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Medical Forum / Diseases and Disorders / Hepatitis / April 2007never cured?
I went to see an ophthalmologist today to see if I could get contact lenses. I've had to wear glasses since my eyesight deteriorated during my second tx a couple of years ago. He said that contacts were not a good idea for me because of my age (50) and because my correction is only slight. He also said that having hep c is a reason not to have contacts. I know the eyes can get a bit dry during tx but I always thought that that was just a side and would not be a permanent problem. So, I asked him, what about if I'm cured of hep C and what he said is the reason I'm writing today. He said that we are never cured of hep C. What an arsehole. I said, but we can be non-detectable for the virus long after treatment. Yes he said, but you would still have antibodies and some hep C symptoms. Well, sh.t, I'm probably full of antibodies (I didn't say this bit) like measles and mumps and but no one ever says that these are incurable. The guy obviously doesn't know what he's talking about. If there was any virus there at all (my definition of having hep C) it would quickly grow back to measurable quantities after tx I think. We see it do that often enough. I wish doctors wouldn't say the first silly thing that comes into their heads. I'm not going back to this guy. He clearly doesn't know his arse from his elbow. By the way, anybody here wear contacts after hep C? Jack He said that we > are never cured of hep C. What an arsehole. I said, but we can be > non-detectable for the virus long after treatment. Yes he said, but you [quoted text clipped - 6 lines] > > Jack Well Jack , I've had HCV and HBV antibodies for about 40 years ( that is I tested positive for the antibodies ). But , no live virus was detected. The doctor said that , like many other incurable viruses , HIV can remain hidden ( probably in nerve fibers ) for years undetectable. To know for sure that you were "cured" would take years without antibody detection. I am not sure if that has ever happened. Jamffer > He said that we >> are never cured of hep C. What an arsehole. I said, but we can be [quoted text clipped - 16 lines] >am not sure if that has ever happened. >Jamffer You wandered around a bit there - was the "HIV" a typo? because it pretty much renders that last sentence meaningless around ex-heppers - as does "antibody detection" - again, we're looking for virions, not leftovers from an immune system battle from years past. There have been plenty of studies that show how durable an SVR can be, some studies are well beyond 5 years running. HCV can be cured. Cheers /greyhackles >By the way, anybody here wear contacts after hep C? I've HepC, and I wear contacts. Not sure if you meant after treatment (which I haven't had yet). How badly did your eyes suffer because of the treatment? Is it a common side effect?  SignatureSick Boy Sick Boy wrote "How badly did your eyes suffer because of the treatment? Is it a common side effect?" Hi fella (what's your real name?) Eye trouble is fairly common on tx. Mostly just annoying superficial infections like blepharitis and conjunctivitis, but there is an uncommon side effect of tx called Interferon Retinopathy that can be dangerous. If you have vision problems, expecially something like cloudy spots or "cotton wool spots" get with your doctor asap. When my vision blurred 12 weeks into tx I had to stop treatment and wait to see an opthamologist. It turned out to be a fatigue related wandering eye thing - no permanent damage - but I have to wonder if the laspe in treatment was one of the factors that contributed to my relapse :-( If you have to see an opthamalogist, try to avoid a lapse in treatment! Also my eyes were VERY photosensitive during tx. So I would say make sure you have your regular eyeglasses on hand, an a good pair of sunglasses. Thow flip-up thingies are very stylish... Kathy J Oh yeah I remember now I went to a Physician's Assistant for what I thought was conjunctivitis (pink eye) and she prescibed something for that, but my opthamologist determined that it was blepharitis and snubbed the PA. Can you get your eyes checked before tx, as a baseline? I think some tx doctors routinely order a pre-tx exam (?). Good luck About 12 weeks into the tx (peg-interferon and rebetol) my vision went suddenly a bit blurred, especially in the right eye. I saw an ophthamologist (the same one) who confirmed that it wasn't cotton-wool spots or any other retinal problem. However, he thought it was the beginnings of a cataract. So I stopped the tx at that point. Now he says it was not a cataract but just normal age dependant stiffening of the lens. Most people get this at around the age of 45 and I was 47 when doing the tx. Odd thing though was that my vision became myopic. I could see things up close but not far way. Usually at that age, it's the other way around with long-sightedness being the norm. Jack >>By the way, anybody here wear contacts after hep C? > [quoted text clipped - 3 lines] > How badly did your eyes suffer because of the treatment? Is it a > common side effect? >I went to see an ophthalmologist today to see if I could get contact >lenses. I've had to wear glasses since my eyesight deteriorated during my [quoted text clipped - 14 lines] >wouldn't say the first silly thing that comes into their heads. I'm not >going back to this guy. He clearly doesn't know his arse from his elbow. This is so common, the misinformation amongst the medical profession, about hepatitis c. Please, write a formal letter to his office, with copies to his governing association and your local health agency, correcting his misinformation. Include documentation and sources, be polite and don't bother including your personal opinion. This is a worthwhile use of a bit of your time and a couple of postage stamps, and you may be surprised at the results. Some time ago I complained about inaccuracy in a hep c pamphlet available at my g.p's office, and of course I was told that the information was the result of medical studies etc. etc. But, once I provided the correct information backed up by reliable medical sources, the pamphlets (which said hep c was a sexually transmitted disease) were removed. If we would do more of this, people might pay attention and get their facts straight before running off at the mouth. > I went to see an ophthalmologist today to see if I could get contact lenses. > I've had to wear glasses since my eyesight deteriorated during my second tx [quoted text clipped - 18 lines] > > Jack Dear Jack, Find yourself another opthamologist! I wore contacts before, during and after sucessful treatment without any poblems at all. This is just another case of Hep C discrimination and ignorance. Don't believe him! Jean > Dear Jack, > Find yourself another opthamologist! I wore contacts before, during > and after sucessful treatment without any poblems at all. This is > just another case of Hep C discrimination and ignorance. Don't > believe him! > Jean Hi, do you have any news from John (Red Dwarf) from Hawaii? Cheers, jeeb. > boston_j...@yahoo.com wrote: > [quoted text clipped - 10 lines] > Cheers, > jeeb. Jeeb, Unfortunately not.....yahoo cancelled my account at one point and I lost John's home address and phone number. I plan to go to Hawaii in the Fall and would love to see him....I know he hooked up with another woman who posted on this site. Perhaps she could contact me directly with any info. Jean Re: (OT Ping Boston Jean ) Re: never cured? Group: alt.support.hepatitis-c Date: Fri, Apr 6, 2007, 6:28am (CDT-2) From: boston_jean@yahoo.com On Apr 5, 10:19 am, ghibelno <ghibelno@_NOSPAMME_yahoo.it> wrote: boston_j...@yahoo.com wrote: Dear Jack, Find yourself another opthamologist! I wore contacts before, during and after sucessful treatment without any poblems at all. This is just another case of Hep C discrimination and ignorance. Don't believe him! Jean Hi, do you have any news from John (Red Dwarf) from Hawaii? Cheers, jeeb. Jeeb, Unfortunately not.....yahoo cancelled my account at one point and I lost John's home address and phone number. I plan to go to Hawaii in the Fall and would love to see him....I know he hooked up with another woman who posted on this site. Perhaps she could contact me directly with any info. Jean ////////// The way I understand it, they had wild sex on the beach when she was there. Wait a minute....no they didn't.....she didn't have time for that. Never mind. Be sure and tell that old rascal elmo says 'howdy'. It'll probably give him heartburn. Never mind. :-) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum On Apr 6, 9:46 am, elmoemer...@webtv.net wrote: > Re: (OT Ping Boston Jean ) Re: never cured? > [quoted text clipped - 30 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum Elmo, I'm making sure that I have enough time for the beach, the hammock and the back of his truck while I'm there! ;-) A Recovered and Fiesty Jean xoxoxo Re: (OT Ping Boston Jean ) Re: never cured? Group: alt.support.hepatitis-c Date: Mon, Apr 9, 2007, 7:29am (CDT-2) From: boston_jean@yahoo.com On Apr 6, 9:46 am, elmoemer...@webtv.net wrote: Re: (OT Ping Boston Jean ) Re: never cured? Group: alt.support.hepatitis-c Date: Fri, Apr 6, 2007, 6:28am (CDT-2) From: boston_j...@yahoo.com On Apr 5, 10:19 am, ghibelno <ghibelno@_NOSPAMME_yahoo.it> wrote:boston_j...@yahoo.com wrote: Dear Jack, Find yourself another opthamologist! I wore contacts before, during and after sucessful treatment without any poblems at all. This is just another case of Hep C discrimination and ignorance. Don't believe him! Jean Hi, do you have any news from John (Red Dwarf) from Hawaii? Cheers, jeeb. Jeeb, Unfortunately not.....yahoo cancelled my account at one point and I lost John's home address and phone number. I plan to go to Hawaii in the Fall and would love to see him....I know he hooked up with another woman who posted on this site. Perhaps she could contact me directly with any info. Jean ////////// The way I understand it, they had wild sex on the beach when she was there. Wait a minute....no they didn't.....she didn't have time for that. Never mind. Be sure and tell that old rascal elmo says 'howdy'. It'll probably give him heartburn. Never mind. :-) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Elmo, I'm making sure that I have enough time for the beach, the hammock and the back of his truck while I'm there! ;-) A Recovered and Fiesty Jean xoxoxo ////////// Dang, gal!! I can almost hear those thighs a slappin' now!! ahahahahahah!! elmo cheeseburgers in paradise (hold the mayo) http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum |
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