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Medical Forum / Diseases and Disorders / Hepatitis / November 2009

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Philosophical Question

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CatEyes - 06 Nov 2009 15:25 GMT
I'm still very new here, and if this is out of line, please gently let me
know and I'll back off with these types of posts.

In case you don't remember my introduction.  I've been living with the pain
of RSD/CRPS for about three years now.  It is *the* most painful condition a
person can get.  Here is a scale that can give you an idea of where my pain
level is at all times (RSD is also called "Causalgia):

http://www.rsdhope.org/ShowPage.asp?PAGE_ID=44

There's no cure for RSD/CRPS.  I'm 58 years old and just figured that the
increasing pain, muscle loss and atrophy, bone loss, and other problems that
this condition causes would just bring about an earlier death than I, at one
time, would have wished for (*now*, however, living with this pain doesn't
make an early death sound so bad).

Now I've been diagnosed with HepC (well, I got the antibodies test back, and
I'll see my gastroenterologist next Tuesday to find out the news for sure, I
guess).  With my luck it will be genotype 1a and in advanced stages.  If
this is the case, I am thinking of not taking the treatment.

I'm agnostic now, but was reared in the Catholic religion, so there's still
that little voice in the back of my head that says, 'if you kill yourself
you'll burn in hell for all eternity'.  So I have to ask myself, is refusing
treatment (especial if it's the 72 month and still not likely to work
treatment), is this a form of "passive suicide"?

If I do choose to not treat it, does anyone know how "bad" a death this
would be (and please, please forgive me for asking this very indelicate
question to people who may have lost loved ones to this disease)?  What
would I have to go through?  How long does it take?

Again, forgive me if I've broken a rule about this subject in this group, or
just broken the rule of 'neticate.

Hugs,

CatNipped
M - 06 Nov 2009 15:55 GMT
> I'm still very new here, and if this is out of line, please gently let me
> know and I'll back off with these types of posts.
[quoted text clipped - 34 lines]
>
> CatNipped

Why don't you wait until you find out what the real situation is before
contemplating "passive suicide"?

M
Nyarnon - 06 Nov 2009 17:43 GMT
CatEyes schreef:
> I'm still very new here, and if this is out of line, please gently let me
> know and I'll back off with these types of posts.
[quoted text clipped - 34 lines]
>
> CatNipped

Well nobody really can say. Only a small part of the people having HCV
is discovered and from those detected many die with HCV rather then
from. The answer lies in the deaths of the many undetected. So I would
say your a bit premature. There is many ways to keep the virus in chess
and the liver in condition so you will be able to die from something
else. I would suggest you look into depression though this line of
thinking might just point to that.

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tom - 06 Nov 2009 18:59 GMT
> If I do choose to not treat it, does anyone know how "bad" a death this
> would be (and please, please forgive me for asking this very indelicate
[quoted text clipped - 7 lines]
>
> CatNipped

I've heard it said on more than one occasion that most infected people die
with Hep C, not from it.
Waterspider - 06 Nov 2009 19:38 GMT
>> If I do choose to not treat it, does anyone know how "bad" a death this
>> would be (and please, please forgive me for asking this very indelicate
[quoted text clipped - 10 lines]
> I've heard it said on more than one occasion that most infected people die
> with Hep C, not from it.
This is one of those glib comments that is tossed out irresponsibly to
comfort one with a new diagnosis and insignificant liver damage, or one who
has not had success with treatment.
It shouldn't be repeated.
Nyarnon - 06 Nov 2009 20:00 GMT
Waterspider schreef:
>>> If I do choose to not treat it, does anyone know how "bad" a death this
>>> would be (and please, please forgive me for asking this very indelicate
[quoted text clipped - 13 lines]
> has not had success with treatment.
> It shouldn't be repeated.

Would you study that comment for a moment? It has some deep wisdom.

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M - 07 Nov 2009 10:58 GMT
>>> If I do choose to not treat it, does anyone know how "bad" a death this
>>> would be (and please, please forgive me for asking this very indelicate
[quoted text clipped - 13 lines]
> has not had success with treatment.
> It shouldn't be repeated.

I've had five doctors -- liver specialists --  tell me the same thing,
based on my blood work and scans.

You seem to think that everyone who doesn't go through treatment will
die a horrible death. You're the one who should stop repeating things.

M
Waterspider - 07 Nov 2009 18:01 GMT
>>>> If I do choose to not treat it, does anyone know how "bad" a death this
>>>> would be (and please, please forgive me for asking this very indelicate
[quoted text clipped - 18 lines]
> You seem to think that everyone who doesn't go through treatment will die
> a horrible death. You're the one who should stop repeating things.

You should read my posts more carefully before presuming to know what I
think.
I have never even remotely suggested that everyone who doesn't go through tx
will die a horrible death.
M - 07 Nov 2009 18:44 GMT
>>>>> If I do choose to not treat it, does anyone know how "bad" a death this
>>>>> would be (and please, please forgive me for asking this very indelicate
[quoted text clipped - 20 lines]
> You should read my posts more carefully before presuming to know what I
> think.

I have read your posts for years.

> I have never even remotely suggested that everyone who doesn't go through tx
> will die a horrible death.

Yes you have. You even given vivid descriptions.

M
Waterspider - 07 Nov 2009 19:05 GMT
>>>>>> If I do choose to not treat it, does anyone know how "bad" a death
>>>>>> this would be (and please, please forgive me for asking this very
[quoted text clipped - 27 lines]
>
> Yes you have. You even given vivid descriptions.

Any comments I made about death from liver disease were framed in the
context of severe, long-term liver disease; never directed at "everyone who
doesn't go through tx." As for vivid descriptions, this would be impossible
because I don't know enough about the process, and I am clearly aware of the
variations amongst individual cases, to even attempt such a thing.

To give you the benefit of the doubt, perhaps you have confused my posts
with someone else's, taken a comment out of context or missed a joke.
M - 07 Nov 2009 20:19 GMT
>>>>>>> If I do choose to not treat it, does anyone know how "bad" a death
>>>>>>> this would be (and please, please forgive me for asking this very
[quoted text clipped - 34 lines]
> To give you the benefit of the doubt, perhaps you have confused my posts
> with someone else's, taken a comment out of context or missed a joke.

So now you're saying that most people will die with Hep C and not
because of it or what?

M
Waterspider - 07 Nov 2009 20:29 GMT
>>>>>>>> If I do choose to not treat it, does anyone know how "bad" a death
>>>>>>>> this would be (and please, please forgive me for asking this very
[quoted text clipped - 38 lines]
> So now you're saying that most people will die with Hep C and not because
> of it or what?

Of course not! There's a huge gap between everyone dying a horrible death
and no one dying (of untreated hep C). Both statements are wrong, there is
no data to support either claim and, even if there was, individual cases can
and do often vary from the statistical norm. But, I know that you know this.
I really don't understand where you're coming from with this, or why you're
being deliberately obtuse about it.

Did I piss you off by saying I was looking forward to Windows 7?
<g>
Nyarnon - 07 Nov 2009 21:09 GMT
Waterspider schreef:

> Did I piss you off by saying I was looking forward to Windows 7?
> <g>

Damn this hurts amputated Vista to look forward to. Forget it Ubuntu is
the only way to go. Supportive community no need for virusscanners happy
happy joy joy.

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M - 08 Nov 2009 10:31 GMT
>>>>>>>>> If I do choose to not treat it, does anyone know how "bad" a death
>>>>>>>>> this would be (and please, please forgive me for asking this very
[quoted text clipped - 44 lines]
> I really don't understand where you're coming from with this, or why you're
> being deliberately obtuse about it.

Note I said "most" people, not, "all" people. Five liver doctors said
the same thing. In fact one said that many heppers take better care of
themselves than many non heppers and actually live longer than they
would if they didn't have hep C due to the changed life style.

> Did I piss you off by saying I was looking forward to Windows 7?
> <g>

I have Windows 7 on another machine. It's about time Microsoft did
something right. For surfing the Net, however, Linux is still much safer.

M
Waterspider - 08 Nov 2009 18:21 GMT
>>>>>>>>>> If I do choose to not treat it, does anyone know how "bad" a
>>>>>>>>>> death this would be (and please, please forgive me for asking
[quoted text clipped - 52 lines]
> themselves than many non heppers and actually live longer than they would
> if they didn't have hep C due to the changed life style.

You said:  "You seem to think that everyone who doesn't go through treatment
will die a horrible death." I was defending my position, not attacking
yours.
I imagine the heppers with a cleaned up lifestyle who live longer than
non-heppers would be those who were hardcore alcoholics/addicts. In other
words, the lifestyle is more dangerous than the disease, but this does not
apply to the general population.

>> Did I piss you off by saying I was looking forward to Windows 7?
>> <g>
>
> I have Windows 7 on another machine. It's about time Microsoft did
> something right. For surfing the Net, however, Linux is still much safer.

Here in Canada, the public still eagerly awaits delivery of 7 (although it
was promised for October, only the dealers have it so far). Because I didn't
jump on the Vista bandwagon, I will have to buy W7 and that's not going to
happen for a long, long time. Maybe, by that time, Linux will be advanced
enough to run Adobe CS and some other high-end applications that I need.
When that day comes, I think we'll see the end of Windoze. It won't be a day
too soon.

From a marketing point of view, MS would be smart to make W7 available,
free, to everyone. Windows has a pathetic reputation, and it's getting
out-advertised by Apple, so MS is losing much of the market there; a free
o/s would keep many existing users who will jump ship and attract new ones
who are reluctant to switch because of the expense. And, Amiga may be back
in the market after completion of some long-running legal issues. Sorry, I
can't find the link but perhaps you've already heard about it.
Thip - 08 Nov 2009 22:48 GMT
> From a marketing point of view, MS would be smart to make W7 available,
> free, to everyone. Windows has a pathetic reputation, and it's getting
[quoted text clipped - 3 lines]
> in the market after completion of some long-running legal issues. Sorry, I
> can't find the link but perhaps you've already heard about it.

MS would be smart if they'd just make products more affordable.
M - 09 Nov 2009 12:42 GMT
>> From a marketing point of view, MS would be smart to make W7
>> available, free, to everyone. Windows has a pathetic reputation, and
[quoted text clipped - 6 lines]
>
> MS would be smart if they'd just make products more affordable.

When you've let the de facto monopoly go to your head, you think you can
charge anything you like.

M
M - 09 Nov 2009 12:41 GMT
> You said:  "You seem to think that everyone who doesn't go through treatment
> will die a horrible death." I was defending my position, not attacking
[quoted text clipped - 15 lines]
> When that day comes, I think we'll see the end of Windoze. It won't be a day
> too soon.

Adobe CS runs fine in WINE. GIMP as come a long way in the last few
years. The latest version of Ubuntu comes with a lot more programs than
before. If you want Windows 7 now, you can buy it on line.

> From a marketing point of view, MS would be smart to make W7 available,
> free, to everyone. Windows has a pathetic reputation, and it's getting
[quoted text clipped - 3 lines]
> in the market after completion of some long-running legal issues. Sorry, I
> can't find the link but perhaps you've already heard about it.

Microsoft will face the same fate as the Diamond Match Company and Enron.

M
Nyarnon - 06 Nov 2009 19:53 GMT
tom schreef:

>> If I do choose to not treat it, does anyone know how "bad" a death
>> this would be (and please, please forgive me for asking this very
[quoted text clipped - 10 lines]
> I've heard it said on more than one occasion that most infected people
> die with Hep C, not from it.

Its a false statement as most infected people are unkown.

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tom - 06 Nov 2009 20:23 GMT
> tom schreef:

>> I've heard it said on more than one occasion that most infected people
>> die with Hep C, not from it.
>
> Its a false statement as most infected people are unkown.

If they're unknown then you don't know if it false or not. Anyway I was
only stating what I've heard said.
Nyarnon - 06 Nov 2009 23:46 GMT
tom schreef:
>> tom schreef:
>
[quoted text clipped - 5 lines]
> If they're unknown then you don't know if it false or not. Anyway I was
> only stating what I've heard said.

If they are unknown one cannot say that they die with instead of because
of HCV. That makes it a false statement. It was no critic just
informational.

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M - 07 Nov 2009 10:59 GMT
> tom schreef:
>>> tom schreef:
[quoted text clipped - 10 lines]
> of HCV. That makes it a false statement. It was no critic just
> informational.

Perhaps they meant the known heppers, not the ones on Mars.

M
Nyarnon - 07 Nov 2009 12:29 GMT
M schreef:
>> tom schreef:
>>>> tom schreef:
[quoted text clipped - 14 lines]
>
> M

The unknown and unaware heppers don't live on mars they live in your
neighbourhood making a reinfection more likely for you. As they are by
far a majority we all have a serious problem untill HCV tests become a norm.

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M - 07 Nov 2009 14:43 GMT
> M schreef:
>>> tom schreef:
[quoted text clipped - 20 lines]
> far a majority we all have a serious problem untill HCV tests become a
> norm.

No sense of humor, eh?

M
Nyarnon - 07 Nov 2009 15:42 GMT
M schreef:
>> M schreef:
>>>> tom schreef:
[quoted text clipped - 24 lines]
>
> M

Sure I have when I see a smiley :-)

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Thip - 06 Nov 2009 19:37 GMT
> I'm agnostic now, but was reared in the Catholic religion, so there's
> still that little voice in the back of my head that says, 'if you kill
[quoted text clipped - 13 lines]
>
> CatNipped

Those of you who have other beliefs, please don't flame me.  I'm posting an
honest opinion to an honest question.

I'm a devout and actively practicing Christian.  I've tried treatment three
times.  Two times it failed me, and the third was too rigorous.  It involved
daily shots of Infergen.  I'm widowed, I have to work, and that's when I sat
myself down and did some serious thinking.

I made the decision then to go for quality of life versus quantity.  Quality
of life meant I had my hip replaced last spring because I had pain that
could be fixed.  If my other hip goes, I'll have it replaced too.  I can do
all sorts of things I couldn't while I was hurting, like play with my
grandkids (I have 6).  That's quality.

At one time I was in the transplant database at Emory (not the list).  I
called them and had myself taken off.  Why?  Because the constant testing
and MRI's kept the Hep C in the front of my mind.  It was controlling me,
not the other way around.  I also did some research into liver transplants,
realized it was too much of a crap shoot, and decided I'd rather not go that
route.  It could give me quantity--maybe--but there is no guarantee of
quality.  I didn't like the odds.

I don't see this as "passive suicide."  Rather, I made the decision that I
believe is best for me.  And, according to my beliefs, only God knows the
number of my days, so I could go out in slow agony or fall down a flight of
steps tomorrow.  It doesn't matter; I'm completely at peace with it because
my faith promises me something much better anyway.  I love my family with
all my heart, I have a wonderful job and lots of friends.  I don't *want* to
leave all that, but I'm ok with whatever God decides.

I've got one of two things in front of me:  Liver failure or liver cancer.
I know either one can be agonizing and either one can be slow or fast.  I
don't dwell on it.  When it happens, it happens.  Again, this is where my
faith comes into play, because Jesus stated that today's worries are
sufficient unto themselves.  I can't change yesterday, and I can't control
tomorrow.

So, that's my answer.  We all have to deal with this in the way that's best
for us.  Kudos to folks like Spidey who killed the dragon, but the rest of
us are left to face these tough decisions.
Waterspider - 06 Nov 2009 20:29 GMT
> I'm still very new here, and if this is out of line, please gently let me
> know and I'll back off with these types of posts.
[quoted text clipped - 12 lines]
> sure, I guess).  With my luck it will be genotype 1a and in advanced
> stages.  If this is the case, I am thinking of not taking the treatment.

You haven't yet been diagnosed with hep C and, as others have pointed out,
it's pointless to make decisions until you know for sure.

> I'm agnostic now, but was reared in the Catholic religion, so there's
> still that little voice in the back of my head that says, 'if you kill
> yourself you'll burn in hell for all eternity'.  So I have to ask myself,
> is refusing treatment (especial if it's the 72 month and still not likely
> to work treatment), is this a form of "passive suicide"?

Christians believe that suicide is a sin, punishable by eternity in hell.
Either you believe this or you don't. If you do believe, then you know that
your intent is as damning as your behaviour and that passive suicide is no
less a sin than active suicide. Choosing to not step out of the way of an
oncoming train is no less suicidal than firing a .45 calibre bullet into
your brain. I don't believe in God but, if I did, I wouldn't believe that he
could be so easily tricked.

If you don't believe, then the choice is yours to end your life whenever and
however you want. This is my belief and, along with it, my knowledge that
death is eternal. So, life is precious to me and I am prepared to endure
considerable pain, illness and distress to extend the one-shot experience of
life as long as possible, and out of consideration for loved ones who would
be somewhat traumatized by my suicide. If I found myself in a position that
my quality of life was nil and without hope of any improvement, I would not
hesitate to take my own life. But, facing an eternity of nothingness, it
would be a decision not made lightly.

> If I do choose to not treat it, does anyone know how "bad" a death this
> would be (and please, please forgive me for asking this very indelicate
> question to people who may have lost loved ones to this disease)?  What
> would I have to go through?  How long does it take?

Death occurs in an instant. It's the lead-up to the final moment that you're
concerned about, and this could be days, weeks or years. If you have
hepatitis C and serious liver damage (remember, you don't know this yet,
you're anticipating the worst-case scenario), you will most likely die of
liver failure, probably because of liver cancer. That's not anywhere near
the Top 10 of preferred ways to die, but we humans are rarely lucky enough
to die peacefully in our sleep. Hospice care is available, as are some
pretty damn good drugs to keep the pain at bay. And, this point may not be
reached for years, if ever.

How about this? Wait until you know what's going on before you make any
decisions. You may find that you don't have hepatitis C, or you may find
that your liver disease is so advanced that you are not elegible for
treatment and the discussion is moot. If you do have hep C and the option of
treatment, by all means give it a try; if it's more than you can handle,
simply quit. If you find yourself facing death, with constant severe pain,
zero quality of life and no hope for improvement, you have the option to
take your own life, e.g. by heroin overdose (quick, painless and not nearly
as messy as a bullet).

But, these are just my thoughts in a philosophical discussion, and that's
what all posts in this thread will be. I think you should have a sit-down,
face-to-face with a counsellor or psychologist, or even a priest if you are
a Christian. I also think you should talk to your doctor about
antidepressants (either a new prescription or, if you're already taking
them, an adjustment). You may have some difficult decisions to make, and I'm
guessing you're so overwhelmed about the recent upheaval in your life that
you can't focus clearly enough to make them. The right antidepressant will
allow you to do so, and it won't hurt to give it a try. Like treatment for
hep C, you can always stop taking it if you aren't comfortable. But you owe
it to yourself to give it a try and you've got nothing to lose.

> Again, forgive me if I've broken a rule about this subject in this group,
> or just broken the rule of 'neticate.

No rules broken, that's one of the good things about an unmoderated Usenet
group. Think of us as your virtual, dysfunctional family; we don't always
get along, some of us are wise and some of us are wingnuts, but we do care
about you because we all share the hepatitis C experience. You take care.
CatEyes - 06 Nov 2009 20:48 GMT
>> I'm still very new here, and if this is out of line, please gently let me
>> know and I'll back off with these types of posts.
[quoted text clipped - 85 lines]
> get along, some of us are wise and some of us are wingnuts, but we do care
> about you because we all share the hepatitis C experience. You take care.

Thank you, all, for your answers.  You're right about one thing for sure, in
an unmoderated UseNet group you get a VERY wide variety of opinions.  Some
people with closed minds and all opinions set in stone will be driven crazy
by this.  Some people, like me, who like to hear all sides of a given
subject, study them for a while, make a decision, study it some more and
change my mind about the decision... well you can see now why I love UseNet
so much I put up with the crazies in order to get to the gems.

Hugs,

CatNipped
Dwight - 08 Nov 2009 06:12 GMT
> I'm still very new here, and if this is out of line, please gently let me
> know and I'll back off with these types of posts.
[quoted text clipped - 34 lines]
>
> CatNipped

I really hope not doing tx is a quick end to life. I've gone through it
twice, but won't again until something gives (new tx or I get sick).
That being said, I've got too much life I want to live to go peacefully.
I've had cirrhosis since 1992, but my liver seems to holding it's own
for now. I'm not afraid to talk about death, just not ready to
experience it first hand. We can't stop death, but we can choose how we
want to spend our time while living.

Dwight
 
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