.

WTF is this?

Do things "down there" ever go back to normal? Now that I'm on no meds
wouldn't I have *broke out* broke out if I had tingliness?

Are there other meds or are they not as good?

Do some people just not do well on meds?

Are there people who have type 1 and it never STOPS? Or do I wait this
out until my body gets used to it (am I being a impatient lil bitch?)
is is still too early and I need more immunity?

Is it even a break out at all? Or nerve damage?
Do you guys just live with some degree of tingliness?
Or do I have herpatic neuropathy? I think that is what its called.

I have leg pain at time.

Btw, I broke my tailbone 4 years ago, I know herpes lives in the base
of the spine, is it possible that the broken tailbone is preventing it
from fully retreating? Like always in limbo?

Thanks
Perra
Grant - 09 Jul 2007 01:46 GMT
>I really hope you guys will answer my questions this 3rd time cause
> the last time nothing was answered and in fact all I was told was get
> a valtrex script when I had stated I was already on one.
> Please answer my questions. Its very hard to type on my cellphone (I
> dont want my identity revealed, so Im not using my computer to post)
> so its hard to post back replies.

I don't remember you other two posts.  But generally, if you don't respond
back, people tend not to continue writing.

> I thought Type 1 wasnt supposed to recur but 1 time every other year?
> I thought it was "the one to get, if you do get it?"

It's best not to listen to others if they don't actually have type 1.  :)
Type 1 is just as awful as type 2 in the beginning.  Just as some people can
get type 2 and never have any outbreaks, some people can get type 1 and have
a really bad time.

Type 1 does get better, as does type 2.

There is no way to know how often you will have recurrances, no matter if
you have type 1 or 2.

> Valtrex made my tummy ache and my hair start thinning (I usually get
> all side effects of all meds I'm given) so recently I had to stop. Im
> still low itch and sparky pain.

You don't have to take the meds.  I never have.  It's just something to get
through.  Take some ibuprofin if you can.  It helps with pain and swelling.

> WTF is this?

Side effects of a disease and some meds.

> Do things "down there" ever go back to normal? Now that I'm on no meds
> wouldn't I have *broke out* broke out if I had tingliness?

Yes, they do go back to normal.  No.  Nothing is standard where herpes is
concerned.

> Are there other meds or are they not as good?

There are other meds.  You'll need to talk to your doctor.

> Do some people just not do well on meds?

Sure.

> Are there people who have type 1 and it never STOPS? Or do I wait this
> out until my body gets used to it (am I being a impatient lil bitch?)
> is is still too early and I need more immunity?

It takes a year to two years for things to get really better.  But you
should start to notice some improvement.  Just work on keeping yourself
healthy.

> Is it even a break out at all? Or nerve damage?

It's not nerve damage.  Herpes is IN the nerves.

> Do you guys just live with some degree of tingliness?

It will go away.

> Or do I have herpatic neuropathy? I think that is what its called.

The tingles are normal herpes symptoms.

> I have leg pain at time.

That's normal, too, for many of us.  Take some pain relievers.

> Btw, I broke my tailbone 4 years ago, I know herpes lives in the base
> of the spine, is it possible that the broken tailbone is preventing it
> from fully retreating? Like always in limbo?

I don't know.  But I don't think so.

ar
M2slo2cht@nospam.invalid - 09 Jul 2007 16:32 GMT
perraanonima writes:
>I really hope you guys will answer my questions this 3rd time

I remember you posting back in the middle of April but thought you
received some pretty good responses back then.

>If the tingle happens in my anal area I fart alot.

Probably has something to do with your diet. Not Herpes or Valtrex.

>Its so annoying.

Not nearly as annoying for you as for your friends  ;-)

>I thought Type 1 wasnt supposed to recur but 1 time every other year?

You apparently received some misinformation.

>I thought it was "the one to get, if you do get it?"

You definitely received some misinformation.

>Valtrex made my tummy ache and my hair start thinning

Sorry to hear that.

>Im
>still low itch and sparky pain.
>WTF is this?

Might be caused by the Herpes infection.

>Do things "down there" ever go back to normal?

Yep. Eventually.

>Now that I'm on no meds
>wouldn't I have *broke out* broke out if I had tingliness?

Not necessarily. The "tingles" might be prodrome and a precursor to an
outbreak. On the other hand, it's no guarantee of an outbreak. You
should assume you're experiencing some viral shedding though. Just to
be on the safe side.

>Are there other meds or are they not as good?

There are several antivirals. Some work better for some people, others
work better for others. Only way to find out what works best for you
is to try them.

>Do some people just not do well on meds?

Unfortunately yes, that's the case for almost any medication.

>Are there people who have type 1 and it never STOPS?

That would be very unusual. For most people, the frequency and
intensity of outbreaks diminish over time, meds or no meds.

>Or do I wait this
>out until my body gets used to it (am I being a impatient lil bitch?)
>is is still too early and I need more immunity?

I think everybody gets impatient from time to time. It can take quite
a while for some people, depending on a number of factors.

>Is it even a break out at all? Or nerve damage?

Herpes doesn't generally cause much (if any) physical damage.
Emotional damage, yes. Physical damage, no.

>Do you guys just live with some degree of tingliness?
>Or do I have herpatic neuropathy? I think that is what its called.
>I have leg pain at time.

That's tough to diagnose over the Internet. I'd ask your doc about
that and I'm not a doc. I'd guess it would eventually clear itself up
though.

>Btw, I broke my tailbone 4 years ago, I know herpes lives in the base
>of the spine, is it possible that the broken tailbone is preventing it
>from fully retreating? Like always in limbo?

That's a new one on me. I doubt the broken tailbone would have any
effect on the frequency of outbreaks though, or the way the Herp virus
reacts with your immune system.

M2
alfred cox - 15 Jul 2007 19:10 GMT
>>I thought Type 1 wasnt supposed to recur but 1 time every other year?

I have type 1 genital and trust me it was really bad when I was having some
big outbreaks earlier on. Right now I get about 4-5 outbreaks a year,
sometimes more if I am under stress and that usually how I am most of the
time!

>>Valtrex made my tummy ache and my hair start thinning

I had headache and dizzyness from Valtrex, no stomach problems, but everyone
is different.

>>Do things "down there" ever go back to normal?

Yes, but sometimes you might get just the tingles and no outbreak like I do
quite often.

>>Are there people who have type 1 and it never STOPS?

Well I can tell you that mine took a long time to wane, but it eventually
does. On average, about 1-2 years.

>>Do you guys just live with some degree of tingliness?
>>Or do I have herpatic neuropathy? I think that is what its called.
>>I have leg pain at time.

I get tingliness from time to time, not as many outbreaks. My tingliness
feels like little needle like pinches in the inner thighs.. I get the leg
pain also. This feels like a burning ache going down one leg and around the
knee. Sometimes I get leg pain that lasts 2-3 days.

>>Btw, I broke my tailbone 4 years ago, I know herpes lives in the base
>>of the spine, is it possible that the broken tailbone is preventing it
>>from fully retreating? Like always in limbo?

I don't think so. Herpes comes out during stress, illness, fatigue, maybe
certain foods. Its in the lower spinal nerves.

Al
Mel - 16 Jul 2007 15:32 GMT
On Jul 8, 5:16 pm, perraanon...@gmail.com wrote:
> I really hope you guys will answer my questions this 3rd time cause
> the last time nothing was answered and in fact all I was told was get
[quoted text clipped - 46 lines]
> Thanks
> Perra

Dear Perra,
      Once you get Herpes whichever type it is, it's with you
permanently.   If you're not doing well on meds then maybe try
toughing it out instead.   I've had  herpes for nearly  18 years, and
I just decided not to use anymore meds  period.   You  could always
try the natural approach and go a healthfood store  and see what they
have to offer.   Good luck.
M
 
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