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Medical Forum / Diseases and Disorders / Hepatitis / December 20063 years, virus free
Went in for a yearly and this is now 3 years virus free. I wish everybody the best. I was pretty public about my treatment. Since I worked for a PBM it wasn't like everybody didn't know what I was taking anyway. I didn't have cirhossis yet and responded about as well as someone possibly could. I know that isn't the way it works out for everybody since my younger brother and a good friend both died from liver failure, but it does for some. I hate hearing people -- and I have heard doctors do it -- say that Hep-C is "incurable". I interupt and tell them it just isn't always so. I don't post here much, but the email works fine if anybody wants to contact me or ask a question. mr.cin mr.cin AT verizon DOT net > Went in for a yearly and this is now 3 years virus free. I wish everybody > the best. I was pretty public about my treatment. Since I worked for a [quoted text clipped - 10 lines] > > mr.cin AT verizon DOT net Hows your liver 3 years later? enzymes are normal. I am sure I still have "fatty liver" , but heck I have fatty body...... I quit drinking in 1988, so I imagine that helped me survive. I had liver failure ( white stools, passing large amounts of blood, etc ) in 1985 when I was 34 and was told I would never live to see 40. I quit the 8 day speed runs shortly after that. Forget 40, I wasn't going to make it to 35. >> Went in for a yearly and this is now 3 years virus free. I wish >> everybody [quoted text clipped - 17 lines] > > Hows your liver 3 years later? > enzymes are normal. I am sure I still have "fatty liver" , but heck I have > fatty body...... [quoted text clipped - 26 lines] > > > > Hows your liver 3 years later? I quit drinking and using drugs in 1976. Liver would have been gone decades ago if I had kept it up. > Went in for a yearly and this is now 3 years virus free. I wish > everybody the best. I was pretty public about my treatment. Since I [quoted text clipped - 10 lines] > > mr.cin AT verizon DOT net Hi guy, Yeah, I was very public about my disease and tx too (f.ck em if they can't take a joke and all that). I published the local paper. What's a PBM? I have been virus-free for... hmm, I think five years now. I still get tested every year, just for fun, and do the happy dance when I get my results. Yeah, the Evil Drugs worked, but I'm sorry you lost friends (I include brother as a friend). Doctors seem as ingnorant as the general population, sadly, and I have the same conversations as do you with newly diagnosed (and long-ago-gave-up diagnosed) about treatment. I'm at waterspider (at) sunshine (dot) net if you feel like corresponding. I'm in BC Canada, kinda down a few rungs on the hep c treatment ladder. You pop up in my address book ( as nospam@ nowhere or something ) so I have at least tried to contact you in the past. I know what you mean about the happy dance. As we left the doctors office I told my wife I always feel insanely happy when I leave there. She said she thought it was completely understandable. As for ignorance, forgive me if you've heard this before, but the ribavarin made my hemmorhoids go NUTS -- by butt looked like extremely swollen female genitalia to where I had to have some pretty serious surgery. Basically they took out the last 3 inches of my rectum and then reattached it. Afterwards I simply could not heal completely. The surgeon said that as soon as one wound healed another would open up an inch or so away. This continued for 3 months until the treatment ended. Then I healed completely. Both he ( understandably perhaps ) and my gastro said it couldn't have anything to do with the meds. I looked at the product insert for the ribavarin and it says " can cause severe ulcerative colitis -- sometimes fatal ". I don't know how clear that could be. A PBM is a Pharmacy Benifit Manager. Virtually all of the insurance companies have the drug benifit administered by one of 5 PBM's. When you use you insurance at the drug store the PBM decides whether it is covered, how much is your copay and how much the insurance pays and actually keeps the price list for the drugs as well. As such, simply by typing in a name I could see what prescriptions people took. At the time, we covered about 30 percent of the market, but since when you insurance changes the pbm that handles them changes I could actually see about 60 percent of the population whom we would have covered at one time or another during the previous 10 years in the "current" database. Good to talk to you. >> Went in for a yearly and this is now 3 years virus free. I wish >> everybody the best. I was pretty public about my treatment. Since I [quoted text clipped - 28 lines] > I'm at waterspider (at) sunshine (dot) net if you feel like corresponding. > I'm in BC Canada, kinda down a few rungs on the hep c treatment ladder. |
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