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Medical Forum / Diseases and Disorders / Hepatitis / March 2007hair loss
So how bad is the hair-loss issue for you folks? Care to share? Thanks > So how bad is the hair-loss issue for you folks? > Care to share? > Thanks I got a little thin around the temples, no biggie. >So how bad is the hair-loss issue for you folks? >Care to share? >Thanks I never actually "lost" any hair. I had pretty much everything else happen to it though. Pre-TX I had thick, curly hair. After a couple of months on therapy, the hair shafts started growing out much thinner - and dead straight - and not just on my head. By the fourth month on therapy, the last inch or so was curly while the rest was straight. Weird stuff. By the six month on therapy, it was all grown-out with straight, fine hair. And fragile: where I could pull a brush through before without it loading up, then I would notice busted-off hairs in the brush (if you looked close you could see there wasn't any root attached). A couple of months after end of therapy it started growing out thicker - and curly again at the root end. A couple of month later the hairs were thin and straight at the ends and curly and thick at the roots - again, more weird stuff. By the sixth month off treatment it was all thick and curly again - totally back to normal. If you want to try to do anything about any of this, try using Nioxin shampoo - starting right now. Those that used it have said it really helped keep what they had on their heads.... Cheers /greyhackles >>So how bad is the hair-loss issue for you folks? >>Care to share? [quoted text clipped - 36 lines] > > /greyhackles Yeah that's interesting. Thanks for sharin'. Nioxin shampoo? I'll check it out. Thanks. > So how bad is the hair-loss issue for you folks? > Care to share? > Thanks After about 4 months into my 11 months of tx my hair was noticeably thin. I would find clumps of it in the shower drain. Between that, the ghostly pallor my skin took on and losing about 20% of my body weight my appearance was significantly changed. But within 6 months after finishing tx I was rosy cheeked and rotund, with a full head of hair. >> So how bad is the hair-loss issue for you folks? >> Care to share? [quoted text clipped - 8 lines] > rosy > cheeked and rotund, with a full head of hair. & made your skin more pale? Glad it returned to normal. > >> So how bad is the hair-loss issue for you folks? > >> Care to share? [quoted text clipped - 10 lines] > > & made your skin more pale? Glad it returned to normal. It was due in part to the severe anemia I suffered from during tx. I didn't disclose my treatment to everybody I knew when I started it but after about 4 months my paleness was so apparent I ended up giving explanations to everyone that knew me before and then saw me with my new, or lack of, color. In retrospect I wish I would have explained my condition to friends before they had to ask. >> >> So how bad is the hair-loss issue for you folks? >> >> Care to share? [quoted text clipped - 21 lines] > In retrospect I wish I would have explained my condition to friends before > they had to ask. Right. Well how did you treat the anemia? I'm already supplementing extra B complex & 1000 mg vitamin C, & the nurse also said to do the same. I'm also staying prepared for any low WBC/neutrophil count I may experience. I know the tx for low WBC's is pricey, esp. for someone w/o health ins. > >> >> So how bad is the hair-loss issue for you folks? > >> >> Care to share? [quoted text clipped - 26 lines] > staying prepared for any low WBC/neutrophil count I may experience. I know > the tx for low WBC's is pricey, esp. for someone w/o health ins. Actually didn't treat it at all. I suffer from hemachromatosis which is normally kept in check with 2 or 3 phlebotomies a year but when I got into tx my Ferritin level shot up to dangerous levels necessitating phlebotomies every 2 weeks to control the levels. For that reason my Hematologist was hesitant to give me any thing to boost my Iron levels. I know it sounds strange, anemia yet having very high Ferritin levels (it's just the way I do things...LOL). After passing out one time after a Phlebotomy I started getting IV fluid replacement equal to the amount of blood removed. Was really touch & go for about 6 months. It's been 16 months since I completed tx and have needed only 2 phlebotomies with the last one being 8 months ago and recent BW showed my Ferritin level to be only 58 (Normal 20-380). I was also getting Neupogen shots for low WBC during tx. >Actually didn't treat it at all. I suffer from hemachromatosis which is >normally kept in check with 2 or 3 phlebotomies a year but when I got into [quoted text clipped - 8 lines] >and recent BW showed my Ferritin level to be only 58 (Normal 20-380). I was >also getting Neupogen shots for low WBC during tx. Spiking Serum Ferritin levels aren't unusual under TX, and the reason is easy to fathom: the human body has no effective way to get rid of iron, and Ribavirin busts up RBCs, releasing the iron carried therein into the blood stream. My Serum Ferritin went from 340 ng/ml the week before starting therapy to over 1200 the next time it was checked, about 12 weeks later (the normal range for my lab is between 22 to 322 ug/ml). I'm sure it was about that elevated much earlier but at the time I was falling into the pit of anemia and had more important things to worry about ;-) At the last week of therapy, the ferritin reading was still elevated at 660, but the next time it was measured - three months post-EoTX - it was all the way down to 190. Cheers /greyhackles Yea, hcv and hh sux. i know personally >> >> >> So how bad is the hair-loss issue for you folks? >> >> >> Care to share? [quoted text clipped - 50 lines] > was > also getting Neupogen shots for low WBC during tx. Wow-- hemachromatosis eh? So you've got it back under control? My nurse said the WBC tx is expensive if needed. Did it drain your wallet? thanx > >> >> >> So how bad is the hair-loss issue for you folks? > >> >> >> Care to share? [quoted text clipped - 53 lines] > Wow-- hemachromatosis eh? So you've got it back under control? My nurse said > the WBC tx is expensive if needed. Did it drain your wallet? thanx Insurance covered most of everything. Re: hair loss Group: alt.support.hepatitis-c Date: Thu, Mar 8, 2007, 5:37pm From: rastapastry at msn.com (rastapasta) "tom" <f@a.com> wrote in message news:YMMHh.125118$_73.70009@newsread2.news.pas.earthlink.net... "rastapasta" <rastapastry at msn.com> wrote in message news:afCdnW7MbtTbGnLYnZ2dnUVZ_hmtnZ2d@comcast.com... "tom" <f@a.com> wrote in message news:qlnHh.7220$PL.4684@newsread4.news.pas.earthlink.net... "rastapasta" <rastapastry at msn.com> wrote in message news:xNadnbo-ANzPc3DYnZ2dnUVZ_tqnnZ2d@comcast.com... So how bad is the hair-loss issue for you folks? Care to share? Thanks After about 4 months into my 11 months of tx my hair was noticeably thin. I would find clumps of it in the shower drain. Between that, the ghostly pallor my skin took on and losing about 20% of my body weight my appearance was significantly changed. But within 6 months after finishing tx I was rosy cheeked and rotund, with a full head of hair. & made your skin more pale? Glad it returned to normal. It was due in part to the severe anemia I suffered from during tx. I didn't disclose my treatment to everybody I knew when I started it but after about 4 months my paleness was so apparent I ended up giving explanations to everyone that knew me before and then saw me with my new, or lack of, color. In retrospect I wish I would have explained my condition to friends before they had to ask. Right. Well how did you treat the anemia? I'm already supplementing extra B complex & 1000 mg vitamin C, & the nurse also said to do the same. I'm also staying prepared for any low WBC/neutrophil count I may experience. I know the tx for low WBC's is pricey, esp. for someone w/o health ins. ////////////// You shouldn't take your vitamin-C within a couple of hours of eating food while doing tx. Vitamin-C aids in iron absorbtion and high iron levels are a negative indicator for getting SVR. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum <snip> > Right. Well how did you treat the anemia? I'm already supplementing > extra B complex & 1000 mg vitamin C, & the nurse also said to do the [quoted text clipped - 6 lines] > levels are a negative indicator for getting SVR. > elmo http://www.msnbc.msn.com/id/17538008 [cut] > ////////////// > You shouldn't take your vitamin-C within a couple of hours of eating > food while doing tx. Vitamin-C aids in iron absorbtion and high iron > levels are a negative indicator for getting SVR. > elmo thanx *note to self* > http://community.webtv.net/elmoemerson/DocElmosHepFile > > http://community.webtv.net/elmoemerson/TheFamilyAlbum > So how bad is the hair-loss issue for you folks? > Care to share? > Thanks 3 months post tx, now. I'd have to say I lost at least half my hair, thinned a LOT, but not like it fell out in patches and left bald spots or anything like that.. I wear it long, and those little ponytail rubber bands used to only go around it twice, it was so thick. Now it goes around almost six times. Instead of Ponytail, I now call it my Rats Tail. :) HATED washing it, that would really make me shed. Lucky for me I had enough hair for three before starting tx....It will grow back, they tell me >> So how bad is the hair-loss issue for you folks? >> Care to share? [quoted text clipped - 8 lines] > for me I had enough hair for three before starting tx....It will grow > back, they tell me Yeah I can understand---I used to have very long hair myself, all around, usually pulled back. I like the biker/Willie Nelson tails, with 6 or 7 tail holders. Miss it sometimes, but in Tx, not so much with these summers here. So if I lose a lot, oh well. 6 months aint that long really. I just got it cut pretty good yesterday & lovin' it. Thanks I started off with long, thick hair. Before long I was finding a bit more than usual in my brush. Next thing I knew, I was shedding like a malamute in springtime. I'd wake up in the morning with one of my cats sleeping on the pillow beside me. No, not a cat, a pile of hair! Showers were not pretty. Finally, in disgust, I hacked it all off to about 2-3 inches long and took to wearing a touque (that's a Canadian thing). But... in the long run, no biggie. After tx, it grew back in thicker than ever. > So how bad is the hair-loss issue for you folks? > Care to share? > Thanks > I started off with long, thick hair. > Before long I was finding a bit more than usual in my brush. [quoted text clipped - 12 lines] > > - Show quoted text - I did the same thing and cut my hair. I just want to grow it back in and longer so I can throw it into a ponytail lol. Mags considering a wig >> I started off with long, thick hair. >> Before long I was finding a bit more than usual in my brush. [quoted text clipped - 21 lines] > Mags > considering a wig sweet ;} >I started off with long, thick hair. > Before long I was finding a bit more than usual in my brush. [quoted text clipped - 6 lines] > But... in the long run, no biggie. After tx, it grew back in thicker than > ever. Wow--- piles just layin' there, eh? Ahhhhhh...man. That's good it's back to normal. >>I started off with long, thick hair. >> Before long I was finding a bit more than usual in my brush. [quoted text clipped - 9 lines] > Wow--- piles just layin' there, eh? Ahhhhhh...man. > That's good it's back to normal. Um, no... no problems with hemorrhoids... |
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