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Medical Forum / Diseases and Disorders / Hepatitis / July 2007autoimmune hepatitis?
Husband was supposed to start treatment today, hepatitis c, 1a. The nurse, while looking over all tests....saw something that made her believe that he may have this "autoimmunne thing." Said that usually this happens in women. Doc is on vacation so she couldn't ask him about this. Husband couldn't start treatment because this type of hepatitis uses different drugs. I have never seen anything posted about this. Could anyone enlighten me on this? This is the 3rd time he has "tried" to start tx. First time was a trial study and drug co backed out. Second time, another trial study, his sugar level was to high so they wouldn't take him. And now this....he is very disappointed & depressed. And so am I. Thanks for listening and any help on this matter. Deb On Thu, 12 Jul 2007 17:07:56 -0400, DarlinDebo@webtv.net (DarlinDebo Dreamweaver), in message ID <26196-4696982C-222@storefull-3356.bay.webtv.net>, in the newsgroup alt.support.hepatitis-c wrote: >Husband was supposed to start treatment today, hepatitis c, 1a. The >nurse, while looking over all tests....saw something that made her [quoted text clipped - 7 lines] >take him. And now this....he is very disappointed & depressed. And so >am I. Thanks for listening and any help on this matter. Deb Well if there are warning signs that auto-immune hepatitis may occur, it is better to hold off treatment until things can get clarified. The tx drugs can amplify such problems and, in extreme cases, may even cause death. Did the nurse go into details about why auto-immune hep is suspected? On Jul 12, 5:07 pm, DarlinD...@webtv.net (DarlinDebo Dreamweaver) wrote: > Husband was supposed to start treatment today, hepatitis c, 1a. The > nurse, while looking over all tests....saw something that made her [quoted text clipped - 7 lines] > take him. And now this....he is very disappointed & depressed. And so > am I. Thanks for listening and any help on this matter. Deb Here is a link for the Autoimmunne Hepatitis. http://www.hepatitis-central.com/hcv/autoimmune/toc.html There is a lot of information here, I hope it helps. eileen >On Jul 12, 5:07 pm, DarlinD...@webtv.net (DarlinDebo Dreamweaver) >wrote: [quoted text clipped - 15 lines] > >eileen I hope the OP follows up on this thread. It would be interesting to know what test result the nurse was keying on. There's little to distinguish between HCV and AH in the *typical* set of blood tests & biopsies run on *typical* heppers, but if the doc requested tests for autoantibodies that could explain what the nurse spotted. If that's the case - and assuming the patient actually *is* infected with Hep C - I'll be wondering why the doc requested an autoantibody test in the first place... Cheers /greyhackles > >On Jul 12, 5:07 pm, DarlinD...@webtv.net (DarlinDebo Dreamweaver) > >wrote: [quoted text clipped - 30 lines] > > - Show quoted text - Hi Grey, Maybe it's because CAH occurs in females eight times as frequently as in males, most often in the childbearing years. My first doctor ordered the tests below before I even saw him the first time after I filled out a pre-visit questionaire. One test initially ordered is the Antinuclear antibody (ANA) test, a marker of the autoimmune process that is positive with a variety of autoimmune diseases. Anti-Ribonucleic Protein (anti-RNP). Tests associated with arthritis and inflammation, such as an rheumatoid factor (RF), an erythrocyte sedimentation rate (ESR), a C-Reactive Protein (CRP), and/or complement levels (C3, C4), CAH is often accompanied by another autoimmune disease. Maybe his doctor orders it on all patients or because he had other symptoms such as arthritis. eileen I think we both were so surprised to hear about this from the nurse that we were just numb. I do believe she said something about his liver biopsy. We made another appointment to see the doc next week. Thank you for the support & information. Deb >Husband was supposed to start treatment today, hepatitis c, 1a. The >nurse, while looking over all tests....saw something that made her [quoted text clipped - 7 lines] >take him. And now this....he is very disappointed & depressed. And so >am I. Thanks for listening and any help on this matter. Deb Hi Deb. Best not to get too worked up about autoimmune hepatitis unless that is confirmed. Then the doctor would have to assess that. Maybe things will work out yet and this will be just a delay. Good luck. Don >> On Jul 12, 2:07 pm, DarlinD...@webtv.net (DarlinDebo Dreamweaver) wrote: Husband was supposed to start treatment today, hepatitis c, 1a. The nurse, while looking over all tests....saw something that made her > believe that he may have this "autoimmunne thing." << It's nice to know the .. nurse .. is able to .. second guess .. the doctor .. Isn't it .. Just quit eating meat .. and remove the iron .. Simple as .. that .. Maybe eat some licorice .. ? Nippon Shokakibyo Gakkai Zasshi. 2007 Jul;104(7):1044-50. Links [Utility of a little phlebotomy intermittently just before intravenous injection of glycyrrhizin for patients with chronic hepatitis C] [Article in Japanese] Sumida Y, Kanemasa K, Fukumoto K, Yoshida N, Sakai K. Department of Gastroenterology and Hepatology, Nara City Hospital. We performed a small phlebotomy (50 ml) intermittently just before intravenous injection of glycyrrhizin (GL) in eight patients with chronic hepatitis C and continued this therapy until their serum ferritin levels dropped below 20 ng/ml without any changes of GL dosage. No patients had complications but one patient holded treatment according to their wishing. In seven patients who completed this therapy, the average amount of phlebotomized blood was 1221 +/- 1055 ml, their serum ferritin value significantly fell from 253 +/- 233 ng/ ml to 18+/-5 ng/ml (p=0.038). Serum ALT levels also significantly decreased from 74 +/- 22 IU/L to 41 +/- 12 IU/L (p=0.001). Small intermittent phlebotomies before GL injection may be a effective treatment for hepatitis C. PMID: 17611380 [PubMed - in process] ---------------------------------------------------------------------------???????-------------------------- Who loves ya. Tom Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com Man Is A Herbivore! http://tinyurl.com/a3cc3 DEAD PEOPLE WALKING http://tinyurl.com/zk9fk Said that usually > this happens in women. Doc is on vacation so she couldn't ask him about > this. Husband couldn't start treatment because this type of hepatitis [quoted text clipped - 4 lines] > take him. And now this....he is very disappointed & depressed. And so > am I. Thanks for listening and any help on this matter. Deb >> On Jul 12, 2:07 pm, DarlinD...@webtv.net (DarlinDebo Dreamweaver) wrote: Husband was supposed to start treatment today, hepatitis c, 1a. The nurse, while looking over all tests....saw something that made her > believe that he may have this "autoimmunne thing." << It's nice to know the .. nurse .. is able to .. second guess .. the doctor .. Isn't it .. Just quit eating meat .. and remove the iron .. Simple as .. that .. Maybe eat some licorice .. ? <snip the cut-and-paste> It's nice to know the .. fanatic .. is able to .. second guess.. the doctor.. Isn't it .. >> On Jul 26, 7:56 pm, "Waterspider" <nos...@all.com> wrote: It's nice to know the .. fanatic .. is able to .. second guess.. the doctor.. Isn't it .. << I didn't second guess .. anybody .. The doctor said .. "treat the hep" .. and the nurse said .. "no" .. I said treat the hep .. I don't see a whole lot of **difference** between .. me and the doctor BUT .. I .. **do** see a whole lot of difference between the doctor AND .. the .. nurse .. and me AND .. the .. nurse Yes and .. "no" .. Pretty straight .. forward .. "an effective alternative to interferon" <<snip>> The authors concluded that long term maintenance of iron depletion by therapeutic phlebotomy prevents progression of fibrosis in CHC <<snip>> http://groups.google.ca/group/alt.support.arthritis/msg/41c162861641627c?hl=en& Of course .. you .. can come up with something which .. someone .. anyone .. anywhere .. agrees with .. ? Anything .. ? Anyone .. ? Anywhere .. ? Then .. stFu .. ---------------------------------------------------------------------------????????-------------------------- Who loves ya. Tom Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com Man Is A Herbivore! http://tinyurl.com/a3cc3 DEAD PEOPLE WALKING http://tinyurl.com/zk9fk On Thu, 26 Jul 2007 13:38:29 -0700, "ironjustice@aol.com" <ironjustice@aol.com>, in message ID <1185482309.175762.167110@k79g2000hse.googlegroups.com>, in the newsgroup alt.support.hepatitis-c wrote: >It's nice to know the .. nurse .. is able to .. second guess .. the >doctor .. > >Isn't it .. Yes it is. The nurse I had was on the ball. The doctors (with one notable exception) didn't seem to know their arses from their elbows. |
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