Medical Forum / Diseases and Disorders / Hepatitis / July 2008
Long-term "payments" for Tx...
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amzolt - 15 Jul 2008 20:33 GMT I'm not trying to be morbid, just needing to be fully armed with info so I can plan ahead...
What are the "known" lingering conditions after TX? and/or What side effects "never" go away?
~ Alex
dBo - 15 Jul 2008 20:41 GMT You will continue to get older, fatter or maybe thinner, more tired, have less physical strength, your memory will worsen, and perhaps your hair will continue to fall out...
Oh sh.t, that's a descpription of "AGEING", isn't it?? So I guess all of that would happen anyway having had Hep c or otherwise..
Jeez Alex it really stinks being so hung up on the whole Hep C things doesn't it? I can really relate!!! haha! Do you suppose we will EVER "let it go"? I'll try if you will! ~deb :)
metspitzer - 15 Jul 2008 20:51 GMT >I'm not trying to be morbid, just needing to be fully armed with info >so I can plan ahead... [quoted text clipped - 4 lines] > >~ Alex Bad vision is one possible permanent side effect.
Paul - 15 Jul 2008 23:59 GMT On Tue, 15 Jul 2008 15:48:44 -0500, metspitzer <kilowatt@charter.net>,
>Bad vision is one possible permanent side effect. Well my eyesight has worsened since tx but that would probably have happened anyway at 51. While we are on about eyes, I do seem to be stuck with blepharitis. The "attacks" are far less frequent than they were but I do have to treat is sometimes. I did not have this condition before tx. It only surfaced while on it. It's not dangerous and it's easy to treat but can be a pain in the arse when it flairs up.
TX-012 - 15 Jul 2008 21:17 GMT > I'm not trying to be morbid, just needing to be fully armed with info > so I can plan ahead... [quoted text clipped - 4 lines] > > ~ Alex I seem to be acquiring a growing contempt for doctors...
greyhackles - 15 Jul 2008 22:06 GMT >> I'm not trying to be morbid, just needing to be fully armed with info >> so I can plan ahead... [quoted text clipped - 6 lines] > >I seem to be acquiring a growing contempt for doctors... ahahahahahaha! Too true. And that's one common side-effect that ain't never gonna go away...
As for amzolt's question: to the best of my ability to discern them, now three years post-therapy, I have no lingering side effects from treatment.
On the other hand, I'm getting old, and there are definitely side-effects.
But on the up side of *that*, it's WAY better than the alternative ;-)
Cheers
/greyhackles
dog@cat.com - 16 Jul 2008 08:16 GMT >I'm not trying to be morbid, just needing to be fully armed with info >so I can plan ahead... [quoted text clipped - 4 lines] > >~ Alex I mentioned post treatment side-effects in my original post. Please let me clarify -- my treatment failed so the side effects I have are from the Hep-C and, as was so delicately stated, I'm becoming an old fart (57).
I don't know that there are any lasting post-treatment issues. What hair I lost grew back; my nails thickened-up again; my vision may have been affected but it could be that oldfartitis again; I have red bllod cells, white blood cells, more energy than when I was in treatment.
All-in-all if I didn't still have Hep-C I'd probably be out dancing on the weekends. ;o)
-- Steve
amzolt - 16 Jul 2008 16:31 GMT So, bad vision and continued aging...
Arthritis?
Fatigue?
Stupidity?
~ Alex
amzolt - 16 Jul 2008 20:04 GMT Oh, and does the unreasoning anger go away?!?
~ Alex
Sara - 16 Jul 2008 20:35 GMT > Oh, and does the unreasoning anger go away?!? > > ~ Alex yes :) though I will say that I think I have less patience for BS than I used to, but I don't know if that stems from being sick and going thru the tx, or if it's just another part of getting older.
maybe try to relax and take it all one day at a time? appreciate the good days, deal with the not so good. All I know is that I do feel better than I have felt for many years -- I am finally starting to WANT to do things, travel, go for a walk, even clean my house! It's been a long time since I had enough energy to want to do anything without dragging myself off the couch and making myself do it.
I don't really think that I have any residual effects from the tx... the aches and pains I feel now, I had before. I tend to think they are just part of the aging process, and like Grey says: it sure beats the alternative! :))
Sara
amzolt - 17 Jul 2008 03:45 GMT Kozure Ookami - 17 Jul 2008 16:17 GMT >I'm not trying to be morbid, just needing to be fully armed with info >so I can plan ahead... [quoted text clipped - 4 lines] > >~ Alex One common lingering condition is preoccupation and paranoia of lingering side effects and illnesses. Blaming natural aging effects on tx is another. Not learning from your experience and persisting in or resuming unhealthing living practices and attitudes is definately one to watch out for.
Don
Cactus Jammies - 18 Jul 2008 04:22 GMT >>I'm not trying to be morbid, just needing to be fully armed with info >>so I can plan ahead... [quoted text clipped - 12 lines] > > Don I have to agree with Don. The only thing that lingers for me is the great reluctance to have to go through it all over again. Other than that, my eyesight is as it was previous to tx in '05, I am as quick witted and arttistic as I ever was (blessings for me, for others...?) and I DO have a sore back. That, I know I can blame on a number of things but tx is not on that list. Maybe I got lucky (ha ha)
cactus jammies (off soon to my first tie dye vendor excursion at a local music festival)
amzolt - 18 Jul 2008 14:27 GMT Being pretty snide, Don!
I'm seeking information and get my character slimed!!
Cactus Jammies - 18 Jul 2008 17:35 GMT > Being pretty snide, Don! > > I'm seeking information and get my character slimed!! You know, I almost forgot. I went into a psychotic state of Hypermania (opposite of clinical depression) at the end of tx, and I have had two relapses since then. I am now being told that I should look forward to taking 1050 mg of Lithium every night. Otherwise things are OK.
cactus jammies
amzolt - 19 Jul 2008 08:48 GMT This place was helpful and caring for 18 months. Now, just when I'm waking up again, certain people seem to have no compassion...
Waterspider - 19 Jul 2008 08:51 GMT > This place was helpful and caring for 18 months. Now, just when I'm > waking up again, certain people seem to have no compassion... You're not quite awake yet... maybe taking things a tad too personally... Be patient, it takes a while.
amzolt - 20 Jul 2008 15:31 GMT "You're not quite awake yet..."
Uh, duh... Did I not say that (with other words): "...just when I'm waking up again..." Does that not also mean I realize I'm not fully awake?
"...maybe taking things a tad too personally..."
Hmmm... Since I I haven't put any of the Hep C drugs in my body for 2.6 months and during the Tx I never took things a tad too personally (during which time you'd think I would have certainly if I am doing it now with much less drug in me...), where is your critical faculty, Waterspider?
I say:
>What are the "known" lingering conditions after TX? >and/or >What side effects "never" go away?
>~ Alex And, "he" says:
"One common lingering condition is preoccupation and paranoia of lingering side effects and illnesses. Blaming natural aging effects on tx is another."
Sara - 20 Jul 2008 16:11 GMT > "You're not quite awake yet..." > [quoted text clipped - 23 lines] > lingering side effects and illnesses. Blaming natural aging effects > on tx is another." Hey Alex
good morning :) don't get mad at me, k? but I also feel like maybe you are being a little over-sensitive in regard to this issue. The truth of the matter is that none of us really has an answer for you -- everyone is different after tx just the same as everyone is different during tx, and I think it's all still new/recent enough that the docs don't know either. We're a bunch of lab rats here.... and I hope someone, somewhere, is keeping track of not only our sides during tx, but what we go thru after. Sadly, I don't think many doctors are really doing that -- I know I haven't seen my BCLD much since I finished tx.
question for ya.... and again, please don't take this the wrong way. Are you still on your anti depressants? If not, how did you stop taking them? Did you wean off, did you go cold turkey..... do you need to be on them for a while yet? I'm not trying to be a smart-a.s here. I did find that when I quit taking them (and I weaned off, but quickly cause I was tired of being on them) I went through a period of adjustment where I was up and down and over-reactive at times, a bit bipolar-ish :) I evened out pretty quickly, but probably would have been better off staying on the anti-d's for a bit longer than I did.
I also find I don't have the patience I used to have (I think I said this already huh...) but I react badly to any kind of stupidity going on around me, and I'm impatient when my hubby starts acting like he just popped in from Mars and has no clue.... I dunno. Maybe I have realized that life's too short to play games, and I just want folks to be straight with me and "say what they mean and mean what they say". I've always been that way, but now I think I am more so. I just wish I could see *myself* as clearly as I seem to see everyone else :))
then again, maybe the impatience is part of the aging process too :) See, it's just so hard to figure out what could be different about us due to tx, and what's just the natural aging thing going on... shrug. Ultimately, does it really matter? We gotta live with it, no matter what caused it.
anyway, take care, k? I'm curious about what's going on with you that prompted the original email and question about post-tx changes.... something going on that concerns you? anything you want to talk about?
hugs at cha, hope all is well Sara (btw, can you send me a link for the other website you started? My other puter decided to up and die on me and I lost a lot of stuff like that in the process. I liked dropping in over there. you can email me at bb at wowway dot com -- thanks :) )
Waterspider - 20 Jul 2008 21:12 GMT > "You're not quite awake yet..." > Uh, duh... Did I not say that (with other words): "...just when I'm [quoted text clipped - 15 lines] > lingering side effects and illnesses. Blaming natural aging effects > on tx is another." There's nothing wrong with my "critical faculty" and CJ is not just another pretty face... he's absolutely right on this one for those fiftysomethings among us. I'd take it up a notch and suggest that we're in denial that our bodies are doing the normal thing and beginning to deteriorate because of advancing age. Hey, blame it all on tx and we don't have to admit that we're no longer youthful.
Yeah, aging sucks and aging has some common physical symptoms. No one knows what, if any, the "lingering conditions" are post-tx, but they often seem to be identical to the symptoms of aging. Add to that that not all of us led especially healthy lives and these aging symptoms might be a bit stronger. My joints ache, I don't have the muscular strength and energy I did 20 years ago, my hearing is poor, my eyesight is worse and my memory had its problems too. Is this all a result of tx? Is it all a result of being +50 years old? Is it all a result of decades of drinking and drugging, loud music, poor diet, smoking, not getting enough rest, working in a sawmill without ear plugs for ten years, a really bad car accident at 28, a remarkably sedentary lifestyle for the past 25 years? I'll never know, but I suspect my age is the biggest factor, followed by my lifestyle. Treatment may have absolutely nothing to do with it. But, I'll never know.
Treatment was harsh on all of us. It went on for months and months and it was the main focus of our existence. Not surprising that we don't dismiss it all the day it ends. I understand this, but I don't understand why you snapped at CJ's post. It made me smile, and had it been directed at me I would have smiled wider. I think you owe the guy an apology, and I think you should chill about the post, about your post-tx worries and about life in general. That will go miles towards making you feel better. Get out there and enjoy the freakin' day, you've been to the dark side of the moon and back, and you made it. It's all good.
amzolt - 20 Jul 2008 23:01 GMT Thanks for you concern, Sara.
I'm not taking issue with the whole group just the person that Waterspider thought was right.
And, Waterspider. How can you judge my aging?
People who go on and on with mere shreds of information are, uh, let's see... pontificating.
Waterspider - 21 Jul 2008 01:40 GMT > Thanks for you concern, Sara. > I'm not taking issue with the whole group just the person that > Waterspider thought was right. > And, Waterspider. How can you judge my aging? > People who go on and on with mere shreds of information are, uh, let's > see... pontificating. Offerchrissakes, Amzolt, I'm not judging you and I'm not judging your aging. We all age, there's no way around it. I told you about my experience. I told you I thought CJ wasn't being insensitive. I'm not pontificating. Let it go. Move on.
Were you on antidepressants during tx? If yes, have you discontinued taking them? If yes again, there might be the source of your hypersensitivity. Yes, I said hypersensitivity. If this continues I'll be using the O word too (obsession).
Cactus Jammies - 23 Jul 2008 00:58 GMT > I'm not taking issue with the whole group just the person that > Waterspider thought was right. who posted the original comment, Alex? was it me? I agreed with someone. not that it matters. I will share the blame. if you have to point fingers to justify this aberration, so be it. Listening to classical music and cool jazz helps one break through the bubble of tx induced crappola. NO HIP HOP! NO APOLOGIES! NO EATING AFTER SUPPER!
cactus jammies
amzolt - 23 Jul 2008 17:01 GMT CJ,
You weren't the one fingered. Thanks for being a bit paranoid, though!
The fingeree is now a normal person.
Plus, your mentioning the creative outlet hit home. If it weren't for the creative pursuits I pursue, oh so doggedly, I'd surely be dead.
And, speaking of "abruptness" in our posting here, I think it's a tad distasteful...
~ Alex
Cactus Jammies - 23 Jul 2008 18:43 GMT OK Alex, OK, someone didn't shift gears in the string. Life goes on. Time is actually a vortex, ever expanding ever contracting in the same space, to warp space itself.
Bon chance, mon ami
cactus jammies
> CJ, > [quoted text clipped - 9 lines] > > ~ Alex amzolt - 24 Jul 2008 19:28 GMT CJ,
" Time is actually a vortex, ever expanding ever contracting in the same space, to warp space itself."
Huh?
Cactus Jammies - 24 Jul 2008 19:51 GMT > CJ, > > " Time is actually a vortex, ever expanding ever contracting in the > same space, to warp space itself." > > Huh? Has that effect on me, too.
cj
eileen - 25 Jul 2008 05:30 GMT > CJ, > > " Time is actually a vortex, ever expanding ever contracting in the > same space, to warp space itself." > > Huh? Hey Alex,
I started reading to try and see what's happening here at ash-c. Some things never change. Some people never change. Until someone walks in my shoes they would never know what's happen to me. The effects of post treatment issues is different for everybody . I suspect going through hell and back either refines you or spits you out like they always were. I know payment is steep, but friends pay the way. eileen
amzolt - 25 Jul 2008 08:59 GMT Nice sentiments, Eileen . . .
Paul - 25 Jul 2008 02:05 GMT On Wed, 23 Jul 2008 17:43:30 GMT, "Cactus Jammies" <cactusjammies@retinal.circus.orb>, in message ID <65Khk.1237$%b7.220@edtnps82>, in the newsgroup alt.support.hepatitis-c wrote:
>OK Alex, OK, someone didn't shift gears in the string. Life goes on. Time >is actually a vortex, ever expanding ever contracting in the same space, to >warp space itself. alt.fan.startrek is that way :-) >>>>>>>>>>>>>>>>>>>>>>>>
Beam me up Spotty.
Kozure Ookami - 21 Jul 2008 04:37 GMT >Being pretty snide, Don! > >I'm seeking information and get my character slimed!! Sorry if my reply seemed snide but I think you have to give recovery some time unless there are clear signs of lingering problems from the medication. It was meant to be a joke but I see it didn't go over well with you. Actually I was very worried about lingering sides myself when I stopped treatment. Recovery wasn't as quick as I hoped. Depression lingered for a while after stopping.
Most people seem to recover pretty well after tx but not everyone. I don't know of any study beyond what you get in the brochure with the meds. I know in the years I've been in this group I've heard of quite a few thyroid problems. I had to finish tx with the help of prednisone, a fairly strong corticosteroid, because I had a systemic immune reaction to the peg, and it was that or just stop tx and probably never attempt an interferon based therapy if I relapsed. Because of the severe reaction I was really worried about lingering problems and corticosteroids have their own set of side effects. It all passed fortunately and the treatment was successful. Hopefully, you will have similar results.
Don
amzolt - 21 Jul 2008 18:01 GMT Don, Thanks for being rational and kind...
I usually put a ;-) after a joke I make online, especially if it's worded in a way that can easily be taken as serious...
Still, in all, thank you for being kind.
Now if we can just get Waterspider to stop thinking she can tell, in detail, exactly what a person in this forum is going through........
~ Alex
Waterspider - 21 Jul 2008 18:20 GMT "amzolt" <amzolt@gmail.com> wrote in message news:fed571ec-ce96-415d-a1df-
> Now if we can just get Waterspider to stop thinking she can tell, in > detail, exactly what a person in this forum is going through........ > > ~ Alex And if we could just get Amzolt to stop thinking he can read my mind...
amzolt - 22 Jul 2008 09:37 GMT > And if we could just get Amzolt to stop thinking he can read my mind... Damn it...
I'm not reading your mind, I'm reading your *words*. Wake up!!
Cactus Jammies - 22 Jul 2008 14:29 GMT WS wrote:
>> And if we could just get Amzolt to stop thinking he can read my mind... > ................................... [quoted text clipped - 3 lines] > >......................................... Alex, buddy....
Thank goodness human brains are built to forget. Otherwise there would be no room for anything new to slip in.
Please don't snarl. Let it go and force yourself to see tomorrow without dragging your a.s through the past. Waterspider has a way of being abrupt, and you are somewhat touchy as I can understand. Let it pass with grace and a shrug. Hendrix wrote: "Fly on my sweet angel, fly in to the sky..."
On the brighter side, just to let you know Alex, I fullfilled a long time ambition of mine this past weekend. When I was on tx in '04 and '05, I found I felt I must fulfill my artistic and creative mindspace, and that would occupy my anxiety about what was happening and what would happen in the short and medium future regardless of my treatment outcome. Something added to my real experience was the lasting effects of tx, the psychological thing that you should have read about by now in this message string. But leaving that outcome where it belongs, etc. here we are. I was encouraged those days by people in this newsgroup, and learned just about everything by way of the Internet.
Well, I just returned from my first music festival vendor thing. I have busily improving my tie dye skills and building my inventory. I set a goal and having confidence in my ability and self discipline, I stepped through a new doorway into a space I only dreamed about when I was 'downstairs in the critical ward' of my treatment routine. I learned a lot by way of the internet about fabric work, and picked up tips that I experimented with, although I still am somewhat daunted by the prospects of using the sewing machine. I also had lots of interaction with people of all age groups, which I thoroughly enjoyed. And I burned a sage smudge at my booth, offered to me by a sweet young someone, which was perfect thing to happen. It was wonderful, and I will say again, other than the pysch thing which is handled, I have had no lingering effects by way of combo tx. It didn't work, but I am in the majority of type ones that way. C'est la vie dits les anciens...
cactus jammies
kjoh - 22 Jul 2008 23:25 GMT cj you are wonderful. :-)
soon k
- Message posted using http://www.talkaboutsupport.com/group/alt.support.hepatitis-c More information at http://www.talkaboutsupport.com/faq.htm
Cactus Jammies - 23 Jul 2008 02:37 GMT > cj you are wonderful. :-) > > soon > kj > > -- Thanks KJ, :) friends like you that have been what we have been through with treatment and all are wonderful to meet, make and keep.
hasta, be well cactus jammies
Cactus Jammies - 21 Jul 2008 23:24 GMT > Don, > Thanks for being rational and kind... [quoted text clipped - 8 lines] > > ~ Alex Alex, I made a second posting to this subject line. Feeling so good and all, I forgot to balance the account. Have you read my second post? That condtion I mention is enduring and witty and just plain f.cked up, but controlled by a dose of mineral salts.
cactus jammies
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