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Medical Forum / Diseases and Disorders / Hepatitis / February 2008

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Frogger - 20 Feb 2008 17:08 GMT
A n00b here.

I had a physical Jan 22.
Got called back for re-run of a couple labs Feb 5.
Got the word about Hep C on Feb 8.
Labs including genotyping are out until the 25th.

I'll be 35 in April.

I'm not sure what to think yet.  I wax between mild freak out and odd
zen calm.

Any helpful words for this freshman would be great

cheers to all,

Frogger
greyhackles - 20 Feb 2008 17:32 GMT
>A n00b here.
>
[quoted text clipped - 13 lines]
>
>Frogger

Hello, Frogger. And welcome to our little dysfunctional group ;-)

I suppose top on my list of helpful words would be: you are young.

There are a lot more helpful words, but in the scheme of things, you're a
youngster in this business. Most people don't discover they've been infected
with HCV until much later in life - and in the meanwhile, the disease has been
slowly chomping its way along.

If you know the earliest time that you may have become infected, obviously the
more recent time is the better. While it is not absolute - there will always
be the cases that belie the favorable odds - there's reason to be optimistic
that any damage suffered has been on the low side of the scale. And youth is a
favorable factor in the odds of treatment being successful.

So you got that going for you ;-)

Although the odds are against it in the central USA, we'll hope you are
genotype 2. That'd give you two factors going for you wrt treatment.

I suppose everyone goes through something akin to a mourning period when they
first get the news, so the freak-out phase is probably not unusual. But don't
put yourself on the ledge quite yet - most folks not only live just fine with
this, some actually do kick it in the a.s for good.

Stick around. This group can help you get through the future.

Cheers

/greyhackles
Frogger - 21 Feb 2008 14:55 GMT
> >A n00b here.
>
[quoted text clipped - 44 lines]
>
> /greyhackles

I appreciate the the warm welcome.  Being able to speak to others that
are in the same boat is golden. Just reading hour after hour on
medical websites and in books can get pretty mind numbing.

cheers,
Frogger
Cactus Jammies - 20 Feb 2008 17:40 GMT
Hi Frogger,
 Let me be the first to lamentably welcome you to this support newsgroup.
If you are only 35 and you have just had the diagnosis (dx), chances are
that unless something freaky has happened, your liver may not be damaged too
much.  One thing you should do is make sure to stop drinking, if you still
do, and try to lose a bit of weight if you are getting too chubby.  Your
doctor may have already told you these things.  It is pretty important.
Also you have to protect your family from infection, so blood to blood
contact including toothbrush, razors and and nail clippers should not be
shared.  Sex is not prohibited, but you may want to play that 'safe', too.
Remember, infection is transmitted blood to blood.
 You won't know about the damage to your liver unless you have a biopsy
(bx) that tells the doctor if the scarring in your liver has started or
reached a critical level, and anything in between.

You've made a good first start by coming to this place.  All kinds of advice
will pop up as soon as you get more information.  Remember.  Relax, Zen.
Hep C is very slow moving, and most people eventually die with the virus,
not because of it.

be well as you can be, Frogger

cactus jammies ===============
>A n00b here.
>
[quoted text clipped - 13 lines]
>
> Frogger
Frogger - 21 Feb 2008 14:50 GMT
> Hi Frogger,
>   Let me be the first to lamentably welcome you to this support newsgroup.
[quoted text clipped - 35 lines]
>
> > Frogger

Yep, no alcohol that's a given.  I do need to loose a few pounds and
if I didn't have a good reason before, this sure is one. I don't know
for sure when I was infected, but I did get a lot of blood after a
severe car accident in 1978, which would mean if it came to me then
I've been with this for 30 years.
Thip - 20 Feb 2008 22:15 GMT
>A n00b here.
>
[quoted text clipped - 3 lines]
>
> Frogger

Don't panic.  Life goes on.  :-)
Frogger - 21 Feb 2008 14:48 GMT
> >A n00b here.
>
[quoted text clipped - 5 lines]
>
> Don't panic.  Life goes on.  :-)

Good advice.  Just like The Hitchhikers Guide.  Maybe my disease will
be Mostly Harmless.
Waterspider - 20 Feb 2008 23:48 GMT
>A n00b here.
>
[quoted text clipped - 10 lines]
> cheers to all,
> Frogger

Nice to meet you, Frogger.
Are you scheduled for a liver biopsy? That, unfortunately, is the most
accurate (argueably the only) way to determine how much damage hcv has done
to your liver. Don't let anyone tell you that "liver function test" results
will indicate damage; that's bullshit.
Once you get the biopsy results, then you can make a decision about
treatment.
In the meantime, do NOT drink alcohol, that's like throwing gasoline on a
fire (fire being your liver). Eat well, too. Lots of fresh fruits and
veggies. Stay away from processed foods, high fat, high sugars, high salts
and all that. Iron is not going to do you any good either.
But, you must have questions, all kinds of them, so ask us questions and
we'll overwhelm you with information and reassurances. Remember, the only
stupid questions are the ones you don't ask. We know this, because we've all
been where you are right now, sitting right on a razor blade with freak on
one side and zen on the other <g>
Take care,
Waterspider
Frogger - 21 Feb 2008 14:45 GMT
> >A n00b here.
>
[quoted text clipped - 29 lines]
> Take care,
> Waterspider

Howdy Waterspider,

Not scheduled for a biopsy yet.  I expect that will be brought up
after the genotyping comes back.  Only had blood tests and an
ultrasound so far.  Next appt with gastro doc is Monday.  Should learn
more then.  I haven't had a drink since the diagnosis, though I've
never drank much anyway.  I've also started eating more raw veggies
and fruit and switched to a multi-grain bread.  Drinking more water is
difficult for me, it tends to increase my nausea, but I'm trying that
too.

I know the basic rules.  Though this is new for me, it's not new to
me.  My grandmother died from liver failure caused by Hep C in 1990.
I know a lot has changed since then.

I joined the list to share in the support of others going through the
same issues.  Right now my biggest questions is besides the peg-furon/
ribo treatment what are things people here have found make them feel
better?  Any specific foods, vitamins, alt-therapies (massage, Chinese
medicines), exercises, teas, anti-depressants, anything at all that
any of you have found make you feel better, healthier, more sane and
have more energy.  Right now I'm nearly always tired, and often
nauseated.  I've been getting some temperature spikes when I'm
sleeping too.

cheers,

Frogger
sojo - 21 Feb 2008 01:45 GMT
> A n00b here.
>
[quoted text clipped - 13 lines]
>
> Frogger

Hi Frogger. I'm fairly new here. Diagnosed last June and started
treatment in late January, so I am one month into a six month treatment.
I'm G3. If you are like me, you will be thanking your lucky stars for
finding this NG. I haven't posted here often, but when I have, I've
received very helpful advice and tons of support. A lot of what I have
learned about Hep C is thru here. Mostly I just follow the posts, read,
learn and know that I am not alone.

For me the treatment has not been that bad. I can't say there haven't
been lots of side affects, but I have been able to work most days and
live for me is normal under the circumstances. Since finding out last
June, I have been all over the map on how I feel about the whole thing.
Now that I am in treatment, I'm positive I can beat this thing.

Hang in there!
Frogger - 21 Feb 2008 14:46 GMT
> > A n00b here.
>
[quoted text clipped - 29 lines]
>
> Hang in there!

Thanks for the kind words, and I'll be rooting for you too!

cheers,

Laura
h00hbt - 21 Feb 2008 20:14 GMT
Welcome Frogger

Well there´s no reason to freak out and it wont help anyway. I guess
you´re on the right path already.....for me the solution was to learn
everything I could about hep-C and this is a good place to be, -get to
know the "bug" and you´re in control.

All the best

/H

> A n00b here.
>
[quoted text clipped - 13 lines]
>
> Frogger
bob - 27 Feb 2008 03:10 GMT
> A n00b here.
>
[quoted text clipped - 13 lines]
>
> Frogger

Hey frogger......

Do you have any idea when you got it? I'm asking ,because it's generally
a very slow process. I have had it since about 1979. I have been through
treatment this past year and became a non-responder after 42 weeks . I'm
still pretty healthy. I freaked out big time when I was first diagnosed a
couple of years ago but then I'm a bit of an alarmist.. Don't worry too
much,there are new treatments on the horizon.

If you drink, stop completely , right now!!

take care
Frogger - 27 Feb 2008 16:34 GMT
> > A n00b here.
>
[quoted text clipped - 26 lines]
>
> take care

Not sure from whence it came.  Could have been in 1978 after a car
accident, could have been person
to person (I know someone infected and we might have had blood to
blood contact), or maybe
it was from when I got one of my tattoos.

I don't really care where I got or how.  All I care about now is
getting better or at least staying as
good as I am and not passing it on to anyone else.

Just found out on Monday that it's geno 1a.  Biopsy is scheduled for a
week from Friday.

I'm still processing.  It's still kind new.  I think I'm gonna be ok
though.

And ya, I haven't had a drink since a week before I got my diagnosis.
Never been too much of a drinker
so it isn't much of a hardship.  Now if someone told me I could never
have another doughnut, or if I had
to give up TexMex food... well, damn, just kill me now!

cheers,
Frogger
Kozure Ookami - 27 Feb 2008 17:06 GMT
>Not sure from whence it came.  Could have been in 1978 after a car
>accident, could have been person
[quoted text clipped - 20 lines]
>cheers,
>Frogger

Sounds to me like you are on the right path Frogger.  It can be hard
at first to get around the shock and devastation when you find out you
have a serious disease like hepatitis c.  I freaked when I found out a
few years ago, treated, and was cured.  

I hope that biopsy shows minimal damage for you.  Lousy roll on the
genotype.  However, geno 1 can be beat as many people around here can
attest.  

Good luck and take care.

Don
 
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