Medical Forum / Diseases and Disorders / Hepatitis / December 2006
Swollen Legs and Feet
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Cody - 12 Dec 2006 12:47 GMT After my operation, from the knee down got swollen. It's gone done a lot but they're still a little swollen. The Rhoids doc said it might be a sign of liver failure. I also have a temperature nearing 38º C.
Thanks,
Cody
ghibelno - 12 Dec 2006 13:21 GMT > After my operation, from the knee down got swollen. It's gone done a lot > but they're still a little swollen. The Rhoids doc said it might be a [quoted text clipped - 3 lines] > > Cody Theoretically, it seems to me that what the doctor said about the liver con be right, I mean, if your liver is really bad, then the amount of blood it usually stores would go somewhere else (you know people with chirrosis can experience varices in their esophagus).
That said, it could also be due to something else and is good that it has gone done a lot. The fever, instead, isn't a good sign, but that could be related to your recent operation. I hope you told the doctor before that group about it.
Anyway, Cody, I think you should finally decide and go in for a biopsy. In my opinion you cannot avoid it any longer and definitely need to know where you stand.
Best wishes, jeeb.
Cody - 12 Dec 2006 13:59 GMT >> After my operation, from the knee down got swollen. It's gone done a >> lot but they're still a little swollen. The Rhoids doc said it might [quoted text clipped - 20 lines] > Best wishes, > jeeb. Yep, time to bite the biopsy bullet.
Cody
greyhackles - 12 Dec 2006 14:41 GMT >>> After my operation, from the knee down got swollen. It's gone done a >>> lot but they're still a little swollen. The Rhoids doc said it might [quoted text clipped - 24 lines] > >Cody While the eminent Doctor Jeeb offered some interesting <cough> theories ;-) varices aren't cause by lack of blood storage capacity by the liver, they are caused by portal vein hypertension, which in turn is caused by severe bridging/scarring of the liver. And pooling of fluid - in the legs and/or abdomen - in a person with liver disease is more likely due to the same thing that causes ascites, portal hypertension being one.
There are other, less sinister causes of fluid pooling; testing of the fluid itself can be quite revealing, apparently. Hopefully, in your case, this phenomenon was provoked by the surgical adventure, and will pass.
But you've been due for a biopsy - or at least one of the emerging "virtual biopsy" blood analysis - for some time. And you know that. Stop fighting it and get your scrawny butt into the hospital and get it done.
Cheers - and get better soon...
/greyhackles
ghibelno - 12 Dec 2006 15:06 GMT > While the eminent Doctor Jeeb offered some interesting <cough> theories ;-) > varices aren't cause by lack of blood storage capacity by the liver, they are > caused by portal vein hypertension, which in turn is caused by severe > bridging/scarring of the liver. And pooling of fluid - in the legs and/or > abdomen - in a person with liver disease is more likely due to the same thing > that causes ascites, portal hypertension being one. LOL!
Well, I'm no doctor, thanks for the explanation, Gery, I told him it was just my opinion.
Cheers, jeeb.
Cody - 12 Dec 2006 16:14 GMT >>>> After my operation, from the knee down got swollen. It's gone done a >>>> lot but they're still a little swollen. The Rhoids doc said it might [quoted text clipped - 41 lines] > > /greyhackles Oh, I am setting up the blood test and the scan tomorrow. Then I gotta take the results to the liver doc who will prescribe the biopsy. After what I went through with the rhoids operation, a biopsy should be a piece of cake. I have convinced my self that the fear of the biopsy is worse than the biopsy itself.
What about the high temperature? Sometimes it goes up to 38.2 C. I take aspirin and it goes down to 37.8. I have not, until a few minutes ago, been taking Milk Thistle since the operation.
Cody
Paul - 12 Dec 2006 23:29 GMT On Tue, 12 Dec 2006 14:59:40 +0100, Cody <neverever@msn.org>, in message ID <qByfh.41889$MA3.14956@news.ono.com>, in the newsgroup alt.support.hepatitis-c wrote:
>Yep, time to bite the biopsy bullet. Absolutely. No problem delaying tx but not without that biopsy. Might as well load one of the 6 chambers, point and click every couple of years. I don't like the sound of that swelling, though I suppose there may be other causes than a sick liver.
Cody - 13 Dec 2006 00:12 GMT > On Tue, 12 Dec 2006 14:59:40 +0100, Cody <neverever@msn.org>, in > message ID <qByfh.41889$MA3.14956@news.ono.com>, in the newsgroup [quoted text clipped - 7 lines] > I don't like the sound of that swelling, though I suppose there may be > other causes than a sick liver. The doc also said it also might be liquid retention and the fact that I am peeing about three liters a day sort of confirms that. My temperature has gone down to 37.4 and the swelling is almost gone.
Nonetheless, tomorrow I will make an appointment with the liver doc and go through the routine.
Cody
Randy Thomas - 13 Dec 2006 00:24 GMT Cody, swollen legs/feet? could be kidney-related, diabetes related or even heart-related. it wont hurt, so try a roll-on bottle of dmso. DMSO is an anti-inflammatory used for i-c. (a bladder condition) at the least, dmso is only approved by the fda for ic. It reduces greatly inflammation/swelling of the bladder/uretha. I had unexplained swelling of my feet and hands. this was what i used. it worked well. I have used this for almost 6 yrs. now. I hope its not liver failure. What meds are you on now? Randy ps, just curious.... whats your blood pressure average?
Cody - 13 Dec 2006 00:53 GMT > Cody, swollen legs/feet? could be kidney-related, diabetes related or > even heart-related. it wont hurt, so try a roll-on bottle of dmso. DMSO [quoted text clipped - 5 lines] > are you on now? Randy ps, just curious.... whats your blood pressure > average? Before I had the rhoids operation, they checked my blood pressure, heart and lungs. All the tests came up AOK. I was amazed at the lung x-ray results because I have been a smoker since 1963. Thankfully, the swelling is almost gone and my temperature seems to be leveling off at 37.3 C.
It did put a scare into me which has motivated me to reconnect with my liver doc and have the dreaded biopsy done.
Cody
Paul - 13 Dec 2006 08:56 GMT On Wed, 13 Dec 2006 01:53:48 +0100, Cody <neverever@msn.org>, in message ID <vaIfh.11689$T9.9578@news.ono.com>, in the newsgroup alt.support.hepatitis-c wrote:
>Before I had the rhoids operation, they checked my blood pressure, heart >and lungs. All the tests came up AOK. I was amazed at the lung x-ray [quoted text clipped - 4 lines] >It did put a scare into me which has motivated me to reconnect with my >liver doc and have the dreaded biopsy done. Maybe it was a good thing then Cody if it's motivated you to get that biopsy done. I won't post the details as it's long winded but I have known people go through some terrible stuff through delaying too long.
Cody - 13 Dec 2006 09:19 GMT > On Wed, 13 Dec 2006 01:53:48 +0100, Cody <neverever@msn.org>, in > message ID <vaIfh.11689$T9.9578@news.ono.com>, in the newsgroup [quoted text clipped - 11 lines] > Maybe it was a good thing then Cody if it's motivated you to get that > biopsy done. Fear's a great motivator.
> I won't post the details as it's long winded but I have known people > go through some terrible stuff through delaying too long. No need. I have researched liver failure and transplants.
Course, today all the swelling's gone and my temperature's back to normal. Nonetheless, my wife is calling the liver doc as I type. I'm sure he's going to give me hell for not having seen him in two years and I will have to eat humble pie and tell him that the reasons were:
1. Stupidity
2. Denial
3. Arrogance (this won't happen to me, only to others)
4. Fear of the biopsy.
Cody
Paul - 14 Dec 2006 01:51 GMT On Wed, 13 Dec 2006 10:19:05 +0100, Cody <neverever@msn.org>, in message ID <dAPfh.42017$MA3.33020@news.ono.com>, in the newsgroup alt.support.hepatitis-c wrote:
>> On Wed, 13 Dec 2006 01:53:48 +0100, Cody <neverever@msn.org>, in >> message ID <vaIfh.11689$T9.9578@news.ono.com>, in the newsgroup [quoted text clipped - 33 lines] > >Cody Not that you need any more motivating Cody but one of my best friends finally died a few hours ago. He left it too long as he was using until 4 years ago. The tx he did a couple of years or so back failed due to enforced dose reduction as his liver was pretty sick even then. Seeing him finally deteriorate over the last few weeks has not been a pretty sight. I promised I would stick with him and kept my word - and was glad to do so.
R.I.P.
Cody - 14 Dec 2006 02:08 GMT > On Wed, 13 Dec 2006 10:19:05 +0100, Cody <neverever@msn.org>, in > message ID <dAPfh.42017$MA3.33020@news.ono.com>, in the newsgroup [quoted text clipped - 44 lines] > > R.I.P. Sorry to hear that. When you say, "using", you mean like heroin or booze? I have the appointment to see the doc, not have the biopsy, on Jan 30. I'm going to ask him if we can go straight to the biopsy and skip the blood tests and the scan. In socialized medicine, there is always a waiting list ...
Cody
Paul - 14 Dec 2006 02:36 GMT On Thu, 14 Dec 2006 03:08:18 +0100, Cody <neverever@msn.org>, in message ID <wm2gh.11816$T9.8239@news.ono.com>, in the newsgroup alt.support.hepatitis-c wrote:
>Sorry to hear that. When you say, "using", you mean like heroin or >booze? I have the appointment to see the doc, not have the biopsy, on >Jan 30. I'm going to ask him if we can go straight to the biopsy and >skip the blood tests and the scan. In socialized medicine, there is >always a waiting list ... By "using" I mean injecting opiates. Though it was done via new equipment and methadone script, the damage was done long ago. He has not been a drinker for many years.
I don't think you will be able to skip blood tests Cody. They have to test your blood to make sure that it's thick enough to cope with a biopsy so you might as well have the whole LFT done. LFT results are returned pretty quick usually.
I doubt that you will be able to hurry them along in socialized medicine. I am under such a system too. It took me about five or six months from requesting a referral (from GP to specialist) to having a biopsy. Most of that was waiting for the initial specialist appointment though. I know the waiting times in Spain are similar to the UK as a friend of mine went through tx out there - though it may vary from one area to another. Don't be surprised to have a three month wait for a biopsy from your Jan 30 appointment date. Having blood tests and a scan shouldn't delay that anyway.
The initial blood tests may reveal if anything is *very* badly wrong but can't be relied on too much. I imagine that three or four months would be unlikely to affect outcome anyway. Hopefully you live in an area that has short waiting times. Alternatively, if you are feeling twitchy about it, I suppose you could self fund a biopsy. I've heard a wide variety of prices quoted but I understand it could be anything between 3 - 5 thousand euros. Pretty pricey when a three month wait would get it for you free of charge at point of use.
Best of luck Cody. You know I'm here for you.
Cody - 14 Dec 2006 02:53 GMT > On Thu, 14 Dec 2006 03:08:18 +0100, Cody <neverever@msn.org>, in > message ID <wm2gh.11816$T9.8239@news.ono.com>, in the newsgroup [quoted text clipped - 14 lines] > biopsy so you might as well have the whole LFT done. LFT results are > returned pretty quick usually. Yes, they were the last time I did them.
> I doubt that you will be able to hurry them along in socialized > medicine. I am under such a system too. It took me about five or six [quoted text clipped - 5 lines] > month wait for a biopsy from your Jan 30 appointment date. Having > blood tests and a scan shouldn't delay that anyway. No, I wouldn't be surprised.
> The initial blood tests may reveal if anything is *very* badly wrong > but can't be relied on too much. [quoted text clipped - 5 lines] > euros. Pretty pricey when a three month wait would get it for you > free of charge at point of use. Well, if I win the Xmas lottery on the 22nd or the niño lottery in Jan :-)
> Best of luck Cody. You know I'm here for you. Thanks,
Cody
Russian - 14 Dec 2006 09:34 GMT > I'm going to ask him if we can go straight to the biopsy and > skip the blood tests and the scan. Probably not. The biopsies are now done with ultrasound guidance ONLY, so you get an ultrasound first just prior to the biopsy.
By the biggest deal for me with the biopsy is the amount of time filling out paperwork. I had had 2 previous ones with no anaesthesia, but nowadays they insist on the painkiller. I asked for the minimum. It felt nice, but who cares? The biopsy hurts for a moment and then it was totally gone.
Cody - 14 Dec 2006 09:48 GMT >> I'm going to ask him if we can go straight to the biopsy and skip the >> blood tests and the scan. [quoted text clipped - 7 lines] > felt nice, but who cares? The biopsy hurts for a moment and then it was > totally gone. I'll got for the anesthesia but it's good to know that your experience wasn't a traumatic one. I suspect the fear of the biopsy is worse than the biopsy itself.
Cody
PaulG - 14 Dec 2006 15:29 GMT Russian Wrote:
The biopsy hurts for a moment and then it was totally gone.
Yeah, I had two Trans-jugular biopsis and other than pressure on my jugular I didn't feel a thing.(Hemophiliacs have to have Trans-jugular in case of bleeding. Although when I first heard that I laughed...You know cutting open the jugular vein to do a procedure because you want to minimize bleeding.... :)
All I had was a local on the neck.....Over before you know it.
Waterspider - 15 Dec 2006 08:17 GMT >>> I'm going to ask him if we can go straight to the biopsy and skip the >>> blood tests and the scan. [quoted text clipped - 11 lines] > wasn't a traumatic one. I suspect the fear of the biopsy is worse than the > biopsy itself. It certainly is, according to all reports. I can't even remember mine. But... I was under a general for other surgery when they did it <g> You're right, it's not funny at all. Sorry. I just don't know what to say. You've been leading up to this decision since I've known you and I'm so happy for you that you're finally taking charge and preparing to kill the f.cking dragon. But, for the anxiety prior to the biopsy, you do have the advantage of many years of experience in and I'm sure considerable skill in meditation. This, I'm sure, will make the procedure much easier for you than if you weren't able to exert some control over your fear. I even wonder if the actual experience of biopsy is less painful for those who aren't expecting it to be painful? Some here (you may recall the posts) reported just a mild jab and their biggest complaint was being bored silly because they had to lie still for several hours afterwards. I hope that's your experience. Bring an MP3 player, and may I suggest Gaku and Beyond, Herbie Mann.
Good luck, buddy, it will be an interesting ride. Don't forget that you have friends here who have been down the road already.
Spidey
Cody - 15 Dec 2006 08:23 GMT >>>> I'm going to ask him if we can go straight to the biopsy and skip the >>>> blood tests and the scan. [quoted text clipped - 31 lines] > > Spidey Thanks, Spidey, and you have certainly been a good friend.
Cody
Russian - 18 Dec 2006 09:46 GMT > I'll got for the anesthesia but it's good to know that your experience > wasn't a traumatic one. I suspect the fear of the biopsy is worse than > the biopsy itself. Seriously, Cody, I have had flu shots that hurt worse.
Bring a good book - I guarantee your main problem will be boredom.
But you ask and get a couple of Ativan - one for the night before and one before you check in - that will deal with the internal drama and anxiety.
Cody - 18 Dec 2006 10:28 GMT >> I'll got for the anesthesia but it's good to know that your experience >> wasn't a traumatic one. I suspect the fear of the biopsy is worse than >> the biopsy itself. > > Seriously, Cody, I have had flu shots that hurt worse. That's encouraging.
> Bring a good book - I guarantee your main problem will be boredom. Will do.
> But you ask and get a couple of Ativan - one for the night before and > one before you check in - that will deal with the internal drama and > anxiety. OK.
Cody
Paul - 18 Dec 2006 17:50 GMT On Mon, 18 Dec 2006 11:28:37 +0100, Cody <neverever@msn.org>, in message ID <z3uhh.50089$MA3.31944@news.ono.com>, in the newsgroup alt.support.hepatitis-c wrote:
>>> I'll got for the anesthesia but it's good to know that your experience >>> wasn't a traumatic one. I suspect the fear of the biopsy is worse than [quoted text clipped - 15 lines] > >Cody Cody.
I got well hyped up with anxiety before my biopsy. It all proved totally unfounded. Six hours after the biopsy, I walked out of the hospital and some kid riding a pushbike on the footpath came hurtling towards my right side. Instinctively I self protected with my arms and the poor sod went flying. I didn't mean for him to end up in a heap but that's what happened. We were both OK. I did tell him that I had just had some minor surgery and had to block him to protect myself and he was fine with that. The small bruise on my arm from that was more painful than the biopsy. I did take three days off work after the biopsyt though because I am a manual worker. I think two would have been plenty but I just did it as a precaution.
elmoemerson@webtv.net - 21 Dec 2006 15:45 GMT Re: Swollen Legs and Feet Group: alt.support.hepatitis-c Date: Mon, Dec 18, 2006, 11:28am (CST+7) From: neverever@msn.org (Cody) Russian wrote: Cody wrote: I'll got for the anesthesia but it's good to know that your experience wasn't a traumatic one. I suspect the fear of the biopsy is worse than the biopsy itself. Seriously, Cody, I have had flu shots that hurt worse. That's encouraging. Bring a good book - I guarantee your main problem will be boredom. Will do. But you ask and get a couple of Ativan - one for the night before and one before you check in - that will deal with the internal drama and anxiety. OK. Cody //////////// Just don't let the 'exploding liver' doctor do your biopsy. :-) elmo
http://community.webtv.net/elmoemerson/DocElmosHepFile
http://community.webtv.net/elmoemerson/TheFamilyAlbum
Cody - 21 Dec 2006 16:05 GMT > > Re: Swollen Legs and Feet [quoted text clipped - 18 lines] > Just don't let the 'exploding liver' doctor do your biopsy. :-) > elmo Oh, don't worry, I won't :-)
Cody
Waterspider - 15 Dec 2006 08:04 GMT > Not that you need any more motivating Cody but one of my best friends > finally died a few hours ago. He left it too long as he was using [quoted text clipped - 5 lines] > > R.I.P. I did the hep c deathwatch with a close friend some years ago, for about six weeks. Not an easy time, not a pretty sight, and death did not come soon enough; no one should be in that much pain in a modern hospital. But that's another issue.
I'm sorry for your loss, Paul, you were a good friend to him.
Spidey
Paul - 16 Dec 2006 12:06 GMT On Fri, 15 Dec 2006 00:04:03 -0800, "Waterspider" <waterspider@moonlight.net>, in message ID <12o4lsd1qc74375@corp.supernews.com>, in the newsgroup alt.support.hepatitis-c wrote:
>I did the hep c deathwatch with a close friend some years ago, for about six >weeks. Not an easy time, not a pretty sight, and death did not come soon >enough; no one should be in that much pain in a modern hospital. But that's >another issue. > >I'm sorry for your loss, Paul, you were a good friend to him. Yeah. We did a lot of things together - not all of them healthy. I knew him nearly 30 years. We even did tx together - well almost. If I hadn't delayed mine till after a holiday and because I wanted a more specific genotyping test, we would have started 2 weeks apart. As it was, he was about 10 weeks in front of me. Were present at each others 1st shots. My tx worked. His didn't. Could just as easily been other way around. Even in the hospital he reckoned his skin colour was from eating too many bananas. We even had some fun in there.
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