Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Hepatitis / July 2008

Tip: Looking for answers? Try searching our database.

Greetings

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
dog@cat.com - 11 Jul 2008 09:57 GMT
Hello everyone,

I'm new to this group -- this is my first post.

Boy can I relate to the stories here.  I don't know where my HCV came
from; we think it may have been a tour in the Army during Viet Nam,
but who knows.  I was at stage 4 (entering cirrhosis) when we first
discovered that I had Hep-C 1B.

Following a liver biopsy that hospitalized me, I went through 48 weeks
of pharmaceutical induced hell on earth injecting Peg Interferon
weekly and taking 1600 mg of Ribavirin daily.  I lived through all of
the side-effects I've seen posted here so can I ever empathise.  I
also have to work full time despite the fatigue.

I wound up having to inject another drug (which I can't think of now)
to counter severe anemia caused by a large drop in hemoglobin caused
by the large dosage of ribavirin (sp).

The virus was undetectable from week 12 through 48.  My hepatologist
was certain that I was cured.  I wasn't.  Six week post tx clinical
tests showed that the virus had come back.  I went from cured to a
non-responder overnight.  What a ride!

A year later, my vision is slightly impaired, the fatigue has lessened
but never gone away, my memory can't remember short term stuff, the
body aches, liver swelling and mild depression are permanent roommates
as well.

Now I'm just waiting on the next miracle cure to be handed down to the
medical community to try out on us and trying to decide whether or not
to get on the list for a liver transplant.

Those of you who are contemplating starting treatment, don't
contemplate -- just do it.  The treatment may work for you and the
side-effects will be forgotten once you're cured.

Those of you currently in treatment. bless you and hang in there; it
won't last forever and you CAN do it.

Those of you who succeeded in eliminating the HCV and are truly cured
-- WAY TO GO!

For the rest of us who lived through tx and failed to beat the nasty
little vermin virus, I guess Forrest Gump was right: life IS like a
box of chocolates, you never know what your gonna get -- or how you're
gonna get rid of it ;o).

--
Steve
Sara - 11 Jul 2008 17:39 GMT
> Hello everyone,
>
[quoted text clipped - 46 lines]
> --
> Steve

Hi Steve, GREAT post.   Welcome to ASH-C, hope to see you often :)

Sara
dog@cat.com - 14 Jul 2008 06:36 GMT
>> Hello everyone,
>>
[quoted text clipped - 50 lines]
>
>Sara

Thanks Sara, good to be here.  Still, I hope that everyone here that's
still fighting the "Dragon", as Deb says, gets cured and never has to
return to the list.

Thanks again,

Steve
Dwight - 14 Jul 2008 07:44 GMT
>>> Hello everyone,
>>>
[quoted text clipped - 57 lines]
>
> Steve

Steve, some of us for a kind of friendship here that keeps us coming
back to the group. I still wish I could get rid of the dragon, I'm just
hoping for better weapons to go at it again. Third time better be a charm.

Dwight
dog@cat.com - 14 Jul 2008 07:56 GMT
<snip>

>Steve, some of us for a kind of friendship here that keeps us coming
>back to the group. I still wish I could get rid of the dragon, I'm just
>hoping for better weapons to go at it again. Third time better be a charm.
>
>Dwight

Hi Dwight,

I understand completely.  It's really hard to talk to anyone about how
and what you're going through if they've never had this demon.  They
may want to understand and try to, but there's no way for them to
really relate.  So, you find friends that do understand in places like
this group -- and we're all better off for it.

This is your third run at it with the Peg-Intron/Ribavirin treatment?
You have my unending respect.

It's  going to work this time!  Three's a charm you know.  Besides
that, the virus has got to exhausted from fighting the treatment by
the end of this round.;o)

I hope it hurts the little suckers!

--
Steve
Dwight - 14 Jul 2008 18:06 GMT
> <snip>
>> Steve, some of us for a kind of friendship here that keeps us coming
[quoted text clipped - 22 lines]
> --
> Steve

Steve, I haven't started my third round of tx yet. At this point I'm
waiting for a while to see if anything comes around soon. After two
rounds without responding, I don't think a third will be any different.

Dwight
dog@cat.com - 16 Jul 2008 07:24 GMT
>Steve, I haven't started my third round of tx yet. At this point I'm
>waiting for a while to see if anything comes around soon. After two
>rounds without responding, I don't think a third will be any different.
>
>Dwight

Hey Dwight,

I understand.  The doctors told me that since I didn't respond there
was no reason to go back through all the side-effects of the treatment
again since the chances of it working were slim to none.  So, like
you, I'm waiting around for the next new treatment to come over the
hill at us.

--
Steve
dBo - 11 Jul 2008 20:53 GMT
Welcome aboard, Steve. Sorry you are here. :( Must have been a real
downer to go from thinking you had it licked to finding out The Dragon
was still hiding there, my sypathies.

So far I have been a "cured responder", coming up on 2 year check this
fall. I did the Peg Interferon
weekly and taking 1200mg of Ribavirin daily plus Epogen(?) injections
for the severe neutropenia. Was very anemic right from the get go, all
the sides etc.

It's nice to hear someone who despite not having yet (I say yet) won
the War, that it is worth it to those who are thinking about it, going
thru it etc. Good for you to be able to maintain that attitude despite
having lost the last round.

You don't mention your age, but your reference to Military Duty pretty
much dates you to a Contemporary.

Hope you will stick around to offer what advice, solace and compassion
you can to those who as  you say are trying to make decisions as well
as those walking the painful walk. Will keep you in my thoughts and
prayers for the next big "cure"coming down the pike.... :)

Deb
dog@cat.com - 14 Jul 2008 06:32 GMT
Hi Deb,

Nice to meet you.  Yeah, it knocks the wind out of your sails when the
treatment fails, but I knew going in that it was a 50-50 proposition
(according to my hepatologist at UT Memphis), so you just get back up
and keep on keepin-on.

I'm in my fifties now although some days it feels more like my late
eighties - I know you know what I mean.  I finally remembered that I
was given Procrit for the amemia - self-injected weekly.

I'm really glad that you kicked the virus and hope you're HCV-FREE
forever.

I will stick around and add whatever I can.  It seems like there are a
lot of good people in this group.

Thanks much for your well-wishes.  I believe that some bio-tech
company will solve the mystery and develop a cure -- sure hope it's
soon. ;o)

--
Steve

>Welcome aboard, Steve. Sorry you are here. :( Must have been a real
>downer to go from thinking you had it licked to finding out The Dragon
[quoted text clipped - 20 lines]
>
>Deb
john - 20 Jul 2008 13:47 GMT
On Jul 11, 4:57 am, d...@cat.com wrote:
> Hello everyone,
>
[quoted text clipped - 46 lines]
> --
> Steve

Hi Steve,
Ditto everything you said.............john
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2009 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.