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Medical Forum / Diseases and Disorders / Hepatitis / January 2007Week 47 or 48
I haven't posted for a while. Just did shot 47 last night - 1 more to go. It's hard to believe the treatment is almost over - so far, so good - all things considered. My sides have not been as intense the last couple months except my hair sure got much thinner recently (luckily I had quite a bit to begin with). Still really, really tired and still doing 2 shots of neupogen a week. Looking forward to the new year though and feeling much more optimistic than I did last year at this time, when I knew I had to start treatment, but hadn't yet. Just wanted to give a little boost to the people who are just starting treatment - esp people with genotype 1a who are looking ahead to 48 weeks. It seems overwhelming at first, but it's doable - one day at a time, for sure. Di Great news Di! I completed treatment (1a) at Thanksgiving and I am still very tired. I'm wondering if they should have kept me on the Epogen for a time....I took had very thick long hair that thinned considerably- used to only be able to get the hair band around my ponytail twice now it goes six times around :( eleven months of just getting up each day and putting one foot in front of the other. I think the intense Brain Fog that we suffer from helps when it is over, it felt so overwhelming to FACE 11 months and yet when it was over I couldn't believe all that time had passed already! Best of Luck and KILL that DRAGON! Hey dBo - Congrats on getting through the 48 weeks. You summed up my feelings exactly - it seemed like 48 weeks was forever, but now it seems like it went fast. Of course lots happened in the time I was on treatment including my significant other moving out because he couldn't handle it (his loss, I say). Is your hair growing back yet? I am looking forward to the brain fog lifting (it does, right?). I tried to get my key in someone else's car the other day thinking it was mine, til my boss said, Hey, that's not your car. ALL RIGHT! I can laugh about those things though and so can most of the people around me. I'm looking forward to not feeling like crap and being so exhausted all the time, but I know that's going to take a while too. Question for you on the Ribavirin. I'll ask my doctor too, but my last Interferon shot is next Thurs night. Do I take the Ribavirin another week, or stop with the last shot? My doc said I stop the Epogen after my last shot - I thought maybe he'd have me do it another couple weeks... SLAY THE DRAGON indeed!!!! And finally I can start moving forward in my life again. :-) Di > Great news Di! I completed treatment (1a) at Thanksgiving and I am > still very tired. I'm wondering if they should have kept me on the [quoted text clipped - 7 lines] > > Best of Luck and KILL that DRAGON! Question for you on the Ribavirin. I'll ask my doctor too, but my last Interferon shot is next Thurs night. Do I take the Ribavirin another week, or stop with the last shot? //////// You're supposed to take your ribavirin for a full week after doing your last dose of Peg, Di. That way, you have both drugs in your system at therapeutic levels for your final week of tx. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > Question for you on the Ribavirin. I'll ask my doctor too, but my last > Interferon shot is next Thurs night. Do I take the Ribavirin another [quoted text clipped - 8 lines] > > Di Re: Week 47 or 48 Group: alt.support.hepatitis-c Date: Sat, Jan 6, 2007, 9:04am (CST-2) From: shawd55@msn.com (Di Di) elmoemerson@webtv.net wrote: Question for you on the Ribavirin. I'll ask my doctor too, but my last Interferon shot is next Thurs night. Do I take the Ribavirin another week, or stop with the last shot? //////// You're supposed to take your ribavirin for a full week after doing your last dose of Peg, Di. That way, you have both drugs in your system at therapeutic levels for your final week of tx. elmo Thanks El - That's what I was thinking, but when the doc said I stop everything at the same time, I was confused - Brain Fog - plus he speaks with a heavy Eastern Indian accent, so sometimes there is confusion. I usually repeat everything back to him at least once to make sure I got it right. He is a good doc though. :-) - Di /////////////// Technically, you aren't really stopping the Peg shot until it clears your system at the end of your final week. Ahhhhhh..... you must be seeing Dr Sanjay Gupta, then. :-) He used to post here for awhile. ahahahahahahah (Geb Bixer) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum elmoemer...@webtv.net wrote: > Re: Week 47 or 48 > [quoted text clipped - 25 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum Right behind you. Just did shot 43 last night. Hemoglobin down to 11.2 now which is one of the lower levels I have had. Havent had to take procrit or take anti-depressants. Its gone fast. There were a few times during treatment when the prospect of 48 weeks seemed overwhelming and it got to me a little. However, all in all, it hasnt been that bad. > Right behind you. Just did shot 43 last night. Hemoglobin down to 11.2 > now which is one of the lower levels I have had. [quoted text clipped - 3 lines] > seemed overwhelming and it got to me a little. However, all in all, it > hasnt been that bad. Hey anon - I'm glad it wasn't that bad for you! I ended up taking 2 antidepressants (I started the second one after my S.O. moved out), and Neuopgen. Never did get anemic, but my WBC has been really low, even with the Neuopogen. Congratuations on finishing shot 43. You're almost there! Di Di - ROFL, I too tried many times to get in the wrong car, as well as mailing credit card payments to myself, losing my checkbook for 2 wks at a stretch when it was in my purse, picking up the clicker when the cell phone rang, and so on. PIN Numbers are sheer hell. I could only laugh and say "It's the drugs..." Still having focus problems often, but it is better than it was. Sometimes I even remember something that someone said to me Yesterday. Wowee! My treatment ended abruptly when, recovering still from pneumonia, I got this nasty abcess on my hip ( from neupogen injection ?) that ended up being staph, had to be drained etc. BCLD reaction was just quit everything, its .only one more week anyway.Treatment over at Thanksgiving. It's been 2 months and I hoped to feel "better" than this by now...wonder if I am still anemic? My hair loss has just about stopped I think. I can't wait till I have crew-cut growing out thru my long hair - maybe I'll go with the Punk look and get some of that blue spray-on stuff to frost the tips of the new growth > Di - ROFL, I too tried many times to get in the wrong car, as > well as [quoted text clipped - 6 lines] > laugh and say > "It's the drugs..." My daughter's favorite is when I try to control the TV with my computer mouse. sigh, it just doesn't work! Sara > Still having focus problems often, but it is better than it > was. [quoted text clipped - 19 lines] > blue > spray-on stuff to frost the tips of the new growth My doc had me do the last shot of interferon on saturday and continue with ribavirin and amantadine untill the next friday.............. > Hey dBo - Congrats on getting through the 48 weeks. You summed up my > feelings exactly - it seemed like 48 weeks was forever, but now it [quoted text clipped - 29 lines] > > > > Best of Luck and KILL that DRAGON! Way to go, Di! elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > Way to go, Di! > elmo Thanks Elmo - It was people like you and this group that helped me through this. I wish I would've found the group earlier in my treatment - the encouragement, and every now and then kick in the a.s to shape up and quit feeling sorry for myself helped a lot. It's nice to be able to start looking forward again. Not that I've ever been a big planner or extremely goal oriented, but at least just to have my life back. YAY! D Re: Week 47 or 48 Group: alt.support.hepatitis-c Date: Sat, Jan 6, 2007, 8:40am (CST-2) From: shawd55@msn.com (Di Di) elmoemerson@webtv.net wrote: Way to go, Di! elmo Thanks Elmo - It was people like you and this group that helped me through this. I wish I would've found the group earlier in my treatment - the encouragement, and every now and then kick in the a.s to shape up and quit feeling sorry for myself helped a lot. It's nice to be able to start looking forward again. Not that I've ever been a big planner or extremely goal oriented, but at least just to have my life back. YAY! D //////////// Yep, that's the big payoff....not feeling like you're stuck on a bad merry-go-round anymore. I know it wasn't easy for you, but you got thru it, and now you can get on with things. I'm really happy for you! elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > I haven't posted for a while. Just did shot 47 last night - 1 more to > go. It's hard to believe the treatment is almost over - so far, so good [quoted text clipped - 7 lines] > esp people with genotype 1a who are looking ahead to 48 weeks. It seems > overwhelming at first, but it's doable - one day at a time, for sure. You say the sides are not bad and then say you are really really tired. Being really really tired was the bad part to me. >From the people I have talked to, having a low white blood count is one of the roughest parts. I would be interested in the ones here that claim to have little sides if they had a white blood count drop. Terry I would consider my sides mild, annoying caugh from week 5 till 15 seems to have died down now, and fatigue, yet my white blood cell count dropped to 1.7 in October and again a month later in November. I am taking Neupogen 1 ml once a week and since in December my WBC hit 12.8 my nurse cut my Neupogen to .5 ml once a week. > > I haven't posted for a while. Just did shot 47 last night - 1 more to > > go. It's hard to believe the treatment is almost over - so far, so good [quoted text clipped - 16 lines] > I would be interested in the ones here that claim to have little sides > if they had a white blood count drop. Terry - I didn't say I don't have sides - I think I had every one the drug comp. warned us about and some they didn't - like passing out on my kitchen floor - but I guess I should have said, my sides aren't AS bad the last couple months. I still feel like crap, I'm still tired, I have no white count to speak of - hence the neupogen twice a week every week for a long time - but I'm not constantly sick, I'm not dizzy and sweaty, as headachey etc like I was at first. It's all relative. The exhaustion is definitely the worst part right now. I've tried to make a point of not complaining constantly though, because nobody wants to hear it. And now I hope the worst of it is almost over. I expect to still be tired when I'm done, and for it to take a while to get back to where I was before I started, but at least the stopping point is near. Di |
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