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Medical Forum / Diseases and Disorders / Hepatitis / January 2007Treatment Update
Hi all, Well the moment of truth has come for me. Completed 48 weeks of Infergen,interferon,ribavirin,amantadine(altice,ativan and lunesta as needed). Took my last blood work while on meds.Time to wait and see if this gets a thumbs up or down. Really looking too slay the dragon this time.At least i responded this time so i have a shot.......fingers crossed............................john > Hi all, > Well the moment of truth has come for me. Completed 48 weeks of [quoted text clipped - 5 lines] > time so i have a shot.......fingers > crossed............................john I hope you clear, John. Cody Hi, Thanks Cody,Dwight,Stretch and Waterspider. I appreciate your support............john > > Hi all, > > Well the moment of truth has come for me. Completed 48 weeks of [quoted text clipped - 9 lines] > > Cody > Hi all, > Well the moment of truth has come for me. Completed 48 weeks of [quoted text clipped - 5 lines] > time so i have a shot.......fingers > crossed............................john The best of luck to you John. Hope that dragon is dead and gone. Dwight Congratulations in completing 48 weeks of Very Evil Drugs-- you must be feeling pretty beat-up. Nevermind, you'll be back to feeling good in no time (it takes a few months for most of us). Here's hoping your test results come through with good news, you deserve it! Waterspider > Hi all, > Well the moment of truth has come for me. Completed 48 weeks of [quoted text clipped - 5 lines] > time so i have a shot.......fingers > crossed............................john > Hi all, > Well the moment of truth has come for me. Completed 48 weeks of [quoted text clipped - 5 lines] > time so i have a shot.......fingers > crossed............................john I completed in October and feel like a new man. You will too. I hope that you beat it man! >> Hi all, >> Well the moment of truth has come for me. Completed 48 weeks of [quoted text clipped - 8 lines] > I completed in October and feel like a new man. You will too. I hope that > you beat it man! You *are* a new man-- you're body is no longer home for <//begin Carl Sagan voice> billions and billions <//end Carl Sagan> of hepatitis c virii. >>> Hi all, >>> Well the moment of truth has come for me. Completed 48 weeks of [quoted text clipped - 14 lines] > <//end Carl Sagan> > of hepatitis c virii. Well, for now. I haven't had my 3-month (or even 6-month) blood test yet. We'll see. Thanks for the cheer! Right on, John! With that combination of drugs, you should have been able to kill off an alien invasion! I've got my fingers crossed for you big-time, bro. Keep us posted! elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Thanks Elmo Merry Christmas.................. > Right on, John! With that combination of drugs, you should have been > able to kill off an alien invasion! I've got my fingers crossed for you [quoted text clipped - 6 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum > Hi all, > Well the moment of truth has come for me. Completed 48 weeks of > Infergen,interferon,ribavirin,amantadine(altice,ativan and lunesta as > needed). I too just finished a 24 week tx of Pegetron+Ribavirin on Dec. 15/06. Waiting for results, as well. Wishing you all the best and an SVR. HepC Lite <Dragon Slayer> >Hi all, >Well the moment of truth has come for me. Completed 48 weeks of [quoted text clipped - 5 lines] >time so i have a shot.......fingers >crossed............................john Best of luck, John. None of you probably remember me, but I stopped by this newsgroup about 42 weeks ago because I was scared out of my wits about the treatment I was starting. I received a lot of reassurance and understanding that can only come from those that have "been there", and it made a difference. Well, I kinda drifted away, because although I got every single side effect that has been discussed here, all of them were mild enough to be considered minor annoyances. In a way, I felt guilty reading posts from people that were having a tough time when I was doing well. As of January 30 I'll be a recovering "Riba-addict". I can hardly wait, as I am looking forward to walking up a flight of stairs without grabbing the walls and puffing. Having normal, manageable hair will also be a plus, as I am a little weary of looking like a Don King Chia Pet. My thyroid took a small hit, and I am now taking Synthroid to make up for the low hormone levels. This may be permanent, a small price for an SVR in my book. All in all, it hasn't been so bad. Graham Hi Graham, Congradulations on SVR.I know what you mean about feeling guilty about not having severe problems on treatment.At this point i feel that if i get my SVR or not i owe this newsgroup and i will stick around.john > >Hi all, > >Well the moment of truth has come for me. Completed 48 weeks of [quoted text clipped - 31 lines] > > Graham Re: Treatment Update Group: alt.support.hepatitis-c Date: Tue, Dec 26, 2006, 7:08pm From: rgf3remove@bellsouth.net (maha) Hi all, Well the moment of truth has come for me. Completed 48 weeks of Infergen,interferon,ribavirin,amantadine(altice,ativan and lunesta as needed). Took my last blood work while on meds.Time to wait and see if this gets a thumbs up or down. Really looking too slay the dragon this time.At least i responded this time so i have a shot.......fingers crossed............................john Best of luck, John. None of you probably remember me, but I stopped by this newsgroup about 42 weeks ago because I was scared out of my wits about the treatment I was starting. I received a lot of reassurance and understanding that can only come from those that have "been there", and it made a difference. Well, I kinda drifted away, because although I got every single side effect that has been discussed here, all of them were mild enough to be considered minor annoyances. In a way, I felt guilty reading posts from people that were having a tough time when I was doing well. As of January 30 I'll be a recovering "Riba-addict". I can hardly wait, as I am looking forward to walking up a flight of stairs without grabbing the walls and puffing. Having normal, manageable hair will also be a plus, as I am a little weary of looking like a Don King Chia Pet. My thyroid took a small hit, and I am now taking Synthroid to make up for the low hormone levels. This may be permanent, a small price for an SVR in my book. All in all, it hasn't been so bad. Graham //////////// That's great, Graham! Like you, I had 'Don King Syndrome' and a thyroid that went south on tx. The hair came back normal after tx, as did my thyroid. Here's to you finishing tx and getting your SVR. (Elmo hoists his coffee mug) Keep us posted, would you? elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Hi - I was dx'd about 3 years ago but put off doing anything about it. Partly because my doctor didn't recommend any tx and said the tx was almost as bad as the disease. But now I've been doing more research and realize that leaving this untreated is probably not a wise thing to do. So I'm interested in how well people tolerated the treatments. Were you able to care for yourself, work, go shopping, etc. What were the symptoms you got from the treatments. Thanks in advance. Jeff N > Re: Treatment Update > [quoted text clipped - 37 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum Hi Jeff. You're probably right in realizing that you need to do something about your hepc. Have you had a biopsy? I did 3 rounds of tx. All of them were difficult for me. I had a very strenuous, physical job that after a month, I couldn't work any more and went out on temporary disability. I worked the entire duration of my second and third rounds because disability didn't pay enough for me to make ends meet. I lived by myself and did all my own chores, etc. Treatment symptoms? They pretty much ran the gamut....but not all at the same time and some not as bad as others. Let me recall....headache, fever, nausea, vomiting, diarrhea, depression, insanity (LOL), confusion, brain fog, dizziness, extreme fatigue, anger, rage, riba rash (poison ivy type rash), joint pain, and hair thinning. Some of the above symptoms were due to anemia and hypothyroidism caused by the meds. I did have a 'major event' while in my second round of tx.....I developed a staph infection in a certain part of my anatomy that became a systemic infection requiring surgery and a week in the hospital taking 3 different IV antibiotics to clear up. That was definitely the worst of it. LOL. I was hoping someone would shoot me to put me out of my misery. That's about all the side-effects I can think of, I'm sure there are more, I just can't remember them all. ahahahahahah I've been without virus for more than 2 years now. In spite of the difficulty of tx, I can say it was absolutely worth it. There are positive things that come from having gone thru the experience. I think it's an excellent opportunity to learn about such things as compassion, an appreciation for the simple things, as well as a sense of gratefulness for all of life's blessings. You can't get those at Walmart. Anyway....... all the best to you, Jeff! elmo //////////// Hi - I was dx'd about 3 years ago but put off doing anything about it. Partly because my doctor didn't recommend any tx and said the tx was almost as bad as the disease. But now I've been doing more research and realize that leaving this untreated is probably not a wise thing to do. So I'm interested in how well people tolerated the treatments. Were you able to care for yourself, work, go shopping, etc. What were the symptoms you got from the treatments. Thanks in advance. Jeff N http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > Hi Jeff. You're probably right in realizing that you need to do > something about your hepc. Have you had a biopsy? No, I haven't. Is it as much fun as it sounds? tx Jeff > Hi Jeff. You're probably right in realizing that you need to do > something about your hepc. Have you had a biopsy? [quoted text clipped - 4 lines] > second and third rounds because disability didn't pay enough for me to > make ends meet. I lived by myself and did all my own chores, etc. >> Hi Jeff. You're probably right in realizing that you need to do >> something about your hepc. Have you had a biopsy? >> > No, I haven't. Is it as much fun as it sounds? <g> It's a real barrel of laughs, but not nearly as much fun as spending day after day after day not knowing if your liver is on the verge of packing it in, always having that in the back of your mind, not knowing if you should be looking into treatment or not, not knowing when you might end up on a transplant list... or learning that it's not as bad as you thought it was gonna be. Good luck, and please keep us posted! Waterspider On Thu, 28 Dec 2006 21:59:29 -0500, "Jeff" <jn425@comcast.net>, in message ID <wqadnckyPasIGQnYnZ2dnUVZ_uqvnZ2d@comcast.com>, in the newsgroup alt.support.hepatitis-c wrote: >> Hi Jeff. You're probably right in realizing that you need to do >> something about your hepc. Have you had a biopsy? >> >No, I haven't. Is it as much fun as it sounds? >tx >Jeff The funniest bit is when the doctor pricks your liver with a needle and the liver deflates and flies around the ward making a balloon like squeaking noise. < SPEW > ... coffee all over the monitor.... hahahahaha! Thanks Paul, I forgot that bit <still laughing> Spidey Re: Treatment Update Group: alt.support.hepatitis-c Date: Thu, Dec 28, 2006, 9:59pm (CST+1) From: jn425@comcast.net (Jeff) Hi Jeff. You're probably right in realizing that you need to do something about your hepc. Have you had a biopsy? No, I haven't. Is it as much fun as it sounds? tx Jeff //////////// It's a whole lot more scary than painful. I've had more pain at the dental office. If you've never had one before, you don't know what you're missing. :-) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum thanks for all your answers and wise words, I got a few good chuckles too which never hurt. jeff > Re: Treatment Update > [quoted text clipped - 13 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum Yep, chuckles never hurt unless you've got chest wall pain, like when you've got pneumonia. On the up side, tho, chuckles help loosen up the crap in your lungs and you end up coughing the sh.t up. And that hurts too. 'Wise' words? ahahahahahahahahahahaha!!! Cut it out....you're making me laugh. elmo //////////////////// thanks for all your answers and wise words, I got a few good chuckles too which never hurt. jeff <elmoemerson@webtv.net> wrote in message news:5692-4595272D-145@storefull-3255.bay.webtv.net... Re: Treatment Update Group: alt.support.hepatitis-c Date: Thu, Dec 28, 2006, 9:59pm (CST+1) From: jn425@comcast.net (Jeff) Hi Jeff. You're probably right in realizing that you need to do something about your hepc. Have you had a biopsy? No, I haven't. Is it as much fun as it sounds? tx Jeff //////////// It's a whole lot more scary than painful. I've had more pain at the dental office. If you've never had one before, you don't know what you're missing. :-) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum I know one thing, when I do go for that biopsy I'm going to keep a picture in my mind of my liver flying all around the room. I'm sure that will help quell any anxiety. ;-) tx Jeff N > Yep, chuckles never hurt unless you've got chest wall pain, like when > you've got pneumonia. On the up side, tho, chuckles help loosen up the [quoted text clipped - 25 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum >I know one thing, when I do go for that biopsy I'm going to keep a picture >in my mind of my liver flying all around the room. I'm sure that will help >quell any anxiety. ;-) So will the white walls and padded cell, along with the heavy sedatives they'll inject you with when you start laughing uproariously on the way to your biopsy (thinking of the zooming liver). They will simply think you're out of your everlovin' mind and treat you accordingly. Poof! Into the Psych Ward for that loon! Then, of course you'll try to explain: "My friend told me that he had a biopsy done and it struck him funny when his liver shot out of his side like a balloon with the air let out, swooping all over the room and making that funny ph-phtt-phtt-phtt-whoooooooooooooppp noise as it went." After the bug doctor makes a few notes in his book, he may even attempt to have a conversation with you. "Sure, Jeff, we understand... and does this friend talk to you often?" This just all brings to mind the line spoken in the Lord of the Rings by Gimli the dwarf just before the last potential battle scene when they are deciding whether to march right up to the gates of Mordor to distract Saruman from noticing Frodo. The odds are like 10,000 to one so Gimli says, "Certain death, little chance of success - What are we waiting for?" tx Jeff N >>I know one thing, when I do go for that biopsy I'm going to keep a picture >>in my mind of my liver flying all around the room. I'm sure that will help [quoted text clipped - 14 lines] > have a conversation with you. > "Sure, Jeff, we understand... and does this friend talk to you often?" >> Hi Jeff. You're probably right in realizing that you need to do >> something about your hepc. Have you had a biopsy? >> >No, I haven't. Is it as much fun as it sounds? >tx I experienced no pain whatsoever. The absolute worst part of it was having to lay still afterwards to make sure I wasn't bleeding internally. The only thing on the TV monitor was "The Guiding Light" and "The Young and the Restless" and such. I could feel my brain turning into to jello. Graham On Sat, 30 Dec 2006 07:42:22 -0600, maha <rgf3remove@bellsouth.net>, >I experienced no pain whatsoever. The absolute worst part of it was >having to lay still afterwards to make sure I wasn't bleeding >internally. The only thing on the TV monitor was "The Guiding Light" >and "The Young and the Restless" and such. I could feel my brain >turning into to jello. The worst bit for me was walking out of the hospital after the biopsy. Some kid rode into me on his cycle. My natural instinct being to protect my right side, he and his bike ended up flattened on the pavement (sidewalk to you lot on t'other side of pond). Luckily, we were both OK. Poor sod looked terrified LOL. I experienced no pain whatsoever. The absolute worst part of it was > having to lay still afterwards to make sure I wasn't bleeding > internally. The only thing on the TV monitor was "The Guiding Light" > and "The Young and the Restless" and such. I could feel my brain > turning into to jello. > > Graham you are absolutly right i remember feeling nothing from the biopsy but laying on my side afterwards for 4 hours sucked.Did Jim Morrison say nobody gets out alive.lolol Definitly not as funny as the liver flying around the room......john > >> Hi Jeff. You're probably right in realizing that you need to do > >> something about your hepc. Have you had a biopsy? [quoted text clipped - 8 lines] > > Graham On Wed, 27 Dec 2006 11:54:12 -0500, "Jeff" <jn425@comcast.net>, in message ID <7u6dndn1kPqqOA_YnZ2dnUVZ_umlnZ2d@comcast.com>, in the newsgroup alt.support.hepatitis-c wrote: >Hi - I was dx'd about 3 years ago but put off doing anything about it. >Partly because my doctor didn't recommend any tx and said the tx was almost [quoted text clipped - 8 lines] > >Jeff N Unpleasant but very doable was my experience of tx. From what I've read on the internet, I would rate my side effects as having been about average. > <smip> . Were you able > to care for yourself, work, go shopping, etc. Ahahahahahahahaha! But then, I probably got worse sides than anyone, and I was damn near dead when I started tx. It worked tho, and it's all good today. Waterspider >That's great, Graham! Like you, I had 'Don King Syndrome' and a thyroid >that went south on tx. The hair came back normal after tx, as did my >thyroid. Here's to you finishing tx and getting your SVR. (Elmo hoists >his coffee mug) Keep us posted, would you? >elmo Elmo, I'll do it! Graham >My thyroid took a small hit, and I am now taking Synthroid to make up >for the low hormone levels. This may be permanent, a small price for >an SVR in my book. A lot of endocrinologists are pretty ignorant when it comes to side effects of treatment. Your thyroid condition very likely is not permanent - I had the same problems during tx, but fully recovered, and so did others (such as Elmo and Russ, who had it much worse). It may take some coaxing from your part (my doc was adamant that my condition could not possibly have been caused by tx) to get your doc to repeat the tests every few months and slowly wean you off the meds. Don't take no for an answer. Thomas  SignatureTo reach me, complete my last name in the address. >A lot of endocrinologists are pretty ignorant when it comes to side >effects of treatment. Your thyroid condition very likely is not [quoted text clipped - 4 lines] >tests every few months and slowly wean you off the meds. Don't take no >for an answer. Thomas, That's certainly good advice, and I will discuss it with my doctor. I'll keep you posted. Graham Best of luck to you on your future as a "recovering riba-addict!" I like that one, hadn't heard it before, so I guess you've coined a new term in the Dictionary of Dragonisms. I don't remember your posts, but I do remember your name, Maha, which sounded real cheerful in a sinister kinda way. Nice to hear from you again, and here's to a great 2007 with no more HCV and no more Evil Drugs! Waterspider >>Hi all, >>Well the moment of truth has come for me. Completed 48 weeks of [quoted text clipped - 31 lines] > > Graham >Best of luck to you on your future as a "recovering riba-addict!" I like >that one, hadn't heard it before, so I guess you've coined a new term in the [quoted text clipped - 3 lines] >sounded real cheerful in a sinister kinda way. Nice to hear from you again, >and here's to a great 2007 with no more HCV and no more Evil Drugs! Just as an aside: Back when the Earth was still warm and the Internet was completely text based (no browsers?), everyone used short nicknames to identify themselves. I started out using "czar", after one of my favorite characters in history. After awhile, I noticed lots of people were using the same name, so I switched to "maha", which is the last 4 letters of my name spelled backwards. Graham >>Best of luck to you on your future as a "recovering riba-addict!" I like >>that one, hadn't heard it before, so I guess you've coined a new term in [quoted text clipped - 16 lines] > > Graham Cool. Now I have a new nickname for my friend Graham here in Pender. We'll see how long it takes him to figure out where it came from. On second thought, maybe not. I wouldn't really like to having him going around calling me Rets... <g> http://en.wikipedia.org/wiki/Maha Sanskrit with heavy astral spiritual overtones. eg: MahaVishnuOrchestra cactus jammies ;) =========== "Waterspider" <waterspider@moonlight.net> wrote> > "maha" <rgf3remove@bellsouth.net> wrote >> Just as an aside: >> [quoted text clipped - 11 lines] > thought, maybe not. I wouldn't really like to having him going around > calling me Rets... <g> WS >http://en.wikipedia.org/wiki/Maha > >Sanskrit with heavy astral spiritual overtones. eg: MahaVishnuOrchestra > >cactus jammies ;) =========== This is indeed interesting, I never knew that. I do remember John McLaughlin and the MahaVishnu Orchestra (re: "Birds of Fire") That was during my "King Crimson" days. Gawd, I feel old.... Graham > This is indeed interesting, I never knew that. I do remember John > McLaughlin and the MahaVishnu Orchestra (re: "Birds of Fire") That > was during my "King Crimson" days. Gawd, I feel old.... > > Graham ah but those were great days... - jeff n >>http://en.wikipedia.org/wiki/Maha >> >>Sanskrit with heavy astral spiritual overtones. eg: MahaVishnuOrchestra >> >>cactus jammies ;) =========== |
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