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Medical Forum / Diseases and Disorders / Hepatitis / May 2007High Ferritin levels
Third month of third treatment.Trying to find info on ferritin levels being very high when iron tests were normal.Dr said this wasn't a good indication of treatment success even thoe i am close to being undetectable again.. john >Third month of third treatment.Trying to find info on ferritin levels >being very high when iron tests were normal.Dr said this wasn't a good >indication of treatment success even thoe i am close to being >undetectable again.. john My serum ferritin level went from a pre-therapy border-line high of 341ng/ml to 1190 ng/ml roughly 3 months into treatment. It tailed down from there, reaching 660 at the end of therapy, then down to a wonderfully normal 198 five months later. I haven't had another ferritin check since, but I just had my annual checkup with a full set of blood tests and should soon know where it is 18 months post tx. I too was concerned about the skyrocketing ferritin, so I had iron saturation/iron load tests done a month or so after that peak and it was dead-nuts normal. I suspect your doctor is putting one and one together and ending up with two. While high iron load would indeed be a strike against success, serum ferritin is the wrong thing to look at. In my case, 'sploding RBCs from the Ribavirin was unleashing vast quantities of ferritin, but my overall iron load was quite normal, and treatment was successful... Cheers /greyhackles > Third month of third treatment.Trying to find info on ferritin levels > being very high when iron tests were normal.Dr said this wasn't a good > indication of treatment success even thoe i am close to being > undetectable again.. john My Ferritin level was 600 when I started TX. Tests at that time indicated I had 2 of the inherited genes that cause Hemachromatosis, even though at 55 I've never been diagnosed with elevated Ferritin levels before. During TX I suffered from severe anemia yet my Ferritin level spiked to a high of around 2500 NG/ML during treatment and I needed twice monthly plebotomys to control it. I've had one plebotomy since completing treatment 18 months ago and recent BW indicated my Ferritin level was 46 (normal = 20-380 NG-ML) and my virus level is undetectable after 13 months. I'm no Doctor but at least in my case a high Ferritin level was apparently NO indication of unsuccessful treatment. >>On May 2, 7:46 pm, "tom" <l...@a.com> wrote: My Ferritin level was 600 when I started TX. Tests at that time indicated I had 2 of the inherited genes that cause Hemachromatosis, even though at 55 I've never been diagnosed with elevated Ferritin levels before. During TX I suffered from severe anemia yet my Ferritin level spiked to a high of around 2500 NG/ML during treatment and I needed twice monthly plebotomys to control it. I've had one plebotomy since completing treatment 18 months ago and recent BW indicated my Ferritin level was 46 (normal = 20-380 NG-ML) and my virus level is undetectable after 13 months. I'm no Doctor but at least in my case a high Ferritin level was apparently NO indication of unsuccessful treatment.<< I have been told .. I cannot understand .. the posters on this hepatitis newsgroup. I suppose the posting above .. proves .. that .. fact .. You say you iron levels / ferritin were HIGH "My Ferritin level was 600 " .. upon .. discovery of your hepatitis .. and they even had to bloodlet you "twice monthly plebotomys " .. to lower these **high** .. "Ferritin level spiked to a high of around 2500 NG/ML during treatment and I needed twice monthly plebotomys to control it." .. iron levels. Then you say you are treatment .. "cured" .. "my virus level is undetectable after 13 months." .. AND your iron levels are .. NOW .. "low".. "Ferritin level was 46 (normal = 20-380 NG-ML) " Then you say .. iron .. "ISN'T .. involved" .. Now .. admittingly .. I don't .. **understand** .. THAT .. particular .. conclusion .. ? You HAD .. high .. you NOW have low .. and "iron isn't involved" .. Who loves ya. Tom Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com Man Is A Herbivore! http://tinyurl.com/a3cc3 DEAD PEOPLE WALKING http://tinyurl.com/zk9fk The following was posted by "tom" l...@a.com on May 2, 2007. It is transcribed verbatim and completely from the Google Groups archive. "My Ferritin level was 600 when I started TX. Tests at that time indicated I had 2 of the inherited genes that cause Hemachromatosis, even though at 55 I've never been diagnosed with elevated Ferritin levels before. During TX I suffered from severe anemia yet my Ferritin level spiked to a high of around 2500 NG/ML during treatment and I needed twice monthly plebotomys to control it. I've had one plebotomy since completing treatment 18 months ago and recent BW indicated my Ferritin level was 46 (normal = 20-380 NG-ML) and my virus level is undetectable after 13 months. I'm no Doctor but at least in my case a high Ferritin level was apparently NO indication of unsuccessful treatment." Note that nowhere therein does the phrase "isn't involved" appear. Beware of charlatans that quote dialog that never actually occurred... Cheers /greyhackles >>On May 28, 2:46 pm, greyhackles <greyhack...@NOSPAMyahoo.com> wrote: I'm no Doctor but at least in my case a high Ferritin level was apparently NO indication of unsuccessful treatment." Note that nowhere therein does the phrase "isn't involved" appear.<< Now what do you think .. "high ferritin level / iron was apparently NO indication of unsuccessful treatment" .. means .. ? It means he thinks iron isn't .. involved .. BECAUSE .. he considers himself .. cured .. and then he says he has high iron .. **high** .. iron .. ? He has no iron .. He got rid of the iron .. "My Ferritin level was 600 when I started TX" What part of .. "I got rid of the iron by phlebotomy" .. don't you understand .. ? "Ferritin level spiked to a high of around 2500 NG/ML during treatment and I needed twice monthly plebotomys to control it." What .. part .. ? >> Beware of charlatans that quote dialog that never actually occurred...<< Seems .. when someone UNDERSTANDS .. **what** .. somebody .. SAYS .. makes them a .. charlaton to .. you .. ? Seeing your evident abilities to **understand** .. must leave alot of charlatons .. around .. you .. "My iron levels at my treatment .. goal / cure .. are .. low .. " "Ferritin level was 46 (normal = 20-380 NG-ML) " "in my case a high Ferritin level was apparently NO indication of unsuccessful treatment." Do .. you .. understand .. the stupidity of that .. statement .. Do .. ya .. ? "My iron levels at my treatment .. goal / cure .. are .. low .. " "Ferritin level was 46 (normal = 20-380 NG-ML) ." "in my case a high Ferritin level was apparently NO indication of unsuccessful treatment." Actually since there is .. no iron LEFT .. that statement .. is WRONG .. because as a person WITH .. no iron .. 46 / MG-ML .. then this "high iron" .. doesn't even .. exist .. and so his 'take' .. on it .. is .. wrong .. because .. ? He doesn't have any iron to make any judgement CALL .. on .. iron .. Because he .. ain't .. GOT .. no .. iron .. Got .. no .. iron .. He has .. no .. iron .. No .. iron .. IN .. him .. You .. **understand** .. ? Or is it STILL .. too hard for .. ya .. Who loves ya. Tom Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com Man Is A Herbivore! http://tinyurl.com/a3cc3 DEAD PEOPLE WALKING http://tinyurl.com/zk9fk Right. Beware of charlatans that invent dialog and are too confused - or blind - to even understand what was actually being discussed... Cheers /greyhackles Right. << You got a yes .. or .. no .. answer .. here .. THAT .. shouldn't be THAT hard for even someone with YOUR .. limited .. intelligence .. The poster .. said .. "upon completion of my treatment .. upon my cure .. my iron levels were NO LONGER .. high .. of .. 600 .. they are NOW .. 48 .. " "twice monthly plebotomys" Yes .. or .. no .. WERE .. high .. "My Ferritin level was 600 when I started TX" LOW .. now .. "recent BW indicated my Ferritin level was 46 (normal = 20-380 NG-ML) and my virus level is undetectable after 13 months" Now which part of .. he has no iron LEFT .. don't you understand .. ? This seems to be an important .. question .. AND .. it seems to ME .. you .. are attempting to .. PURPOSELY .. **cloud** .. this .. issue .. The issue is .. hepatitis .. treatment / cure .. AND it seems the poster .. specifically points out the .. FACT .. by lowering of the iron levels .. or .. more PRECISELY / succinctly .. the INCLUSION .. of .. lowering the iron levels by phlebotomy / bloodletting to a low level leads to his .. cure .. "twice monthly plebotomys" Now .. there is the word .. cure .. again .. Now according to the poster .. inclusion of iron reduction therapy IN his therapy .. led him to .. cure .. **cure** .. c-u-r-e .. "twice monthly plebotomys" Now you should be able to figure out some way to .. twist .. THAT into something .. different .. That .. means .. unless you are .. REALLY .. stupid .. is .. "inclusion of phlebotomy in my treatment program led to cure of my hepatitis" / "I needed twice monthly plebotomys to control it." I think I will repeat that .. because .. ? .. it said / he said .. **cure** / "my virus level is undetectable after 13 months" C-u-r-e .. by .. inclusion of .. bloodletting .. / phlebotomy .. "I needed twice monthly plebotomys to control it.""Ferritin level spiked to a high of around 2500 NG/ML " "my virus level is undetectable after 13 months" "Ferritin level was 46" "twice monthly plebotomys" Who loves ya. Tom Jesus Was A Vegetarian! http://jesuswasavegetarian.7h.com Man Is A Herbivore! http://tinyurl.com/a3cc3 DEAD PEOPLE WALKING http://tinyurl.com/zk9fk > The following was posted by "tom" l...@a.com on May 2, 2007. > It is transcribed verbatim and completely from the Google Groups archive. [quoted text clipped - 17 lines] > > /greyhackles I'm tempted to enter into this as I've looked at this in the archives (I KF'ed IJ some time ago) and can see that what I posted has been "adjusted". All I'm going to say is both myself and my Doctors are in agreement that the SVR that I've achieved and hopefully can maintain is as a result of tx I undertook in 2004-2005. I've had this dragon in me since 1973 and it didn't budge till I took on 48 weeks of the interferon/snakeoil Hell ride. And I've yet to use the word "cured". > Third month of third treatment.Trying to find info on ferritin levels > being very high when iron tests were normal.Dr said this wasn't a good > indication of treatment success even thoe i am close to being > undetectable again.. john My serum ferritin level went from a pre-therapy border-line high of 341ng/ml to 1190 ng/ml roughly 3 months into treatment. It tailed down from there, reaching 660 at the end of therapy, then down to a wonderfully normal 198 five months later. I haven't had another ferritin check since, but I just had my annual checkup with a full set of blood tests and should soon know where it is 18 months post tx. My Ferritin level was 600 when I started TX. Tests at that time indicated I had 2 of the inherited genes that cause Hemachromatosis, even though at 55 I've never been diagnosed with elevated Ferritin levels before. During TX I suffered from severe anemia yet my Ferritin level spiked to a high of around 2500 NG/ML during treatment and I needed twice monthly plebotomys to control it. I've had one plebotomy since completing treatment 18 months ago and recent BW indicated my Ferritin level was 46 (normal = 20-380 NG-ML) and my virus level is undetectable after 13 months. I'm no Doctor but at least in my case a high Ferritin level was apparently NO indication of unsuccessful treatment. Hi grayhackles and tom.Very encouraging news from both of you about treatment success and normalized ferritin levels.Thanks john Hi John I can't seem to lay my hands on those report right now, but that was my experience as well. Ferritin was really elevated upon diagnosis back in Fall of 2005, and my dr ordered testing for hemachromatosis. It did not stop me from having postive results from treatment either. At 6 months post tx, I am still virus free. GOOD LUCK !! :) |
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