Medical Forum / Diseases and Disorders / Hepatitis / February 2009
More Hep C Lying/Misinformation
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TX-012 - 05 Feb 2009 07:59 GMT http://www.youtube.com/watch?v=-5vQ28wRtv0
Some posted comments would be appreciated...
Sara - 05 Feb 2009 16:00 GMT > http://www.youtube.com/watch?v=-5vQ28wRtv0 > > Some posted comments would be appreciated... wow. well we all know she's full of it.... tho hep-c CAN be spread by sexual contact, it's not that common and it's certainly not the main cause as she states in this clip.
FWIW, I am pretty sure I had Hep-C for anywhere from 25 to 35 years before I was diagnosed. In that time I got married, (am still married to the same man), had 4 kids, and was plenty sexually active (with my husband).... he never caught it from me, nor were any of my children infected in all those years - which really boggles my mind, to think I could be pregnant, and give birth, and not infect the babies.
is there any way we can get an email address for this bozo? she needs to go back to medical school (if she ever really went!)
Sara
tom - 05 Feb 2009 20:50 GMT On Feb 5, 2:59 am, TX-012 <withba...@aol.com> wrote:
> http://www.youtube.com/watch?v=-5vQ28wRtv0 > > Some posted comments would be appreciated...
>is there any way we can get an email address for this bozo? she >needs to go back to medical school (if she ever really went!)
>Sara Dr. Carol L. Clark, LMHC 11651 W. Biscayne Canal Rd. Miami, FL 33161
Phone: (305) 891-1827
~~~~~~~~~~~~~~~~~~~~~~~~~~
http://drcarolclark.com/
Sara - 05 Feb 2009 21:50 GMT > On Feb 5, 2:59 am, TX-012 <withba...@aol.com> wrote: > [quoted text clipped - 14 lines] > > http://drcarolclark.com/ thanks, Tom! I sent her an email, her site claims she will respond. I'll let you all know if she does :)
Sara
Thip - 07 Feb 2009 02:20 GMT On Feb 5, 3:50 pm, "tom" <~@~.net> wrote:
> "Sara" <norminfishb...@aol.com> wrote in message > [quoted text clipped - 17 lines] > > http://drcarolclark.com/ thanks, Tom! I sent her an email, her site claims she will respond. I'll let you all know if she does :)
Sara
Same here, but I'm afraid I wasn't very nice. My hip is making me a bit short-tempered these days, and I never did suffer fools gladly.
dBo - 09 Feb 2009 21:13 GMT Well thank god to hear we could actually manage live for "a while" with hep c - those of use who lived with it unbeknownst for DECADES must be Super Heros or something....!
What is this woman's PhD in?? Physics Diarrhea ??
Sara - 09 Feb 2009 22:30 GMT > Well thank god to hear we could actually manage live for "a while" > with hep c - those of use who lived with it unbeknownst for DECADES > must be Super Heros or something....! > > What is this woman's PhD in?? Physics Diarrhea ?? I never did get a response from her website... not really surprised
I just HATE that this kind of misinformation is still going out to folks who need to know better :(
Sara
Thip - 09 Feb 2009 23:22 GMT On Feb 9, 4:13 pm, dBo <frizzy...@yahoo.com> wrote:
> Well thank god to hear we could actually manage live for "a while" > with hep c - those of use who lived with it unbeknownst for DECADES > must be Super Heros or something....! > > What is this woman's PhD in?? Physics Diarrhea ?? I never did get a response from her website... not really surprised
I just HATE that this kind of misinformation is still going out to folks who need to know better :(
Sara
She didn't write me either. I told her to open a dialogue with REAL doctors and educate herself before she went handing out medical misinformation.
Sadly, the handbook we use for our Re-entry Skills Building also lumps HCV with the STD's. I go out there every week, tell the inmates I have HCV, and proceed to set them straight.
topcat - 10 Feb 2009 01:37 GMT > On Feb 9, 4:13 pm, dBo <frizzy...@yahoo.com> wrote: > > > Well thank god to hear we could actually manage live for "a while" > > with hep c - those of use who lived with it unbeknownst for DECADES Hey, I checked with the state of Florida licensing board, and there is no record of a Carol Clark having a license in counseling or psychology. Her web site claims she is a licensed mental health counelor with a Ph.D. in Human Sexuality. I have never heard of a doctorate program in human sexuality, although there may be one out there. I think she is an unlicensed quack. I tried to file a complaint with the state regulatory licensing board, but it is a lot of paper work, not like my state, where a simple e-mail would start an investigation. I might get around to filing it out, but it's not on the top of my priority list. Joe
Cactus Jammies - 10 Feb 2009 03:30 GMT Right on, Joe. Good for you!
"topcat" <hopin@live.com> wrote Hey, I checked with the state of Florida licensing board, and there is no record of a Carol Clark having a license in counseling or psychology. Her web site claims she is a licensed mental health counelor with a Ph.D. in Human Sexuality. I have never heard of a doctorate program in human sexuality, although there may be one out there. I think she is an unlicensed quack. I tried to file a complaint with the state regulatory licensing board, but it is a lot of paper work, not like my state, where a simple e-mail would start an investigation. I might get around to filing it out, but it's not on the top of my priority list. Joe
Thip - 09 Feb 2009 23:20 GMT > Well thank god to hear we could actually manage live for "a while" > with hep c - those of use who lived with it unbeknownst for DECADES > must be Super Heros or something....! > > What is this woman's PhD in?? Physics Diarrhea ?? Piled higher and Deeper. And representing herself as a "Doctor," which she is, in the academic sense, but can be confusing for people who don't appreciate the distinction.
tom - 10 Feb 2009 18:09 GMT > On Feb 5, 2:59 am, TX-012 <withba...@aol.com> wrote: >> http://www.youtube.com/watch?v=-5vQ28wRtv0 [quoted text clipped - 15 lines] > > http://drcarolclark.com/ Received this response but haven't replied yet:
Hello Tom and Sara, I'm sorry I did not respond to your emails sooner, I've been out of touch with the internet for the past week.
I am very concerned about any misinformation I gave on the EHow videos and would like to rectify that. I have heard from a couple of other folks as well and so I want to address this. I am not sure what information was incorrect and would be grateful if you could refer me to the specific video(s) so I may look at them and see if I can either correct the information or simply pull them altogether.
At the time of taping the videos, I was doing 60 or so that addressed a few topics from many different perspectives. It was challenging to give accurate information in a short format that addressed the issues, such as STDs. As is the case with many issues in our lives, those who are personally affected are the real experts.
I will appreciate any resources you would like to pass along and again, if you can direct me to the specific video that caused you concern, I will make every attempt to correct it.
Be In Light
Carol
Carol L. Clark, PhD, LMHC, CAP
www.DrCarolClark.com
(305)891-1827
Sara - 10 Feb 2009 19:38 GMT > > On Feb 5, 2:59 am, TX-012 <withba...@aol.com> wrote: > >>http://www.youtube.com/watch?v=-5vQ28wRtv0 [quoted text clipped - 50 lines] > > - Show quoted text - Tom -- thanks for posting. I hope you all send her some good links for valid HepC info now :)
Sara
tom - 10 Feb 2009 21:25 GMT >> On Feb 5, 2:59 am, TX-012 <withba...@aol.com> wrote: >>> http://www.youtube.com/watch?v=-5vQ28wRtv0 [quoted text clipped - 25 lines] > you can direct me to the specific video that caused you concern, I will > make every attempt to correct it. Another response:: I am responding to the emails I have received regarding the Hep C video from Expert Village. First, I would like to assure everyone that the producers at Demand Media are acting to remove the video as quickly as possible, although it may take a day or two.
I would also like to apologize for any offense resulting from the information I provided. The purpose of many of the video clips I did were to help people be safe - that is always my primary goal. I took the information from the textbook I have used in the past to teach Human Sexuality, which is "Sexuality Today: Human Perspectives," 8th edition, by Gary F. Kelly, 2006. Since receiving your emails, I have consulted an even more recent text which reflects the information some of you have provided to me.
If you have any further concerns you would like to address, I will be happy to provide you with a name and phone number to call.
Again, my sincere apologies.
Be In Light
Carol
Carol L. Clark, PhD, LMHC, CAP
www.DrCarolClark.com
(305)891-1827
greyhackles - 10 Feb 2009 21:59 GMT >>> On Feb 5, 2:59 am, TX-012 <withba...@aol.com> wrote: >>>> http://www.youtube.com/watch?v=-5vQ28wRtv0 [quoted text clipped - 55 lines] > >(305)891-1827 And POOF! The video is gone baby gone...
/greyhackles (who think she should change that to "Be Enlight" ;-)
Cactus Jammies - 11 Feb 2009 00:28 GMT > And POOF! The video is gone baby gone... > > /greyhackles (who think she should change that to "Be Enlight" ;-) Good action, friends. See we don't always tear at each other, we can tear at the outsides too. Out there in the Light. I used to feel like I was in a grotto, in a horse-hair shirt when I did combo therapy. Switched to cotton and actually was out in the sun for a bit to-day.
Great stuff, TX for being such a hound dog. And thanks to everyone who believed that sending e-mail to her address would result in something. The world tends to be very cynical at times, and this is one time when a few e-mails made the difference.
~~ cactus jammies ~~
topcat - 11 Feb 2009 01:27 GMT > And POOF! The video is gone baby gone... > > /greyhackles (who think she should change that to "Be Enlight" ;-)- Hide quoted text - Hey Grey, where you been? glad to see you're still among us, thought maybe you got stoned and missed all the fun!!!:)
Did she mean live and "light up"?
greyhackles - 11 Feb 2009 02:22 GMT >> And POOF! The video is gone baby gone... >> [quoted text clipped - 4 lines] > >Did she mean live and "light up"? It would surely help her. Jeeze, what a dumb a.s.
Yeah, I'm still here - never left, actually. I just tend to avoid threads that are off topic...
Good to see you're just a few strides short of the finish line. Hope your tests have been encouraging along the way and you've kilt that dragon dead!
Cheers
/greyhackles
Thip - 10 Feb 2009 23:12 GMT >> On Feb 5, 2:59 am, TX-012 <withba...@aol.com> wrote: >>> http://www.youtube.com/watch?v=-5vQ28wRtv0 I got an answer. I think she knows she's in some doo-doo.
Be In Light??!
I am responding to the emails I have received regarding the Hep C video from Expert Village. First, I would like to assure everyone that the producers at Demand Media are acting to remove the video as quickly as possible, although it may take a day or two.
I would also like to apologize for any offense resulting from the information I provided. The purpose of many of the video clips I did were to help people be safe - that is always my primary goal. I took the information from the textbook I have used in the past to teach Human Sexuality, which is "Sexuality Today: Human Perspectives," 8th edition, by Gary F. Kelly, 2006. Since receiving your emails, I have consulted an even more recent text which reflects the information some of you have provided to me.
If you have any further concerns you would like to address, I will be happy to provide you with a name and phone number to call.
Again, my sincere apologies.
Be In Light
Carol
Carol L. Clark, PhD, LMHC, CAP
www.DrCarolClark.com
(305)891-1827
Cactus Jammies - 05 Feb 2009 17:10 GMT > http://www.youtube.com/watch?v=-5vQ28wRtv0 > > Some posted comments would be appreciated... Hi Tx Thanks for pointing out the false values video. I did a related video check and found this one to be a lot more in tune with what most of us regard as how Hep C is communicated: http://www.youtube.com/watch?v=DM6V_OSHx3s&feature=related . If you look on the column on the right side, other related videos are listed there. There are a lot of them. The one you posted to the group was distributed/created by expertvillage.com a garage band type of production company with limited intellectual assets.
these are comments from viewers of the expertvillage bilgewater:
This nitwit serves as a demonstrably cautionary example of charlatans on Youtube.
Kirsner72 (8 hours ago) She's very confused. The statement that HCV is more easily transmitted (sexually) than HIV is laughable; HIV is transmitted from semen & other body fluids to blood, HCV is only transmitted blood-to-blood. Hence, while HIV is often sexually transmitted, HCV is almost never acquired sexually, for example--long term studies of couples (1 pos, 1 neg) engaging in unprotected sex over decades show no transmission whatsoever...
WithBACON (9 hours ago)
Hep C is NOT an STD by any reasonable definition. It is sexually transmitted, but very, VERY rarely. As such, condoms are generally NOT recommended, as the risk of sexual transmission is astronomically low. Hep B, on the other hand, is an STD; perhaps the poster was confused. WithBACON (9 hours ago) Show Hide 0 Marked as spam Reply Hep C is NOT and STD by any reasonable definition. It is sexually transmitted, but very, VERY rarely. As such, condoms are generally NOT recommended, as the risk of sexual transmission is astronomically low. Hep B, on the other hand, is an STP; perhaps the poster was confused.
cactus jammies (like fish in a barrel)
Cactus Jammies - 18 Feb 2009 02:33 GMT wait a minute, wait a minute... I pulled this from the HCV Advocate Feb 11 News... includes a description of sexual conduct that could result in HCV infections
Forum addresses sex and hep C http://www.ebar.com Liz Highleyman liz@black-rose.com
No one was more surprised than Tom Kelly when he was diagnosed - not once but twice - with hepatitis C.
"I thought I was safe," he said at a recent community forum on sex and hep C. "I didn't do IV drugs and I thought I couldn't get it, but I got it anyway."
Organized by an informal group of community members with the assistance of the San Francisco Department of Public Health, the January 27 forum at the LGBT Community Center brought out nearly 150 participants, underlining the growing concern about an emerging new epidemic.
A growing epidemic Kelly is among a growing number of people - mostly HIV-positive gay men - who appear to have contracted hepatitis C virus (HCV) through sex.
"It's a lot like deja vu all over again," said Dr. Michael Allerton of Kaiser Permanente, "but the big difference is that we have a test and treatment for HCV," unlike the early years of HIV.
About 3.2 million people in the U.S. have chronic hepatitis C, compared to about 1.1 million with HIV. Over time chronic HCV infection can cause liver cirrhosis or cancer, but it often remains asymptomatic for years, and many people do not realize they are infected.
Historically, most hep C cases have been linked to blood transfusions, accidental exposure in health care settings, and sharing needles and other injection drug equipment. Thanks to greater awareness and precautions, the overall number of new HCV infections has fallen dramatically - to about 19,000 cases annually, compared to more than 50,000 for HIV - but the epidemic seems to be expanding among gay and bisexual men.
Starting in 2002, researchers began reporting unusual clusters of acute, or recently acquired, hepatitis C in HIV-positive men who have sex with men, first in London and then in other large European cities. These clusters have since grown to include several hundred men, and genetic analysis of their HCV strains has shown closely related virus among men in common sexual networks.
Dr. Brad Hare of the Positive Health Program at San Francisco General Hospital reported some of the first similar cases in the U.S., starting around 2006. Today, he said, 42 percent of HIV-positive men in his program are coinfected with HCV, with a majority reporting only sexual risk factors.
Allerton reported that 10 percent of HIV-positive patients at Kaiser also have HCV. In an informal survey, Kaiser doctors estimated that 70 percent to 100 percent of these individuals likely contracted HCV through sex, and Kaiser now considers hep C a sexually transmitted disease.
But this view is not yet widely shared. Several speakers and audience members recounted providers who refuse to authorize HCV antibody tests for people who have never injected drugs, and some were even unaware that effective treatment is available.
What's sex got to do with it? Traditionally - and this is still the position of the Centers for Disease Control and Prevention - experts have maintained that HCV is rarely spread through sex, a claim based on studies of monogamous HIV-negative heterosexual men and women, who have a sexual transmission rate under 5 percent.
But this low figure does not apply to other groups. Most of the recent apparently sexually transmitted cases have occurred among HIV-positive men who have sex with men, but in 2007 researchers in Brighton, U.K., reported a handful of cases among HIV-negative gay men screened at a sexually transmitted disease clinic.
HIV-positive people taking antiretroviral therapy receive regular medical monitoring that can reveal HCV-related liver inflammation at the earliest stages of infection in people with no symptoms. Since HIV-negative people usually don't get regular HCV tests, their rate of acute infection is unknown. Magnet director Steve Gibson said his agency will be teaming up with the DPH to test all HIV-negative clients for HCV.
"I think if we start looking for it, we're going to start finding it," Allerton predicted.
Epidemiological studies of European and American acute hepatitis C clusters have found an association with sex practices including so-called rough sex, fisting, rimming, unprotected anal intercourse, group sex, and sharing sex toys, as well as nasal use of recreational drugs.
HCV is harder to kill than HIV, and can live longer in blood outside the body. Microscopic amounts of blood on surfaces and equipment - including whips, canes, urethral sounds, and needles for play piercing - can potentially spread the virus.
"BDSM involves a lot of potential for blood exposure," said Larry Shockey, who hosts the Hell Hole fisting parties. But if you're not into that, don't assume the warning doesn't apply to you. "Say you consider yourself completely vanilla, but you like shaving scenes. You can get blood on your sheets from a cut. Or if you bite somebody's nipple and it bleeds, and your lips are chafed."
At his events, Shockey strongly encourages gloves for fisting and uses a strong quaternary disinfectant on all play equipment before and after each use.
"I sound like Nancy Reagan, but if someone wants to do something with you that involves [unprotected] blood contact, just say no," said Kelly, after describing his struggles with the notoriously difficult side effects of pegylated interferon and ribavirin hep C treatment. "If I'd have known I could have worn a glove to avoid this, it would have been so worth it!"
Time to get active Forum participants also raised the issue of hepatitis C advocacy and activism.
"Within the HIV community, we've built a great system of care through advocacy, but that's not the case if you have any other disease," said Ryan Clary of Project Inform. "If you have HCV but are not [HIV] coinfected and are uninsured, you may not be able to access care."
Project Inform is expanding its hepatitis C work at the national, state, and local levels. Nationally, the Hepatitis C Advocates United network is campaigning for increased funding and a comprehensive federal hepatitis C research and prevention program. Locally, District 8 Supervisor Bevan Dufty has called for a Board of Supervisors hearing on the issue.
"We need a sex positive movement. We don't want to follow the HIV example, saying have fewer sex partners, stay home, and jack off," Shockey concluded. "If you're sexually active, get tested for HCV. We need the public health community to help us with testing and treatment so we can protect each other."
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cactus jammies
Dwight - 18 Feb 2009 03:53 GMT > wait a minute, wait a minute... I pulled this from the HCV Advocate Feb > 11 News... [quoted text clipped - 139 lines] > > cactus jammies I may be naive, but it still sounds like contaminated blood is the culprit not any other body fluids. I would still expect the rate of infection to be less than that of sharing a needle or blood transfusion.
Dwight
Waterspider - 18 Feb 2009 19:25 GMT >> wait a minute, wait a minute... I pulled this from the HCV Advocate Feb >> 11 News... [quoted text clipped - 142 lines] > be less than that of sharing a needle or blood transfusion. > Dwight You're right, Dwight, it would be lower; blood-to-blood contact transmission implies a way for the blood to get into the circulatory system, and injections are guaranteed to do the job. I'm always dismayed when HCV is lumped in with AIDS as an STD. It's misleading and, well, just wrong. It's like saying that hockey causes Hep C.
Too bad the medical professionals aren't responsible enough to be accurate, to say that only rough and bloody sex (which isn't limited to homosexual men btw) is high risk for HCV.
WS
Cactus Jammies - 18 Feb 2009 20:50 GMT Hey you guys, blood transfer is implied in more than one paragraph. It is the potential for this type of exposure that the article addresses, I believe. And it should be mentioned. Every time this comes up (ie: sex while hep C positive, it has to be spelled out, blood to blood.) I cut to the appropriate paragraphs. Also, this particular article was taken from a conference on HIV AIDS and co-infection. There is a target audience. And epidemiological evidence points to a (minor compared to overall) infection. How do you know that some gay people reading this could have learned, or had questions?
cactus jammies
>>> Epidemiological studies of European and American acute hepatitis C >>> clusters have found an association with sex practices including [quoted text clipped - 13 lines] >>> blood on your sheets from a cut. Or if you bite somebody's nipple and it >>> bleeds, and your lips are chafed." and finally:
>>> "I sound like Nancy Reagan, but if someone wants to do something with >>> you that involves [unprotected] blood contact, just say no," said Kelly, >>> after describing his struggles with the notoriously difficult side >>> effects of pegylated interferon and ribavirin hep C treatment. "If I'd >>> have known I could have worn a glove to avoid this, it would have been >>> so worth it!"
>> I may be naive, but it still sounds like contaminated blood is the >> culprit not any other body fluids. I would still expect the rate of [quoted text clipped - 12 lines] > > WS Sara - 18 Feb 2009 21:10 GMT On Feb 18, 3:50 pm, "Cactus Jammies" <cactusjamm...@retinalcircus.orb> wrote:
> Hey you guys, blood transfer is implied in more than one paragraph. It is > the potential for this type of exposure that the article addresses, I [quoted text clipped - 53 lines] > > - Show quoted text - the thing is, none of us is saying that hep-c cannot be sexually transmitted. we just want folks to understand that it is quite rare to pass it on that way and that most of us did not contract the virus that way.
Just like we'd like folks to understand that not all of us who were infected got it because we are junkies.
I had a girlfriend who, when I told her I had Hep-C, asked me not to let her husband know that because he wouldn't want her to hang out with me anymore if he knew. heh
then there was my old doctor that I used to go to ... I went in there with my son one day and I mentioned to him that all those times he did blood tests on me and said "your liver enzymes are a little high, we need to keep an eye on that", that there was a reason why the tests were coming back high! I told him I had hep-c, and that I was only mentioning it to him now because I thought he needed to be more careful and test for that when folks have suspicious blood test results. His response? "I didn't think that YOU would be a candidate for Hep C".
stupid stupid stupid. I don't know how I got it for sure, and risky behavior as a teen sure could have been one reason. Kind of sad that folks can "judge" us for what we did in the past eh? or even for what we did yesterday, when it comes down to it. I try not to be judgemental of other folks lifestyles (I need to try harder!), and I really do resent when folks make instant judgements about me when they know nothing about me except for the one fact that they are dealing with 'right now'.
anyway, I guess this qualifies as a "babble" huh. See Joe.... I'm still at it!
sara
Dwight - 18 Feb 2009 21:37 GMT > Hey you guys, blood transfer is implied in more than one paragraph. It > is the potential for this type of exposure that the article addresses, I [quoted text clipped - 51 lines] >> >> WS CJ, I wasn't trying to contradict the study. All I was trying to say is that I never considered sex a blood sport. Yes, I really am that naive.
Dwight
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