HOORAY, Di Di! Yo are almost writing my story here, with minor changes.
MY FMLA kicked in for 2007 the day after it expired...Been on the job
for 11 years. Supervisors have been great, so has company, I could stay
out for longer using the Short Term Disability I am already on, but
decided to go back next week, due to someone in the dept leaving last
week, its tough being so dedicated... ;)
I am now about six weeks post tx, and some things cleared up fairly
quickly - like things burning my mouth (even toothpaste!) and some of
the brain fog to some degree, but I am not exactly running laps around
the block yet. I am at least able to cope slowly with Daily Activites
now, dishes, cleaning, laundry etc, altho I am still slow. At least as
an IT professional, I get to sit all day in front of a computer - I
made it through treatment despite all until the pneumonia/ staph
infection hit me. I'm still fairly wiped out, but reassured from my
readings about post treatment here - WAS searching for "post treatment"
and only yesterday it occurred to me to try searching the group for
"post tx" instead and voila! Lots of good info! Thank God for all the
postings here, I was really getting concerned about things not
"clearing up" more quickly, and feeling better than I do at this point,
even tho everyone keeps telling me "Deb, give myself a break and look
at what you have been thru in a year's time" - and I know perfectly
well that it takes six months or so for the Evil Drugs to fully clear
your system ...sigh!
With treatment I lost about 1/3 of my weight - from 150 to 108 at the
moment, still seem to be losing a bit, still not eating as much as I
should, but at least I CAN eat again, and things actually taste good.
It was not fun going out to eat sometimes and ordering a Baked Potato
for dinner. I was on Epogen for severe anemia, then pretty much ended
treatment at 47 weeks while still recovering from pneumonia and a
whopping staph infection in my hip that abcessed, what fun. I'd rather
give birth to an elephant than have a needle full of novacaine driven
into one of those things in order to drain and clean it again!!!!
So, yeah, I've been beat to sh.t for the past year, like a lot of
people who go thru this. As someone once said, The Train Ride is Over,
now I just have to find my way out of the Train Station - I am applying
liberal doseages now of "Tincture of Time" and awaiting the days when I
can truly say I feel "good" instead of just "better than I was" (which
is still many steps above feeling like you-know-what ;) Sounds like I
am not the only one who found post tx that sleeping is difficult,
itching, twitching etc, restless leg syndrome, night sweats, etc etc.
This Too Shall Pass, hopefully
Send me a liberal doseage of Patience, will ya ? Did you get a good
EVR, and achive SVR during treatment? I'm 1a, had a pretty good viral
load at start of treatment, and made virus free status by 12 weeks, and
continued thru tx so I am hopeful - but still mindful that others have
achived the same thing and still relapsed. I hope I don't sound
negative as you move on with your life - I'm mostly a realist, and call
em like I see em. I go for further viral test the first of April, and
if I am still Virus free, that would actually be a year, since I was
virus free and 12 weeks.
Fingers and legs crossed - (no snide comments Elmo!) and hopeful It
Came To Pass and Not To Stay... Be well, I'll be pulling for ya
Hoping never to lose my car in an airport parking garage, then getting
lost myself trying to find it while my S.O. (whom I was supposed to be
picking up) called me over and over on cell phone, and finally telling
me to stay where I was, and he would find me!! And wondering when my
hair will stop falling out by the roots.... :( Thank Gawd I had enough
hair for six women prior to treatment, haha!
> Hi - I finished my shot last night .Wow! I didn't really think this day
> would come. Now it's another few days of the Riba and watch the labs to
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>
> D
Best of luck to you on the SVR. It really won't be that long before you
start feeling better.
Dwight