 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Hepatitis / March 2007treatment plan
Hi, I have a friend who has been in hep-c treatment for the most of 3 years. For all this time his medicine has been about the same. I dont know the doses of the intergen, but it is 2 shots, am / pm. And at least 800mg of ribasphere am/pm. His regular MD thinks there is something wrong. The gastrio doctor who treats the hep-c says just keep taking the medicine. He has weekly blood tests. He doesn't know his blood levels. (although he could get these from the hospital, I guess) She won't give him copies of his records to get a second opinion, after all this bloody time. I don't know what advice to give him. I have seen tons of stuff on here that he doesn't know about. Right now he is having those "rages" and is barely keeping it together. This has been for months now. We live in the Western Pa area if you know doctors here. Do you all have any advice? Thanks so much. On 28 Mar 2007 19:11:04 -0700, "jelato" <jelato@gmail.com>, in message ID <1175134264.909067.179750@y66g2000hsf.googlegroups.com>, in the newsgroup alt.support.hepatitis-c wrote: >Hi, I have a friend who has been in hep-c treatment for the most of 3 >years. For all this time his medicine has been about the same. I dont [quoted text clipped - 10 lines] >area if you know doctors here. Do you all have any advice? Thanks so >much. Sounds like something is wrong if on tx for three years. I have heard of someone who found the virus hard to shift doing two years but that is very unusual. Although I only know what I read on here about Infergen, I don't think I've heard of anyone doing more than one shot per day - though others may know different. The bit that concerns me is the apparent obstruction to getting a second opinion. Any decent doctor should welcome that. Rages and not keeping it together is not at all unusual with treatment though. The side effects can be pretty crappy. Sometimes an anti depressant can help though I never went down that route myself. Some doctors are pretty awkward with keeping patients informed but will co-operate with another doctor. Could it be a procedural problem with the second opinion? Maybe the second doctor has to be seen so that he/she can request the patient's notes? I stayed very proactive from the moment I was diagnosed. My doctor had no problem whatsoever with sending me copies of all my bloodwork, lab reports, xrays or anything else I wanted. I was having blood work done every two weeks due to severe anemia etc and if I didn't have any given results in writing within a week, I just dropped by and asked the secretary to print me up a copy for my records. (I'm in New England area) I educated myself and when we met, I was able to discuss my questions intellegently, and he was clear right up front that I was "doing my homework", and he was patient while I made him repeat everything 10 times, and wrote it down,because after all, my brain had sh.t the bed, on treatment.... . It was important to me to carry copies of all this stuff with me everywhere - in the event I became ill, or was in an accident or something I wanted all that information on my person! Personally, if my doctor had refuse to give me my own records I'd have found another doctor rel quick, but that may just be ME. >I stayed very proactive from the moment I was diagnosed. My doctor had >no problem whatsoever with sending me copies of all my bloodwork, lab [quoted text clipped - 13 lines] >my doctor had refuse to give me my own records I'd have found another >doctor rel quick, but that may just be ME. You sound like you could be my long lost brother :-) Aside from me actually doing weekly blood tests for the last 37 weeks of my therapy, you could have written my medical diary while on therapy. If you wanna see something really OC on the topic, check this out: http://home.comcast.net/~greyhackle/therapy.htm Be sure to click on the Chart buttons at the bottom :-) btw, the "liver pain" the last few months turned out to be a bit of diverticulitis in my ascending colon. Lousy coincidence as it had me at wits end at the time... Cheers /greyhackles > >I stayed very proactive from the moment I was diagnosed. My doctor had > >no problem whatsoever with sending me copies of all my bloodwork, lab [quoted text clipped - 34 lines] > > - Show quoted text - Hi thanks to everyone for your advice. I will talk to him tonight to see what his dose of intergen is and how many times a day he takes it. The anti-depressants didnt seem to help, but he uses Lyrica for nerve pain, and he says it is wonderful for his depression. Go figure. The attached link seems to be advocating at least 12 months treatment for geno 1. This is new to me. I'm 1A and I'm just finishing a 48 week treatment. Is this current practice now? Damned if I'm going to do another month at this point. Jack >>I stayed very proactive from the moment I was diagnosed. My doctor had >>no problem whatsoever with sending me copies of all my bloodwork, lab [quoted text clipped - 34 lines] > > /greyhackles >The attached link seems to be advocating at least 12 months treatment for >geno 1. This is new to me. I'm 1A and I'm just finishing a 48 week >treatment. Is this current practice now? Damned if I'm going to do another >month at this point. > >Jack 48 weeks is the standard for g1s. Some folks can't help but round that up to "a year" when discussing it, but it's still 48 weeks. You're a done dood ;-) Cheers /greyhackles Tell him to DEMAND a copy of his records, and run--don't walk--to another doctor. If what you're saying is accurate, the whole things smells really bad. > Hi, I have a friend who has been in hep-c treatment for the most of 3 > years. For all this time his medicine has been about the same. I dont [quoted text clipped - 10 lines] > area if you know doctors here. Do you all have any advice? Thanks so > much. |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2009 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.