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Medical Forum / Diseases and Disorders / Hepatitis / November 2007

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Life after tx

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Waterspider - 21 Nov 2007 20:19 GMT
This morning the excavator showed up to begin excavation for an addition on
my home (my office is expanding). The operator is a joy to watch, like an
artist with a huge machine instead of a paintbrush; a good eye, high energy
and spot-on reflexes to move and place big rocks and big trees. Now he and
his helper are going to cut some great big branches over the driveway so he
can get the truckload of rock where it needs to be. Lots of activity and
hard work, the air is cold and crisp, the sun is shining. So what does this
have to do with hep c, you may ask.

Well, the high-energy operator completed tx about six months ago, and I
completed a couple of years ago. Yes, there is life after tx, and it's all
good. Remember this if you're contemplating making the commitment, or if
you're in the middle of it and feeling sick and tired of being sick and
tired.
dBo - 21 Nov 2007 23:17 GMT
AMEN! And well said, WS :)

After Tx thru 2006, ending up with pneumonia and an MRSA infection,
the decline of the osteoarthritis in my hip, and a total hip
replacement three months ago, like a Timex, I take a lickin and keep
on tickin...

I remain virus free and can dance a jig again, where I could barely
walk three months ago. So much to be thankful for this year...Things
really are getting better

Happy Holidays to you! :)

And might I add, to those of you still walking the walk, it IS tough
to get thru, but it is doable - persevere, and remember that one day
at a time gets you to the end eventually...I know it does not work for
everyone, in my case it did, and I am so grateful for a new chance
greyhackles - 22 Nov 2007 01:18 GMT
>>This morning the excavator showed up to begin excavation for an addition on
>>my home (my office is expanding). The operator is a joy to watch, like an
[quoted text clipped - 28 lines]
>at a time gets you to the end eventually...I know it does not work for
>everyone, in my case it did, and I am so grateful for a new chance

I put the above posts back together again just to keep the good stuff
together...

To add to the messages of inspiration...In retrospect, for years I was saddled
by an over-amped immune system raging against the dragon. It really wasn't
obvious to me over the decades - because one adapts, as best as they are able
- and so the decline can be obscured.

Now, coming up on two years post-tx, the difference in quality of life is now
quite obvious. Whereas, before, when I got home from work I invariably ended
up on the couch, today I'm looking for *something to do*. In fact, I'm all
about *doing* now, instead of simply trying to recharge for tomorrow.

This has been noted by pretty much everyone around me. In fact, the first
signs of transmogrification might have been more evident to those around me
than to myveryownself. But I caught on to it about a year ago, and if I spend
any time thinking about the difference, I could fill a page of the things I've
done since that didn't even occur to me prior to therapy.

Of course, it's rather easy to say this, now, having been rescued by therapy.
But I think that might be the point...

For fellow heppers everywhere, if you're still on the fence, but you have
family and friends to prop you up for the duration, and you have insurance
that will cover the cost,  but you're still unsure as to what to do, roll the
dice and take a chance. It could work for you, and you'll be so much better
off for the effort if it does.

It is, simply, life changing...

Cheers - and happy holidays to all.

/greyhackles
Guy - 22 Nov 2007 02:11 GMT
> This morning the excavator showed up to begin excavation for an addition on
> my home (my office is expanding). The operator is a joy to watch, like an
[quoted text clipped - 10 lines]
> you're in the middle of it and feeling sick and tired of being sick and
> tired.

Thanks Spidey, dBo and Grey.
I have 4 weeks left and yes, I am sick and tired of being sick and
tired and
wondering if I'll ever get better. It's been a long 10 months and it
was tough at times.
I suspect I would not have made it this far without the support from
this group.
Ah yes, a normal life, I dream about it at night.
4 more f__king weeks.
My Dr thought I was done at this point, had to point out at last
appointment
it has only been 44 weeks and he wrote a script for one more 4 pack of
IF and Riba.
Thanks again, you guys rock.
Have a happy and safe holiday.
You too Cactus Jammies, I can't forget you :-)
Cactus Jammies - 22 Nov 2007 03:21 GMT
> Thanks Spidey, dBo and Grey.
...
> My Dr thought I was done at this point, had to point out at last
> appointment
[quoted text clipped - 3 lines]
> Have a happy and safe holiday.
> You too Cactus Jammies, I can't forget you :-)

What did I do???  :)  Actually I had the same experience when I was in
treatment.  But not so far off the mark as you.  My BCLD support was a bit
hazy, but I knew for certain when my treatment time was up and I had to
correct the office more than once.  I live about 100 miles by highway from
it.  I think that even though I was tested 'clear' on the PCR 2 weeks
post-tx, the odds were not on my side.  Geno 1b and overweight for the
dosage, with Steatosis.  I got a more than two log drop at week 12 PCR, and
I don't know how long after that time a PCR would have shown me 'clear'.  I
had to remind them that I had that 2 log drop, because during one road-trip
10 minute visit about week 30, that there was talk of me getting another PCR
and then that idea was hastily remapped when I reminded them of the 2-log
drop way back a lot of sweaty, chilly and foggy weeks before.  By rights, I
think that I should have been tested then.  I really think that I should
have been put on a heavy duty weight loss program before going under the
needle.  Other folks have other stories.  But we're OK.  :)

all the best to you, Guy.  those four weeks will blaze by.  I hope you are
not too anxious, because like it or not, life unfolds at its own pace.  You
should be done what?  A week or two before the Jolly Red Jumper fella drops
down your chimblee?

Best of your holiday to you, too

cactus jammies (our Thanksgiving was on your Columbus Day, eh?)
eileen - 23 Nov 2007 19:17 GMT
Not to bust the good feelings but,

I am only one month off treatment, my mood is great, my neuro problems
are not.
I will keep the dramatics down, but maybe, just maybe things will be
ok.
If not, I will let you know, that is if anyone would like to know. I
go for 6 week post treatment labs
Monday, and will have another brain scan tomorrow.
I may be worried about these neuro problems, but I do feel energy
returning, I just have to be
carefull I don't knock too many things over, sort of like a large dog
with a long wagging tail in
a china shop.
I have saught answers from several doctors and still they don't know.
If another doc tells me
this again, I will need psych treatment or a lawyer to bail me out of
jail.
I was neg at end of treatment
I do think I am still clear but what is the damage done.

broken cookie,
eileen
Dwight - 24 Nov 2007 01:36 GMT
> Not to bust the good feelings but,
>
[quoted text clipped - 19 lines]
> broken cookie,
> eileen

Eileen, I'll be pulling for you. Hope you can get everything straitened
out soon so you won't have to remain a broken cookie.

Dwight
eileen - 26 Nov 2007 21:51 GMT
> > Not to bust the good feelings but,
>
[quoted text clipped - 26 lines]
>
> - Show quoted text -

Thanks Dwight,
I hope so too, well otherwise a broken cookie is still a cookie!
Right!
You're always there with encouraging words for me.
I'll let you know how things are.
Still a cookie,
eileen
Michael Arends - 24 Nov 2007 15:57 GMT
Smiling Wickedly,  eileen answered:
> Not to bust the good feelings but,
>
[quoted text clipped - 19 lines]
> broken cookie,
> eileen

Eileen,

what kind of problems? (if you don't mind me asking).  Are you getting
the brain zaps?  were/are you on Anti-d's? or did you stop?  if so, THAT
might be the source of your problems.

There's a lot of evidense online of certain anti-d's causing problems
when trying to quit them.

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                            «.·°·. Michael .·°·-:¦:-

eileen - 26 Nov 2007 22:09 GMT
On Nov 24, 10:57 am, Michael Arends <mlare...@NODAMNSPAMearthlink.net>
wrote:
> Smiling Wickedly,  eileen answered:
>
[quoted text clipped - 38 lines]
>
> - Show quoted text -

Hi Michael,

I have to go over my notes on my time line but hadn't changed meds
when this happened.
Had my brain scan and will see this neuro on Thursday.
My symptoms could have been 60 other movement disorders but my NP
thought I was looking
like Parkinsons Syndrome.
My symptons are alot better than when they came on me, so that is a
good sign.  I will
let you know.  Another Doc on Thursday.
Did you have neuro problems also?
I appreciate your info and support.
Talk to you soon,
eileen
mags - 27 Nov 2007 02:41 GMT
Aww sweatheart (brushing the crumbs away)  I was a sick little puppy
on and off tx until about 4 months post tx.  I am seeing some sides
from the treatment.  My skin is breaking out in weird rashes, I have
put on some of weight (working on losing that).  I do have more
energy, my hair has grown back and I feel very well.  It just takes
some time.  I guess I wanted an instant miracle lol.  Hang in their my
cookie!

Mags

> Not to bust the good feelings but,
>
[quoted text clipped - 19 lines]
> broken cookie,
> eileen
Kozure Ookami - 27 Nov 2007 09:46 GMT
>Not to bust the good feelings but,
>
[quoted text clipped - 19 lines]
>broken cookie,
>eileen

Eileen, I'm very sad to hear your having a very rough post-tx.  It
sometimes takes a while but over time things often improve drastically
and I really hope that is the case for you and you get an SVR as well.
I didn't have neurological problems post tx but did have some joint
issues and lingering effects from an allergic reaction to the
interferon.  It faded but it was maybe 6 months before I was 100
percent.  Last person I remember having neurological problems that
posted here was Lana I think and I believe it did improve for her.
From what I understand neurological problems can take a very long time
to diagnose and that has to be very frustrating.  Maybe symtoms will
go away before they figure it out.  I hope so.  Good luck and keep
your spirits up.  

Don
 
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