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Medical Forum / Diseases and Disorders / Hepatitis / February 2007Really bad news
I got a call from my BCLD's office today.They tell me that my Viral load is 50.I have been undetectable since October of 05.I've been doing the daily Infergen routine since June 05.I'm on a 2 year treatment.I was due to complete tx June 7th 2007.I will be seeing the Doc this Thursday.I guess I'm sh.t outta luck now.This is my 3rd attempt & I doubt that I have any other options.I haven't tried the Vertex trial.Maybe he will offer me that.I do have cirrhosis.From what I've read & heard from heppers that had transplants,some have said that they wouldn't do it again.I don't think that it's worth going through the hell of having a transplant.Given the poor odds of living a normal productive life again. Peace Be With You, BrianD -------------------------------------------------------------------------------- I am using the free version of SPAMfighter for private users. It has removed 2165 spam emails to date. Paying users do not have this message in their emails. Try SPAMfighter for free now! >I got a call from my BCLD's office today.They tell me that my Viral load is >50.I have been undetectable since October of 05.I've been doing the daily [quoted text clipped - 9 lines] >Peace Be With You, >BrianD Damn, Brian. I'm really sorry to hear about this, you were so brave to even take on this regimen. It sucks that it might be over too soon. Will your doc re-run the test just to make sure before stopping tx? Is your cirrhosis still compensated? Are you essentially asymptomatic wrt the liver disease? If so, you'd still be a long way from a transplant (ask Thipper :-) and with luck vx950 or something else will be there before you bubble up high on anyone's list... Regards /greyhackles >>I got a call from my BCLD's office today.They tell me that my Viral load >>is [quoted text clipped - 31 lines] > > /greyhackles Thanks for asking Grey.These are the results after re-running the test.This happened once before in Oct 06 and he re-ran the test(he did the more sensitive test)and it came back undetectable then.I am compensating and asymptomatic for now.But my viral low was something like 42 million before I started my current tx.I got SVR in about 12 weeks give or take a couple of weeks.Go figure. BrianD -------------------------------------------------------------------------------- I am using the free version of SPAMfighter for private users. It has removed 2165 spam emails to date. Paying users do not have this message in their emails. Try SPAMfighter for free now! It aint over til the fat lady sings, Brian. Has your doc suggested stopping tx? 50 is next to nothing...perhaps your next test will be 'undectable' again.(?) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > It aint over til the fat lady sings, Brian. Has your doc suggested > stopping tx? > 50 is next to nothing...perhaps your next test will be 'undectable' > again.(?) > elmo And this fat lady still ain't singing. Depressing news, but definitely not the end of the road. Hang in there, my friend, and you and I will get through this together. bull, brian, bobby h had a liver transplant. before he woke up, the new liver failed. a third liver was placed in him before he came to. he is alive today. thats been about 8 yrs. ago. his original liver was completely toasted. his head was like an pumpkin. he almost died waiting for a transplant. i remeber driving by his house. he was mowing the yard with a pushmower. beat anything ive seen yet. This drug zadaxin can be purchased thru a pharm. co. in panama. thru the fda's compassionate program also. it helps with liver regeneration. used in conjuntion with peg and co-peg its pulled several thru, never say never. dont give up, man. when there is still there is still hope. Talk to your doc about this. peace, Randy >bull, brian, bobby h had a liver transplant. before he woke up, the >new liver failed. a third liver was placed in him before he came to. he [quoted text clipped - 7 lines] >man. when there is still there is still hope. Talk to your doc about >this. peace, Randy A transplant is not a walk in the park, but it beats the alternative. > On Tue, 13 Feb 2007 23:17:32 -0500, jamesthomas...@webtv.net (james > [quoted text clipped - 12 lines] > > A transplant is not a walk in the park, but it beats the alternative. Transplant question? Average person lives approx 10 years with Cirhossis.After teatments fail when do they put you on transplant lists?john > I got a call from my BCLD's office today.They tell me that my Viral load is > 50.I have been undetectable since October of 05.I've been doing the daily [quoted text clipped - 9 lines] > Peace Be With You, > BrianD I am sorry to hear that Brian. The only thing I'd say is to fight until there's hope and indeed there is hope. I am at least referring to Vertex and Schering studies. Don't give up, give a chance to them too as I also think treatment prevents your liver from getting worse, doesn't it? Hope this helps, jeeb. >I got a call from my BCLD's office today.They tell me that my Viral load is >50.I have been undetectable since October of 05.I've been doing the daily [quoted text clipped - 9 lines] >Peace Be With You, >BrianD Next time you talk to the doc would you ask him what the chances of re infecting yourself are? I have heard this mentioned in the group before. I never remember all the questions I need to ask when I go to the doc. I don't get to see the doc half of the time which really sucks because it is an hour and a half drive. >I got a call from my BCLD's office today.They tell me that my Viral load is >50.I have been undetectable since October of 05.I've been doing the daily [quoted text clipped - 11 lines] > > -------------------------------------------------------------------------------- Well I saw my BCLD yesterday.He discontinued my tx.He told me that even with my viral load at a low 50 that as long as I've been on this round of tx I should be undetectable.He gave me the information regarding the Vertex trial and will check my viral load in 3 weeks.I have a couple of month's supply of Infergen and RibaVirin left.I'm tempted to continue taking it.Maybe I should get another opinion.A lot of people here use the University Clinic.I hear it's a real pain in the a.s though.The clinic makes their pt's jump through a lot of hoops. BrianD -------------------------------------------------------------------------------- I am using the free version of SPAMfighter for private users. It has removed 2168 spam emails to date. Paying users do not have this message in their emails. Try SPAMfighter for free now! On Fri, 16 Feb 2007 14:09:11 -0500, "brian" <brian502@guess.com>, in message ID <VJOdnWDwsZPFnEvYnZ2dnUVZ_sKunZ2d@insightbb.com>, in the newsgroup alt.support.hepatitis-c wrote: >Well I saw my BCLD yesterday.He discontinued my tx.He told me that even with >my viral load at a low 50 that as long as I've been on this round of tx I >should be undetectable.He gave me the information regarding the Vertex trial >and will check my viral load in 3 weeks.I have a couple of month's supply of >Infergen and RibaVirin left.I'm tempted to continue taking it. I understand the temptation but please don't do it. Maybe you were just thinking aloud but don't intend to use the drugs. Without proper monitoring, continuing tx is, at worst, potentially fatal. I'm sorry to read that you have a viral load. It must be pretty awful to go through tx and still have active virus. |
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