Hi all.
I really wasn't sure whether or not to post, but let this not be seen as
a negative post but as a positive one.
The old timers here may remember me from a few years ago. To all the
people who have come here since those days, Hello.
Quick recap, diagnosed hep c+ 2003 ish. Already cirrhotic at that time
so uphill struggle with treatment, failed first attempt when Hb levels
crashed thus causing my consultant to pull treatment at 13 weeks. I was
clear at that point but relapsed upon the pulling of treatment.
Started new round of treatment after six months, this was to be 48 weeks
were previously I had been on 24 week regime.
More or less the same thing happened at the second attempt, bloods
crashed but I got a commitment from my consultant to allow me to
continue with no dose reduction and I made it as far as 30 weeks before
he pulled me up again on the basis of imminent death otherwise.
It was enough, I had done enough to clear the virus and have been clear
ever since.
Unfortunately, even though I have been receiving (until this year when
my ultra sound scan was performed 3 months late) regular check ups, six
monthly scans and annual endoscopy exams a growth has escaped detection.
The HCC was discovered at the beginning of August 09. It was 5cm at
discovery and at last measurement a month ago was at 6cm. It has
unfortunately already infiltrated my lymph nodes and adrenal glands.
However as I said at the start, I would not want this post to read as a
negative outcome. I have enjoyed an extra six years at least, as the
state I was in at the start of all this was clearly not conducive to life.
I have lived to see my first grandchild born this year and whilst I
won't be around to see her grow up. I am endlessly grateful to the
medical professionals who gave me this opportunity.
I am content with the time I was given and am just so sad that I have
brought such sadness to my wife and children.
Keep fighting, all of you, my fight is nearly over but it was worth it.
Regards to all.
Len
Dwight - 03 Nov 2009 14:31 GMT
> Hi all.
> I really wasn't sure whether or not to post, but let this not be seen as
[quoted text clipped - 40 lines]
> Regards to all.
> Len
Len, I have thought about you often over the past 5 years. I look at the
pictures in Elmo's Family album from time to time and enjoy looking at
the faces of friends that I met at that time through this group. I am so
sorry to hear of your health. My thoughts and prayers are with you and
your family.
Dwight
Lu Tze - 05 Nov 2009 06:44 GMT
>> Hi all.
>> I really wasn't sure whether or not to post, but let this not be seen
[quoted text clipped - 50 lines]
>
> Dwight
Thank you Dwight. I know you had a time of it. I had things have
improved for you.
Len
Waterspider - 03 Nov 2009 18:38 GMT
> Hi all.
> I really wasn't sure whether or not to post, but let this not be seen as a
[quoted text clipped - 30 lines]
> Regards to all.
> Len
Hello, old friend. I'm happy to hear from you even though the news is bad.
Thank you for posting, clearly and honestly, the state of your health.
People so badly need to know that hepatitis C can be a killer and often is,
that it needs to be fought aggressively and that sitting on the fence,
waiting for that magic bullet treatment or f.cking around with alternative
"cures," can be fatal.
With that out of the way, I am so sad about your news, both for you and your
family. Yes, I know that all of us, every last one of us, will die, but
that's little comfort when you're looking that finality in the face, and
watching your loved ones realize that they are going to lose you in the
forseeable future. If it's possible to pull anything positive out of this,
it's that you all have the opportunity to say the things you would regret
not saying if death came unexpectedly and unannounced. That is a gift that
many don't receive, and it is a valuable lesson to those close to you-- live
your life as if every day was your last.
I don't have the words to express my sadness. I can only offer a virtual
hug.
(((((Lu Tze)))))
Spidey
Lu Tze - 05 Nov 2009 06:49 GMT
>> Hi all.
>> I really wasn't sure whether or not to post, but let this not be seen as a
[quoted text clipped - 54 lines]
>
> Spidey
Thank you Spidey. I knew you would reply and as expected your words of
wisdom are both welcome and sustaining.
Len
Thip - 03 Nov 2009 22:37 GMT
At one point in time, I had to make a decision between quality of life and
quantity of life. You fought the good fight and gained 5 years of both. I
would wish any other outcome for you, but since you are at peace with it I
will have to struggle to get myself in the same place for you. Much love is
coming from my house to yours. I will be very sad for a season, but in
time, I will rejoice your gain and your calm acceptance.
> Hi all.
> I really wasn't sure whether or not to post, but let this not be seen as a
[quoted text clipped - 40 lines]
> Regards to all.
> Len
dBo - 04 Nov 2009 21:55 GMT
Your peace and acceptance and especailly your choice to perceive the
postive aspects of the situation are an inspiration....I can only pray
that if hit with the same scenario, I could be as at peace with the
situation.
I too welcomed a first grandchild almost two years ago, so that really
hits home. He lives far away and I do not get to see him much tho my
daughter in law makes sure I am in the contstant loop with updates, a
blog etc. I am blessed with such a wonderful daughter in law.
My thoughts and prayers are with you and your family.
All fights are "worth it"
Lu Tze - 05 Nov 2009 06:52 GMT
> At one point in time, I had to make a decision between quality of life
> and quantity of life. You fought the good fight and gained 5 years of
[quoted text clipped - 50 lines]
>> Regards to all.
>> Len
Dear,dear Thip, all love is gratefully accepted and returned in equal
measure.
Thank You
Len
Paul - 16 Nov 2009 08:27 GMT
On Tue, 03 Nov 2009 12:18:24 +0000, Lu Tze <ksls123@gmail.com>, in
message ID <F62dnYw21_gNgm3XnZ2dnUVZ8gqdnZ2d@bt.com>, in the newsgroup
alt.support.hepatitis-c wrote:
>Hi all.
>I really wasn't sure whether or not to post, but let this not be seen as
[quoted text clipped - 40 lines]
>Regards to all.
>Len
I haven't logged in here for a couple of weeks so am a bit late
responding to this. Yes of course I remember you Len. In fact, I
think this is the first time I've actually known your real name. I
recall the huge trouble you had with the treatments and admired the
way you crawled through it never giving up. Whilst mine was a fairly
unpleasant ride, it didn't come close to what you went through.
It was also the old sig at the bottom of your posts that got me too.
It was weeks before I finally cottoned on to what you meant and it
gave me a laugh at a time when I badly needed it. I also recall you
as one of the few on here, like myself, from the UK (Wales isn't it?).
I'm sorry to hear of your illness but fully empathise with the
positive side of your post. All any of us has is this one moment in
time. It's the only thing that comes with a guarantee. Although I
believe I'm in good health these days, the 90 year old around the
corner may outlive me.
I'm so pleased that you were around for your first grandchild's birth.
Hope you've got as much time as you need to do some things that you
never got around to.
Best wishes,
Paul