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Medical Forum / Diseases and Disorders / Hepatitis / January 2009

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whoa!  WTF indeed, but can we try again?

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Sara - 07 Jan 2009 01:28 GMT
Wow, where did all those bad feelings come from?   We have some
hoarders in the group I guess!  I'm here to ask that we all try to
work together and make this the best damn NG on the net again!
Shouldn't be too hard, all we gotta do is let bygones be bygones, and
remember that we all have one very important thing in common -- the
desire to totally destroy that Dragon that we know as Hepatitis-C!

Spidey, I appreciated your message from the other night, and agree
wholeheartedly that it's time for us to bring some life back to this
newsgroup and start making an effort again to HELP others who are
dealing with that dragon.   Many of us have been around for a while
now, and while we've had our personal issues to deal with, it's so
important to remember that in the most important ways, we are very
much alike and we need each other.   Can we all work together again to
educate, support, share, and lighten the load for those who are
struggling with very very heavy burdens caused by that HepC virus?

Well, I know we CAN do it.... but will we?   I'll try to do my part.
Many of you have been doing your part all along.   We need more help
though, and we need to remember that no matter our differences, we
really are the same.

and I am babbling :)    as usual, my two cents worth turned into ten
cents worth, but it's probably really only worth a penny, lol.   Just
please, let's try to make this a nice place to visit again -- I know
that I really miss the good info, the stories so many of you shared,
the pieces of yourselves you gave to us to take care of and
appreciate.   We need to remember to keep this a safe place for folks
to come and open up and share their hopes and fears -- if we can do
that, we can be a great NG again.

hugs to all
Sara
Waterspider - 07 Jan 2009 01:51 GMT
> Wow, where did all those bad feelings come from?   We have some
> hoarders in the group I guess!  I'm here to ask that we all try to
[quoted text clipped - 29 lines]
> hugs to all
> Sara

Sara, this is a historical moment in alt.support.hepatitis-c... you actually
made a post without telling people to drink water!
Seriously, I agree with every word of your post; it's a good one. I too miss
the stories, the details, the personal glimpses and the friendly atmosphere.
I especially agree that we need to let bygones be bygones, focus on the big
picture that we've got a whole lot in common here. Petty differences are
just that: petty. I seem to remember that you and I got off on the wrong
foot too, but that resolved itself as we got to know each other a bit
better.
WS
Sara - 07 Jan 2009 03:30 GMT
> > Wow, where did all those bad feelings come from?   We have some
> > hoarders in the group I guess!  I'm here to ask that we all try to
[quoted text clipped - 42 lines]
>
> - Show quoted text -

chuckling....
not to mention once Riba disappeared from the picture :)

S
dBo - 07 Jan 2009 20:38 GMT
Ah yes the Good Old Days of Riba...

Standing in front of the ATM with no CLUE what my PIN number was(only
had it for 20 years!)...

Missing cell phone message for months because I either could not
remember my PIN, or punch it in right...

Ripping the bottom of my car radiator off driving up over a curb while
parking...

Mailing credit card payments to myself instead of the Credit Card
companies after switching the envelopes...

Reading the same Mary Higgins Clark mystery for MONTHS and not
finishing it... then picking the same book up a months or so after TX
and reading it cover to cover in two nights flat...YES IT DOES go
away :)

Laughing at ELMO...and others

Sleeping from Friday night until  Monday morning...

Stopping to rest three times going up a flight of stairs....

The horrible hack-up-a-lung COUGH my docs said was COPD, NOT a side
effect of TX, that myteriously was gone a month after TX ended....

Jeez listen to me, you'd almost think I MISS those good old
days.... ;)

This much I know - cured or not cured, Life goes on until it is over
for each of us. Good days and bad. Tires still go flat. Ice storms
still happen...people lose jobs and homes. Grandchildren come to
visit. The trees still bloom in the Spring and the
sun still comes up each morning.

Thank you all for being here. ~Deb
Sara - 07 Jan 2009 22:01 GMT
> Ah yes the Good Old Days of Riba...
>
[quoted text clipped - 34 lines]
>
> Thank you all for being here. ~Deb

A wonderful post :)  thanks, Deb!   I'll add some of my 'adventures'
later too, but right now I have groceries to put away.   Can you
believe it -- I can actually go grocery shopping, AND put away the
groceries, AND cook a meal, all in the same day now!   yeah, we've
come a long way since our TX days.

BTW, I just got my blood rechecked because my 2 yr checkup was a
little weird.... quant and qualitative both came back -- the dragon is
DEAD!   I'm starting to believe it after 2 1/2 years :))  funny how we
all tend not to quite trust that wily beast to stay gone tho....

Sara
Cactus Jammies - 07 Jan 2009 22:44 GMT
You know, there are on-line real time groups at Delphi... full of heppers,
on tx, recovering, waiting for it or wondering about their MELD scores and
transplant possibilities.  A lot of the chat is just gabbing about this that
and the other thing.  Stuff you would talk to your neighbour about while
shopping or over the phone to a cousin.  Plain visiting as well as the more
serious side of this affliction.  The various chat rooms each have their own
sponsors and co-managers.  If some of you are looking to be able to visit
while suffering as a hepper leper, please check out the chats at Delphi.
Each of them has their own message posting section where news about
developments in research and just plain human stuff abound.  There is a
shortage of west coasters in them, the easterners all go to bed at 5 pm.

http://www.delphiforums.com/

cactus jammies
Paul - 08 Jan 2009 15:17 GMT
On Wed, 07 Jan 2009 22:44:31 GMT, "Cactus Jammies"
<cactusjammies@retinalcircus.orb>, in message ID
<jfa9l.3644$PH1.1199@edtnps82>, in the newsgroup
alt.support.hepatitis-c wrote:

>You know, there are on-line real time groups at Delphi... full of heppers,
>on tx, recovering, waiting for it or wondering about their MELD scores and
[quoted text clipped - 11 lines]
>
>cactus jammies

I found that site a major source of support too.  I have actually met
some of the people (the ones in the UK anyway).  We last met up about
a year ago on a bitterly cold night for a meal on the south coast
(yeah I know you Merkins don't have one but us Brits do so live with
it  :-)  )  .  Although I never met most of the people on there in
real life, those bits of text on the screen became my friends.  Some
were nuts, some were working at being nuts, some were trying not to be
nuts.
I fired up the chat window while I did my first shot because I was
scared.  It felt weird when nothing terrible instantly happened.  I
suppose that deep down I was expecting the instant gratification that
I had got from fixing many years before.  I shared laughs with them
like the night I attempted to eat a steamed sponge pudding and binned
the lot within a minute because I was just too dry to manage it.  Even
the first mouthful went in the bin.  Don't think I actually got around
to swallowing any.  How we laughed at that.  Doesn't sound
particularly funny now but at the time, anything vaguely humorous was
a welcome respite.
Although I got some early respite from the ravages that tx can bring,
as the weeks rolled into double digits and teens, the long, grinding,
relentless reality of tx started to dawn.  I actually went to buy some
new underwear because I just couldn't be arsed to sort out the washing
machine.  There was nothing wrong with the machine - just a bit of
powder and press a few buttons.  But such mental excercise was
exhausting.  On the day I took my last riba pill, there were bags of
unwashed clothes all around my flat (that's an apartment to you
Merkins) and many of the unwashed clothes didn't even get as far as a
bag.
There were whole weeks when I shut the curtains, the windows too (it
was Summer) and sat there wishing time away.  I no longer calculated
time by the calendar.  It was done by counting how many little white
boxes were left.
The really crazy thing about this is that I BELIEVED I WAS ALRIGHT.
For much of the last couple of months of tx, I lived my life through a
computer screen.
I finished off two vans while on tx.  One developed a major fault and
was old so beyond economical repair.  I had to get it together to find
a replacement.  I crashed that - nearly wrote it off.  The insurer
repaired it though.
Then that day came that I took the last pill.  I wanted to feel better
the next morning.  Tx isn't like that though.  It took a little while
to start climbing out of the hole.  My anger management left a fair
bit to be desired for a few months too.
I had real life friends too.  Many of them.  But I needed to isolate
for periods.  Many of them had done tx.  Some were yet to do it and
one (since deceased) was actually doing it at the same time as me.
I used drugs addictively for quite a few years in my misspent youth
but even that wasn't as bizarre as tx.
topcat - 09 Jan 2009 06:04 GMT
> > BTW, I just got my blood rechecked because my 2 yr checkup was a
> little weird.... quant and qualitative both came back -- the dragon is
> DEAD!   I'm starting to believe it after 2 1/2 years :))  funny how we
> all tend not to quite trust that wily beast to stay gone tho....
> Sara-

SARA!! Congrats on hitting the 2.5 mark.  I'm happy for you.  now that
I am getting close to the end, I am worrying about whether or not I've
killed it for good.  The dr's say it looks good, but have to wait and
see.  Take Care young lady.
tc
Russian - 12 Jan 2009 08:26 GMT
> Ah yes the Good Old Days of Riba...

Crying watching Transporter 2 on cable when his buddy from the old days,
a 1-dimensional character introduced about 10 minutes earlier, gets
killed...

!
 
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