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Medical Forum / Diseases and Disorders / Hepatitis / September 2007

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tintin1983@gmail.com - 20 Sep 2007 08:08 GMT
I contracted the virus when I was born I was premature and needed
blood. I found out I had it when I was 12 and been living with it my
whole life. Now the main concern I have is I know it's not really an
std but still if I meet someone how do I drop this on them because I
know I shouldn't do anything physical with them with out their
knowing. How did you approach this problem and get over that fear?
Cody - 20 Sep 2007 10:09 GMT
> I contracted the virus when I was born I was premature and needed
> blood. I found out I had it when I was 12 and been living with it my
> whole life. Now the main concern I have is I know it's not really an
> std but still if I meet someone how do I drop this on them because I
> know I shouldn't do anything physical with them with out their
> knowing. How did you approach this problem and get over that fear?

It cannot be transmitted sexually.

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Cody
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Waterspider - 20 Sep 2007 17:52 GMT
>> I contracted the virus when I was born I was premature and needed
>> blood. I found out I had it when I was 12 and been living with it my
[quoted text clipped - 4 lines]
>
> It cannot be transmitted sexually.

Blood-to-blood contact is the ONLY way that hcv is transmitted.
Blood-to-blood contact can happen during sex, but it's not usual.
Do some research; the more you learn, the less you'll fear.
This is mostly a great place for solid information, so here's where to ask
any and all hep-c related questions that you might have.
Kozure Ookami - 21 Sep 2007 09:18 GMT
>> I contracted the virus when I was born I was premature and needed
>> blood. I found out I had it when I was 12 and been living with it my
[quoted text clipped - 4 lines]
>
>It cannot be transmitted sexually.

I don't know if that's true.  I think I read it's not primarily
transmitted sexuality and I don't think I've read anything concrete on
it.  

Perhaps on a broader issue is the question of disclosure before or
when beginning a relationship.  I think it is something you just have
to face and the reality is many people are going to run for the hills
when they find out you have this disease.  If so keep trying.  

What I wonder about is.  If you have obtained SVR is disclosure still
necessary.

BTW, have you attempted treatment or considered it?  

Don
Cody - 21 Sep 2007 10:22 GMT
>>> I contracted the virus when I was born I was premature and needed
>>> blood. I found out I had it when I was 12 and been living with it my
[quoted text clipped - 8 lines]
> transmitted sexuality and I don't think I've read anything concrete on
> it.  

Perhaps rough, anal sex could transmit it. I know my wife of over twenty
years just got tested and didn't have it.

> Perhaps on a broader issue is the question of disclosure before or
> when beginning a relationship.  I think it is something you just have
[quoted text clipped - 7 lines]
>
> Don

I am still going through the medical system and don't know if they will
recommend treatment or not. My viral load test last time didn't come
through so they have to do it again and then I see the number one liver
doc and she or he makes that decision as well as whether or not to do a
biopsy.

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Cody
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Paul - 22 Sep 2007 04:52 GMT
On Fri, 21 Sep 2007 11:22:45 +0200, Cody <mpcody@shoesgmail.com>, in
message ID <P3MIi.6673$JH.2890@news.ono.com>, in the newsgroup
alt.support.hepatitis-c wrote:

>I am still going through the medical system and don't know if they will
>recommend treatment or not. My viral load test last time didn't come
>through so they have to do it again and then I see the number one liver
>doc and she or he makes that decision as well as whether or not to do a
>biopsy.

I believe that the thinking has switched more in recent years to
allowing treatment even if liver damage is mild - providing there aree
no other aggravating factors.  I know in the UK the docs wouldn't
allow people with mild liver damage to treat until about 3 years ago
(unless they had symptoms that were causing problems with their day to
day living).  That changed three years ago though and the patient has
the choice whether to treat mild damage now.  With moderate or severe
damage they would recommend tx (aggravating factors excepted).

A biopsy may not be strictly necessay if you opt for tx though
personally I think it's better to have one..  If you opt to wait, then
I would say a biopsy is essential to see if you are making the right
choice and give you the opportunity to change your mind.
Waterspider - 21 Sep 2007 20:11 GMT
>>> I contracted the virus when I was born I was premature and needed
>>> blood. I found out I had it when I was 12 and been living with it my
[quoted text clipped - 8 lines]
> transmitted sexuality and I don't think I've read anything concrete on
> it.

Perhaps because of the early association with AIDS, the assumption used to
be that it was a sexually transmitted disease. However, this has never been
proven.

Like Cody said, rough sex can lead to infection (blood-to-blood), but this
doesn't make it an STD. You can contract hep c by being in a bloody car
wreck with a hcv+person and having your blood exposed to theirs, but that
doesn't mean that hepatitis c is caused by car accidents.
Terry - 29 Sep 2007 04:51 GMT
> >tintin1...@gmail.com wrote:
> >> I contracted the virus when I was born I was premature and needed
[quoted text clipped - 9 lines]
> transmitted sexuality and I don't think I've read anything concrete on
> it.  

I have seen lots of couples where one is positive and one is
negative.  The chances are low that it can be sexually transmitted,
but not 0.

I think using each others nail clippers and such poses a higher risk
than sex.

The general description says...transmission in monogamous
relationships is low, although I never found the reason they include
monogamous.  It would seem to me, either it is or not.
Xarlos Fishbro - 21 Sep 2007 16:21 GMT
Cody ~

I'm not sure but I don't think that's what they are talking about.
There *IS*, afterall, the "stigma".

How I deal with it?

Right up front!  Stand up straight, look 'em in the eye and tell 'em
straight, "I've got *ALIENS* living inside me!"

> tintin1...@gmail.com wrote:
> >  ... Now the main concern I have is I know it's not really an
[quoted text clipped - 7 lines]
> Cody
> To email me, remove shoes first
Cody - 21 Sep 2007 16:25 GMT
> Cody ~
>
[quoted text clipped - 5 lines]
> Right up front!  Stand up straight, look 'em in the eye and tell 'em
> straight, "I've got *ALIENS* living inside me!"

I am not embarrassed by the fact that I have Hep C so I tell anyone and
everyone that is interested. That said, I have been married over twenty
years and have known that I have the virus for 13 so I haven't had to
wonder what I would do in the OP's case.

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Cody
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>
>> tintin1...@gmail.com wrote:
[quoted text clipped - 7 lines]
>> Cody
>> To email me, remove shoes first
Xarlos Fishbro - 21 Sep 2007 18:06 GMT
Cody ~

Good to get with you again.

>I am not embarrassed by the fact that I have Hep C ...

Nor am I.

> ...  That said, I have been married over twenty years
>and have known that I have the virus for 13 so I haven't
>had to wonder what I would do in the OP's case. ...

I was married to the same wonderful woman for 30 years brfore combo
detroyed that!

Socially, it is something of a tricky issue - particularly when you
are single.  

I work out at Gold's with a guy who has asked the same question and my
response to him is the same - be upfront about it.  If they get all
~~~~ about it, it's a reflection on them and you probably wouldn't
want to spend much time with them anyway.

Take care,

X
Cody - 21 Sep 2007 18:20 GMT
> Cody ~
>
[quoted text clipped - 22 lines]
>
> X

Well said.

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Cody
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greyhackles - 21 Sep 2007 20:42 GMT
>> Cody ~
>>
[quoted text clipped - 24 lines]
>
>Well said.

Agreed - though it's easier said here than done there in The Real World.

fwiw, I was HCV+ for thirty years while married to the same (wonderful) woman.
She was still testing negative just before I started therapy...

Cheers

/greyhackles (...and I'm still married to her :-)
Xarlos Fishbro - 21 Sep 2007 21:23 GMT
My regular routine involves Dennis Hopper.  Does anybody remember
those great Nike commercials where Dennis Hopper played a demeneted
shoe-sniffing referee-clad fan?

I get all big-eyed, look around to make sure nobody's listening.  I
say, "Can you keep a secret?"  They start looking just a tad concerned
and say, "Yeeees?"  I look around again, look down towards my liver,
point at it, look them in the eye (big-eyed, mind you), and whisper,
"I got ALIENS living inside me!"  And nod smugly.

The whole idea for *THE ALIEN WITHIN!* (http://www.fishbro.com/aw/)
came from right here back in '99 or '00 when someone suggested that
HCV was a CIA conspiracy.  And in my absurdly addled state (or is it
the other way around), I said, "No it's not!"  It's aliens!  

And a few months after I put the site up, astronomers discovered
free-floating viruses in space!

http://www.indien-netzwerk.de/navigation/bildungwissenschaft/artikel/eng/astro-s
ars-eng.htm


Go figure!

But I tell you, it makes a great lead in.  

X

>>> Cody ~
>>>
[quoted text clipped - 33 lines]
>
>/greyhackles (...and I'm still married to her :-)
Cactus Jammies - 23 Sep 2007 15:43 GMT
"Cody" <mpcody@shoesgmail.com> wrote in
>> Socially, it is something of a tricky issue - particularly when you
>> are single.  I work out at Gold's with a guy who has asked the same
[quoted text clipped - 9 lines]
> Well said.
> Cody

I find that explaining why I am so changed since taking the (relapsed) combo
treatment is the most difficult... Only if I think that the person could
understand without me explaining what Hep C is usually contracted from (a
wild weekend thirty five years ago) then I go on to explaining that swirl of
water under the bridge.

What has been the most visible in a town of 8,900 souls, is my lack of
visibility and by increased sensitivity and insight.

cactus jammies  (Bob)
 
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