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Medical Forum / Diseases and Disorders / Hepatitis / January 2007Ping: Any and all cirrhotics
Yep, she's baaaaaack.............I've been having some really, really severe fatigue problems and I'm wondering if any of you with advanced disease have any tips for me. I've been sleeping upwards of 10 hours a night and that's not enough; I've fallen asleep at my desk and Friday I took a 2+-hour nap and still went to bed at 8 p.m. I don't have any other symptoms that would lead me to think I've developed diabetes or thyroid problems, although I intend to see my GP if it continues. What do y'all do to combat the fatigue? I'm still in the transplant database, but my last MELD was just an 8 so I'm good there. Unfortunately, my A-FP is a tad high (around 175), and the last MRI showed a suspect area that might be pre-cancerous. They're going to repeat all the tests every three months instead of 6 to keep an eye on it. Ah, life with HCV! Never a dull moment. I'm ready for dull. Dull sounds absolutely wonderful. > Yep, she's baaaaaack.............I've been having some really, really severe > fatigue problems and I'm wondering if any of you with advanced disease have [quoted text clipped - 12 lines] > Ah, life with HCV! Never a dull moment. I'm ready for dull. Dull sounds > absolutely wonderful. It's good to hear from you wish you had better news. I was having problems with staying awake and sleeping a lot of hours, now I have suddenly gone the other direction and can't stay asleep. I don't know how much this has to do with the HCV or Cirrhosis, if any. My A-FP has been running high for years, I've gone through the sonograms and everything comes back clear, so far. Are you still doing the infergen? Are your numbers looking better? Keep in touch, you have been missed. Dwight > It's good to hear from you wish you had better news. I was having problems > with staying awake and sleeping a lot of hours, now I have suddenly gone [quoted text clipped - 5 lines] > > Dwight No, I never started the Infergen. The State decided not to fund my teaching position any more, so I moved over to Counseling as a Behavior Specialist. I've been doing all the new inmate orientation, and I have a little under 200 women on my permanent caseload. Given the change, the huge adjustment, and the incredible amount of details I have to remember, it just didn't seem like a good idea to throw Infergen into the mix, although my supervisors have been wonderfully supportive. This serious fatigue thing is new for me. I've been tired, but never anything like this!!!! We have a 3-day weekend this weekend and that's the only thing that kept me chuggin' through the 5 days. I barely made it. >>It's good to hear from you wish you had better news. I was having problems >>with staying awake and sleeping a lot of hours, now I have suddenly gone [quoted text clipped - 17 lines] > anything like this!!!! We have a 3-day weekend this weekend and that's the > only thing that kept me chuggin' through the 5 days. I barely made it. We are getting to enjoy a three day weekend as well, but with the weather turning bad, it may be a four day weekend. We are expecting a lot of flooding and below freezing temperatures, maybe I can ice skate to work. :) I haven't even considered trying another round yet. The last few years of teaching I've gone from teaching all Advanced Placement Computer Science to mostly Multimedia Production classes. The Computer Science classes were all the top academic students in the school the Multimedia students were mostly the lower level students. I've now got students that have taken my class several times just to try and get a passing grade because they need a technology credit to graduate (I say trying, but many have never turned in an assignment). Many of the students I have will be talking to some of your counter-parts here in Texas in the next few years. They think drugs, stealing, rapping, and the welfare system are the means to being successful. The scary part is that they aren't afraid to admit this to anyone that will listen. I miss the days of having students that try to do well in class. Dwight > We are getting to enjoy a three day weekend as well, but with the weather > turning bad, it may be a four day weekend. We are expecting a lot of [quoted text clipped - 14 lines] > > Dwight Can you say, "Welcome back, Kotter"? That's what it's like teaching that bunch, isn't it? I had to learn to accept them as they were, and although it was mighty, mighty hard sometimes, I could usually find something to like. I did have one kid once named Bakari, and up til the day the last of the males left, I called him Barky. I could not stand him! It was more than mutual but we were stuck with each other. I still miss the guys, and it's been over a year now. The women are much, much easier to teach (and to deal with all the way around), but the guys were a definite challenge. They made me laugh, they made me cry, they installed all the buttons and then pushed them, but it was never, ever dull! Hi Dwight (and Thip). It is spooky what you say about the kids' emergent subculture of crime and welfare and music, of all things. The urban world is so foreign to me. I grew up in a small city, but I have been in (dare I say Caucasian) Montana for 25 years now. The Indian reservations are the roughest and most shattered communities. But incredibly, they seem to have been able to hold on to at least a fraction of cultural integrity and pride. I am curious, do you teach in a middle-class sort of neighborhood in the Houston area? I might be naive, but may I ask if the kids you are teaching who are in, or looking toward the welfare system are now "second generation" welfare recipients. I mean were they raised by mothers who relied on welfare? Egad I wonder if the young women even plan unwed pregnancies. What is the reality of the situation? Kathy zero degrees here I got cabin fever bad > Hi Dwight (and Thip). It is spooky what you say about the kids' emergent > subculture of crime and welfare and music, of all things. The urban world [quoted text clipped - 13 lines] > Kathy > zero degrees here I got cabin fever bad I teach in Arlington, Tx (between Dallas and Ft. Worth) the neighborhood looks completely middle class single family homes. The kids look like and act like they are from the ghettos, except for the $200-$300 shoes. Many are gansta wanna bes. As far a pregnancy, there are a lot of girls running around pregnant and many more with children of their own by the time they are freshmen in high school. We have a full time pregnancy counselor on campus. As far as being 2nd generation welfare recipients, many are third and fourth generation. Dwight Back on topic here. I have been searching the medical abstracts for some kind of explanation of the fatigue that is associated with hep c, even in people who don't have advanced disease. I keep thinking it must be a blood sugar problem because of the association between diabetes and hcv. But here is a summary that points me back toward the brain fog explanation. Sluggish neurotransmitters or some such thing. Feh. Koko gorilla in the fog Fatigue in liver disease: pathophysiology and clinical management.Swain MG. University of Calgary, Liver Unit, Health Sciences Centre, Alberta Can J Gastroenterol. 2006 Mar;20(3):181-8. Fatigue is the most commonly encountered symptom in patients with liver disease, and it has a significant impact on their quality of life. However, although some progress has been made with regard to the understanding of the processes which may generate fatigue in general, the underlying cause(s) of liver disease-associated fatigue remain incompletely understood. The present review describes recent advances which have been made in our ability to measure fatigue in patients with liver disease in the clinical setting, as well as in our understanding of potential pathways which are likely important in the pathogenesis of fatigue associated with liver disease. Specifically, experimental findings suggest that fatigue associated with liver disease likely occurs as a result of changes in neurotransmission within the brain. In conclusion, a reasonable approach to help guide in the management of the fatigued patient with liver disease is presented. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=pubmed&cmd=Retrieve&dopt=Abstra ctPlus&list_uids=16550262&query_hl=11&itool=pubmed_docsum also: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?itool=abstractplus&db=pubmed&cmd=R etrieve&dopt=abstractplus&list_uids=16611271 Thanks, Koko. Thip Burning Red Skelton DVD's to ward off cabin fever. > Back on topic here. I have been searching the medical abstracts for some > kind of explanation of the fatigue that is associated with hep c, even in [quoted text clipped - 30 lines] > also: > http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?itool=abstractplus&db=pubmed&cmd=R etrieve&dopt=abstractplus&list_uids=16611271 "Thip. Burning Red Skelton DVD's to ward off cabin fever." Red Skelton!?! Oh my Thip you are such a radical chick #:-) Hang on, spring's a comin. Kathy worse yet...downloading Peter Paul and Mary tunes from Walmart |
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