Though I have not posted in a really long time, I still read what is
going on.You have to respect a place that you can voice your feelings
and be heard, read some of the rantings of some people, and just
shake your head and wonder.
For those that are just starting and those that have had a stab at
that dragon, I would like to let you know that "Yes Virginia, there is
a Sant Clause". I am 4 months out of treatment and just went for blood
work and am still testing Negative.( for you more technical folks,
that would be less than 5). I have been testing Negative/Undetected
since week 14.NObody said it would be fun or pretty and boy did they
get that rite!!
So I guess what I am trying to say here is... fight the fight for
those in our little dragon club, keep posting, keep ranting,keep
drinking water and keep listening, and thanks for being here for me!
God Bless & Godspeed
Wally's Girl
(Pattie)
greyhackles - 17 Aug 2009 03:43 GMT
>Though I have not posted in a really long time, I still read what is
>going on.You have to respect a place that you can voice your feelings
[quoted text clipped - 14 lines]
>Wally's Girl
>(Pattie)
That is fantastic news, Wally's Girl!
Third time around - plus 72 weeks on tx - was the charm! :-)
Cheers
/greyhackles
news - 22 Aug 2009 07:12 GMT
wallysgirl <vettshop@ptd.net> wrote in news:cd88f749-de23-4ea3-80b0-
eddaded09c38@z34g2000vbl.googlegroups.com:
I am 4 months out of treatment and just went for blood
> work and am still testing Negative.( for you more technical folks,
> that would be less than 5).
What number is that?
Thanks.
greyhackles - 22 Aug 2009 13:39 GMT
>wallysgirl <vettshop@ptd.net> wrote in news:cd88f749-de23-4ea3-80b0-
>eddaded09c38@z34g2000vbl.googlegroups.com:
[quoted text clipped - 6 lines]
>
> Thanks.
Qualitative Viral Load test...
Cheers
/greyhackles
news - 23 Aug 2009 08:46 GMT
> Qualitative Viral Load
I just got back my blood test results and don't know if that test is
listed. I don't understand all the test components. I've looked them up but
they seem to have different abbrieviations for the same thing sometimes.
wallysgirl - 23 Aug 2009 14:48 GMT
> > Qualitative Viral Load
>
> I just got back my blood test results and don't know if that test is
> listed. I don't understand all the test components. I've looked them up but
> they seem to have different abbrieviations for the same thing sometimes.
Not sure what your question is?
news - 25 Aug 2009 00:32 GMT
>> greyhackles <greyhack...@REMOVEyahoo.com> wrote
>> innews:qnpv85hn31pfdf8sts
[quoted text clipped - 10 lines]
>
> Not sure what your question is?
On my blood test sheet there is nothing listed "Qualitative Viral Load"
or qtl or anything that I could look up that would indicate that I was
tested for that measurement.
All the tests are listed in a column under the heading "Component". How
do I identify which of the components is the "Qualitative Viral Load"?
Thanks.
.
greyhackles - 25 Aug 2009 02:13 GMT
>>> greyhackles <greyhack...@REMOVEyahoo.com> wrote
>>> innews:qnpv85hn31pfdf8sts
[quoted text clipped - 17 lines]
>
> Thanks.
Is there a test result that specifically mentions "HCV"? Or "Hepatitis"? Or
"Virus"?
Generally you won't see the word "qualitative". The only reason I knew it was
a qualitative test is because of the sensitivity that Wally's Girl mentioned.
The only viral load test that is sensitive down to 5 IU/ml is a qualitative
test (which I've had quite a few times in the past). This is as opposed to a
"quantitative" test, which isn't as sensitive, but is capable of "quantifying"
large viral load values (which the qualitative tests can't reach).
Depending on where you are, medically speaking, it is possible that your
doctor didn't include a viral load test...
Cheers
/greyhackles
news - 25 Aug 2009 06:55 GMT
> Is there a test result that specifically mentions "HCV"? Or
> "Hepatitis"? Or "Virus"?
[quoted text clipped - 13 lines]
>
> /greyhackles
Thanks greyhackles.
I understand that one type is just a "yes/no" and the other is more
specific (rendering the 5 IUml result).
Nothing labled HCV. I also had my first biopsy yesterday. I was
wondering what I should expect in terms of the specific condition of my
liver. I don't want a general assesment. What should I ask for to get a
pinpoint answer?
.
greyhackles - 25 Aug 2009 14:30 GMT
>> Is there a test result that specifically mentions "HCV"? Or
>> "Hepatitis"? Or "Virus"?
[quoted text clipped - 23 lines]
>liver. I don't want a general assesment. What should I ask for to get a
>pinpoint answer?
The biopsy results should be conveyed to you in the form of "Stage" of
fibrosis, and "Grade" of inflammation. To produce those values, one of two
scoring systems will be used.
The "Metavir" scoring system is the one most often used for HCV patients. In
this system, staging is between 0 (no fibrosis) through 4 (cirrhosis). Grading
is also between 0 (no inflammation) and 4 (severe activity).
Some doctors use the Knodell scoring system. This is a somewhat more complex
algorithm that uses three biopsy result components to produce an inflammation
score, and a fourth component to produce a grading score. Three of these
markers are combined to produce the inflammation grade:
0 = no inflammation
1-4 = minimal inflammation
5-8 = mild inflammation
9-12 = moderate inflammation
13-18 = marked inflammation
The fourth component indicates the amount of scarring in the liver and ranges
from 0 (no scarring) through 4 (cirrhosis).
So, at the very least, you should be told which system was used and what your
scores are.
Biopsies are typically used to help make treatment decisions. The wisdom of
this is often debatable: if you have a low score, you may feel (or even be
told by the doctor) that you don't need to attempt treatment yet. But there is
overwhelming treatment data that shows treatment success is inversely related
to biopsy scores. Also, because HCV frequently causes manifestations beyond
liver damage, focusing on liver condition alone can be problematic for overall
patient health.
imho, a biopsy is best used to simply get the patient off the fence and into
treatment - pretty much regardless of the actual score. It makes no sense to
me to wait, if all other conditions are favorable to treatment (insurance
coverage, physician availability, support system availability, overall
physical and mental health, etc).
Cheers
/greyhackles
news - 26 Aug 2009 10:46 GMT
>>> Is there a test result that specifically mentions "HCV"? Or
>>> "Hepatitis"? Or "Virus"?
[quoted text clipped - 68 lines]
>
> /greyhackles
Dear Greyhackles,
Thanks so much for your reply. Quite helpful.
.
.z
otk355@hotmail.com - 23 Aug 2009 16:13 GMT
> Though I have not posted in a really long time, I still read what is
> going on.You have to respect a place that you can voice your feelings
[quoted text clipped - 14 lines]
> Wally's Girl
> (Pattie)
Congrats Wallys girl.I took the same path on my third treatment with
72 weeks of nightly Infergen.My Dragon is dead,buried and gone.
Waterspider - 23 Aug 2009 19:50 GMT
On Aug 16, 10:32 am, wallysgirl <vetts...@ptd.net> wrote:
> Though I have not posted in a really long time, I still read what is
> going on.You have to respect a place that you can voice your feelings
[quoted text clipped - 14 lines]
> Wally's Girl
> (Pattie)
Congrats Wallys girl.I took the same path on my third treatment with
72 weeks of nightly Infergen.My Dragon is dead,buried and gone.
High five to Otk.
otk355@hotmail.com - 06 Sep 2009 13:45 GMT
> <otk...@hotmail.com> wrote in message
>
[quoted text clipped - 26 lines]
>
> - Show quoted text -
Thanks Waterspider :)