Hi folks,
I was diagnosed with Hep C 12 years ago, not sure when I got infected
but my best guess is about 23 years ago, I have type 1 unfortunately
which means I'm on the 48 week tx. I'm living in Aberdeen in Scotland
and been treated by the NHS and so far they have been excellent, very
informative and helpful.
I had my 4 week PCR test on Thursday but won't get the PCR results
back untill 4 weeks, they say at 4 weeks is just academic as there
probably won't be an early response that soon but if there is it's a
good psychological boost. They rang me on Friday and asked me to come
back in 2 weeks for a blood test as the hemoglobin level has dropped a
lot, nothing to wory about yet but they want to keep an eye on it.
Ironically I was feeling quite weary the last few weeks and assummed
it was the hemoglobin levels dropping but at that stage they said it
hadn't dropped much, and now I have regained some energy and are
feeling better than I have for a while they tell me the levels have
dropped, wierd.
Overall the tx hasn't been that bad, the worst thing is the headaches
and weariness in the afternoons at work, it's the Ribavirin causing
that, panadol don't really help that much. One thing I have noticed is
the importance of a good nights sleep, if I don't get one, man the
next day is rough so it's early to bed most nights now.
Anyway thats enough for the moment thought I'd just say hello as this
seems a fairly good group to talk to.
Paul
déjà vu déjà vu - 08 Mar 2008 22:57 GMT
> Hi folks,
>
[quoted text clipped - 25 lines]
>
> Paul
Thanks for the report. I start the 48 week war on March 25th and am type
hcv 1b.
I expect the worst but I've heard that some have not too difficult a time
with treatment.
I guess if many people continue to work, it can't be all that terrible.
I have the choice of working or not since I am partly retired this year.
Keep up the reports.
Jamffer
TX-012 - 08 Mar 2008 23:10 GMT
On Mar 8, 2:06 pm, Woof...@gmail.com wrote:
> Hi folks,
>
[quoted text clipped - 25 lines]
>
> Paul
EPO is extremely useful. I'm on 40,000 IU of Procrit per week, and it
only keeps my hematocrit at @31, but without it I'd be...dead, I
think. Some people are very sensitive to ribavirin...the hemolytic
anemia it causes can be considerable...when I started tx, my
hematocrit dropped from 43-44 to the mid-20s in about 3-4 weeks...
amzolt - 09 Mar 2008 14:05 GMT
I've been taking Epogen for many months and a month ago my hemo
dropped again--taking two Epo shots a week now. Only two months to
go !!
~ Alex
TX-012 - 18 Mar 2008 10:00 GMT
> I've been taking Epogen for many months and a month ago my hemo
> dropped again--taking two Epo shots a week now. Only �two months to
> go !!
>
> ~ Alex
What dose per shot?
Kozure Ookami - 10 Mar 2008 05:24 GMT
>Anyway thats enough for the moment thought I'd just say hello as this
>seems a fairly good group to talk to.
>
>Paul
Hi Paul and good luck with your treatment. It was similar for me with
the sleep issue. I often slept 10-12 hours during tx. Some people
report difficult sleeping while on tx others like me report difficulty
not sleeping.
Don
topcat - 18 Mar 2008 05:32 GMT
On Mar 8, 4:06 pm, Woof...@gmail.com wrote:
> Hi folks,
>
[quoted text clipped - 25 lines]
>
> Paul
Paul, glad to hear from you. I am curious and being newly diagnosed,
please excuse my clumsy questions, but, I am curious why you just
started treatment when you were diagnosed 12 years ago? I know that
interferon hasn't been around that long, but thought it has been used
to treat this thing for awhile? Good luck to you!!
TC