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Medical Forum / Diseases and Disorders / Hepatitis / September 2003Still have PegIntron, if anyone needs it....
The Rebetol (ribavirin) pills are gone, but I still have 3 shots that I can send to anyone who can use them. wanda -- Fighting the Dragon? Come to Granmaw's HepPlace! www.forums.delphiforums.com/methhepc/start On Fri, 26 Sep 2003 14:37:25 GMT, "wanda" <w-jackson@nospam.worldnet.att.net>, in message ID <FaYcb.159658$3o3.11421460@bgtnsc05-news.ops.worldnet.att.net>, in the newsgroup alt.support.hepatitis-c wrote: >The Rebetol (ribavirin) pills are gone, but I still have 3 shots that I can >send to anyone who can use them. Yeah. I always hated wasting drugs too. Have you tried e-bay? :-) PS. The link in your sig isn't working.  SignaturePaul Use the reply by email facility in your newsreader to send email > On Fri, 26 Sep 2003 14:37:25 GMT, "wanda" > <w-jackson@nospam.worldnet.att.net>, in message ID [quoted text clipped - 6 lines] > Yeah. I always hated wasting drugs too. > Have you tried e-bay? :-) I didn't even think of trying that; isn't e-bay for selling things though? I'd really rather give them to someone who really needs them, and for one reason or another is having a problem getting them. > PS. The link in your sig isn't working. Thanks, I will correct the problem immediately. (If I can figure out what's wrong!! *embarrassed grin*) wanda My understanding is that doing something like this on e-Bay is illegal. You're not supposed to dispense drugs, though whatever arrangements are made between friends do not need to come to the attention of any official channels. Here in France, you can bring unused drugs to a hospital pharmacy and they will either use them or donate them to third-world countries. Unlike the US, most (though not all) drugs in France are dispensed in foil-backed packaging. Obviously, this doesn't apply to IFN. I still have some Peg, as well, but it will be going back to the hospital with me on my next appointment. Lana > > On Fri, 26 Sep 2003 14:37:25 GMT, "wanda" > > <w-jackson@nospam.worldnet.att.net>, in message ID [quoted text clipped - 18 lines] > > wanda > My understanding is that doing something like this on e-Bay is illegal. > You're not supposed to dispense drugs, though whatever arrangements are made [quoted text clipped - 5 lines] > some Peg, as well, but it will be going back to the hospital with me on my > next appointment. Lana, I wish there was something like that here. Everyone's just out to make a buck though, so people giving these expensive meds away is like a sin... Sad, really, considering how many people with no insurance and no money are also without treatment because they can't afford the meds. wanda -- Fighting the Dragon? Come to Granmaw's HepPlace! http://forums.delphiforums.com/methhepc/start On Sat, 27 Sep 2003 01:06:54 GMT, "wanda" <w-jackson@nospam.worldnet.att.net>, in message ID <Oo5db.160377$3o3.11469402@bgtnsc05-news.ops.worldnet.att.net>, in the newsgroup alt.support.hepatitis-c wrote: >Sad, really, considering how many people with no insurance and no money are >also without treatment because they can't afford the meds. It is indeed very sad Wanda. I suppose someone may be able to get some unused stuff from a number of people to make enough for a full tx. Personally, I wouldn't fancy that as it would probably mean doing it without medical supervision (not that it helped my friend who died) and could also mean taking different types of interferon. SignaturePaul Use the reply by email facility in your newsreader to send email > On Sat, 27 Sep 2003 01:06:54 GMT, "wanda" > <w-jackson@nospam.worldnet.att.net>, in message ID > <Oo5db.160377$3o3.11469402@bgtnsc05-news.ops.worldnet.att.net>, in the > newsgroup alt.support.hepatitis-c wrote: > It is indeed very sad Wanda. I suppose someone may be able to get > some unused stuff from a number of people to make enough for a full > tx. Personally, I wouldn't fancy that as it would probably mean doing > it without medical supervision (not that it helped my friend who died) > and could also mean taking different types of interferon. I haven't known anyone who had to do it for the whole time; there are programs out there to help people to get the meds, it's just that usually it takes time for 'approval', and if the tx is interrupted, you might as well quit. Wanda -- Fighting the Dragon? Come to Granmaw's HepPlace! http://forums.delphiforums.com/methhepc/start On Fri, 26 Sep 2003 22:54:29 +0200, "szozu" <hoppbunny at hotmail dot com>, in message ID <3f74a847$0$10407$626a54ce@news.free.fr>, in the newsgroup alt.support.hepatitis-c wrote: >My understanding is that doing something like this on e-Bay is illegal. >You're not supposed to dispense drugs, though whatever arrangements are made >between friends do not need to come to the attention of any official >channels. I'm sorry. Perhaps I should have made it clearer that e-bay was not meant to be serious suggestion. SignaturePaul Use the reply by email facility in your newsreader to send email On Fri, 26 Sep 2003 20:37:25 GMT, "wanda" <w-jackson@nospam.worldnet.att.net>, in message ID <9s1db.154151$0v4.11507465@bgtnsc04-news.ops.worldnet.att.net>, in the newsgroup alt.support.hepatitis-c wrote: >I didn't even think of trying that; isn't e-bay for selling things though? Yes it is. I'm just being flippant :-) It wasn't meant to be a serious suggestion. >I'd really rather give them to someone who really needs them, and for one >reason or another is having a problem getting them. Well I guess I could do with some practice as I haven't spiked myself since the mid 80s. Seriously though. Surely the stuff is only any good if a 6 month or 1 year course (or most of) is being taken. I imagine that if someone damaged or lost their drugs, then they would be re-supplied by their doctor (maybe after a lot of bitching due to the cost). I imagine that your best course may be to return them from whence they came or to destroy them? Not sure about that though. SignaturePaul Use the reply by email facility in your newsreader to send email > On Fri, 26 Sep 2003 20:37:25 GMT, "wanda" > <w-jackson@nospam.worldnet.att.net>, in message ID > <9s1db.154151$0v4.11507465@bgtnsc04-news.ops.worldnet.att.net>, in the > Seriously though. Surely the stuff is only any good if a 6 month or 1 > year course (or most of) is being taken. I imagine that if someone > damaged or lost their drugs, then they would be re-supplied by their > doctor (maybe after a lot of bitching due to the cost). > I imagine that your best course may be to return them from whence they > came or to destroy them? Not sure about that though. There are a lot of folks who get started, then for whatever reason (usually the insurance company refusing to pay it all anymore) can't continue. This means however long they've suffered with the sides was for nothing. Those are the people who can use the help. As expensive as this stuff is, I just can't see destroying it. Wanda -- Fighting the Dragon? Come to Granmaw's HepPlace! http://forums.delphiforums.com/methhepc/start >As expensive as this stuff is, I just can't see destroying it. Me, too. I still have a few unopened bottles of Riba, some Peg, and even some Neupogen laying around because I can't get myself to throw it out. I asked my liver doc, but the office said they'll just destroy it for liability reasons. Crazy times when docs have to be afraid to hand out perfectly good medicine just because it's been in someone else's hands... Thomas > >As expensive as this stuff is, I just can't see destroying it. > [quoted text clipped - 4 lines] > perfectly good medicine just because it's been in someone else's > hands... I totally agree; it's like they're saying that because someone with hep had the meds in their possession, the meds are probably contaminated... So it really does no one any good if you give it to a doc who is only going to destroy it, better that someone who can use it gets it. Wanda -- Fighting the Dragon? Come to Granmaw's HepPlace! http://forums.delphiforums.com/methhepc/start If you still have some I could take it off your hands. My insurance is really making a big deal out of paying for this stuff. I need peginterferon alfa-2a (Pegasys) and Ribavirin Let me know if you could send them to me. I'll gladly pay whatever postage is incurred. Thanks, Mike > >As expensive as this stuff is, I just can't see destroying it. > [quoted text clipped - 6 lines] > > Thomas On Sat, 27 Sep 2003 09:28:57 GMT, "wanda" <w-jackson@nospam.worldnet.att.net>, in message ID <tLcdb.160864$3o3.11505835@bgtnsc05-news.ops.worldnet.att.net>, in the newsgroup alt.support.hepatitis-c wrote: >There are a lot of folks who get started, then for whatever reason (usually >the insurance company refusing to pay it all anymore) can't continue. This >means however long they've suffered with the sides was for nothing. Those >are the people who can use the help. > >As expensive as this stuff is, I just can't see destroying it. I understand better where you're coming from now Wanda and I agree with you. The discrepancy in the way we were seeing it, is the result of two different healthcare systems. Here in the UK, the treatment is (almost) free at the point of usage. We do, however, pay for it in our general taxes and National (Health) Insurance contributions. Although our system has good and bad points, it would ensure that tx would be funded throughout once started - assuming that there were no complications that made stopping tx advisable. SignaturePaul Use the reply by email facility in your newsreader to send email > On Sat, 27 Sep 2003 09:28:57 GMT, "wanda" > <w-jackson@nospam.worldnet.att.net>, in message ID [quoted text clipped - 16 lines] > would be funded throughout once started - assuming that there were no > complications that made stopping tx advisable. God, I wish it was that way here!!! On Sun, 28 Sep 2003 03:46:51 GMT, "wanda" <w-jackson@nospam.worldnet.att.net>, in message ID <LQsdb.155829$0v4.11656016@bgtnsc04-news.ops.worldnet.att.net>, in the newsgroup alt.support.hepatitis-c wrote: >God, I wish it was that way here!!! As I said, it does have its bad points too. The flip side is that it can take longer to get to see a specialist in the first place and there are less choices as to who you see (I only asked NOT to see a particular doctor which is permitted). If I was regarded as an emergency case, I understand that I would move up the queue quite rapidly (hopefully). Perversely, I am hoping that the tests show that I have minimal liver damage - just enough for the doc to allow me to start tx (assuming that the tests show a viral load rather than just antibodies). I suppose that most rational people would wish for a totally clear result but I don't want the Sword of Damocles hanging over my head for years to come. I don't live well with uncertainties and the knowledge that one day I may need tx is already causing me to put certain things on hold. SignaturePaul Use the reply by email facility in your newsreader to send email Paul <dontspamme@westgreen.freeserve.co.uk> | | Perversely, I am hoping that the tests show that I have minimal liver | damage - just enough for the doc to allow me to start tx (assuming [quoted text clipped - 4 lines] | I don't live well with uncertainties and the knowledge that one day I | may need tx is already causing me to put certain things on hold. I know the feeling; once I learned that nothing else could kill HCV, I was determined to get tx. Even if you have minimal liver damage, you still have a good case for demanding tx. Studies have shown that the lesser the damage, the more likely tx will succeed. As well, waiting longer and getting older will make your chances of successful tx less. If I were you, though, I'd be hoping for the antibody-only test result. Unless you've just recently contracted HCV, that means that your body has successfully fought (and killed, whoopee!) the dragon. All the best to you, Waterspider On Sun, 28 Sep 2003 11:55:44 -0700, "Waterspider" <noapam@all>, in message ID <vnebkokds1nue6@corp.supernews.com>, in the newsgroup alt.support.hepatitis-c wrote: >If I were you, though, I'd be hoping for the antibody-only test result. >Unless you've just recently contracted HCV, that means that your body has >successfully fought (and killed, whoopee!) the dragon. Yes, I am hoping for an antibody only result. I've almost certainly had this thing inside me for 17 - 29 years (the time when I was IV injecting drugs.) Within that timescale, it is most likely that I picked it up 22 - 29 years ago because I had access to new works once I got registered for methadone maintenance (and used them). I did share equipment once after the I ended the maintenance program (17 years ago). I could have got the virus then but, statistically, the odds are that I picked it up much sooner. No-one has told me yet if the insurance blood test I had a few months ago was revealing a viral load or antibodies only. I am expecting the next test to reveal a viral load and a 1x strain - as that is the most common in the UK. Anything better than that will be a pleasant surprise. SignaturePaul Use the reply by email facility in your newsreader to send email > Here in the UK, the treatment is > (almost) free at the point of usage. FYI Hep-C is a chronic illness and you are entitled to a Family Practitioner Exemption Certificate. Your GP should give you the form to get one. > On Fri, 26 Sep 2003 14:37:25 GMT, "wanda" > <w-jackson@nospam.worldnet.att.net>, in message ID > <FaYcb.159658$3o3.11421460@bgtnsc05-news.ops.worldnet.att.net>, > PS. The link in your sig isn't working. Well, didn't take me long at all. Hopefully I've done it right this time!! -- Fighting the Dragon? Come to Granmaw's HepPlace! http://forums.delphiforums.com/methhepc/start On Fri, 26 Sep 2003 20:41:40 GMT, "wanda" <w-jackson@nospam.worldnet.att.net>, in message ID <8w1db.154156$0v4.11507036@bgtnsc04-news.ops.worldnet.att.net>, in the newsgroup alt.support.hepatitis-c wrote: >Well, didn't take me long at all. Hopefully I've done it right this time!! > >-- >Fighting the Dragon? Come to Granmaw's HepPlace! > >http://forums.delphiforums.com/methhepc/start Looks good from here :-) SignaturePaul Use the reply by email facility in your newsreader to send email It's illegal to sell or give your combo drugs, LOL. But it's not illegal for you to give them to a doc. My gastro takes surplus drugs and gives them to patients that can't afford them. My first shot of procrit was given to me on the spot thanks to someone that didn't need the stuff anymore. I'll have spare riba left over when I'm done that I'll give back to the doc. Hope someone enjoys them. Elmo > It's illegal to sell or give your combo drugs, LOL. But it's not > illegal for you to give them to a doc. <snip> Are you serious??? You mean I'm not supposed to even GIVE them to a FRIEND? It's not like they're controlled drugs or something!! This is just one law I'm going to have to break. It doesn't make sense to me that I can't be the one to find someone to give them to..... Wanda -- Fighting the Dragon? Come to Granmaw's HepPlace! http://forums.delphiforums.com/methhepc/start > > It's illegal to sell or give your combo drugs, LOL. But it's not > > illegal for you to give them to a doc. [quoted text clipped - 6 lines] > This is just one law I'm going to have to break. It doesn't make sense to me > that I can't be the one to find someone to give them to..... I had already mailed my riba to a friend who was just starting tx when I finished. The Peg is more difficult though, as it needs to be refrigerated. I can't stand wasting things either. Not only is this stuff shockingly expensive, but like you say, there are so many people out there who can't afford it because of no insurance. Lana > I had already mailed my riba to a friend who was just starting tx when I > finished. The Peg is more difficult though, as it needs to be refrigerated. What kind of Peg are you taking? My kits are sterile water in one vial, and a powder in the other vial, so there's no need for refrigeration. Wanda -- Fighting the Dragon? Come to Granmaw's HepPlace! http://forums.delphiforums.com/methhepc/start > > I had already mailed my riba to a friend who was just starting tx when I > > finished. The Peg is more difficult though, as it needs to be > refrigerated. > > > What kind of Peg are you taking? My kits are sterile water in one vial, and > a powder in the other vial, so there's no need for refrigeration. Peg-Intron is called Viraferon here, but it's the same stuff by Schering. I started tx with the vials and then the pen arrived in France--but even with the stuff in the vials, the pharmacy told me to keep it refrigerated The only problem with the pen is that there are four different strengths. Each pen contains the same amount of liquid, but the difference lies in the dose of powder. Lana On Sat, 27 Sep 2003 14:01:44 +0200, "szozu" <hoppbunny at hotmail dot com>, in message ID <3f757d74$0$13269$626a54ce@news.free.fr>, in the newsgroup alt.support.hepatitis-c wrote: >Peg-Intron is called Viraferon here, but it's the same stuff by Schering. I >started tx with the vials and then the pen arrived in France--but even with >the stuff in the vials, the pharmacy told me to keep it refrigerated I keep reading this stuff about refrigeration. I have a very old fridge and I intend to get a new one if tx is offered - just to try and ensure that things go alright. Is that jumpy or what? :-) First appointment at T - 11 days and counting :-) SignaturePaul Use the reply by email facility in your newsreader to send email > On Sat, 27 Sep 2003 14:01:44 +0200, "szozu" <hoppbunny at hotmail dot > com>, in message ID <3f757d74$0$13269$626a54ce@news.free.fr>, in the [quoted text clipped - 10 lines] > > First appointment at T - 11 days and counting :-) They even used to ask me if I was going straight home, otherwise they would offer an ice pack to keep it cool. I don't know how cool it needs to be kept, but like many thing--even vegetable oils, many things deteriorate at higher temperatures, so perhaps it's just a safety issue to insure potency. Lana the pharmacy guy told me 24hrs but he was rushed and he didnt elaborate chop Signature-------------------------------- if u really want to email me, click on the address below news.sonic.net@Pexoteric.org and remove the P before you click send -------------------------------- > > > On Sat, 27 Sep 2003 14:01:44 +0200, "szozu" <hoppbunny at hotmail dot [quoted text clipped - 22 lines] > > Lana > I keep reading this stuff about refrigeration. I have a very old > fridge and I intend to get a new one if tx is offered - just to try > and ensure that things go alright. > Is that jumpy or what? :-) Understandable, Paul. At least to anyone who's had a British fridge! ;-) tim | > I keep reading this stuff about refrigeration. I have a very old | > fridge and I intend to get a new one if tx is offered - just to try | > and ensure that things go alright. | > Is that jumpy or what? :-) | | Understandable, Paul. At least to anyone who's had a British fridge! ;-) Thanks for the clarification, Tim. I was starting to think Paul was a bit strange. I've heard of all kinds of weird and wonderful preparations being made for treatment, but never anyone buying a new fridge for it. <g> Waterspider On Sat, 27 Sep 2003 23:29:34 GMT, "tim" <rotamit@oohay.moc>, in message ID <y3pdb.355920$2x.110550@rwcrnsc52.ops.asp.att.net>, in the newsgroup alt.support.hepatitis-c wrote: >Understandable, Paul. At least to anyone who's had a British fridge! ;-) Maybe I'll get a Japanese one. :-) Their cars are reliable so maybe their fridges are too. The old one (fridge) that I have is prone to leaking sometimes and is on its last legs anyway. SignaturePaul Use the reply by email facility in your newsreader to send email i have a dog like that Paul. he hikes one of his last legs and begins leaking immediately <g> Dez > On Sat, 27 Sep 2003 23:29:34 GMT, "tim" <rotamit@oohay.moc>, in > message ID <y3pdb.355920$2x.110550@rwcrnsc52.ops.asp.att.net>, in the [quoted text clipped - 5 lines] > their fridges are too. The old one (fridge) that I have is prone to > leaking sometimes and is on its last legs anyway. On Sun, 28 Sep 2003 03:58:51 -0500, "Perado Dez" <PeradoDez@hotmail.com>, in message ID <3f76a2d2$1_2@Usenet.com>, in the newsgroup alt.support.hepatitis-c wrote: >i have a dog like that Paul. he hikes one of his last legs and begins >leaking immediately <g> I used to be like that myself in my drinking days :-) SignaturePaul Use the reply by email facility in your newsreader to send email LOL > i have a dog like that Paul. he hikes one of his last legs and begins > leaking immediately <g> [quoted text clipped - 22 lines] > ** SPEED ** RETENTION ** COMPLETION ** ANONYMITY ** > ---------------------------------------------------------- > On Sat, 27 Sep 2003 14:01:44 +0200, "szozu" <hoppbunny at hotmail dot > com>, in message ID <3f757d74$0$13269$626a54ce@news.free.fr>, in the > newsgroup alt.support.hepatitis-c wrote: <snip> > I keep reading this stuff about refrigeration. I have a very old > fridge and I intend to get a new one if tx is offered - just to try > and ensure that things go alright. > Is that jumpy or what? :-) Paul, do what makes you feel comfortable. You'll have enough to deal with without having to worry about stuff like that. Wanda -- Fighting the Dragon? Come to Granmaw's HepPlace! http://forums.delphiforums.com/methhepc/start Wanda, you might ask your doctor. You do need to be careful about dispensing medication without a license. I know how you feel though, I had a lot left over the last time I went through tx. I couldn't find anyone to pass it on to, and eventually had to throw it out. I hope you are able to find someone that can use them. Dwight > The Rebetol (ribavirin) pills are gone, but I still have 3 shots that I can > send to anyone who can use them. [quoted text clipped - 5 lines] > > www.forums.delphiforums.com/methhepc/start I would also think that you would incur some legal liability in case someone had a severe problem or croaked if they got their drugs from you after you'd been kind enough to give them away without you not being liscensed to dispense. If you give them to your doc, then you won't be dispensing them. I've got a 30 day supply of daily Infergon in case anyone is crazy enough to do it. I'll send it to your doctor's office and he can give it to you. Daily Infergon is something a non-responder to former tx might want to consider, along with riba and amantadine. Infergon is pretty potent sh.t, it kicked my a.s every day I did it, especially when I was doing weekly Pegasys at the same time. But it was even tougher on the virus, I went 'undetectable' in my 9th week. That beat my former regimen by 7 weeks, PegIntron and riba (two less). Anyway, I got the drugs Dave! Dave? Open the door, man!!! Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > Anyway, I got the drugs Dave! Dave? > Open the door, man!!! Dave: Dave's not here!!! -- Fighting the Dragon? Come to Granmaw's HepPlace! http://forums.delphiforums.com/methhepc/start On Sat, 27 Sep 2003 01:15:18 GMT, "wanda" <w-jackson@nospam.worldnet.att.net>, in message ID <Gw5db.160384$3o3.11469531@bgtnsc05-news.ops.worldnet.att.net>, in the newsgroup alt.support.hepatitis-c wrote: >> Anyway, I got the drugs Dave! Dave? >> Open the door, man!!! > >Dave: Dave's not here!!! I enjoyed the courtroom sketch that they did. When he was up for possession He stole a sip of the judge's water and publicly announced that it was vodka. SignaturePaul Use the reply by email facility in your newsreader to send email > On Sat, 27 Sep 2003 01:15:18 GMT, "wanda" > <w-jackson@nospam.worldnet.att.net>, in message ID [quoted text clipped - 9 lines] > possession He stole a sip of the judge's water and publicly announced > that it was vodka. LOL I've also got an unopened bottle of amantadine, but that stuff is cheap, so I don't feel so bad about it. Lana > I would also think that you would incur some legal liability in case > someone had a severe problem or croaked if they got their drugs from you [quoted text clipped - 15 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum | I've also got an unopened bottle of amantadine, but that stuff is cheap, so | I don't feel so bad about it. My bathroom looks like a pharmacy store-room. Okay, I exaggerated a bit, but I have leftover (from the past year) oxycontin, oxycodone, codiene, morphine, Gravol, Tylenol, Effexor, diazapam, lorazapam, sleeping pills (I forget the type), and some other stuff to prevent I forget what after gallbladder surgery. Oh yeah, and I almost forgot the prescription cortisone cream. Whew! Waterspider > | I've also got an unopened bottle of amantadine, but that stuff is cheap, > so [quoted text clipped - 10 lines] > > Waterspider YOur next, my hepper page will fill quickly Hoof http://www.angelfire.com/biz/HoofPrintsEqusPhoto/mom.html From : "Waterspider" <noapam@all> Message-ID : <vncq4lbg8iu660@corp.supernews.com> >I have leftover (from the past year) oxycontin, oxycodone, codiene, >morphine, Gravol, Tylenol, Effexor, diazapam, lorazapam, sleeping pills (I >forget the type), and some other stuff I guess you needed that *stuff* for your brain while you were taking that other *stuff* for your liver huh ? The concept of a discrete brain function can be demonstrated with most of your posts PVTS esq. Professeur Von TwoSteps esq. <.@.> wrote... | From : "Waterspider" <noapam@all> | | >I have leftover (from the past year) oxycontin, oxycodone, codiene, | >morphine, Gravol, Tylenol, Effexor, diazapam, lorazapam, sleeping pills (I | >forget the type), and some other stuff | I guess you needed that *stuff* for your brain while you were taking that | other *stuff* for your liver huh ? No, all the painkiller crap was pre-tx, the six months I waited for gallbladder surgery. The downers were prescribed (but not taken) for my "symptoms" before I was (finally, correctly) diagnosed with hep C. Being 3a, my tx was only six months, and during that time I took low-dose Effexor (anti-depressants) and occasional acetaminophen (sp?) and Gravol. I'm not taking anything now, and have developed such a hatred of pills that I hope I never have to take one again. Have a nice day. Waterspider |
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