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Medical Forum / Diseases and Disorders / Hepatitis / March 2007newbie
Greetings from Texas newbie: After long time of trying to live healthy, I wound up in emergency room with internal bleeding and was diag-ed with hep c....JUST WONDERFUL! Also cirrosis, but not sure how bad. Now I am waiting for an appointment with the interfearon doc, because the other docs passed me to him. I sure don't know much about what's going on with me....never felt bad at all (hep c sure is sneaky) I am doing low sodium diet and that's just fine with me. I don't care for docs and hospitals at all, and this whole experience is just downright scarey! Anyway, here I am. Hope to learn much from this group. Best wishes to all! ---TNS > Greetings from Texas newbie: > [quoted text clipped - 11 lines] > is just downright scarey! Anyway, here I am. Hope to learn much from > this group. Best wishes to all! Welcome! Wish you didn't have to be here, but since you do, you've come to the right place. This family is about as dysfunctional as it gets, but there are some very knowledgeable and wonderful folks in here. I think we were all scared at first. I sure was. :-) Terririfed! I thought I'd been handed a death sentence, but here I am, strill truckin.' It might be a good idea for you to come up with a list of questions you'd like to have answered. Nothing is too trivial, and the only stupid question is the one you don't ask. Thanks for the greetings Thip! As I learn about even WHAT to ask, I sure will! ---TNS >Welcome! Wish you didn't have to be here, but since you do, you've come to >the right place. This family is about as dysfunctional as it gets, but [quoted text clipped - 6 lines] >like to have answered. Nothing is too trivial, and the only stupid question >is the one you don't ask. On Mar 3, 11:31 am, tns <t...@nospamintexasoranywahereelese.com> wrote: > Greetings from Texas newbie: > [quoted text clipped - 13 lines] > > ---TNS I never felt bad at all, either. I could be wrong but I dont think you can be diagnosed with cirrohosis without a liver biopsy. >I never felt bad at all, either. > >I could be wrong but I dont think you can be diagnosed with cirrohosis >without a liver biopsy.<--Got one of those...When I get to the new docs, maybe he will have more info. Thanks for the reply, amigo! --TNS Here's the word on cirrhosis diagnosis from the Mayo Clinic: "Although other tests can provide a great deal of information about the extent and type of liver damage, a biopsy is the only way to definitively diagnose cirrhosis." http://www.mayoclinic.com/health/cirrhosis/DS00373/DSECTION=6 Welcome, TNS :-) Kathy J. >Greetings from Texas newbie: > [quoted text clipped - 13 lines] > >---TNS Did you see a gastrologist for your internal bleeding? If he said it was related to cirrhosis, I would try to find a hematologist. I am really not sure if all interferon docs are hematologists. You said you were on a low sodium diet. Do you have noticeable fluid build up? This is another indication of cirrhosis. >>Greetings from Texas newbie: >> [quoted text clipped - 20 lines] >You said you were on a low sodium diet. Do you have noticeable fluid >build up? This is another indication of cirrhosis. Most likely the bleeding would be from varices, and I doubt hematologists have much interest in bleeding varices beyond signing a referral form. And the "fluid" stuff, that's not like random water retention, it'd be ascites, and I'm pretty sure a hematologist isn't going to go to work on ascites. Time to see a real honest to goodness liver doctor - a hepatologist - and most especially, a hepatologist with a clue... Cheers /greyhackles (and it just dawned on me that perhaps you actually meant hepatologist instead of hematologist :-) > >>Greetings from Texas newbie: > [quoted text clipped - 35 lines] > (and it just dawned on me that perhaps you actually meant hepatologist instead > of hematologist Hepatologist, Hematologist. Same thing. :) I have had to see both. Of course, I did mean Hepatologist. Sorry [...] > Hepatologist, Hematologist. Same thing. :) > I have had to see both. Of course, I did mean Hepatologist. Sorry I was thinking "herpatologist". You don't care for doctors and hospitls etc? haha! Let us know how you REALLY feel in another year or so... ;) BTW, I never felt "bad" prior to diagnosis either. > You don't care for doctors and hospitls etc? haha! Let us know how you > REALLY feel in another year or so... ;) > > BTW, I never felt "bad" prior to diagnosis either. I never felt bad either. After I was diagnosed, I finally understood why I never had the energy other people seemed to have. Re: newbie Group: alt.support.hepatitis-c Date: Sun, Mar 4, 2007, 9:06am (CST+1) From: me@privacy.net (Thip) "dBo" <frizzy526@yahoo.com> wrote in message news:1173016694.969700.77250@p10g2000cwp.googlegroups.com... You don't care for doctors and hospitls etc? haha! Let us know how you REALLY feel in another year or so... ;) BTW, I never felt "bad" prior to diagnosis either. I never felt bad either. After I was diagnosed, I finally understood why I never had the energy other people seemed to have. ///////////// I had symptoms before I was diagnosed. There were periods where I felt totally exhausted.....not just tired, but feeling WIPED OUT. The symptoms were profound enough that I went to the doc twice over a period of several years thinking I probably had Lyme Disease or something. My Idjit doctor at the time was too stupid to test me for hepc. It wasn't til later when I flunked a DOT physical because of my BP that a different GP thought enough to check my LFT's, then give me a test for hepc. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum >Most likely the bleeding would be from varices,<---Yes, that is what it was. and I doubt hematologists have >Time to see a real honest to goodness liver doctor - a hepatologist - and most >especially, a hepatologist with a clue...<---The doc I will see next is part of a large group of GI people. I'll see what his read on all this is! Thanks for the reply and thanks to all! Best wishes! ---TNS >Did you see a gastrologist for your internal bleeding? <--Yep...they fixed that. If he said it >was related to cirrhosis, I would try to find a hematologist. I am >really not sure if all interferon docs are hematologists. > >You said you were on a low sodium diet. Do you have noticeable fluid >build up? This is another indication of cirrhosis.<--Yes, somewhat... Thanks for the reply! TNS On Sat, 03 Mar 2007 13:31:02 -0600, tns <tns@nospamintexasoranywahereelese.com>, in message ID <jmiju21sr37326mn7ppval57tjrqie1ip3@4ax.com>, in the newsgroup alt.support.hepatitis-c wrote: >Greetings from Texas newbie: > [quoted text clipped - 11 lines] >is just downright scarey! Anyway, here I am. Hope to learn much from >this group. Best wishes to all! Sorry to hear of the problems you are having and welcome to the newsgroup. I only hope that the hep-c is still treatable by drugs. Interferon treatment is no picnic but seems to be the best thing we have right now. I noticed you called it interfeAron by the way. I think that this should be adopted as the standard spelling of its name because it is closer to the truth. welcome to the group, tns. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > Greetings from Texas newbie: > [quoted text clipped - 13 lines] > > ---TNS Welcome to our group tns. I didn't have any side effects that I knew of. When I look back, I can see the Hep was affecting my thinking and remembering part of my brain. I thought it was old age. Mags |
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