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Medical Forum / Diseases and Disorders / Hepatitis / March 2008

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Pre-tx. symptoms?

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topcat - 01 Mar 2008 18:50 GMT
Hi,
 Every year I get a cold around Txsgiving, this year was no
different, but by Xmas I was still tired, and went to the dr. who gave
me antibiotics, after my symptoms were not reduced after 30 days and 3
different antibiotics he tested for hep-c and bingo.  But besides
fatigue, I have symptoms that the dr.s are saying are not hcv related:
primarily:slight dizziness (a form of nausea?) and headaches   Anybody
here have these symptoms prior to tx?   Also, I found out my viral
load is 6m. whatever that means, and the biopsy is done, but won't
know results for 2 more weeks.
Hope you are well and feeling better (I know; stupid saying huh.)
TC
Normin - 01 Mar 2008 19:58 GMT
> Hi,
>  Every year I get a cold around Txsgiving, this year was no
[quoted text clipped - 16 lines]
> huh.)
> TC

Hi TC

I think we established that dizziness and headaches are
definitely symptoms of chronic hep-c.  Have you tried upping your
water intake yet?  I think you'll find that does help some, but
the virus takes so much out of you that you will be exhausted and
feel like crap til sometime after you finish treatment.

A viral load of 6m is not unusual -- a little on the high side
but mine was over 9m and by week 12 of tx, I was testing negative
for the virus, and have been testing neg ever since.  I think the
numbers fluctuate anyway, so they are not a good indicator of
anything other than the fact that you are infected, and whether
or not the meds are working once you start tx.

what kind of doctor are you seeing?  antibiotics for a cold or
flu are a waste of time (though in this case it did lead them to
test you for hep-c)...  what else are they doing to prepare you
for tx?   You need to get a flu shot, to be tested for and get
the immunizations for hep-b (and A?  can't remember now) if you
never had them, and possibly start on an antidepressant before
you actually get going on the treatment regime.  Most doctors
send you for a good eye exam, and keep watch on your eyes during
tx as the meds can affect your eyesight.  I'm wondering if you
might want to try finding another dr, a hepatitis specialist if
possible.  (if you can, I know many of us are pretty stuck with a
particular clinic or group of drs because of our insurance)

My doctor wouldn't give me the anti-d's til I was already in my
3rd month of tx, but when I started snarling at grocery clerks
and innocent bystanders, he agreed I needed it and I wound up on
Celexa for the remainder of my tx.  He also put me on Xanax for
anxiety, and to help me sleep. I had a terrible time getting good
sleep while on tx, you may want to see if you can use a sleep aid
or try the xanax if you have the same problems. (benedryl helps
many people too)

keeping my fingers crossed that you get good news when your
biopsy results are in... and remember that the liver is the most
amazing organ in your body, and it usually can and will heal
itself once you eliminate that virus!

take care, one day at a time :)  and remember not to sweat the
small stuff.

Sara
topcat - 01 Mar 2008 21:30 GMT
>hey Sarah,
well, my dr. is the only infectious disease doc in town, and so I have
no idea how good he is, but I'm getting the impression that many of
you know as much or more about this then he does.  nonetheless, we're
proceeding.  I have upped my fluid intake, but as soon as I start
feeling good, I eat junk food (kids are grown and gone, so tv dinners
are getting awful commonplace, I know, not good idea).  I have an
anxiolitic, Ativan,  haven't used it much, .  I thought about getting
an anti-D, a friend recommended Wellbutrin, but not sure yet.  As for
snarling at grocery clerks, uh, I started yelling at other drivers,
and screaming, something I haven't done since I was a teenager and I'm
not even on tx yet....maybe it was just a phase.
thanks for the help.... nice to hear from you!
tc

> I think we established that dizziness and headaches are
> definitely symptoms of chronic hep-c. >
> what kind of doctor are you seeing?  
Normin - 01 Mar 2008 21:42 GMT
>> hey Sarah,
> well, my dr. is the only infectious disease doc in town, and so
[quoted text clipped - 20 lines]
> thanks for the help.... nice to hear from you!
> tc

a lot of folks here have had bad results with Wellbutrin...  I
did well on Celexa and I've heard Lexapro works well too...
others here are much more knowledgable about that than I am tho.
Hope they pipe up on this subject :)

S
Thip - 02 Mar 2008 19:17 GMT
"> a lot of folks here have had bad results with Wellbutrin...  I
> did well on Celexa and I've heard Lexapro works well too... others here
> are much more knowledgable about that than I am tho. Hope they pipe up on
> this subject :)
>
> S

I did lousy on Zoloft and fine on Prozac.  I tried Cymbalta and had some
real anger issues.  It was not pretty <grin>.  Normally I'm pretty
easy-going so the behavior was a real eye-opener for the folks closest to
me.

HCV causes a whole host of side effects a lot of doctors don't know about
and/or aren't willing to acknowledge.  I've had dizzy spells for years
(nothing wrong with the ears other than selective hearing) and unexplained
little cluster-type headaches that feel like an ice pick is being jabbed
through my temples.  While you have to be careful not to attribute
everything to HCV (like I did when my stomach hurt--I later discovered I
have ulcers), a lot of the unexplained, temporary, or sporadic things can be
attributed to it.
topcat - 02 Mar 2008 19:29 GMT
>.  While you have to be careful not to attribute
> everything to HCV (like I did when my stomach hurt--I later discovered I
> have ulcers), a lot of the unexplained, temporary, or sporadic things can be
> attributed to it.

I don't usually blame all my ills on the hcv, I usually blame stuff on
my ex-wife :)
Thip - 03 Mar 2008 01:17 GMT
>. While you have to be careful not to attribute
> everything to HCV (like I did when my stomach hurt--I later discovered I
> have ulcers), a lot of the unexplained, temporary, or sporadic things can
> be
> attributed to it.

I don't usually blame all my ills on the hcv, I usually blame stuff on
my ex-wife :)

Never thought of blaming mine on my deceased husband, but I'll betcha he had
something to do with those ulcers!
amzolt - 03 Mar 2008 12:36 GMT
I know different folk do well on different meds and I've heard some
horror stories about people needing to switch anti-Ds and suffering
through some weird ups and downs.
I've been on Citalopram with no complications (even though the dosage
had to be raised 50% around month 4-5).

Citalopram aka Celexa (U.S., Forest Laboratories, Inc.), Cipramil ,
Citrol, Seropram,Talam (Europe and Australia), Recital (Israel, Thrima
Inc. for Unipharm Ltd.), Zetalo (India), Celepram, Ciazil (Australia),
Zentius (South America, Roemmers), Cilift (South Africa) and Cipram
(Denmark, H. Lundbeck A/S).
dBo - 03 Mar 2008 17:22 GMT
Me too on the Citalopram aka Celexa - did ok with that, also ended up
on Ativan for sleep towards the end of TX when I was no longer able to
sleep - funny considering it seems like sleep was all I could do for
the first few months, especially on the weekend, after Friday night
injections, haha!

The Riba Rage that people talk about so much just never seemed to
happen to me - maybe the only side I didn't experience! Maybe I was
just too exhausted all the time to have the energy for anger..

But as others have said, this is a good time to "git 'er done" - Its
tough getting hit with this diagnosis, its tough wanting to get on
with it once you have decided go ahead with Tx, but whatever you can
do before starting tx to help yourself thru it is a Good Thing - I
recall people suggeting things like setting up automatic payments for
bill etc - that was one thing I didn't do, and I have to confess, once
the brain fog set in for good I for one was guilty of mixing up the
envelopes (one with the window on the right, the other one on the
left) and mailing credit card payments to MYSELF, haha! Funny except
for the late charges incurred due to late payments. I suppose I could
have called them and tried to get the late fees removed but it just
didn't seem like it was worth the effort at the time
Waterspider - 01 Mar 2008 20:50 GMT
Yes, dizziness and headaches can be caused by hepatitis c.
Your doctors hopefully prescribed antibiotics for a bacterial infection
related to your cold rather than to treat the flu/cold virus.
If you haven't been referred to a gastroenterologist or hepatologist yet,
request it.
Good luck,

> Hi,
>  Every year I get a cold around Txsgiving, this year was no
[quoted text clipped - 8 lines]
> Hope you are well and feeling better (I know; stupid saying huh.)
> TC
 
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