Medical Forum / Diseases and Disorders / Hepatitis / January 2009
whoa! WTF indeed, but can we try again?
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Sara - 07 Jan 2009 01:28 GMT Wow, where did all those bad feelings come from? We have some hoarders in the group I guess! I'm here to ask that we all try to work together and make this the best damn NG on the net again! Shouldn't be too hard, all we gotta do is let bygones be bygones, and remember that we all have one very important thing in common -- the desire to totally destroy that Dragon that we know as Hepatitis-C!
Spidey, I appreciated your message from the other night, and agree wholeheartedly that it's time for us to bring some life back to this newsgroup and start making an effort again to HELP others who are dealing with that dragon. Many of us have been around for a while now, and while we've had our personal issues to deal with, it's so important to remember that in the most important ways, we are very much alike and we need each other. Can we all work together again to educate, support, share, and lighten the load for those who are struggling with very very heavy burdens caused by that HepC virus?
Well, I know we CAN do it.... but will we? I'll try to do my part. Many of you have been doing your part all along. We need more help though, and we need to remember that no matter our differences, we really are the same.
and I am babbling :) as usual, my two cents worth turned into ten cents worth, but it's probably really only worth a penny, lol. Just please, let's try to make this a nice place to visit again -- I know that I really miss the good info, the stories so many of you shared, the pieces of yourselves you gave to us to take care of and appreciate. We need to remember to keep this a safe place for folks to come and open up and share their hopes and fears -- if we can do that, we can be a great NG again.
hugs to all Sara
Waterspider - 07 Jan 2009 01:51 GMT > Wow, where did all those bad feelings come from? We have some > hoarders in the group I guess! I'm here to ask that we all try to [quoted text clipped - 29 lines] > hugs to all > Sara Sara, this is a historical moment in alt.support.hepatitis-c... you actually made a post without telling people to drink water! Seriously, I agree with every word of your post; it's a good one. I too miss the stories, the details, the personal glimpses and the friendly atmosphere. I especially agree that we need to let bygones be bygones, focus on the big picture that we've got a whole lot in common here. Petty differences are just that: petty. I seem to remember that you and I got off on the wrong foot too, but that resolved itself as we got to know each other a bit better. WS
Sara - 07 Jan 2009 03:30 GMT > > Wow, where did all those bad feelings come from? We have some > > hoarders in the group I guess! I'm here to ask that we all try to [quoted text clipped - 42 lines] > > - Show quoted text - chuckling.... not to mention once Riba disappeared from the picture :)
S
dBo - 07 Jan 2009 20:38 GMT Ah yes the Good Old Days of Riba...
Standing in front of the ATM with no CLUE what my PIN number was(only had it for 20 years!)...
Missing cell phone message for months because I either could not remember my PIN, or punch it in right...
Ripping the bottom of my car radiator off driving up over a curb while parking...
Mailing credit card payments to myself instead of the Credit Card companies after switching the envelopes...
Reading the same Mary Higgins Clark mystery for MONTHS and not finishing it... then picking the same book up a months or so after TX and reading it cover to cover in two nights flat...YES IT DOES go away :)
Laughing at ELMO...and others
Sleeping from Friday night until Monday morning...
Stopping to rest three times going up a flight of stairs....
The horrible hack-up-a-lung COUGH my docs said was COPD, NOT a side effect of TX, that myteriously was gone a month after TX ended....
Jeez listen to me, you'd almost think I MISS those good old days.... ;)
This much I know - cured or not cured, Life goes on until it is over for each of us. Good days and bad. Tires still go flat. Ice storms still happen...people lose jobs and homes. Grandchildren come to visit. The trees still bloom in the Spring and the sun still comes up each morning.
Thank you all for being here. ~Deb
Sara - 07 Jan 2009 22:01 GMT > Ah yes the Good Old Days of Riba... > [quoted text clipped - 34 lines] > > Thank you all for being here. ~Deb A wonderful post :) thanks, Deb! I'll add some of my 'adventures' later too, but right now I have groceries to put away. Can you believe it -- I can actually go grocery shopping, AND put away the groceries, AND cook a meal, all in the same day now! yeah, we've come a long way since our TX days.
BTW, I just got my blood rechecked because my 2 yr checkup was a little weird.... quant and qualitative both came back -- the dragon is DEAD! I'm starting to believe it after 2 1/2 years :)) funny how we all tend not to quite trust that wily beast to stay gone tho....
Sara
Cactus Jammies - 07 Jan 2009 22:44 GMT You know, there are on-line real time groups at Delphi... full of heppers, on tx, recovering, waiting for it or wondering about their MELD scores and transplant possibilities. A lot of the chat is just gabbing about this that and the other thing. Stuff you would talk to your neighbour about while shopping or over the phone to a cousin. Plain visiting as well as the more serious side of this affliction. The various chat rooms each have their own sponsors and co-managers. If some of you are looking to be able to visit while suffering as a hepper leper, please check out the chats at Delphi. Each of them has their own message posting section where news about developments in research and just plain human stuff abound. There is a shortage of west coasters in them, the easterners all go to bed at 5 pm.
http://www.delphiforums.com/
cactus jammies
Paul - 08 Jan 2009 15:17 GMT On Wed, 07 Jan 2009 22:44:31 GMT, "Cactus Jammies" <cactusjammies@retinalcircus.orb>, in message ID <jfa9l.3644$PH1.1199@edtnps82>, in the newsgroup alt.support.hepatitis-c wrote:
>You know, there are on-line real time groups at Delphi... full of heppers, >on tx, recovering, waiting for it or wondering about their MELD scores and [quoted text clipped - 11 lines] > >cactus jammies I found that site a major source of support too. I have actually met some of the people (the ones in the UK anyway). We last met up about a year ago on a bitterly cold night for a meal on the south coast (yeah I know you Merkins don't have one but us Brits do so live with it :-) ) . Although I never met most of the people on there in real life, those bits of text on the screen became my friends. Some were nuts, some were working at being nuts, some were trying not to be nuts. I fired up the chat window while I did my first shot because I was scared. It felt weird when nothing terrible instantly happened. I suppose that deep down I was expecting the instant gratification that I had got from fixing many years before. I shared laughs with them like the night I attempted to eat a steamed sponge pudding and binned the lot within a minute because I was just too dry to manage it. Even the first mouthful went in the bin. Don't think I actually got around to swallowing any. How we laughed at that. Doesn't sound particularly funny now but at the time, anything vaguely humorous was a welcome respite. Although I got some early respite from the ravages that tx can bring, as the weeks rolled into double digits and teens, the long, grinding, relentless reality of tx started to dawn. I actually went to buy some new underwear because I just couldn't be arsed to sort out the washing machine. There was nothing wrong with the machine - just a bit of powder and press a few buttons. But such mental excercise was exhausting. On the day I took my last riba pill, there were bags of unwashed clothes all around my flat (that's an apartment to you Merkins) and many of the unwashed clothes didn't even get as far as a bag. There were whole weeks when I shut the curtains, the windows too (it was Summer) and sat there wishing time away. I no longer calculated time by the calendar. It was done by counting how many little white boxes were left. The really crazy thing about this is that I BELIEVED I WAS ALRIGHT. For much of the last couple of months of tx, I lived my life through a computer screen. I finished off two vans while on tx. One developed a major fault and was old so beyond economical repair. I had to get it together to find a replacement. I crashed that - nearly wrote it off. The insurer repaired it though. Then that day came that I took the last pill. I wanted to feel better the next morning. Tx isn't like that though. It took a little while to start climbing out of the hole. My anger management left a fair bit to be desired for a few months too. I had real life friends too. Many of them. But I needed to isolate for periods. Many of them had done tx. Some were yet to do it and one (since deceased) was actually doing it at the same time as me. I used drugs addictively for quite a few years in my misspent youth but even that wasn't as bizarre as tx.
topcat - 09 Jan 2009 06:04 GMT > > BTW, I just got my blood rechecked because my 2 yr checkup was a > little weird.... quant and qualitative both came back -- the dragon is > DEAD! I'm starting to believe it after 2 1/2 years :)) funny how we > all tend not to quite trust that wily beast to stay gone tho.... > Sara- SARA!! Congrats on hitting the 2.5 mark. I'm happy for you. now that I am getting close to the end, I am worrying about whether or not I've killed it for good. The dr's say it looks good, but have to wait and see. Take Care young lady. tc
Russian - 12 Jan 2009 08:26 GMT > Ah yes the Good Old Days of Riba... Crying watching Transporter 2 on cable when his buddy from the old days, a 1-dimensional character introduced about 10 minutes earlier, gets killed...
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