Your experience of NEUPOGEN

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TX-012 - 24 Apr 2008 16:42 GMT

Did you have

A) A great time taking it, or
B) The _greatest_ time taking it?

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tom - 24 Apr 2008 16:57 GMT

> Did you have
>
> A) A great time taking it, or
> B) The _greatest_ time taking it?

Other than the cost, I don't remember having any reaction to it.

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dBo - 24 Apr 2008 20:33 GMT

I remember:
A. Those Elephant needles bouncing off my skin a few times refusing to
penetrate ;) They sucked way worse than the Peg

B. My blood counts went up but still below normal. My doc was happier,
and I could at least make it up a flight of stairs without stopping
three or four times to rest.

Other than that not much ~deb

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greyhackles - 24 Apr 2008 22:08 GMT

>I remember:
>A. Those Elephant needles bouncing off my skin a few times refusing to
[quoted text clipped - 5 lines]
>
>Other than that not much ~deb

That would suggest your shots were actually Epogen (or Procrit or Aranesp).
Neupogen boosts white blood cell counts, not red blood cell counts...

Cheers

/greyhackles

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TX-012 - 25 Apr 2008 01:14 GMT

> >I remember:
> >A. Those Elephant needles bouncing off my skin a few times refusing to
[quoted text clipped - 12 lines]
>
> /greyhackles

I agree with you about the above, but according to my Dr. a lot of
people do experience a marked decrease in fatigue when their
neutrophils get back into the normal range. He mentioned this a few
days ago in response to my comment that I felt significantly less
fatigued since moving from 40,000 to 60,000 IU EPO/week with a
resulting rise in hematocrit from 29ish to 31-32. His opinion was that
my concurrent move from doing NEUPOGEN once per week to twice per week
had a lot more to do with my increased energy.

BTW---I hate/detest/loath NEUPOGEN--If it is possible to hate a drug
which is keeping me healthy. I AMEN (RAMEN, if you're a Pastafarian)
what these people have to say:

http://www.acscsn.org/Forum/Discussion/thread/view?msgid=89742&msgrid=26

Anyone know how many people on tx need NEUPOGEN, btw?

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greyhackles - 25 Apr 2008 01:45 GMT

>> >I remember:
>> >A. Those Elephant needles bouncing off my skin a few times refusing to
[quoted text clipped - 21 lines]
>my concurrent move from doing NEUPOGEN once per week to twice per week
>had a lot more to do with my increased energy.

Well, with all due respect to your doctor, it is a lot more likely the
increase in hemoglobin was the greater contributor to the lessening of
fatigue.

I know when I went from nearly 8g/dl up to 9, it was a major improvement in
energy, and when I eventually made it up to 10, it was an amazing difference -
I could actually make it from the parking lot into the hospital without having
to stop and rest.

>BTW---I hate/detest/loath NEUPOGEN--If it is possible to hate a drug
>which is keeping me healthy. I AMEN (RAMEN, if you're a Pastafarian)
[quoted text clipped - 3 lines]
>
>Anyone know how many people on tx need NEUPOGEN, btw?

No idea. A quick look at a couple of studies showed an average Neutrophil
reduction of 35% while on combo therapy across the cohorts, but they didn't
classify individual case severity. And one can survive fairly severe
Neutrophil reduction, of course.

I imagine there are lots of people that *could* have been put on Neupogen by
an aggressive treating physician, but the typical antiviral treatment game
plan has been to incur dose reduction instead - for better or worse (I vote
"worse").

Cheers

/greyhackles

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dBo - 25 Apr 2008 21:02 GMT

whoops right you are Grey! All the drugs start to sound the same after
a while...

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