Hi everyone,
I got an email from my doctor, after I saw him 2 weeks ago for my
6-month post-Tx follow up. He wrote me that viral load remains
undetectable and liver enzymes normal. Wooo-hooo!
It's been a year--almost to the day--since I started treatment. I
don't know if they have a name for people who respond very fast, but
at Week 2 my liver enzymes were normal (after several years of being
3-5 times the upper limit), and the first VL test after beginning
treatment, at Week 4, came back undetectable--and then came back
undetectable again, as they first do a less expensive test that is
sensitive to <50 IU/ml, and if that test shows nothing, they do a more
sensitive test which is <5 IU/ml. I've had normal liver panel and
undetectable VL ever since they returned to normal/undetectable in my
first month of Tx...btw, I was genotype 3a, with VL ~2.7 million IU/ml
before starting Tx.
Of course, I was nervous when waiting for results of my first test
after finishing Tx, next week after my last Peg-Intron shot. Then came
the waiting for my 3 months post-Tx follow-up. I've been told by the
good people here that I had nothing to worry about, having responded
so quickly, but I couldn't help being nervous, to say the least. I was
trying to imagine how I'd cope if the test found that bloody virus
again.
(My Dr told me that a patient who responded to Tx very well, like me,
all of a sudden tested positive--only about 200 IU/ml, or something.
The guy had gotten very depressed, but the next test, and ones
thereafter, showed that he was clear--so it might have been a false
positive, or a glitch that his immune system corrected.)
So I was preparing myself for something like that. And now, that
fateful 6-months follow-up. It's definitely been worth it, I feel a
great weight off my shoulders. If you are considering whether to take
treatment or not, I urge you to talk about it--get more info, discuss
it with your doctors, etc.--because until I came here and was told to
get my arse and seek a good specialist, I'd still probably be with my
head buried in the sand, telling myself about some magical drug that
would certainly come out in a few years, or repeating the stories of
people who've had HepC for decades without suffering any symptoms.
Everyone is different, and I am happy I began asking questions about
it. The euphoria after finding out today that I was 90%+ in the clear
is incomparable. Thank you, everyone, who's helped me out--you know
who you are, Grey and all the rest of you, guys and girls!
One question...I didn't have a biopsy before I started Tx, for a
couple of reasons, so I don't know where I was, with regard to liver
damage. I've had some sensitivity in the area, some pain even, over
the past few years. I haven't had HepC for longer than 7-8 years, I am
certain of it. Regardless of that, if I had a degree of fibrosis
(which I think I ought to, because my AST and ALT figures used to
hover above 100 and 200, respectively). Maybe I am mistaken...but what
I am asking is this--should I expect whatever damage had been done to
my liver to decrease over time?
Whew...I can breathe now. It's been a strange trip, nowhere near as
bad as I'd imagined, but something I hope I'll never have to go
through again. Now I am a bit paranoid about going to a dentist, etc.
We all know how little it takes to get infected. I read that piece of
news about some medical office that infected a few dozen patients with
HCV due to lax sterility procedures, and I suspect that many more
patients become infected each year, because their
doctors/nurses/dentists are too lazy or ignorant. This is f.cking
criminal, if you ask me. At the same time, I don't want to tell my
dentist that I'm a HepC risk, because I've seen how people react to
that. Of course, they all should treat us as if we all have
blood-bourne diseases. And yet, I don't know how to tell my dentist to
please take care and use sterile equipment (if he's not doing it),
because I don't want to get reinfected--it would probably insult him,
LOL. Enough rambling, I'm still giddy with excitement. Thank you all!
Cheers,
Sick Boy

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Sick Boy
Normin - 16 May 2008 02:30 GMT
> Hi everyone,
>
[quoted text clipped - 121 lines]
> Cheers,
> Sick Boy
I just love success stories :) WTG Sick Boy! So glad you
decided to treat, congrats for killing that dragon!
I still tell anyone who might come into contact with my blood
that I WAS a hep-c patient and to be careful, and everyone I've
told has nicely thanked me, told me that they always take
precautions and treat everyone as if they were HIV positive, but
were appreciative that I cared enough to give them a heads-up.
If they want to judge me because I was infected with Hep-C, then
so be it. I don't care what they think anyway.
Thanks for letting us know about your latest result. And yes, my
understanding is that the liver will continue to heal itself and
should be much healthier already than it was before you started
tx.
Sara
dBo - 16 May 2008 11:34 GMT
Yahoo SB! Nothing like hearing some happy news from someone first
thing on a Friday morning! :)
I DID have a biopsy prior to tx and I can tell you in my case the
"sensitivity" continued after tx and right thru to today. My doctor
assures me it is nothing (maybe all in my head - ha!) so I try not to
worry about it too much.
I too have paranoia about dentist etc. Last summer after surgery for a
hip replacement I had to have a blood transfusion - talk about
paranoid! I just laid there staring at the thing like they were
putting POISON into me, even tho i KNOW all blood is tested these
days.
Go Forth with a smile and Walk More Lightly :) ~Deb
anonymousone - 16 May 2008 15:18 GMT
> Hi everyone,
>
[quoted text clipped - 72 lines]
> --
> Sick Boy
Congradulations. I was stage 3 grade 3 at the start of treatment,
close to the point of no return. The Nurse practioner at Kaiser told
me they expect me to go back to 0 over time. The liver is one organ
that heals itself if it is not further assaulted.
wallysgirl - 16 May 2008 16:33 GMT
> Hi everyone,
>
[quoted text clipped - 72 lines]
> --
> Sick Boy
Hey SB,
CONGRATULATIONS!!!!!!!
May we all experience the same euphoria! I can only tinker on the way
you must be feeling.
I had my 12 week VL (actually done on week 14) just before I went on
vacation and didn't want to know till I got back-Like you I started
with a VL of 2.9 mil,at week 4 I dropped to 5 thousand and by the 12th
week I was down right scared to know the results! So off to the Grand
Canyon we went...(Not that I am an overly religious person but what a
spiritual trip that was!! )It kind of put things in perspective for me
and I thought there are bigger things out there-good and bad and I'll
just deal with the hand I have.Long story short I talked to Doc and
she said.....My viral load tested hep C negative.That was Tuesday of
this week- I think I'm going to call her today to make sure I'm not
dreaming! So the plans have changed some-instead of the 72 weeks I'll
drop down to 48 that means only( ONLY HA)
32 weeks to go!!
By the way-After your battle who gives a snit if you offend someone or
some doc by asking how they clean their equipment, or to make sure
they have gloves on before they come near you-It's your health and
Your LIFE!
Well I am truly Happy for YOU!!!!!!
Best of luck and keep in touch.
Wally's Girl
Russian - 25 May 2008 20:20 GMT