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Medical Forum / Diseases and Disorders / Hepatitis / July 2009couldn't feel worse
I've been on this NG since the start of TX about 21 weeks ago. I now have 3 shots left and all indications say that I got this thing licked. I was lucky I had genotype 2b and a low viral load. They gave me a pretty big sword and a relatively short time to kill my baby dragon. My wife has known for some time that she too is infected with the dragon. After some pressure on the powers that be, I got her in to see my hepatologist who is one of the best in Canada. She had her first appointment yesterday and we were both there to start her on the (short) unpleasant trip to wellness. Well, as it turns out, she doesn't have the type 2b geno-type but the more common 1a. This is devastating to us. Now she has to fight the big dragon with the small knife. We really have some tough choices to make now. Wish us luck. You need strength and determination, Chuck as well as luck. I too was 1a and had to do the 48 week. I'm not too sure I'd ever say I felt I was fighting with a Small Knife instead of a Big Sword, tho I did receive as a gift a huge beautiful Dragon Slayer Sword to hang on my wall where it still hangs in honor of the Slain Dragons of the World. Its just a longer more drawn out battle with 1a.... Ball to the wall, head held high, may your wife Forward March.....Best Wishes to both of you > I've been on this NG since the start of TX about 21 weeks ago. I now have 3 > shots left and all indications say that I got this thing licked. I was lucky [quoted text clipped - 7 lines] > devastating to us. Now she has to fight the big dragon with the small knife. > We really have some tough choices to make now. Wish us luck. Good luck. I did 72 weeks, she can do 48;) > I've been on this NG since the start of TX about 21 weeks ago. I now have > 3 shots left and all indications say that I got this thing licked. I was [quoted text clipped - 8 lines] > with the small knife. We really have some tough choices to make now. Wish > us luck. Thanks for your words and prayers. Someone told me "women have more guts, they don't care how big the sword is they'll just stab more furiously". What I meant to say was that the weapon you're using is barely adequate for the fight at hand. Gratefully more weapons will be added to the arsenal soon. You'll need a lot more luck than I did to win your fight. Having almost finished my 24 weeks I can really understand what we all go through in this battle. My hat comes off to all who've fought the battle, be it a long drawn out struggle or just a short walk through the dragon's lair. >> I've been on this NG since the start of TX about 21 weeks ago. I now have >> 3 shots left and all indications say that I got this thing licked. I was [quoted text clipped - 22 lines] > who've fought the battle, be it a long drawn out struggle or just a short > walk through the dragon's lair. This is the first I've heard of women having an easier time of tx than men... sounds like somethng a man made up ;-) Not sure what tough choices you two are facing, but I strongly suggest that your wife hold off on treatment until you finish and take a month or so to recover a bit. Also, please invite her to post here; we're all behind her 100% and it may mean more if not passed on by a third party (you). Your wife is NOT fighting a big dragon with a small knife, and for the majority of people, the weapon is adequate; it works. Your wife is fighting hepatitis C with pegylated interferon/ribavirin, same as you, me and everyone else. Statistically, more Geno 2 patients attain SVR than Geno 1, but statistics are meaningless to the individual. Statistically, women have a better SVR rate than men, whites have a better SVR rate than blacks, and many other factors come into play, such as other health conditions, weight, age, duration of infection and more. Geno 1 is NOT unbeatable. One needs to enter the ring with not only determination, but a positive attitude. Here at ash-c, you'll hear a lot more from people who have failed tx than those who have succeeded. Typically the latter complete do tx, attain SVR and move on, happy to put hep C behind them. Unfortunately, this gives the impression that treatment has been futile for far more people than is the case. Good luck to you on the rest of your treatment, and we look forward to meeting your wife. Waterspider > I've been on this NG since the start of TX about 21 weeks ago. I now have 3 > shots left and all indications say that I got this thing licked. I was lucky [quoted text clipped - 7 lines] > devastating to us. Now she has to fight the big dragon with the small knife. > We really have some tough choices to make now. Wish us luck. Hi Chcuk, I wish you both the best of luck.I did 3 treatments total.48,48, and then 72 weeks of nightly nonpegalted Infergen and ribavirin.It is doable if you have the proper mind set,luck,great caring doctor and most importantly an immune system that will allow it.I have been HCV genotype 1a clear for over 1 year now and i didn't think i could kill the dragon but i did. Good luck and there are some great people here for answers to your questions.............. john > I've been on this NG since the start of TX about 21 weeks ago. I now have 3 > shots left and all indications say that I got this thing licked. I was lucky [quoted text clipped - 7 lines] > devastating to us. Now she has to fight the big dragon with the small knife. > We really have some tough choices to make now. Wish us luck. make sure you don't f.ck.  SignatureErnie <The man on the hill with a mountainous load in his shorts> >> I've been on this NG since the start of TX about 21 weeks ago. I now have 3 >> shots left and all indications say that I got this thing licked. I was lucky [quoted text clipped - 9 lines] > >make sure you don't f.ck. There's not one documented case of sexually transmitted Hep C f.ck your brains out. >>> I've been on this NG since the start of TX about 21 weeks ago. I now have 3 >>> shots left and all indications say that I got this thing licked. I was lucky [quoted text clipped - 13 lines] > >f.ck your brains out. Absolutely correct. It ought to have been instructively obvious enough to even "Ernie & Eythl" ("Eythl"? Really? ;-) that if this couple - with different genotypes - sure as hell didn't infect each other - via f.cking their brains out or otherwise... Cheers /greyhackles On Jul 25, 8:19 am, h...@yahoo.com wrote: > On Sat, 25 Jul 2009 00:08:38 -0700, Ernie & Eythl > [quoted text clipped - 18 lines] > > - Show quoted text - Yep, and as often as you feel up to it! Doing things you enjoy is important during tx! :) I had (love that word, HAD!) Hep C, Genotype 1 (never knew the subtype) for probably 30 years or so. (and had normal sexual relations with my husband during those 30ish years, and during TX, and he never got the virus, plus none of my 4 kids were infected) I had no doubts that I wanted to do the TX, and got going on it as soon as possible. I had a few things come up that slowed me down for about 6 months but finally we started in March of '06. Was a long 48 weeks, of course, but I got through it and I have been testing negative for the virus ever since -- think I am officially "cured" as far as everyone is concerned after 2+ years of testing negative :) It's doable. Come talk to us when you have issues with side effects. Most of the sides are much easier to deal with if you just remember to drink lots and lots of water. Try to drink 1/2 of your body weight in ounces of water every day. I promise, it really helps! Get that grin off your face, Spidey. You knew it was coming :)) Sara >On Jul 25, 8:19 am, h...@yahoo.com wrote: >> On Sat, 25 Jul 2009 00:08:38 -0700, Ernie & Eythl [quoted text clipped - 38 lines] >is concerned after 2+ years of >testing negative :) If you have 2 consecutive tests 6 months apart and they both show 0 viral load you are considered Hep C free. >It's doable. Come talk to us when you have issues with side >effects. Most of the sides are much [quoted text clipped - 5 lines] > >Sara >>On Jul 25, 8:19 am, h...@yahoo.com wrote: >>> On Sat, 25 Jul 2009 00:08:38 -0700, Ernie & Eythl [quoted text clipped - 51 lines] >> >>Sara There are no tests that can determine "zero viral load" - the most sensitive qualitative test currently available has a threshold of 5 IU/ml. Hence, the best one can do is to be "undetectable" at that threshold. Close, but not zero. That said, going undetectable in two of those tests six months apart is the definition of Sustained Viral Response... Cheers /greyhackles >>>On Jul 25, 8:19 am, h...@yahoo.com wrote: >>>> On Sat, 25 Jul 2009 00:08:38 -0700, Ernie & Eythl [quoted text clipped - 63 lines] > >/greyhackles When the test comes back it says "0" viral load. That means it's undetectable. >>>>On Jul 25, 8:19 am, h...@yahoo.com wrote: >>>>> On Sat, 25 Jul 2009 00:08:38 -0700, Ernie & Eythl [quoted text clipped - 66 lines] >When the test comes back it says "0" viral load. That means it's >undetectable. Every vl test I've had since going undetectable 5 years ago listed the test sensitivity threshold and stated the measured load was below the threshold. Never, ever "zero". And that includes multiple qualitative tests using the most sensitive test available... Cheers /greyhackles >>>>>On Jul 25, 8:19 am, h...@yahoo.com wrote: >>>>>> On Sat, 25 Jul 2009 00:08:38 -0700, Ernie & Eythl [quoted text clipped - 75 lines] > >/greyhackles Mine said "0" detected. >>>>>>On Jul 25, 8:19 am, h...@yahoo.com wrote: >>>>>>> On Sat, 25 Jul 2009 00:08:38 -0700, Ernie & Eythl [quoted text clipped - 93 lines] > > Mine said "0" detected. To be fair, "0 detected" is not the same as "0 present," but you might want to ask about this. Ask what's the smallest number they can detect. If it's 5, then the next logical question is, "if you can't detect 4, how can you detect 0?" >>>>>>>On Jul 25, 8:19 am, h...@yahoo.com wrote: >>>>>>>> On Sat, 25 Jul 2009 00:08:38 -0700, Ernie & Eythl [quoted text clipped - 99 lines] >If it's 5, then the next logical question is, "if you can't detect 4, how >can you detect 0?" And "0" detected is the correct medical terminology. I never said "0" present so don't imply I said or meant such. As I said earlier I understand exactly what it means. I started in the medical field back in 1977 and I'm guessing I know as much and probably more than you do about my case. >>>>>>>>On Jul 25, 8:19 am, h...@yahoo.com wrote: >>>>>>>>> On Sat, 25 Jul 2009 00:08:38 -0700, Ernie & Eythl [quoted text clipped - 117 lines] > medical field back in 1977 and I'm guessing I know as much and > probably more than you do about my case. Whoa. I didn't imply that you said anything you didn't. I thought we were discussing the accuracy of a statement on your test results. Congratulations on being "in the medical field" since 1977. I've been in the technical writing field for longer, and am confident in saying that "0" means 0. It does not mean anything less than 5, it means 0. My lab results came back saying "undetectable," which is accurate, and correct medical terminology. And, I'm relieved that you know more about your case than I do; anything else would be downright creepy in a Twilight Zone kinda way :-) > > I've been on this NG since the start of TX about 21 weeks ago. I now have 3 > > shots left and all indications say that I got this thing licked. I was lucky [quoted text clipped - 13 lines] > Ernie > <The man on the hill with a mountainous load in his shorts> this is such BS. do your research please. sara Your doc will prescirbe the standard of care for gtype 1, the 'big sword'. These docs go to university and can add. cactus jammies > I've been on this NG since the start of TX about 21 weeks ago. I now have > 3 shots left and all indications say that I got this thing licked. I was [quoted text clipped - 8 lines] > with the small knife. We really have some tough choices to make now. Wish > us luck. |
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