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Medical Forum / Diseases and Disorders / Hepatitis / December 2006

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Swollen Legs and Feet

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Cody - 12 Dec 2006 12:47 GMT
After my operation, from the knee down got swollen. It's gone done a lot
but they're still a little swollen. The Rhoids doc said it might be a
sign of liver failure. I also have a temperature nearing 38º C.

Thanks,

Cody
ghibelno - 12 Dec 2006 13:21 GMT
> After my operation, from the knee down got swollen. It's gone done a lot
> but they're still a little swollen. The Rhoids doc said it might be a
[quoted text clipped - 3 lines]
>
> Cody

Theoretically, it seems to me that what the doctor said about the liver
con be right, I mean, if your liver is really bad, then the amount of
blood it usually stores would go somewhere else (you know people with
chirrosis can experience varices in their esophagus).

That said, it could also be due to something else and is good that it
has gone done a lot.
The fever, instead, isn't a good sign, but that could be related to your
recent operation. I hope you told the doctor before that group about it.

Anyway, Cody, I think you should finally decide and go in for a biopsy.
In my opinion you cannot avoid it any longer and definitely need to know
where you stand.

Best wishes,
jeeb.
Cody - 12 Dec 2006 13:59 GMT
>> After my operation, from the knee down got swollen. It's gone done a
>> lot but they're still a little swollen. The Rhoids doc said it might
[quoted text clipped - 20 lines]
> Best wishes,
> jeeb.

Yep, time to bite the biopsy bullet.

Cody
greyhackles - 12 Dec 2006 14:41 GMT
>>> After my operation, from the knee down got swollen. It's gone done a
>>> lot but they're still a little swollen. The Rhoids doc said it might
[quoted text clipped - 24 lines]
>
>Cody

While the eminent Doctor Jeeb offered some interesting <cough> theories ;-)
varices aren't cause by lack of blood storage capacity by the liver, they are
caused by portal vein hypertension, which in turn is caused by severe
bridging/scarring of the liver. And pooling of fluid - in the legs and/or
abdomen - in a person with liver disease is more likely due to the same thing
that causes ascites, portal hypertension being one.

There are other, less sinister causes of fluid pooling; testing of the fluid
itself can be quite revealing, apparently. Hopefully, in your case, this
phenomenon was provoked by the surgical adventure, and will pass.

But you've been due for a biopsy - or at least one of the emerging "virtual
biopsy" blood analysis - for some time. And you know that. Stop fighting it
and get your scrawny butt into the hospital and get it done.

Cheers - and get better soon...

/greyhackles
ghibelno - 12 Dec 2006 15:06 GMT
> While the eminent Doctor Jeeb offered some interesting <cough> theories ;-)
> varices aren't cause by lack of blood storage capacity by the liver, they are
> caused by portal vein hypertension, which in turn is caused by severe
> bridging/scarring of the liver. And pooling of fluid - in the legs and/or
> abdomen - in a person with liver disease is more likely due to the same thing
> that causes ascites, portal hypertension being one.

LOL!

Well, I'm no doctor, thanks for the explanation, Gery, I told him it was
just my opinion.

Cheers,
jeeb.
Cody - 12 Dec 2006 16:14 GMT
>>>> After my operation, from the knee down got swollen. It's gone done a
>>>> lot but they're still a little swollen. The Rhoids doc said it might
[quoted text clipped - 41 lines]
>
> /greyhackles

Oh, I am setting up the blood test and the scan tomorrow. Then I gotta
take the results to the liver doc who will prescribe the biopsy. After
what I went through with the rhoids operation, a biopsy should be a
piece of cake. I have convinced my self that the fear of the biopsy is
worse than the biopsy itself.

What about the high temperature? Sometimes it goes up to 38.2 C. I take
aspirin and it goes down to 37.8. I have not, until a few minutes ago,
been taking Milk Thistle since the operation.

Cody
Paul - 12 Dec 2006 23:29 GMT
On Tue, 12 Dec 2006 14:59:40 +0100, Cody <neverever@msn.org>, in
message ID <qByfh.41889$MA3.14956@news.ono.com>, in the newsgroup
alt.support.hepatitis-c wrote:

>Yep, time to bite the biopsy bullet.

Absolutely.  No problem delaying tx but not without that biopsy. Might
as well load one of the 6 chambers, point and click every couple of
years.
I don't like the sound of that swelling, though I suppose there may be
other causes than a sick liver.
Cody - 13 Dec 2006 00:12 GMT
> On Tue, 12 Dec 2006 14:59:40 +0100, Cody <neverever@msn.org>, in
> message ID <qByfh.41889$MA3.14956@news.ono.com>, in the newsgroup
[quoted text clipped - 7 lines]
> I don't like the sound of that swelling, though I suppose there may be
> other causes than a sick liver.

The doc also said it also might be liquid retention and the fact that I
am peeing about three liters a day sort of confirms that. My temperature
has gone down to 37.4 and the swelling is almost gone.

Nonetheless, tomorrow I will make an appointment with the liver doc and
go through the routine.

Cody
Randy Thomas - 13 Dec 2006 00:24 GMT
Cody, swollen legs/feet? could be kidney-related, diabetes related or
even heart-related. it wont hurt, so try a roll-on bottle of dmso. DMSO
is an anti-inflammatory used for i-c. (a bladder condition) at the
least, dmso is only approved by the fda for ic. It reduces greatly
inflammation/swelling of the bladder/uretha. I had unexplained swelling
of my feet and hands. this was what i used. it worked well. I have used
this for almost 6 yrs. now.  I hope its not liver failure.  What meds
are you on now? Randy  ps, just curious.... whats your blood pressure
average?
Cody - 13 Dec 2006 00:53 GMT
> Cody, swollen legs/feet? could be kidney-related, diabetes related or
> even heart-related. it wont hurt, so try a roll-on bottle of dmso. DMSO
[quoted text clipped - 5 lines]
> are you on now? Randy  ps, just curious.... whats your blood pressure
> average?  

Before I had the rhoids operation, they checked my blood pressure, heart
and lungs. All the tests came up AOK. I was amazed at the lung x-ray
results because I have been a smoker since 1963. Thankfully, the
swelling is almost gone and my temperature seems to be leveling off at
37.3 C.

It did put a scare into me which has motivated me to reconnect with my
liver doc and have the dreaded biopsy done.

Cody
Paul - 13 Dec 2006 08:56 GMT
On Wed, 13 Dec 2006 01:53:48 +0100, Cody <neverever@msn.org>, in
message ID <vaIfh.11689$T9.9578@news.ono.com>, in the newsgroup
alt.support.hepatitis-c wrote:

>Before I had the rhoids operation, they checked my blood pressure, heart
>and lungs. All the tests came up AOK. I was amazed at the lung x-ray
[quoted text clipped - 4 lines]
>It did put a scare into me which has motivated me to reconnect with my
>liver doc and have the dreaded biopsy done.

Maybe it was a good thing then Cody if it's motivated you to get that
biopsy done.
I won't post the details as it's long winded but I have known people
go through some terrible stuff through delaying too long.
Cody - 13 Dec 2006 09:19 GMT
> On Wed, 13 Dec 2006 01:53:48 +0100, Cody <neverever@msn.org>, in
> message ID <vaIfh.11689$T9.9578@news.ono.com>, in the newsgroup
[quoted text clipped - 11 lines]
> Maybe it was a good thing then Cody if it's motivated you to get that
> biopsy done.

Fear's a great motivator.

> I won't post the details as it's long winded but I have known people
> go through some terrible stuff through delaying too long.

No need. I have researched liver failure and transplants.

Course, today all the swelling's gone and my temperature's back to
normal. Nonetheless, my wife is calling the liver doc as I type. I'm
sure he's going to give me hell for not having seen him in two years and
I will have to eat humble pie and tell him that the reasons were:

1. Stupidity

2. Denial

3. Arrogance (this won't happen to me, only to others)

4. Fear of the biopsy.

Cody
Paul - 14 Dec 2006 01:51 GMT
On Wed, 13 Dec 2006 10:19:05 +0100, Cody <neverever@msn.org>, in
message ID <dAPfh.42017$MA3.33020@news.ono.com>, in the newsgroup
alt.support.hepatitis-c wrote:

>> On Wed, 13 Dec 2006 01:53:48 +0100, Cody <neverever@msn.org>, in
>> message ID <vaIfh.11689$T9.9578@news.ono.com>, in the newsgroup
[quoted text clipped - 33 lines]
>
>Cody

Not that you need any more motivating Cody but one of my best friends
finally died a few hours ago.  He left it too long as he was using
until 4 years ago.  The tx he did a couple of years or so back failed
due to enforced dose reduction as his liver was pretty sick even then.
Seeing him finally deteriorate over the last few weeks has not been a
pretty sight.  I promised I would stick with him and kept my word -
and was glad to do so.

R.I.P.
Cody - 14 Dec 2006 02:08 GMT
> On Wed, 13 Dec 2006 10:19:05 +0100, Cody <neverever@msn.org>, in
> message ID <dAPfh.42017$MA3.33020@news.ono.com>, in the newsgroup
[quoted text clipped - 44 lines]
>
> R.I.P.

Sorry to hear that. When you say, "using", you mean like heroin or
booze? I have the appointment to see the doc, not have the biopsy, on
Jan 30. I'm going to ask him if we can go straight to the biopsy and
skip the blood tests and the scan. In socialized medicine, there is
always a waiting list ...

Cody
Paul - 14 Dec 2006 02:36 GMT
On Thu, 14 Dec 2006 03:08:18 +0100, Cody <neverever@msn.org>, in
message ID <wm2gh.11816$T9.8239@news.ono.com>, in the newsgroup
alt.support.hepatitis-c wrote:

>Sorry to hear that. When you say, "using", you mean like heroin or
>booze? I have the appointment to see the doc, not have the biopsy, on
>Jan 30. I'm going to ask him if we can go straight to the biopsy and
>skip the blood tests and the scan. In socialized medicine, there is
>always a waiting list ...

By "using" I mean injecting opiates.  Though it was done via new
equipment and methadone script, the damage was done long ago.  He has
not been a drinker for many years.

I don't think you will be able to skip blood tests Cody.  They have to
test your blood to make sure that it's thick enough to cope with a
biopsy so you might as well have the whole LFT done.  LFT results are
returned pretty quick usually.

I doubt that you will be able to hurry them along in socialized
medicine.  I am under such a system too.  It took me about five or six
months from requesting a referral (from GP to specialist) to having a
biopsy.  Most of that was waiting for the initial specialist
appointment though.  I know the waiting times in Spain are similar to
the UK as a friend of mine went through tx out there - though it may
vary from one area to another.  Don't be surprised to have a three
month wait for a biopsy from your Jan 30 appointment date.  Having
blood tests and a scan shouldn't delay that anyway.

The initial blood tests may reveal if anything is *very* badly wrong
but can't be relied on too much.
I imagine that three or four months would be unlikely to affect
outcome anyway.  Hopefully you live in an area that has short waiting
times.  Alternatively, if you are feeling twitchy about it, I suppose
you could self fund a biopsy.  I've heard a wide variety of prices
quoted but I understand it could be anything between 3 - 5 thousand
euros.  Pretty pricey when a three month wait would get it for you
free of charge at point of use.

Best of luck Cody.  You know I'm here for you.
Cody - 14 Dec 2006 02:53 GMT
> On Thu, 14 Dec 2006 03:08:18 +0100, Cody <neverever@msn.org>, in
> message ID <wm2gh.11816$T9.8239@news.ono.com>, in the newsgroup
[quoted text clipped - 14 lines]
> biopsy so you might as well have the whole LFT done.  LFT results are
> returned pretty quick usually.

Yes, they were the last time I did them.

> I doubt that you will be able to hurry them along in socialized
> medicine.  I am under such a system too.  It took me about five or six
[quoted text clipped - 5 lines]
> month wait for a biopsy from your Jan 30 appointment date.  Having
> blood tests and a scan shouldn't delay that anyway.

No, I wouldn't be surprised.

> The initial blood tests may reveal if anything is *very* badly wrong
> but can't be relied on too much.
[quoted text clipped - 5 lines]
> euros.  Pretty pricey when a three month wait would get it for you
> free of charge at point of use.

Well, if I win the Xmas lottery on the 22nd or the niño lottery in Jan :-)

> Best of luck Cody.  You know I'm here for you.

Thanks,

Cody
Russian - 14 Dec 2006 09:34 GMT
> I'm going to ask him if we can go straight to the biopsy and
> skip the blood tests and the scan.

Probably not.  The biopsies are now done with ultrasound guidance ONLY,
so you get an ultrasound first just prior to the biopsy.

By the biggest deal for me with the biopsy is the amount of time filling
out paperwork.  I had had 2 previous ones with no anaesthesia, but
nowadays they insist on the painkiller.  I asked for the minimum.  It
felt nice, but who cares?  The biopsy hurts for a moment and then it was
totally gone.
Cody - 14 Dec 2006 09:48 GMT
>> I'm going to ask him if we can go straight to the biopsy and skip the
>> blood tests and the scan.
[quoted text clipped - 7 lines]
> felt nice, but who cares?  The biopsy hurts for a moment and then it was
> totally gone.

I'll got for the anesthesia but it's good to know that your experience
wasn't a traumatic one. I suspect the fear of the biopsy is worse than
the biopsy itself.

Cody
PaulG - 14 Dec 2006 15:29 GMT
Russian Wrote:

The biopsy hurts for a moment and then it was
totally gone.

Yeah, I had two Trans-jugular biopsis and other than pressure on my
jugular I didn't feel a thing.(Hemophiliacs have to have Trans-jugular
in case of bleeding. Although when I first heard that I laughed...You
know cutting open the jugular vein to do a procedure because you want
to minimize bleeding.... :)

All I had was a local on the neck.....Over before you know it.
Waterspider - 15 Dec 2006 08:17 GMT
>>> I'm going to ask him if we can go straight to the biopsy and skip the
>>> blood tests and the scan.
[quoted text clipped - 11 lines]
> wasn't a traumatic one. I suspect the fear of the biopsy is worse than the
> biopsy itself.

It certainly is, according to all reports. I can't even remember mine.
But... I was under a general for other surgery when they did it <g>
You're right, it's not funny at all. Sorry. I just don't know what to say.
You've been leading up to this decision since I've known you and I'm so
happy for you that you're finally taking charge and preparing to kill the
f.cking dragon. But, for the anxiety prior to the biopsy, you do have the
advantage of many years of experience in and I'm sure considerable skill in
meditation. This, I'm sure, will make the procedure much easier for you than
if you weren't able to exert some control over your fear. I even wonder if
the actual experience of biopsy is less painful for those who aren't
expecting it to be painful? Some here (you may recall the posts) reported
just a mild jab and their biggest complaint was being bored silly because
they had to lie still for several hours afterwards. I hope that's your
experience. Bring an MP3 player, and may I suggest Gaku and Beyond, Herbie
Mann.

Good luck, buddy, it will be an interesting ride. Don't forget that you have
friends here who have been down the road already.

Spidey
Cody - 15 Dec 2006 08:23 GMT
>>>> I'm going to ask him if we can go straight to the biopsy and skip the
>>>> blood tests and the scan.
[quoted text clipped - 31 lines]
>
> Spidey

Thanks, Spidey, and you have certainly been a good friend.

Cody
Russian - 18 Dec 2006 09:46 GMT
> I'll got for the anesthesia but it's good to know that your experience
> wasn't a traumatic one. I suspect the fear of the biopsy is worse than
> the biopsy itself.

Seriously, Cody, I have had flu shots that hurt worse.

Bring a good book - I guarantee your main problem will be boredom.

But you ask and get a couple of Ativan - one for the night before and
one before you check in - that will deal with the internal drama and
anxiety.
Cody - 18 Dec 2006 10:28 GMT
>> I'll got for the anesthesia but it's good to know that your experience
>> wasn't a traumatic one. I suspect the fear of the biopsy is worse than
>> the biopsy itself.
>
> Seriously, Cody, I have had flu shots that hurt worse.

That's encouraging.

> Bring a good book - I guarantee your main problem will be boredom.

Will do.

> But you ask and get a couple of Ativan - one for the night before and
> one before you check in - that will deal with the internal drama and
> anxiety.

OK.

Cody
Paul - 18 Dec 2006 17:50 GMT
On Mon, 18 Dec 2006 11:28:37 +0100, Cody <neverever@msn.org>, in
message ID <z3uhh.50089$MA3.31944@news.ono.com>, in the newsgroup
alt.support.hepatitis-c wrote:

>>> I'll got for the anesthesia but it's good to know that your experience
>>> wasn't a traumatic one. I suspect the fear of the biopsy is worse than
[quoted text clipped - 15 lines]
>
>Cody

Cody.

I got well hyped up with anxiety before my biopsy.  It all proved
totally unfounded.  Six hours after the biopsy, I walked out of the
hospital and some kid riding a pushbike on the footpath came hurtling
towards my right side.  Instinctively I self protected with my arms
and the poor sod went flying.  I didn't mean for him to end up in a
heap but that's what happened.  We were both OK.  I did tell him that
I had just had some minor surgery and had to block him to protect
myself and he was fine with that.  The small bruise on my arm from
that was more painful than the biopsy.  I did take three days off work
after the biopsyt though because I am a manual worker.  I think two
would have been plenty but I just did it as a precaution.
elmoemerson@webtv.net - 21 Dec 2006 15:45 GMT
Re: Swollen Legs and Feet  

Group: alt.support.hepatitis-c Date: Mon, Dec 18, 2006, 11:28am (CST+7)
From: neverever@msn.org (Cody)
Russian wrote:
Cody wrote:
I'll got for the anesthesia but it's good to know that your experience
wasn't a traumatic one. I suspect the fear of the biopsy is worse than
the biopsy itself.
Seriously, Cody, I have had flu shots that hurt worse.
That's encouraging.
Bring a good book - I guarantee your main problem will be boredom.
Will do.
But you ask and get a couple of Ativan - one for the night before and
one before you check in - that will deal with the internal drama and
anxiety.
OK.
Cody  
////////////
Just don't let the 'exploding liver' doctor do your biopsy.  :-)
elmo

http://community.webtv.net/elmoemerson/DocElmosHepFile

http://community.webtv.net/elmoemerson/TheFamilyAlbum
Cody - 21 Dec 2006 16:05 GMT
>  
> Re: Swollen Legs and Feet  
[quoted text clipped - 18 lines]
> Just don't let the 'exploding liver' doctor do your biopsy.  :-)
> elmo

Oh, don't worry, I won't :-)

Cody
Waterspider - 15 Dec 2006 08:04 GMT
> Not that you need any more motivating Cody but one of my best friends
> finally died a few hours ago.  He left it too long as he was using
[quoted text clipped - 5 lines]
>
> R.I.P.

I did the hep c deathwatch with a close friend some years ago, for about six
weeks. Not an easy time, not a pretty sight, and death did not come soon
enough; no one should be in that much pain in a modern hospital. But that's
another issue.

I'm sorry for your loss, Paul, you were a good friend to him.

Spidey
Paul - 16 Dec 2006 12:06 GMT
On Fri, 15 Dec 2006 00:04:03 -0800, "Waterspider"
<waterspider@moonlight.net>, in message ID
<12o4lsd1qc74375@corp.supernews.com>, in the newsgroup
alt.support.hepatitis-c wrote:

>I did the hep c deathwatch with a close friend some years ago, for about six
>weeks. Not an easy time, not a pretty sight, and death did not come soon
>enough; no one should be in that much pain in a modern hospital. But that's
>another issue.
>
>I'm sorry for your loss, Paul, you were a good friend to him.

Yeah.  We did a lot of things together - not all of them healthy.  I
knew him nearly 30 years.  We even did tx together - well almost.  If
I hadn't delayed mine till after a holiday and because I wanted a more
specific genotyping test, we would have started 2 weeks apart.  As it
was, he was about 10 weeks in front of me.  Were present at each
others 1st shots.  My tx worked.  His didn't.  Could just as easily
been other way around.
Even in the hospital he reckoned his skin colour was from eating too
many bananas.  We even had some fun in there.
 
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