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Medical Forum / Diseases and Disorders / Hepatitis / May 2008

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Hep specialists?

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Russian - 25 Apr 2008 07:02 GMT
A while back someone posted a link to hep c specialists in several major
cities.  Anyone remember or have that?

Having relapsed after the first try (48 weeks Pegasys + riba), I'm
thinking that next time around I would move on from my gastro doc to
someone who sees a lot of hep c cases.

My GP is checking in to who that might be around here.  He said he might
 be able to find someone who is also plugged into clinical trials.

I responded and stayed zero through treatment, so I think that means
that my hep c can be beat by getting a hitting it harder, or longer.

So I'm thinking it might be easier to try Telepravir/Peg/Riba combo than
daily infergen - but then I know next to nothing about what daily
infergen treatment is like (?)...

In any case, I'm not going to start another treatment until at least
September (one year rest after previous 48-weeks treatment concluded.
TX-012 - 26 Apr 2008 00:42 GMT
> A while back someone posted a link to hep c specialists in several major
> cities. �Anyone remember or have that?
[quoted text clipped - 15 lines]
> In any case, I'm not going to start another treatment until at least
> September (one year rest after previous 48-weeks treatment concluded.

I've emailed Ben Cecil a number of times, he's very helpful. His
website:
http://hepatitisdoctor.com/
Russian - 04 May 2008 06:14 GMT
> I've emailed Ben Cecil a number of times, he's very helpful. His
> website:
> http://hepatitisdoctor.com/

That's a great site - I'm still working through it - thanks.
wallysgirl - 26 Apr 2008 14:30 GMT
> A while back someone posted a link to hep c specialists in several major
> cities.  Anyone remember or have that?
[quoted text clipped - 15 lines]
> In any case, I'm not going to start another treatment until at least
> September (one year rest after previous 48-weeks treatment concluded.

Sorry things didn't go well the first time.
Not sure what state you live in,but I can't say enough about
University  of Pa.
Really great Dr's and staff!  They do know what they are doing!
Good Luck!
Russian - 04 May 2008 06:31 GMT
> Not sure what state you live in,but I can't say enough about
> University  of Pa.
> Really great Dr's and staff!  They do know what they are doing!
> Good Luck!

UofP is a great place... but I'm far away... thanks for the support.
TX-012 - 26 Apr 2008 18:19 GMT
> A while back someone posted a link to hep c specialists in several major
> cities. �Anyone remember or have that?
[quoted text clipped - 5 lines]
> My GP is checking in to who that might be around here. �He said he might
> � be able to find someone who is also plugged into clinical trials.

You can also do a lot of the work yourself:

http://clinicaltrials.gov/
eileen - 28 Apr 2008 20:23 GMT
> A while back someone posted a link to hep c specialists in several major
> cities.  Anyone remember or have that?
[quoted text clipped - 15 lines]
> In any case, I'm not going to start another treatment until at least
> September (one year rest after previous 48-weeks treatment concluded.

Here's a link that lists doctors in the states, I don't know if this
was the link before that you saw before.
If by any chance you are in NY, NJ area I can give you my NP's name
and addy.  She is in research but has her own practice.  She treated
Elmo, me and John.  All  of us failed treatment before seeing her.
Her name is Donna Fannelli, google her name or I can give you her
info.
Best Wishes to you Russian,
eileen
oops the link:          http://hepatitis-central.com/hcv/drs/toc.html
Russian - 04 May 2008 06:34 GMT
> Here's a link that lists doctors in the states, I don't know if this
> was the link before that you saw before.
[quoted text clipped - 6 lines]
> eileen
> oops the link:          http://hepatitis-central.com/hcv/drs/toc.html

That's the link - thanks.  I'm in SoCal or I'd take you up on that offer!

Thanks.
TX-012 - 04 May 2008 07:54 GMT
> > Here's a link that lists doctors in the states, I don't know if this
> > was the link before that you saw before.
[quoted text clipped - 10 lines]
>
> Thanks.

I may know of someone in SoCal--at least in LA. The person I'm seeing.
Email me for more info...
 
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