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Medical Forum / Diseases and Disorders / Hepatitis / May 2005

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Steve Thompson - 16 May 2005 01:00 GMT
I Was diagnosed with Hep "c" about 2 1/2 years ago, I had no insurance and
was not able to work. Just recently I finally decided to go to a specialist
whether I would ever be able to pay all or not.They did several test and oh
by the way I was going to be accepted in a study where I would get the
Interferone treatments at no cost, then the results from the tests came
back and they determined that I also have cirrosis of the liver, and a
disease that I had never heard of Hemochromatosis, this causes your body
and liver to store all of the excess iron instead of the normal flushing
out of the iron that your system normally should do. Can't say that I am
not alittle discouraged, and alarmed!!!! Anyone out there ever heard of the
combination of these diseases before?
greyhackles - 16 May 2005 01:30 GMT
>I Was diagnosed with Hep "c" about 2 1/2 years ago, I had no insurance and
>was not able to work. Just recently I finally decided to go to a specialist
[quoted text clipped - 7 lines]
>not alittle discouraged, and alarmed!!!! Anyone out there ever heard of the
>combination of these diseases before?

Apparently it's not uncommon to discover Hemochromatosis in the course of
treating HCV. However, the cause of Hemochromatosis is genetic in nature, not
caused by or causing HCV.

Hemochromatosis can be dealt with, and having it doesn't preclude HCV therapy.
But it can make tx a little tricky - your doctor can fill you in but often
they want to drop the iron load down pre-tx, as tx itself can cause large
amounts of free iron to circulate in the blood looking for places to become
"rust" deposits (in the joints, usually).

The pre sense of cirrhosis isn't good, obviously, but you can still treat the
Hepatitis successfully, and often the condition of the liver improves post-tx
-  sometimes dramatically.

So don't despair! Be strong and deal, you can make it go away! Try to get
educated on both the HCV and the HC so you can discuss treatment options with
more on the ball.

Cheers - and I hope you have better days ahead...

/greyhackles
Jethro Lives - 16 May 2005 02:08 GMT
Your condition sounds exactly like mine. Something to consider is the
possibility of encepalopathy coming your way. Don't eat any raw oysters.
I don't mean to sound alarmist, but believe me;  ammonia build-up can be
very nasty.  Careful , jethro
 
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