I have a liver doctor and a kidney doctor. Some of the labs they want
are the same. I also live about an hours drive from the hospital. I
have been combining trips, but I think that might not be a good idea.
A couple of weeks ago I went for a dual visit. I had just gotten over
a sore throat and I had a terrible head cold. My kidney doctor said
that my white blood count was low. He took me off Cellcept, and
wanted me to repeat my labs in a week. He also said to mention my
white blood count to my liver doctor. Well my liver doctor was not
there, and I spoke to an RN maybe. I am not sure exactly what her
title is. She really didn't have much to say about my count except
she thought it was a good idea to have labs repeated, too.
I had labs done here locally and faxed to the hospital last Friday
around 10 AM. Around 4PM I got the shivers really bad. I called and
asked if they had my lab results, and complained about the shivering
and a fever. The labs had not made it to them yet, but they told me
to go to the emergency room because of the shivering and fever.
I showed up at the emergency room around 6PM. They called me back to
the patient area, did a electrocardiogram, put in an IV, and sent me
back to the ER waiting room. I sat in the ER for 4 or 5 hours before
they put me in a temporary bed. Around 4AM they carried me up to a
permanent room. I stayed in the hospital for 5 days. During that
time, I found out at that my white blood count from the week before
was 0.7. During the hospital stay they gave me Neupogen and got my
count up to 2 and let me go. They still don't know the cause. Follow
up labs yesterday show my count is back down to 1.2 and I got another
Neupogen shot. I get labs again here locally tomorrow.
The thing I am pondering most, other than the cause, is how two
doctors could send me home with a 0.7 blood count? The next week, I
sat in the ER with other sick people for 5 hours. When I got to a
temporary room they did give me a face mask. That seems a little too
late. Everyone that came in my permanent room had to put on a mask. I
didn't find out until I was in the hospital that 0.7 is not just low,
it's critical.
TX-012 - 22 Jan 2009 19:36 GMT
> I have a liver doctor and a kidney doctor. Some of the labs they want
> are the same. I also live about an hours drive from the hospital. I
[quoted text clipped - 32 lines]
> didn't find out until I was in the hospital that 0.7 is not just low,
> it's critical.
If you live in the LA area, I have some extra NEUPOGEN...
metspitzer - 22 Jan 2009 20:38 GMT
>> I have a liver doctor and a kidney doctor. Some of the labs they want
>> are the same. I also live about an hours drive from the hospital. I
[quoted text clipped - 34 lines]
>
>If you live in the LA area, I have some extra NEUPOGEN...
I live near Atlanta.
Thanks for the offer though.
dBo - 22 Jan 2009 21:01 GMT
Wow. I can relate to your dismay! I remember after being on the edge
of critical for months, when my doc finaly called on the phone and
asked for me. My brother said I was at work and doc replied" At work??
I can't believe she is on her FEET!!"
And yes, despite being on Neupogen for the next few months, I still
ende up with pneumonia, so don't take your fears lightly or as
paranoia!!! If I were you, I'd hit the drug store and boy myself a
package of those masks to keep with me for such occassions like when
you have to be in a doctors office, or the hospital emergency room
where you might be getting exposed to God Know What!! I mean I know
there is only so much one can do, you can't totally isolate, but those
situations have real potential for exposure to many other nasty
germs..... Deb