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Medical Forum / Diseases and Disorders / Hepatitis / March 2008March 25th I am beginning the attack
March 25th I am beginning the attack for the mini dragon war. Starting without biopsy with hcv-1-b. I'll post updates good-bad (hope for good). I walk or ride bike 8 miles per day, hope to continue but time will tell. Jamffer > March 25th I am beginning the attack for the mini dragon war. > [quoted text clipped - 5 lines] > > Jamffer Good luck you you J., you sound like you're in good shape to start with so that's a big plus going into this thing. I meet with my dr. on tues to go over the biopsy results and plan tx., I wish I could walk or ride a bike 1 mile, but have no energy for that. Does that much exercise tear you down or do you feel pretty good overall? TC On Mar 7, 6:50 am, "déjà vu déjà vu" <jamf...@hotmail.com> wrote: > March 25th I am beginning the attack for the mini dragon war. > [quoted text clipped - 5 lines] > > Jamffer Good luck you you J., you sound like you're in good shape to start with so that's a big plus going into this thing. I meet with my dr. on tues to go over the biopsy results and plan tx., I wish I could walk or ride a bike 1 mile, but have no energy for that. Does that much exercise tear you down or do you feel pretty good overall? TC ***** Pretty good, except for a little lower back pain. I get some slight liver area tenderness when I eat heavy foods. I suspect a bit of fibrosis because of over 30 years of occasional drinking and pot smoking back in the 70s thru the 90s. I don't do any no-nos now. Winter storm days, I stay inside. I'd love to have a drink and a smoke but living is better than that. I don't think dieing from liver disease would be much fun. <snip> > I suspect a bit of fibrosis because of over 30 years of occasional > drinking > and pot smoking back in the 70s thru the 90s. There is no evidence that pot smoking contributes to fibrosis. Alcohol on the other hand... Smoking pot got me through tx, lessening the side effects of nausea and craziness. Good luck, kill that dragon! > <snip> > > [quoted text clipped - 7 lines] > craziness. > Good luck, kill that dragon! January 14, 2008 Hepatitis C, Liver Fibrosis and Marijuana According to a recently published California study, people with Hepatitis C who use cannabis daily risk developing fibrosis nearly seven times more than non-users. Chronic Marijuana Use May Increase Fibrosis for Hep C Patients Sunday, January 06 2008 @ 11:05 PM EST Edited by: Michael Hess Daily cannabis use increases the risk of liver fibrosis in patients with hepatitis C http://bbsnews.net BBSNews 2008-01-06 -- (IACM) According to research at the University of California at San Francisco daily cannabis use was associated with moderate to severe liver fibrosis in 204 patients with hepatitis C. Between 2001 and 2004, participants underwent interviews to assess demographic data, risk factors for HCV, and use of cannabis and alcohol. In addition, virologic testing and liver biopsy was performed. The median age of the group was 46.8 years, 69 per cent were male, 49 per cent were white. Cannabis use frequency within prior 12 months was daily in 13.7 per cent, occasional in 45.1 per cent, and never in 41.2 per cent. There was no fibrosis in 27.5 per cent, mild fibrosis in 55.4 per cent and moderate to severe fibrosis in 17.2 per cent of subjects. Current daily cannabis use increased the odds of moderate to severe fibrosis by nearly 7-fold. There was no association between current daily cannabis use and mild fibrosis. A major limitation of the study is the method, since only one examination was performed, which limits the ability to establish a temporal relationship between cannabis use and fibrosis stage. However, the study confirms an earlier French study of 2004, in which daily cannabis use was also associated with an increased risk for liver fibrosis. Authors conclude that "HCV-infected individuals should be counseled to reduce or abstain from cannabis use." (Source: Ishida JH, Peters MG, Jin C, Louie K, Tan V, Bacchetti P, Terrault NA. Influence of cannabis use on severity of hepatitis C disease. Clin Gastroenterol Hepatol 2008;6(1):69- 75) > <snip> > [quoted text clipped - 7 lines] > craziness. > Good luck, kill that dragon! Hi Waterspider, I wish i could still smoke pot.Doctor even recommed it as apposed to other stuff. Unlike the old days it makes me paranoid and hungry.lololol john Well best of luck to you with tx - is this the 24 week or 42 week tx you are facing? I couldn't walk or bike that far prior to tx (haha!) and months into it I was so anemic going up a flight of stairs required three rest stops. Every case is different tho, so I will keep you in my thoughts and prayers :) Wishing you all the best and as few side effects as possible! > Well best of luck to you with tx - is this the 24 week or 42 week tx > you are facing? I couldn't walk or bike that far prior to tx (haha!) [quoted text clipped - 3 lines] > > Wishing you all the best and as few side effects as possible! 48 weeks, if all goes well. I'll exercise as much (slow) as I can. Or stay home and relax as I start on Social Security in July. Might work part time (or not). I'm all alone on this (as usual), a happy hermit. I guess it's my personal battle and hopeful victory. Yes it truly is a personal battle. If you are a Happy Hermit then you probably won't really care when the dustballs under the bed are the size of basketballs, haha! I worked full time up until the 10th month and tho it was a sit down computer job it became very tough due to the brain for and exhaustion...still I kept on keeping on until pneumonia took me out! Yuck! So I ended up on short term disability for a couple of months. Its a good thing that you are starting SS, and that you have the option to work or not work. Please remember to keep in touch. We are all here to bounce things off of us. Doctors are great at what they do but they HAVEN"T BEEN THRU IT. Its really easy for them to say "Oh no, that's not a side effect, or has nothing to do with this etc etc" - its way more reassuring to touch base with folks who have been thru it, and have experienced the whole thing. There's a great helpful group of folks who hang out here :) Get that Sword Raised high and get ready for Battle, Death to the Dragon!! > Yes it truly is a personal battle. If you are a Happy Hermit then you > probably won't really care when the dustballs under the bed are the [quoted text clipped - 17 lines] > Get that Sword Raised high and get ready for Battle, Death to the > Dragon!! Hey DBO, I was looking back at your earlier posts and it sounds like you had a hell of a battle but are virus free 1year post tx. How's your energy level, compared to pre tx? Glad it worked out well for you, hope the same for the rest of us too! TC > March 25th I am beginning the attack for the mini dragon war. > [quoted text clipped - 5 lines] > > Jamffer I am going in to week 7 this Monday...Yahoo only 65 more weeks to go!! I can't say it's a party-but again I'm just staring to sharpen my sword!! I say to you Good Luck and fight the fight NONE of us are alone..We all have this site and people who really know what the hec we are talking about. Wallysgirl On Mar 7, 8:50 am, "déjà vu déjà vu" <jamf...@hotmail.com> wrote: > March 25th I am beginning the attack for the mini dragon war. > [quoted text clipped - 5 lines] > > Jamffer I am going in to week 7 this Monday...Yahoo only 65 more weeks to go!! I can't say it's a party-but again I'm just staring to sharpen my sword!! I say to you Good Luck and fight the fight NONE of us are alone..We all have this site and people who really know what the hec we are talking about. Wallysgirl Are you responding? A 72 weeker eh? Is this your first round? I'd like to hear some more details. Hang in there. Jamffer > On Mar 7, 8:50 am, "déjà vu déjà vu" <jamf...@hotmail.com> wrote: > [quoted text clipped - 21 lines] > Hang in there. > Jamffer Hey Jamffer, Well I just got back from Philly today...Good News!!I I started with a viral load of 2 million 930 thousand something and at 4 weeks had VL tested and found out today it is(drum roll please) 5,710. This is actually my third time.I think it was back in 03 I tried 2 dif ones can't remember what(pegintron-paegasys??) but niether worked.In October of 07 I received a liver transplant and things are looking good.Tonight (week 7) was my first full dose(180mcg) of Pegasys.They are going to go ahead and put in for the procrit because my counts are stating to slip..but that is part of the ride!I have to say it hasn't been too bad..I know it's early so I'm optomistic.I have some dry skin,headaches, life stuff. I am also type 1.My last biopsy showed evolving cirrhosis. Well,keep the faith and keep in touch! Wallysgirl On Mar 7, 8:50 am, "déjà vu déjà vu" <jamf...@hotmail.com> wrote: > March 25th I am beginning the attack for the mini dragon war. > [quoted text clipped - 5 lines] > > Jamffer I am going in to week 7 this Monday...Yahoo only 65 more weeks to go!! I can't say it's a party-but again I'm just staring to sharpen my sword!! I say to you Good Luck and fight the fight NONE of us are alone..We all have this site and people who really know what the hec we are talking about. Wallysgirl ******** Oops, I just read your prior post about you getting treated for cancer and getting an unexpected (prize) in the Crackerjack treatment. Hep-C type 1 ouch. The treatment should help keep your new liver healthy until the newer treatments come online. Of course it will be even better if the 72 week ordeal works. Keep us posted regardless. Thanks for sharing. Hang in there. Jamffer >March 25th I am beginning the attack for the mini dragon war. >I walk or ride bike 8 miles per day, hope to continue but time will tell. > >Jamffer Yep, you're right there. I was running 3-6 miles 4 times a week prior to starting. I was slowing down within 2 weeks and after 4 weeks running was out of the question. Anemia and running don't go together well. However, I never had a problem going on long walks which I did often on treatment and cycling at an easy pace was not a problem. I was huffing and puffing a bit going up flights of stairs though. I really think trying to stay active helps mitigate some of the psychological things that kick in as treatment progesses. Hopefully, you will have a mild treatment and have only the anemia to contend with. Don
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