Medical Forum / Diseases and Disorders / Hepatitis / August 2007
Grey, cj re "what do these numbers mean?"
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Cactus Jammies - 03 Aug 2007 06:28 GMT \"greyhackles" <greyhackles@NOSPAMyahoo.com> wrote in message news:gln3b3lsfsv31rtrsb7l8oj45renl498gn@4ax.com...
> On Thu, 02 Aug 2007 06:08:33 GMT, "Cactus Jammies" ............
>>by the way, it's been a long time since we exchanged remarks, eh? I'm >>still >>tickin' :) >> >>cheers to all >>cactus jammies > > Hey, CJ! ...
> So how are you doing these days? All of your digits working? Are you still > cranking out guitars? > > Cheers > > /greyhackles Hi Grey, Well now that you ask... all my digits (twenty) have full flex and are loose and don't lock up anymore. The major knuckle joints (at the base of the fingers and toes) have all their flex back. No pain, no pops. Remarkable, which gives me a chance to do my guitar stuff, finally. Milkthistle and time.
No more gallbladder thing, either. I don't know if that was the milk thistle that may have done that with the bile, or the addition of three weekly doses of turmeric, about 1/4 teaspoon on eggs, potato salad, whatever. I started with turmeric about two months ago, and it was since then that I have noticed the lack of the twinge in the area on/under the lower right of the liver, which for me was manifesting itself as a slight burning sensation just under the skin, near my navel. Could be 'referenced pain' like the liver produces, up in the upper chest area near the collar bone. But I was diagnosed by sonogram as having the beginnings of gallstones in the fall of '03, and a blurry area that did not show fibrosis at the top right side of my liver. I think now that it is my steatosis, discovered along with the stage and level of the Hep C damage, during the liver biopsy in '03. I am thinking that the steatosis (fatty liver) may diminished as well for the same reasons as above. I do not drink booze except for sips once in while, and I have lost about 10% of my corpulence. I am eating according to the health Canada living with Hep C diet mostly, moderate lean protein, all the veggies and fruit you can cram down your yap, and limited carbs. I was on Atkins for weight loss previously, so it is not a big thing for me. Part of my goal is to get my body weight down on the waist measurement indexing, which you may know something about... purely statistical that thing, I think, but numbers count! (one two three) :) I have to do that for my chronic high BP as well. I am pretty close to breaking the waist size forty barrier. Yay!
I picked up the art/craft of fabric dyeing and painting, and I am becoming know as the tie dye tee guy in town, which gives me adequate interaction with folks that involves things like planning, selections, being with large groups of people for 24 hrs as the process involved, takes that long. So a virtual chrysalis and transformation into bright colours if you will. Also, I will be centre of attention, which I think I can handle more and more on a responsible basis. I knew instinctively that keeping busy discovering techniques and working with my acquired lifetime skills and confidence, helps/helped me a great deal to 're-centre', as they say. So colour your world, dude!
As I say, my concentration has returned, and am not under any psych care or that kind of thing. But my character has changed somewhat after all the experiences and trips I went through since I started my TX way back in October/04. I did learn one thing for sure that I must emphasize. I should not have relied so much on this list to keep me more or less plugged into the real world, and cut myself off like I did in our community. That was the wrong thing to do. I was too smart. heh heh heh There were no mechanisms to reach support locally, at least from those that would know about the effects of Hep C, and help keep the ball rolling on top of the table and not underneath it. So as it turns out, I will be going to the small psych outpatient section in our town to discuss things with X about me of course, and to finally begin to help in the creation of a Hep C peer to peer support group setting in our 9,000 pop. town. If they are ready for it in the bureaucracy. I won't be involved without counselling experts or medical professionals to guide the thing, no way. So I am looking forward to that. What a challenge. I planted seeds by request for creation of a support group here back in '05. It was going to be looked into.
so... continued hot weather low humidity in the east and south central-boundary area of BC. perfect for tie dye and fabric painting!
now tell some stories about you... ! and thanks for asking, btw.
cactus jammies ----------------------------
greyhackles - 03 Aug 2007 23:54 GMT >\"greyhackles" <greyhackles@NOSPAMyahoo.com> wrote in message >news:gln3b3lsfsv31rtrsb7l8oj45renl498gn@4ax.com... [quoted text clipped - 77 lines] > >cactus jammies ---------------------------- I'm really glad to hear your hands are fully functional again - that was really depressing after seeing what you can do with your guitar building. Good for you!
Getting rid of some extra corpulence is a good thing indeed, especially having been diagnosed with high BP and steatosis. You're moving in the right direction on so many levels. And the improve gall bladder function - it's fascinating that something like tumeric and milk thistle might be responsible, but perhaps it's also because you're being good to yourself.
I've been diligently "protecting" the profound weight loss I experienced on therapy - I went from almost 240 down to 190 before I finally finished treatment, and I'm still just under 200 now, 2 years since EoTx. Serendipity!
I haven't had a bite of "fast food" in almost three years now, and I swore off downing a quart of ice cream a day - I think that has a lot to do with it ;-) Down side: I look ridiculous in most of my clothes, as I dropped at least five inches off my waist so my pants now all look "cinched". I should get rid of my belts and just use a piece of rope to sell the whole po' boy look ;-)
So you're now the Tie-Dye Man of the Great White North? Cool beans - have you put any of your work up on the web anywhere? I'm thinking I could use a really neat new tee. Having been a typical long-haired-hippy-freak in the late 60's and early 70's I had my share of tie-dyed stuff, and just recently noticed what looks like a mini-resurgence of the style in stores here in New England.
As for your regrets about spending more time "here" and less time with your peers - it sure sounds like you didn't have much of a choice at the time. Without some solid place to turn, it sure makes sense you'd hang here. It's also very cool you're taking on some of the effort of establishing the type of support group you were missing. I think that's awesome.
I think I can relate to the character evolution thing: surviving treatment sure seems to have left me....."changed"...in many ways. I've found I'm *much* more sensitive to what others are feeling - and not restricted to fellow members of the human race, either.
We usually have a number of nesting birds on our property - all kinds, from house finches to wood ducks in the pond - and this year it was like I could sense all of the angst that the birdy parents were going through trying to raise a clutch successfully. One robin family, in particular, who were nesting in the ceiling of our first-story deck (which is also the floor of our second-story deck) went through three clutches of eggs before yielding one successfully fledged offspring, the interim babies falling prey to hawks and fishers and goddamned house cats. The whole thing left me an emotional wreck for days, and my wife accused me of "going soft in the head" ;-)
Meanwhile, another robin family under the same deck got all four of their first clutch launched successfully and cleared out of town months before the other family finally could pull up stakes and head further north. I actually saw one of the babies experience a "eureka moment", when after more than a week of being out of the nest and begging dad for food, it figured out where worms come from and snagged one on its very own.
Yin yang. I was as happy for them as I was sad for the others.
Now we have House Finch babies all over the yard, the cat-birds are sitting on their second round of eggs, the grackle babies are learning to eat from the feeders, the mourning doves and blue jays are apparently still nesting, the Gold Finch families keep cleaning out the thistle seed feeder - and the hawks come by at least twice a day and scare everyone to death...
And I think I'm dealing with a delayed nesting instinct of my own: beginning with the last 3 months of therapy, I've been remodeling/redecorating/improving the homestead at a near frantic pace. So far, I have, in the order listed:
o replaced 34 of the cheapest interior doors you ever saw with decidedly upscale doors. I actually started this while still on treatment, as a kind of physical therapy to restore my manual skills - as treatment really f.cked up the strength in my hands (and pretty much everywhere else, for that matter)
o built a fancy new laundry room and a third bath
o remodeled the guest bath - tossing out the cheapest vanity base cabinet you ever saw - then built a new framed-style 60" long vanity with raised panel doors and drawers (with those "magnetic" drawer closures), all of the solid wood parts made from one BIG piece of maple and the case work out of birch plywood; stuck a nice granite top on it with an underslung sink and a fancy fixture; replaced the tub and toilet - and had to chop out the nightmare of an original plumbing job and replumb most of the bath
o tore off all of the old (cracked, spalled and rotting) siding from the south side of the house, fixed a number of original-build defects, then Tyvek'd, resided, calked and stained
o built an old fashioned screen door out of oak for the front entrance. It's a thing of beauty - especially compared to the aluminum storm door I got rid of.
o tore up the carpeting from one end of the house to the other, put down real plywood underlayment (because the nitwits that built the house put the original carpeting right down over pine subflooring!) and had all new carpeting put down (the only thing I had someone else do so far)
o rehabilitated the master bath, putting in new fixtures, updated wiring and plumbing
o repainted the living room, dining room, kitchen, all three baths and all four bedrooms and all hallways. Goddamn, I hate painting now! ;-)
o put up ceiling fans in the living room and two of the bedrooms (will get to the others shortly)
Meanwhile, the list of things to do seems to grow - with expensive items, now. We want to gut the kitchen (and get rid of the cheapest kitchen cabinets you ever saw - sensing a theme here, yet? ;-) push the dining room out into an addition so we can expand the kitchen plus provide a breakfast nook kind of dealie. And the SO would really like to add more room to the master bedroom/bathroom, which might yield the third garage bay I'd like to have. Woof. Everything I've done so far was relatively inexpensive compared to those...
So....That's pretty much what's been going on. I hang here to help where I can - giving back to the group that got me into and through therapy. My life is remarkably simple these days - not that it was all that complex before, but I'm finding small pleasures in the work projects that tend to keep me home instead of finding reasons to roam.
Although I *will* drag my wife out to see The Simpson's Movie tomorrow ;-)
Cheers - and stay well, my friend.
/greyhackles
greyhackles - 04 Aug 2007 05:11 GMT Something I should have noted: I am in the best health in...decades.
As I've mentioned often, there are multiple extra-hepatic manifestations due to chronic HCV - with many more yet to be "discovered", I'm sure - to go along with the fatigue and brain fog many heppers experience. While I was more fortunate than many, in that I could usually manage the fatigue, the brain fog was relatively mild, and didn't have a lot of the more troublesome problems some experience, I had my share, and there was always that back-of-the-mind concern that things would get worse.
All gone.
Fatigue is no longer an issue - it's almost scary how much energy I've had over the last year+. I no longer have superficial wounds turn into infections, no longer get friggin' carbuncles in sensitive locations. I haven't had a cold since the start of therapy - and I was always the first in the family to capture a cold germ. And I believe my mind is as clear as ever - if perhaps going a bit mushy on the emotional side ;-)
And with the 18 month all-clear in hand, I no longer worry that the hep will get me. It'll just have to be something else :-)
So...You're doing good things - on many levels - both for your body and soul, and with any luck your health will continue to improve. With a bit more luck, your next dance with the dragon will end in total victory.
Cheers
/greyhackles
Cactus Jammies - 04 Aug 2007 15:34 GMT Hello again, Grey Oh so much to talk about... but let's talk about the birds, first. I received a Christmas gift last year, a local species bird watching guide and a couple of those plastic bottle bird feeders... so when I took the time to reflect and sit on the front porch to try and focus through the residual fogs, I enjoyed watching the chickadees at the feeder. They are so polite, they take turns, and are obviously pay heed to an unkown pecking order. The local winter flock seemed to sense when it was safe to go to the sunflower seeds which they like, and then perch on the branches of the rather thick ornamental crabapple tree just in front of the porch, crack the seeds open and eat the good stuff. Like woodpeckers. But the finches, those juvenile delinquents, the chickadees buzz off when they arrive, cause the finches make a big mess scratch through the feed and roosting in it, because they are so small.
I said Safe? Well, we have a cat, Mango who was my tx buddy, my Familiar. So I was St. Francis I guess. The cat likes to hunt and leave tributes at the door or if the door is open, bring them in. It's their bonding nature. But bonus upon bonus, the black caps are back, the youngsters, and they are picking the catepillars off the leaves of the very same tree. Providence. Horn of Plenty. :) Wonderful.
And about emotions growing and demands becoming less insistent. Your carpentry obviously helps you maintain your personal equilibrium. As does my arts and crafts. I have known that all my life, But I could never really finish anything because I was so lost in defining the shapes and the detail that I found the perspective and colour values were way off (watercolours) on the whole peice. It was just lucky for me (there are no coincidences ahem) that I was caught up in first, tie dye and then sunprint fabric painting, now some stamping and modern batik and even a little macrame. I will be setting up my photobucket display with some of my attempts at this quite soon. If I want to be the drive by tie dye guy for tie dye parties, I have to be able to give pointers to samples. The more esoteric, the actual artistic representation is being developed to my own liking, continues of course. But I know how just a splash of seemingly random colours done in crude tie dye can catch peoples' eyes and they begin almost right away associating the randomness (nearly like a fractal, a mandelbrott set) with their subconscious and say, "oh this looks like a..." of course it does! So some digging back to my roots and not being so obsessed with strict definition and control has done wonders for my confidence and my sense of self-realisation. So now I can give love. And it is exchanged in kind when people start immediately to identify their own life experience and longings and trip out on it. Wonderful.
anyway, tic toc
Bob ----- > cactus jammies
> Something I should have noted: I am in the best health in...decades. > [quoted text clipped - 36 lines] > > /greyhackles Cactus Jammies - 04 Aug 2007 16:01 GMT ps/ this is what my online daily horoscope gave me today after I wrote the previous epistle: (coincidental maybe :) cactus jammies August 4, 2007 Animated Expressions Leo Daily Horoscope You may be expressing yourself enthusiastically today, which could have you drawing a crowd and feeling gregarious. Perhaps you have let down your walls, or are you are so filled with energy that your light bursts forth. With your animated way of telling a story, you easily draw the attention of those around you, whether they are already friends of yours or merely friends you haven't yet met. They will be drawn to your light and energy, perhaps for a variety of reasons. But their reasons do not matter as much as your ability to reach them in your own unique way. Even if you are saying something that people have heard before, the way you communicate yourself makes people want to hear it again, experiencing the adventure through your eyes. By allowing your light to shine through everything you do today, you illuminate the lives of others.
People may be drawn to you because you are a kindred spirit or because they see in you something they believe they lack within themselves. Oddly, in both cases, they are attracted to their own reflection, more easily seen in another. Seeing you express something that they feel inside creates a connection, allowing you to lead them from within the shadows of their experience to see the light that was always shining there. By being fully and freely yourself today, you help others learn from your example to discover how they too can let their light shine to touch others.
What do you think?
> Hello again, Grey > Oh so much to talk about... but let's talk about the birds, first. I [quoted text clipped - 86 lines] >> >> /greyhackles greyhackles - 04 Aug 2007 23:21 GMT >ps/ this is what my online daily horoscope gave me today after I wrote the >previous epistle: (coincidental maybe :) [quoted text clipped - 25 lines] > >What do you think? Well, for sure it doesn't suck! ;-)
A bit more seriously...it's a pretty good fit, and it won't hurt your helping with the local hep groups, etc, projecting that personality.
Good stuff.
Cheers
/greyhackles
greyhackles - 04 Aug 2007 23:17 GMT >Hello again, Grey > Oh so much to talk about... but let's talk about the birds, first. I [quoted text clipped - 43 lines] > >Bob ----- > cactus jammies "The drive by tie dye guy!"
I *love* it! Get yourself a pair of those magnetic signs for your family truckster with that logo done up royal on it!
Cheers - and Good Wishes on your endeavor, Bob.
/greyhackles
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