I seem to be lurking around these days.
Now that I got my health stable I have been able to quit reading Med
text books 8 hours a day for months and months to figure out what the
hell was wrong with me. Its been one tedious year 06. I will be
consulting with some new dr. soon. If he don't know as much or more than
me on my Pheochromocytoma, and my Conns syndrome and not willing to work
with Dr. Grim in Wisconsin who had 40 years invested in this rare
illness I have. Grim saved my life over the internet in his yahoo ng for
Conns after 2 Endos almost killed me off in Sacramento in 06 and told me
I was fine. I am calling all the shots now days and keeping dr. Grim and
all his information I printed out close at hand I am so much better now
days. Dr. Grim knows all the drugs that do work for my situition he's
just grand with 40 years of trial and error behind him.
Juanita
Stable is a good thing :)
> I seem to be lurking around these days.
> Now that I got my health stable I have been able to quit reading Med
[quoted text clipped - 10 lines]
> just grand with 40 years of trial and error behind him.
> Juanita
Re: PING... Juanita
Group: alt.support.hepatitis-c Date: Thu, Feb 15, 2007, 6:30pm (CST-2)
From: Meling333@webtv.net (JV)
I seem to be lurking around these days.
Now that I got my health stable I have been able to quit reading Med
text books 8 hours a day for months and months to figure out what the
hell was wrong with me. Its been one tedious year 06. I will be
consulting with some new dr. soon. If he don't know as much or more than
me on my Pheochromocytoma, and my Conns syndrome and not willing to work
with Dr. Grim in Wisconsin who had 40 years invested in this rare
illness I have. Grim saved my life over the internet in his yahoo ng for
Conns after 2 Endos almost killed me off in Sacramento in 06 and told me
I was fine. I am calling all the shots now days and keeping dr. Grim and
all his information I printed out close at hand I am so much better now
days. Dr. Grim knows all the drugs that do work for my situition he's
just grand with 40 years of trial and error behind him.
Juanita
/////////
Isn't that the same Dr. Grim that's in practice with our Doc Killborn?
:-)
elmo
http://community.webtv.net/elmoemerson/DocElmosHepFile
http://community.webtv.net/elmoemerson/TheFamilyAlbum
JV - 17 Feb 2007 01:14 GMT
Hi everyone. Stable is nice. Losing all your K potassium is very bad
and frightening. Drugs fixed my K problem.
I cant wait to get this adrenal gland cut out of me. Just because a
adrenal gland has a bump on it don't mean it is the one to remove. Met a
few who done than one their so screwed. I had adrenal vein sampling in
july and it was a disaster, they punctuated my vein and the contrast
extravasated on my gland and kidney and was like gasoline being poured
and lit with a match.They were trying to get samples from my adrenal
gland going in through a groin vein. So that didn't work and no samples
were obtained to find the over producing side. Since then I found it to
be producing adrenaline this changed for the good.. So I am awaiting on
a MIBG scan. As the excess composition of cells that produce adrenaline
draws the precursor adrenaline contrast right to the adrenal gland
tumor and it glows on the scan. I hope mine glows do i ever.
Juanita