Hi there everyone. I'm a newbee with navigation madness. I did 3 months
of pegasys and my gastro stopped tx (non responder,low
wbc,plats,blah,blah,blah). My brain has become a cobweb of disjointed
"connections". Does anyone know of a special diet or medication that
would keep me from becoming a witless doof. I'm going to try another
round of tx.Suggestions about expectations much appreciated. Argh.
Jethro
> Hi there everyone. I'm a newbee with navigation madness. I did 3 months
> of pegasys and my gastro stopped tx (non responder,low
[quoted text clipped - 3 lines]
> round of tx.Suggestions about expectations much appreciated. Argh.
> Jethro
I take Gingko. It doesn't alleviate it completely but it does take the
edge off. I'm actually able to have a conversation or at least fake it
pretty well. My WBC dropped after 4 weeks but instead of taking me off
tx, I went on Neupogen shots which made it much better. Did your Dr try
you on anything like that first? Good luck with your next round of tx.
I'm on week 11 (geno 1A).
Ally
>Hi there everyone. I'm a newbee with navigation madness. I did 3 months
>of pegasys and my gastro stopped tx (non responder,low
[quoted text clipped - 3 lines]
>round of tx.Suggestions about expectations much appreciated. Argh.
>Jethro
If your liver is significantly compromised, too much protein in your diet
could lead to ammonia build-up, which is associated with brain fog. How much
is too much, of course, is always the question, but you might consult with a
dietician to come up with a practical, low protein diet for a few months to
see if your fog lifts.
As for the second round: I'd at least switch from Pegasys to PegIntron, and
make sure in advance that the treating doc will hit you with Procrit and/or
Neupogen to battle anemia/crashed neuts (WBCs) instead of reducing your
treatment meds. Dose reduction should be a last resort - or at least, the
second to last resort, with discontinuation being the last...
Good luck
/greyhackles
Ally - 23 Jun 2006 13:44 GMT
> If your liver is significantly compromised, too much protein in your diet
> could lead to ammonia build-up, which is associated with brain fog. How much
> is too much, of course, is always the question, but you might consult with a
> dietician to come up with a practical, low protein diet for a few months to
> see if your fog lifts.
Really? I never thought that would effect the brain fog. I mean, I do
see a nutritionist and have significantly lowered the protein in my
diet so perhaps that is what is helping as well. I'm glad you posted
that. Interestingly, I was doing a high protein diet because I was body
building (last year) and my liver levels all shot up. I hadn't put two
and two together till I saw the nutritionist but I never associated it
with the fog.
Ally
Loretta S - 23 Jun 2006 16:22 GMT
Jethro the diet your on is a miserable one. eatin dead stuff all the
time its not a wonder your sick. Gators like you should became
vegetarians. Your welcome to come to my garden and help yerself.
Loretta
Waterspider - 25 Jun 2006 06:04 GMT
>> If your liver is significantly compromised, too much protein in your diet
>> could lead to ammonia build-up, which is associated with brain fog. How
[quoted text clipped - 12 lines]
> and two together till I saw the nutritionist but I never associated it
> with the fog.
When the body breaks down protein, the byproduct is ammonia. When your liver
isn't functioning properly, the ammonia stays in your bloodstream and gets
to your brain, causing the "fog" which can be confusion, dizziness, loss of
short-term memory and speech difficulties. Red meat is a good one to avoid.
Glad ya finally came down frum that tree, Jethro. If thangs gitz ta be
too bad on that there combo sheet, we kin gitz Killborn ta give ya
sumthin. Lotitta's got a homecummin party reddy fer ya. Now gitz on
over their an gitz ya sum.
Scar Face