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Medical Forum / Diseases and Disorders / Hepatitis / August 2007

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Grey, cj re "what do these numbers mean?"

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Cactus Jammies - 03 Aug 2007 06:28 GMT
\"greyhackles" <greyhackles@NOSPAMyahoo.com> wrote in message
news:gln3b3lsfsv31rtrsb7l8oj45renl498gn@4ax.com...
> On Thu, 02 Aug 2007 06:08:33 GMT, "Cactus Jammies"
............
>>by the way, it's been a long time since we exchanged remarks, eh?  I'm
>>still
>>tickin'  :)
>>
>>cheers to all
>>cactus jammies
>
> Hey, CJ!
...
> So how are you doing these days? All of your digits working? Are you still
> cranking out guitars?
>
> Cheers
>
> /greyhackles

Hi Grey,
 Well now that you ask... all my digits (twenty) have full flex and are
loose and don't lock up anymore.  The major knuckle joints (at the base of
the fingers and toes) have all their flex back.  No pain, no pops.
Remarkable, which gives me a chance to do my guitar stuff, finally.
Milkthistle and time.

 No more gallbladder thing, either.  I don't know if that was the milk
thistle that may have done that with the bile, or the addition of three
weekly doses of turmeric, about 1/4 teaspoon on eggs, potato salad,
whatever.   I started with turmeric about two months ago, and it was since
then that I have noticed the lack of the twinge in the area on/under the
lower right of the liver, which for me was manifesting itself as a slight
burning sensation just under the skin, near my navel.  Could be 'referenced
pain' like the liver produces, up in the upper chest area near the collar
bone.  But I was diagnosed by sonogram as having the beginnings of
gallstones in the fall of '03, and a blurry area that did not show fibrosis
at the top right side of my liver.   I think now that it is my steatosis,
discovered along with the stage and level of the Hep C damage, during the
liver biopsy in '03.  I am thinking that the steatosis (fatty liver) may
diminished as well for the same reasons as above.   I do not drink booze
except for sips once in while, and I have lost about 10% of my corpulence.
I am eating according to the health Canada living with Hep C diet mostly,
moderate lean protein, all the veggies and fruit you can cram down your yap,
and limited carbs.  I was on Atkins for weight loss previously, so it is not
a big thing for me.  Part of my goal is to get my body weight down on the
waist measurement indexing, which you may know something about... purely
statistical that thing, I think, but numbers count!  (one two three)  :)  I
have to do that for my chronic high BP as well.  I am pretty close to
breaking the waist size forty barrier.  Yay!

 I picked up the art/craft of fabric dyeing and painting, and I am becoming
know as the tie dye tee guy in town, which gives me adequate interaction
with folks that involves things like planning, selections, being with large
groups of people for 24 hrs as the process involved, takes that long.  So a
virtual chrysalis and transformation into bright colours if you will.  Also,
I will be centre of attention, which I think I can handle more and more on a
responsible basis.  I knew instinctively that keeping busy discovering
techniques and working with my acquired lifetime skills and confidence,
helps/helped me a great deal to 're-centre', as they say.  So colour your
world, dude!

 As I say, my concentration has returned, and am not under any psych care
or that kind of thing.  But my character has changed somewhat after all the
experiences and trips I went through since I started my TX way back in
October/04.  I did learn one thing for sure that I must emphasize.  I should
not have relied so much on this list to keep me more or less plugged into
the real world, and cut myself off like I did in our community.  That was
the wrong thing to do.  I was too smart. heh heh heh  There were no
mechanisms to reach support locally, at least from those that would know
about the effects of Hep C, and help keep the ball rolling on top of the
table and not underneath it.  So as it turns out, I will be going to the
small psych outpatient section in our town to discuss things with X about me
of course, and to finally begin to help in the creation of a Hep C peer to
peer support group setting in our 9,000 pop. town.  If they are ready for it
in the bureaucracy.  I won't be involved without counselling experts or
medical professionals to guide the thing, no way.  So I am looking forward
to that.  What a challenge.  I planted seeds by request for creation of a
support group here back in '05.  It was going to be looked into.

so... continued hot weather low humidity in the east and south
central-boundary area of BC.  perfect for tie dye and fabric painting!

now tell some stories about you... !  and thanks for asking, btw.

cactus jammies ----------------------------
greyhackles - 03 Aug 2007 23:54 GMT
>\"greyhackles" <greyhackles@NOSPAMyahoo.com> wrote in message
>news:gln3b3lsfsv31rtrsb7l8oj45renl498gn@4ax.com...
[quoted text clipped - 77 lines]
>
>cactus jammies ----------------------------

I'm really glad to hear your hands are fully functional again - that was
really depressing after seeing what you can do with your guitar building.
Good for you!

Getting rid of some extra corpulence is a good thing indeed, especially having
been diagnosed with high BP and steatosis. You're moving in the right
direction on so many levels. And the improve gall bladder function - it's
fascinating that something like tumeric and milk thistle might be responsible,
but perhaps it's also because you're being good to yourself.

I've been diligently "protecting" the profound weight loss I experienced on
therapy - I went from almost 240 down to 190 before I finally finished
treatment, and I'm still just under 200 now, 2 years since EoTx. Serendipity!

I haven't had a bite of "fast food" in almost three years now, and I swore off
downing a quart of ice cream a day - I think that has a lot to do with it ;-)
Down side: I look ridiculous in most of my clothes, as I dropped at least five
inches off my waist so my pants now all look "cinched". I should get rid of my
belts and just use a piece of rope to sell the whole po' boy look ;-)

So you're now the Tie-Dye Man of the Great White North? Cool beans - have you
put any of your work up on the web anywhere? I'm thinking I could use a really
neat new tee. Having been a typical long-haired-hippy-freak in the late 60's
and early 70's I had my share of tie-dyed stuff, and just recently noticed
what looks like a mini-resurgence of the style in stores here in New England.

As for your regrets about spending more time "here" and less time with your
peers - it sure sounds like you didn't have much of a choice at the time.
Without some solid place to turn, it sure makes sense you'd hang here. It's
also very cool you're taking on some of the effort of establishing the type of
support group you were missing. I think that's awesome.

I think I can relate to the character evolution thing: surviving treatment
sure seems to have left me....."changed"...in many ways. I've found I'm *much*
more sensitive to what others are feeling - and not restricted to fellow
members of the human race, either.

We usually have a number of nesting birds on our property - all kinds, from
house finches to wood ducks in the pond - and this year it was like I could
sense all of the angst that the birdy parents were going through trying to
raise a clutch successfully. One robin family, in particular, who were nesting
in the ceiling of our first-story deck (which is also the floor of our
second-story deck) went through three clutches of eggs before yielding one
successfully fledged offspring, the interim babies falling prey to hawks and
fishers and goddamned house cats. The whole thing left me an emotional wreck
for days, and my wife accused me of "going soft in the head" ;-)  

Meanwhile, another robin family under the same deck got all four of their
first clutch launched successfully and cleared out of town months before the
other family finally could pull up stakes and head further north. I actually
saw one of the babies experience a "eureka moment", when after more than a
week of being out of the nest and begging dad for food, it figured out where
worms come from and snagged one on its very own.

Yin yang. I was as happy for them as I was sad for the others.

Now we have House Finch babies all over the yard, the cat-birds are sitting on
their second round of eggs, the grackle babies are learning to eat from the
feeders, the mourning doves and blue jays are apparently still nesting, the
Gold Finch families keep cleaning out the thistle seed feeder - and the hawks
come by at least twice a day and scare everyone to death...

And I think I'm dealing with a delayed nesting instinct of my own: beginning
with the last 3 months of therapy, I've been remodeling/redecorating/improving
the homestead at a near frantic pace. So far, I have, in the order listed:

o   replaced 34 of the cheapest interior doors you ever saw with decidedly
upscale doors. I actually started this while still on treatment, as a kind of
physical therapy to restore my manual skills - as treatment really f.cked up
the strength in my hands (and pretty much everywhere else, for that matter)

o   built a fancy new laundry room and a third bath

o   remodeled the guest bath - tossing out the cheapest vanity base cabinet
you ever saw - then built a new framed-style 60" long vanity with raised panel
doors and drawers (with those "magnetic" drawer closures), all of the solid
wood parts made from one BIG piece of maple and the case work out of birch
plywood; stuck a nice granite top on it with an underslung sink and a fancy
fixture; replaced the tub and toilet - and had to chop out the nightmare of an
original plumbing job and replumb most of the bath

o   tore off all of the old (cracked, spalled and rotting) siding from the
south side of the house, fixed a number of original-build defects, then
Tyvek'd, resided, calked and stained

o   built an old fashioned screen door out of oak for the front entrance.
It's a thing of beauty - especially compared to the aluminum storm door I got
rid of.

o   tore up the carpeting from one end of the house to the other, put down
real plywood underlayment (because the nitwits that built the house put the
original carpeting right down over pine subflooring!) and had all new
carpeting put down (the only thing I had someone else do so far)

o   rehabilitated the master bath, putting in new fixtures, updated wiring and
plumbing

o   repainted the living room, dining room, kitchen, all three baths and all
four bedrooms and all hallways. Goddamn, I hate painting now! ;-)

o   put up ceiling fans in the living room and two of the bedrooms (will get
to the others shortly)

Meanwhile, the list of things to do seems to grow - with expensive items, now.
We want to gut the kitchen (and get rid of the cheapest kitchen cabinets you
ever saw - sensing a theme here, yet? ;-) push the dining room out into an
addition so we can expand the kitchen plus provide a breakfast nook kind of
dealie. And the SO would really like to add more room to the master
bedroom/bathroom, which might yield the third garage bay I'd like to have.
Woof. Everything I've done so far was relatively inexpensive compared to
those...

So....That's pretty much what's been going on. I hang here to help where I can
- giving back to the group that got me into and through therapy. My life is
remarkably simple these days - not that it was all that complex before, but
I'm finding small pleasures in the work projects that tend to keep me home
instead of finding reasons to roam.

Although I *will* drag my wife out to see The Simpson's Movie tomorrow ;-)

Cheers - and stay well, my friend.

/greyhackles
greyhackles - 04 Aug 2007 05:11 GMT
Something I should have noted: I am in the best health in...decades.

As I've mentioned often, there are multiple extra-hepatic manifestations due
to chronic HCV - with many more yet to be "discovered", I'm sure - to go along
with the fatigue and brain fog many heppers experience. While I was more
fortunate than many, in that I could usually manage the fatigue, the brain fog
was relatively mild, and didn't have a lot of the more troublesome problems
some experience, I had my share, and there was always that back-of-the-mind
concern that things would get worse.

All gone.

Fatigue is no longer an issue - it's almost scary how much energy I've had
over the last year+. I no longer have superficial wounds turn into infections,
no longer get friggin' carbuncles in sensitive locations. I haven't had a cold
since the start of therapy - and I was always the first in the family to
capture a cold germ. And I believe my mind is as clear as ever - if perhaps
going a bit mushy on the emotional side ;-)

And with the 18 month all-clear in hand, I no longer worry that the hep will
get me. It'll just have to be something else :-)

So...You're doing good things - on many levels - both for your body and soul,
and with any luck your health will continue to improve. With a bit more luck,
your next dance with the dragon will end in total victory.

Cheers

/greyhackles
Cactus Jammies - 04 Aug 2007 15:34 GMT
Hello again, Grey
 Oh so much to talk about... but let's talk about the birds, first.  I
received a Christmas gift last year, a local species bird watching guide and
a couple of those plastic bottle bird feeders... so when I took the time to
reflect and sit on the front porch to try and focus through the residual
fogs, I enjoyed watching the chickadees at the feeder. They are so polite,
they take turns, and are obviously pay heed to an unkown pecking order.  The
local winter flock seemed to sense when it was safe to go to the sunflower
seeds which they like, and then perch on the branches of the rather thick
ornamental crabapple tree just in front of the porch, crack the seeds open
and eat the good stuff.  Like woodpeckers.  But the finches, those juvenile
delinquents, the chickadees buzz off when they arrive, cause the finches
make a big mess scratch through the feed and roosting in it, because they
are so small.

I said Safe?  Well, we have a cat, Mango who was my tx buddy, my Familiar.
So I was St. Francis I guess.  The cat likes to hunt and leave tributes at
the door or if the door is open, bring them in.  It's their bonding nature.
But bonus upon bonus, the black caps are back, the youngsters, and they are
picking the catepillars off the leaves of the very same tree.  Providence.
Horn of  Plenty.  :)  Wonderful.

And about emotions growing and demands becoming less insistent.  Your
carpentry obviously helps you maintain your personal equilibrium.  As does
my arts and crafts. I have known that all my life,   But I could never
really finish anything because I was so lost in defining the shapes and the
detail that I found the perspective and colour values were way off
(watercolours) on the whole peice.  It was just lucky for me (there are no
coincidences ahem) that I was caught up in first, tie dye and then sunprint
fabric painting, now some stamping and modern batik and even a little
macrame.  I will be setting up my photobucket display with some of my
attempts at this quite soon.  If I want to be the drive by tie dye guy for
tie dye parties, I have to be able to give pointers to samples.  The more
esoteric, the actual artistic representation is being developed to my own
liking, continues of course.  But I know how just a splash of seemingly
random colours done in crude tie dye can catch peoples' eyes and they begin
almost right away associating the randomness (nearly like a fractal, a
mandelbrott set) with their subconscious and say, "oh this looks like a..."
of course it does!  So some digging back to my roots and not being so
obsessed with strict definition and control has done wonders for my
confidence and my sense of self-realisation.  So now I can give love.  And
it is exchanged in kind when people start immediately to identify their own
life experience and longings and trip out on it.  Wonderful.

anyway, tic toc

Bob                          ----- >  cactus jammies

> Something I should have noted: I am in the best health in...decades.
>
[quoted text clipped - 36 lines]
>
> /greyhackles
Cactus Jammies - 04 Aug 2007 16:01 GMT
ps/  this is what my online daily horoscope gave me today after I wrote the
previous epistle:  (coincidental maybe  :)
cactus jammies
August 4, 2007
Animated Expressions
Leo Daily Horoscope
You may be expressing yourself enthusiastically today, which could have you
drawing a crowd and feeling gregarious. Perhaps you have let down your
walls, or are you are so filled with energy that your light bursts forth.
With your animated way of telling a story, you easily draw the attention of
those around you, whether they are already friends of yours or merely
friends you haven't yet met. They will be drawn to your light and energy,
perhaps for a variety of reasons. But their reasons do not matter as much as
your ability to reach them in your own unique way. Even if you are saying
something that people have heard before, the way you communicate yourself
makes people want to hear it again, experiencing the adventure through your
eyes. By allowing your light to shine through everything you do today, you
illuminate the lives of others.

People may be drawn to you because you are a kindred spirit or because they
see in you something they believe they lack within themselves. Oddly, in
both cases, they are attracted to their own reflection, more easily seen in
another. Seeing you express something that they feel inside creates a
connection, allowing you to lead them from within the shadows of their
experience to see the light that was always shining there. By being fully
and freely yourself today, you help others learn from your example to
discover how they too can let their light shine to touch others.

What do you think?

> Hello again, Grey
>  Oh so much to talk about... but let's talk about the birds, first.  I
[quoted text clipped - 86 lines]
>>
>> /greyhackles
greyhackles - 04 Aug 2007 23:21 GMT
>ps/  this is what my online daily horoscope gave me today after I wrote the
>previous epistle:  (coincidental maybe  :)
[quoted text clipped - 25 lines]
>
>What do you think?

Well, for sure it doesn't suck! ;-)

A bit more seriously...it's a pretty good fit, and it won't hurt your helping
with the local hep groups, etc, projecting that personality.

Good stuff.

Cheers

/greyhackles
greyhackles - 04 Aug 2007 23:17 GMT
>Hello again, Grey
>  Oh so much to talk about... but let's talk about the birds, first.  I
[quoted text clipped - 43 lines]
>
>Bob                          ----- >  cactus jammies

"The drive by tie dye guy!"  

I *love* it! Get yourself a pair of those magnetic signs for your family
truckster with that logo done up royal on it!

Cheers - and Good Wishes on your endeavor, Bob.

/greyhackles
 
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