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Medical Forum / Diseases and Disorders / Hepatitis / March 2007Hopeful member of the class of 2007
After a round of treatment that started last April I was a non responder by week 16. I waited a month and went to see Elmos NP, almost 4 hours round trip. Donna (my NP) was thinking the same thing that I did. Let's get started now while the vl is at 2 mil, I had started with almost 7 mil. I did daily Infergen shots, Riba and Amatadine, then added the Pegasys to the mix. But I got a eye infection and tremors so I had to stop for a week to find out if they could do this because of my only Kidney was showing infection also. Was treated, tested and passed and had to restart my induction therapy and start my recount all over. So now it's week 21 and I am undetectable! I know I still have 36 more weeks and have found that 3 infergen shots along with the Pegasys, Riba, Amatadine and Procrit wasn't as bad as daily infergen with the Pegasys and the other goodies. I did have to check with my family to see if they could stand me for the next 36 weeks and they haven't run yet. My good friends Elmo, Kojo, Sara, Thip and Mags pulled me along nicely and I appreciate The nice replys that Thom, Dwight and Mom gave me when I needed it. For you all who could or had to work,during treatment. I salute you. I know I couldn't have done it some weeks, but anyhow just thought I would let my friends who support know that I have at least gotten a non detectable, which I hope stays that way. Best wishes to my fellow classmates eileen Eileen you make us look like a bunch of wimps. kokojojo don't forget dortie > Eileen you make us look like a bunch of wimps. > > kokojojo > don't forget dortie Woops, You're absolutely right! Dorty, my fellow Jersey girl, I'm sorry I missed you. Wimps? no, everyone who even does the treatment knows how difficult it can be. Thank You for all your help. Inferneene You are absolutely awesome, Eileen! > After a round of treatment that started last April I was a non > responder by week 16. I waited a month and went to see Elmos NP, [quoted text clipped - 22 lines] > > eileen > You are absolutely awesome, Eileen! > [quoted text clipped - 26 lines] > > - Show quoted text - Hello Thip, I had a lot of help from all you cookies. Thanks Eileen, it's good to hear from you and even better to hear that you have kicked some serious dragon butt. Don't let up until that lizard is dead, dead, dead. I'm still waiting and hoping for a kinder more gentler tx. I'm also hoping the Easter Bunny brings Santa and the Tooth Fairy along next month. :) Dwight (still a chicken) > After a round of treatment that started last April I was a non > responder by week 16. I waited a month and went to see Elmos NP, [quoted text clipped - 22 lines] > > eileen > Eileen, it's good to hear from you and even better to hear that you have > kicked some serious dragon butt. Don't let up until that lizard is dead, [quoted text clipped - 3 lines] > > Dwight (still a chicken) I can definitely relate, Dwight! Thip <cluck cluck> > Eileen, it's good to hear from you and even better to hear that you have > kicked some serious dragon butt. Don't let up until that lizard is dead, [quoted text clipped - 32 lines] > > - Show quoted text - Thank You Dwight, You're no chicken, you put your time in, alot longer than others. I really believe the large amount of water and rest I get is helpful, the side drugs also make it easier, so does the green. This is my last chance, I will do my best and if it switches on me, I will just go fishing. * ) * eileen >>Eileen, it's good to hear from you and even better to hear that you have >>kicked some serious dragon butt. Don't let up until that lizard is dead, [quoted text clipped - 42 lines] > * > eileen We had warm weather today (80 deg) and started cleaning up the yard. We were (my wife) cleaning out the little water fall and tank in the back yard and found two large night crawlers in there. Started thinking about going fishing again. I don't think my boat is salvageable after not being used for the last few years, thanks to tx, but I'm ready to set on the bank and try drowning a few night crawlers. :) Dwight > After a round of treatment that started last April I was a non > responder by week 16. I waited a month and went to see Elmos NP, [quoted text clipped - 22 lines] > > eileen You rock girl. I don't care if you have to whine, bitch or whatever just haul your a.s to the finish line! It will be all worth it! Dwight stop clucking and get going - you can do this! Mags class of 2007 >>After a round of treatment that started last April I was a non >>responder by week 16. I waited a month and went to see Elmos NP, [quoted text clipped - 30 lines] > Mags > class of 2007 Mags, I know I can do it, just not sure if it is fair to my family at this time. I've already put them through two rounds of tx without success. The last time I did peg for 60 weeks. This after my viral load started going back up after about 36 weeks. My last biopsy showed that my liver damage hadn't progressed significantly since 92 or 93, about the same time I gave up drinking. I'll do it again, just going to wait a little longer. Dwight >. >. [quoted text clipped - 13 lines] > >Dwight Damn! That's "Assault By Doctor"! It ought to be criminalized. No matter when you do it again, PLEASE find a doctor with a clue! No way should you have suffered 24 weeks of Peg if you'd already rebounded... /greyhackles >>. >>. [quoted text clipped - 20 lines] > > /greyhackles Grey, it was my decision to keep going as maintenance. I thought I could just keep going, but at 60 weeks I had just had enough and quit. During this time, I was being monitored very closely. As far as rebounding, by the time it started going back up I just went from a VL of 29,000 to 31,000 (approximately) it wasn't a big jump, but definitely the wrong direction. I think I was still grasping at straws. Dwight >>>. >>>. [quoted text clipped - 29 lines] > >Dwight Ok, that I can understand. Thanks for the explanation, Dwight. Are you monitoring your LFTs, etc, as time passes? Hopefully there will be something better for you soon! Cheers /greyhackles >>>>. >>>>. [quoted text clipped - 38 lines] > > /greyhackles The doctor has me getting lab work done every couple of months, so far things are holding pretty well (don't remember any of the specific numbers right now). Dwight > >>After a round of treatment that started last April I was a non > >>responder by week 16. I waited a month and went to see Elmos NP, [quoted text clipped - 42 lines] > > - Show quoted text - Keep an eye on yourself Dwight. Mags resident worrier >After a round of treatment that started last April I was a non >responder by week 16. I waited a month and went to see Elmos NP, [quoted text clipped - 22 lines] > >eileen You da man, eileen! :-) Maximum kudos for the undetectable and the hard work it took to get there! For the record - specifically, for those that might find themselves in the same situation - are you still doing three shots per week of the Infergen, along with the weekly Pegasys? Or did you stop the Infergen somewhere along the line? Cheers - and best wishes for your SVR. You're earning it, big time :-) /greyhackles > >After a round of treatment that started last April I was a non > >responder by week 16. I waited a month and went to see Elmos NP, [quoted text clipped - 37 lines] > > - Show quoted text - Thanks Grey, After the induction time I go on and off the Infergen, when it starts the tremors I take a break. It usually takes a month before the tremors start up. My NP has said as long as I can handle it she also wants to hit it like the induction therapy near the end to make sure I keep my clearence to get my SVR. While I am on the Infergen and the Peg, Riba & Amatadine, I don't really do anything, I'm too tired even with the procrit which is the lowest possible dose because of my kidney. I think I've aged, my hair which was thick and shiney Salt and Pepper. It is now thin,brittle and dull pewter. but I know it's temporary and I will hopefully get my eyelashes and eyebrows under control. ;) It really helps to have a NP who knows you and is available by phone for you anytime. ;) eileen > After a round of treatment that started last April [...] > > eileen Hi Eileen, congratulations for these great results and also for the work you had to do to get there. Keep on going on, I wish you the best. Cheers, jeeb. > > After a round of treatment that started last April [...] > [quoted text clipped - 7 lines] > Cheers, > jeeb. Thanks jeeb! That's wonderful news, Infergoneene (formerly Pizzaneene). You worked awfully hard to get where you're at, and I'm proud of you for it. You're indeed a warrior! <pinning a medal on Eileen's chest without groping her boob> Now get back to 'the front' and kick any dragon's butt that might be hiding. Take no prisoners. :-) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > After a round of treatment that started last April I was a non > responder by week 16. I waited a month and went to see Elmos NP, [quoted text clipped - 22 lines] > > eileen hi Eileen, I didnt respond on my first treatment also.Then i went to Elmos NP.Infergen 15m,1200m rib,some pagasys and amantadine.cleared at 12 but relapsed after treatment. I am on third treament so far, 40 mights of infergen,2 weeks of increased rib to 1600,then after that 27m of infergen up from 15 for 2 weeks.Wishing us good luck.Your current doctor is the best most understand authority you will find,short of a hepatologist for transplants. john I'm gonna get a psychedelic painted shuttle bus and pick up all my hepper friends to take to see Donna once a month. Maybe call it the 'disoriented express' or something. You're either on the bus or you're off it. elmo stopping in a town near you http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum On Mar 13, 8:29 am, elmoemer...@webtv.net wrote: > I'm gonna get a psychedelic painted shuttle bus and pick up all my > hepper friends to take to see Donna once a month. Maybe call it the [quoted text clipped - 6 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum What time are you swinging by? Sounds good to me. I have to have someone drive me, I am not allowed to drive, that curb came out of nowhere, I swear!! ;) eileen Re: Hopeful member of the class of 2007 Group: alt.support.hepatitis-c Date: Tue, Mar 13, 2007, 7:54am (CDT-2) From: samiamtwoyou@yahoo.com (eileen) On Mar 13, 8:29 am, elmoemer...@webtv.net wrote: I'm gonna get a psychedelic painted shuttle bus and pick up all my hepper friends to take to see Donna once a month. Maybe call it the 'disoriented express' or something. You're either on the bus or you're off it. elmo stopping in a town near you http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum What time are you swinging by? Sounds good to me. I have to have someone drive me, I am not allowed to drive, that curb came out of nowhere, I swear!! ;) eileen ////////// I'll be around about 8. :-) I've got a busload of hungry heppers and we're going to stop in Philly for a cheesesteak, then pick up Johnny along the way. Call Donna and let her know we're coming. elmo cheesesteaks for all! http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum I'll be around about 8. :-) I've got a busload of hungry heppers and we're going to stop in Philly for a cheesesteak, then pick up Johnny along the way. Call Donna and let her know we're coming. elmo cheesesteaks for all Elmo Hey I am waaay over here waitng for the bus...Picking my nose and farting. I think we should haul all qualified heppers abourd, stop at Donna's for orientation and meds, they make our way up to Grey's place in Mass and camp out in his yard for a few months. His wife would go for it eh? We are a respectable bunch of public nuisiances. kj likes philly steaks yes indeedy >I'll be around about 8. :-) I've got a busload of hungry heppers and >we're going to stop in Philly for a cheesesteak, then pick up Johnny [quoted text clipped - 11 lines] >kj >likes philly steaks yes indeedy ahahahahahaha! Oh yeah, sure she'd go for it! What the hell, she's been putting up with a public nuisance for 30 years ;-) But don't show up here with Cheese Steak breath, fer lawd sakes! Yikes! Stop in Beantown on the way and have some chowda first! /greyhackles (Chowda breath we can handle ;-) >>I'll be around about 8. :-) I've got a busload of hungry heppers and >>we're going to stop in Philly for a cheesesteak, then pick up Johnny [quoted text clipped - 19 lines] > > /greyhackles (Chowda breath we can handle ;-) A cheese steak with some chowder sounds good, I'm ready for another trip on the magic bus. ;) Dwight Re: Hopeful member of the class of 2007 Group: alt.support.hepatitis-c Date: Wed, Mar 14, 2007, 9:06pm From: kjohyayhoo@nospamyahoo.com (kjoh) I'll be around about 8. :-) I've got a busload of hungry heppers and we're going to stop in Philly for a cheesesteak, then pick up Johnny along the way. Call Donna and let her know we're coming. elmo cheesesteaks for all Elmo Hey I am waaay over here waitng for the bus...Picking my nose and farting. I think we should haul all qualified heppers abourd, stop at Donna's for orientation and meds, they make our way up to Grey's place in Mass and camp out in his yard for a few months. His wife would go for it eh? We are a respectable bunch of public nuisiances. kj likes philly steaks yes indeedy //////////// No problem, Koko. All you have to do is say the words 'magic bus' three times and you'll find yourself onboard. I'm just the bus driver......will take you wherever you want to go. elmo cheezie bites http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > I'm gonna get a psychedelic painted shuttle bus and pick up all my > hepper friends to take to see Donna once a month. Maybe call it the [quoted text clipped - 6 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum Sounds like a little more than a day trip from here. Dwight Re: Hopeful member of the class of 2007 Group: alt.support.hepatitis-c Date: Tue, Mar 13, 2007, 1:46pm From: me@notreal.net (Dwight) elmoemerson@webtv.net wrote: I'm gonna get a psychedelic painted shuttle bus and pick up all my hepper friends to take to see Donna once a month. Maybe call it the 'disoriented express' or something. You're either on the bus or you're off it. elmo stopping in a town near you http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Sounds like a little more than a day trip from here. Dwight ////////// It's a magic bus, Dwight. It goes however fast I drive it. :-) Are you on? elmo the lines on the road just look like dots, telephone poles look like a picket fence. http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum On Mar 13, 7:29 am, elmoemer...@webtv.net wrote: > I'm gonna get a psychedelic painted shuttle bus and pick up all my > hepper friends to take to see Donna once a month. Maybe call it the [quoted text clipped - 6 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum Elmo, Can i sit in the back of the magic bus??????????lol john Re: Hopeful member of the class of 2007 Group: alt.support.hepatitis-c Date: Wed, Mar 14, 2007, 11:52am (CDT-2) From: otk355@hotmail.com (john) On Mar 13, 7:29 am, elmoemer...@webtv.net wrote: I'm gonna get a psychedelic painted shuttle bus and pick up all my hepper friends to take to see Donna once a month. Maybe call it the 'disoriented express' or something. You're either on the bus or you're off it. elmo stopping in a town near you http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Elmo, Can i sit in the back of the magic bus??????????lol john ////////// Sure, as long as you bring your guitar along. :-) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > > After a round of treatment that started last April I was a non > > responder by week 16. I waited a month and went to see Elmos NP, [quoted text clipped - 35 lines] > > - Show quoted text - Hi John, I'm glad you're giving it a go again. Donna is a gift. . She does know more than any doctor I've encountered. I see her Thursday again for my new dosages. Are you from North Jersey? I'm from near Philadelphia. Good Luck to you too! eileen > > > After a round of treatment that started last April I was a non > > > responder by week 16. I waited a month and went to see Elmos NP, [quoted text clipped - 42 lines] > Good Luck to you too! > eileen- Hide quoted text - Hi Eileen, I am 1 hour east of Philly at the Jersey shore.I work in north Jersey so i am 20 minutes from Donna.She is like no other doc's,she really cares.You can also email her just for info between visits.Keep up the great dragon killing work girl.................john |
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