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Medical Forum / Diseases and Disorders / Hepatitis / April 2008

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Side Effects After Treatment

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Guy - 17 Apr 2008 15:14 GMT
Hi,

I have been post TX now for 4 months after 48 weeks of treatment.
I still feel the side effects in the morning and it usually tapers off
and
I feel better during the second half of the day.
Has anyone experienced the same thing after treatment ?
I guess depending on the individual it can take 6 months or more for
the
side effects to go away. I read somewhere that for some people the
side effects
never go away. Was tested 3 months post treatment and liver enzymes
are normal
but Dr has not done a PCR since treatment ended.
Genotype 1A, virus undetectable at 24 and 48 weeks.

Thanks,

Guy
Cactus Jammies - 17 Apr 2008 18:52 GMT
> Hi,
>
[quoted text clipped - 15 lines]
>
> Guy

Hey there Guy,
 OK, you have tested undetectable to three months post-tx.  In my case, I
was not tested following tx until about a month or six weeks following tx,
at which time I was clear.  There were no other tests done until six months
post-tx.  That's when I found out I had relapsed.  It was a qualitative
test.  By PCR, what you are saying actually I think, is that you were
wondering about a quantitative test rather than the qualitative test.  The
qualitative test looks for detectable presence of the virus, which in your
case would be less than a certain number, or undetectable.  The quantitative
test looks for the viral load number.  These tests are both PCR.
 As for side effects, I felt listless and foggy for quite a while, probably
seven months or more.  It gradually cleared up for me, and my skin problem
returned.  Interferon had knocked off my psoriasis, but it came back.  Not
severe or worse, just a couple of small patches on my elbows.  I did have a
problem with hepatitis induced arthritis in my fingers and toes, which also
went away, and I think that happened because of the resurgence of the virus
in me.  Gone about five months later, for some who-knows-why reason.

 I shouldn't go any further because I am not sure if my post-tx symptoms
(none) are not hepatitis symptoms (none).

So in any case, look after that liver, you may SVR, and as you were clear in
week 12, you have a good chance of having beat the crap out of the dragon.
Try to remain calm, because your emotions affect your liver, too.  Stay
chilled, one day at a time.  Don't take on anything you are not sure you can
complete with satisfaction.  Anxiety is your liver's enemy.  And adrenaline.
I am lucky, I have a caffeine tolerance, so I can drink 2 or 3 cups a day.
Some people can't.

Be well, best of cheer

Bob
dBo - 17 Apr 2008 20:50 GMT
Boy, do I remember feeling like that -  "When is that part going to
come where I just feel better and better every day??" It was a long
year and I wanted to feel SO much better SO fast...but I do recall
being told that it really takes a full 6 months for all the  Drugs
from Hell to be totally out of your system. And I was sooooo run down
by the end. I'd have to say it was a good six months  before I could
honestly say I felt "better" - sure everything improved once the drugs
stopped, the brain fog cleared and so on but I have to say that even
today, a year and a half post tx I still find myself occassionally
feeling like
my brain and my energy have been improving.

Be happy and Be Well and know that as time passes, one day at a time,
things will get better. I was dragged out for a very long time after
tx, and was very focused on that at first, waiting the magical moment,
but as time  passed and I stopped focusing on waiting to feel better,
as I said, I just sort of "notice"  improvements still, when I find
myself doing something at work for example and thinking "Jeez, I
couldn't even SEE that a year ago, and now it seems so clear."

It will get better, Guy. Fear Not :)  ~Deb
 
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