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Medical Forum / Diseases and Disorders / Hepatitis / February 2007Fatigue treatment.
I haven't been here in a while, I hope everyone is doing well. I'm 43 weeks into 48 weeks of treatment (pegasys/copegus) Only 5 weeks to go. The first 6 months went be like a breeze, now I'm suffering the sides something awful. Has anyone had treatment for the fatigue associated with combo therapy? With the exception of Provigil (which my insurance won't payfor) has anyone used amphetamines (ie. dextro, ritalin) to counteract the fatigue? -ChefX Are you losing weight faster, too? Are you getting your tomatoes and bananas? It sounds as though you are getting quite anemic, perhaps. You probably need the old Elvis soul food, fried peanut butter and banana sandwiches. (you sides sound familiar, I couldn't go up more that five stairs a once without resting. It goes away.) Try and eat as much as possible is my folksy suggestion. cactus jammies =================== >I haven't been here in a while, I hope everyone is doing well. I'm 43 weeks > into 48 weeks of treatment (pegasys/copegus) Only 5 weeks to go. The first [quoted text clipped - 7 lines] > > -ChefX >I haven't been here in a while, I hope everyone is doing well. I'm 43 weeks > into 48 weeks of treatment (pegasys/copegus) Only 5 weeks to go. The first [quoted text clipped - 7 lines] > > -ChefX You only have 5 weeks to go! Amphetamines are definitely not liver-friendly and I honestly can't see any sense at all in risking damage at this point. Might's well go drink a 12-pack or two. I hate to sound ugly, but you have NO idea how I envy you for responding and being able to go this far. I bombed out at 12 weeks both times and had to quit the Infergen the third time due to the sides. Here I am, with Stage 4 disease and a suspicious area in my liver that might be pre-cancerous, and I'm thinking I'd give anything to have your fatigue instead. I'm rooting for you, buddy, so hang in there. FWIW, when I've had severe fatigue due to the diisease, I make a general annoucement to the world that I need to be left alone and go to bed. For a time there, I was sleeping from 5 p.m. til 5 a.m. and it still wasn't really enough, but at least I was more or less functional. >I haven't been here in a while, I hope everyone is doing well. I'm 43 weeks >into 48 weeks of treatment (pegasys/copegus) Only 5 weeks to go. The first 6 [quoted text clipped - 4 lines] > >-ChefX Do you think it's just battle fatigue after 43 weeks of killing virii, or something more? When was the last time you had a CBC - and what did your hemoglobin score? Hang in there ChefX - you've rounded the clubhouse turn and are almost at the finish line! And forget about taking speed, fer chrissakes (I'm hoping you were kidding). Your body has been hammered for 10 months, and it really doesn't need someone breaking out the whip at this point... Cheers /greyhackles Re: Fatigue treatment. Group: alt.support.hepatitis-c Date: Fri, Feb 2, 2007, 3:25pm (CST+1) From: greyhackles@NOSPAMyahoo.com (greyhackles) I haven't been here in a while, I hope everyone is doing well. I'm 43 weeks into 48 weeks of treatment (pegasys/copegus) Only 5 weeks to go. The first 6 months went be like a breeze, now I'm suffering the sides something awful. Has anyone had treatment for the fatigue associated with combo therapy? With the exception of Provigil (which my insurance won't payfor) has anyone used amphetamines (ie. dextro, ritalin) to counteract the fatigue? -ChefX /////////// I'm guessing your doc has been monitoring your reds for anemia and would have prescribed Procrit for you if that was the problem concerning fatigue. Quite often, the docs don't pay attention to thyroid when they order labs and it's my guess that may very well be your problem. A hypoactive thyroid will cause extreme fatigue. And tx drugs are well known to whack out the thyroid. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum >Re: Fatigue treatment. > [quoted text clipped - 16 lines] >known to whack out the thyroid. >elmo Geeze, elmo. I'd think - after all the horror stories related here over the years - that you'd realize that doctors can f.ck up something horrible on things as simple as recognizing anemia when it's screaming in their faces... My HGB went straight in the toilet two weeks into tx, was below 10 within two more weeks, but I wasn't put on Procrit until my HGB was almost hitting 8 and I was the epitome of "dead man walking" almost three months into therapy. As much as I blame over-subscribed doctors who can't pay attention to *anyone* any longer, I blame myself for letting my doctor control my therapy. Never assume anything when it comes to medical treatment. *That* can kill ya... Cheers /greyhackles Re: Fatigue treatment. Group: alt.support.hepatitis-c Date: Sat, Feb 3, 2007, 11:21am (CST+1) From: greyhackles@NOSPAMyahoo.com (greyhackles) Re: Fatigue treatment. Group: alt.support.hepatitis-c Date: Fri, Feb 2, 2007, 3:25pm (CST+1) From: greyhackles@NOSPAMyahoo.com (greyhackles) On Fri, 2 Feb 2007 13:58:33 -0500, "ChefX" <Chefxxx@gmail.com> wrote: I haven't been here in a while, I hope everyone is doing well. I'm 43 weeks into 48 weeks of treatment (pegasys/copegus) Only 5 weeks to go. The first 6 months went be like a breeze, now I'm suffering the sides something awful. Has anyone had treatment for the fatigue associated with combo therapy? With the exception of Provigil (which my insurance won't payfor) has anyone used amphetamines (ie. dextro, ritalin) to counteract the fatigue? -ChefX /////////// I'm guessing your doc has been monitoring your reds for anemia and would have prescribed Procrit for you if that was the problem concerning fatigue. Quite often, the docs don't pay attention to thyroid when they order labs and it's my guess that may very well be your problem. A hypoactive thyroid will cause extreme fatigue. And tx drugs are well known to whack out the thyroid. elmo Geeze, elmo. I'd think - after all the horror stories related here over the years - that you'd realize that doctors can f.ck up something horrible on things as simple as recognizing anemia when it's screaming in their faces... My HGB went straight in the toilet two weeks into tx, was below 10 within two more weeks, but I wasn't put on Procrit until my HGB was almost hitting 8 and I was the epitome of "dead man walking" almost three months into therapy. As much as I blame over-subscribed doctors who can't pay attention to *anyone* any longer, I blame myself for letting my doctor control my therapy. Never assume anything when it comes to medical treatment. *That* can kill ya... Cheers /greyhackles /////////// You've got a valid point, Grey. There are alot of bimbo docs out there. :-) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum I'm not kidding. The fatigue is doin' me in. All my labs are good (great in fact). I get a full metabolic panel, TSH, amonia, and tox screen every two weeks. I have a great dr. One of the best in fact. I have to be careful about what I eat because of my gallbladder (which is full of stones) I have very little appetite anyways, I am prescribed medical marijuana (marinol) to boost the ol' appetite but it dosen't help very much. I suppose amphetamines would counteract what help I do get from the marinol but I only need help once in a while (when I have something important I have to do.) I was just wondering if anyone had expierience using these meds, sounds like the answer to that is no... Thanks for your input, -ChefX > >I haven't been here in a while, I hope everyone is doing well. I'm 43 weeks > >into 48 weeks of treatment (pegasys/copegus) Only 5 weeks to go. The first 6 [quoted text clipped - 17 lines] > > /greyhackles > I'm not kidding. The fatigue is doin' me in. All my labs are good (great > in [quoted text clipped - 11 lines] > answer > to that is no... If you don't have iron concerns, try spirulina, an excellent natural stimulant. Green tea gives a boost without the crash later that you get from coffee. Forget speed, that's just unbelievably stupid. Get the gallbladder removed, it will do wonders for your appetite. Marijuana never did make me a bundle of energy. Sounds like you've just plain 'crapped out', man. You're on the downhill run now and you'll need to get plenty of rest, drink alot of water, and eat well to keep from tumbling across the finish line. You might want to put your space helmet back on in case you fall down. And wear loose pants so that when you trip coming out of the restaurant, you don't split the back out. Laugh more. elmo ////////////// I'm not kidding. The fatigue is doin' me in. All my labs are good (great in fact). I get a full metabolic panel, TSH, amonia, and tox screen every two weeks. I have a great dr. One of the best in fact. I have to be careful about what I eat because of my gallbladder (which is full of stones) I have very little appetite anyways, I am prescribed medical marijuana (marinol) to boost the ol' appetite but it dosen't help very much. I suppose amphetamines would counteract what help I do get from the marinol but I only need help once in a while (when I have something important I have to do.) I was just wondering if anyone had expierience using these meds, sounds like the answer to that is no... Thanks for your input, -ChefX "greyhackles" <greyhackles@NOSPAMyahoo.com> wrote in message news:ra77s2l4ou8r4b07an06tqaamjarlasnf1@4ax.com... I haven't been here in a while, I hope everyone is doing well. I'm 43 weeks into 48 weeks of treatment (pegasys/copegus) Only 5 weeks to go. The first 6 months went be like a breeze, now I'm suffering the sides something awful. Has anyone had treatment for the fatigue associated with combo therapy? With the exception of Provigil (which my insurance won't payfor) has anyone used amphetamines (ie. dextro, ritalin) to counteract the fatigue? -ChefX Do you think it's just battle fatigue after 43 weeks of killing virii, or something more? When was the last time you had a CBC - and what did your hemoglobin score? Hang in there ChefX - you've rounded the clubhouse turn and are almost at the finish line! And forget about taking speed, fer chrissakes (I'm hoping you were kidding). Your body has been hammered for 10 months, and it really doesn't need someone breaking out the whip at this point... Cheers /greyhackles http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > I'm not kidding. The fatigue is doin' me in. Try Wellbutrin in a small dose. I take 150 once per day. It definitely helps with the fatigue and it's an anti-depressant as well. > I haven't been here in a while, I hope everyone is doing well. I'm 43 weeks > into 48 weeks of treatment (pegasys/copegus) Only 5 weeks to go. The first 6 [quoted text clipped - 4 lines] > > -ChefX I also found a different deeper type of exhaustion as the last weeks dragged by - I had been treated for severe anemia with Epogen, which helped me enornously, but somehow the last weeks were "different" - maybe just too tired of the whole thing, and feeling kicked to sh.t, basically, which we have been. Easy to "know" but sometimes harder to accept :) >I haven't been here in a while, I hope everyone is doing well. I'm 43 weeks > into 48 weeks of treatment (pegasys/copegus) Only 5 weeks to go. The first [quoted text clipped - 7 lines] > > -ChefX I've been taking Ritalin for fatigue for the past 3 weeks. I have to say I wasn't too keen on taking any stimulants (memories of crystal meth in the 70's), but it does make a difference. I'm taking the lowest dose, and only one pill in the morning, although the BCLD prescribed an additional one in the afternoon. So far, no ill effects. It does seem to help keep me more focused as the brain fog sets in. Don't know if I'll stick with it for the remaining 30 weeks of tx or not. Still don't like the idea of taking any drugs I can do without. Thom |
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