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Medical Forum / Diseases and Disorders / Hepatitis / September 2006extended treatment
Well, my blood test finally came back negative for the virus so YAY! Since it took so long, they are recommending I do the full 72 weeks of tx which means I'll be doing this till next August, whew. Has anyone else done the 72 weeks and how successful was it? Oh, and how did you survive? I'm on week 24 right now so what's another 48 weeks, right? Yeah, okay, at least I have beat this thing, I just hope it sticks! Thanks for any inspiration, Ally > Well, my blood test finally came back negative for the virus so YAY! > Since it took so long, they are recommending I do the full 72 weeks of [quoted text clipped - 4 lines] > > Thanks for any inspiration, Ally Hi Ally - I've never heard of anyone doing 72 weeks. That's a long time, but one day at a time, right? How bad are your sides? How long did it take for your VL to show none detected? The good news is you're kicking its a.s. Good luck. You can do it! Di > How bad are your sides? How long > did it take for your VL to show none detected? The good news is you're > kicking its a.s. Good luck. You can do it! > > Di I was undetecable at 12 weeks but was still testing positive for the virus, in other words, it was below 600 (undetectable) but above 25 (when it tests negative). It took till my 20th week to get below 25 and come back as a negative. As far as my sides go, they are manageable for the most part just very, very annoying but I am still able to work out 5-6 days a week then it is on the couch to sleep. That keeps me going. I have daily ear, nose, and throat problems, you know, basic flu like symptoms, that never go away and may hair is looking really funky now with the long pieces falling out and the short pieces of regrowth. But who cares as long as I am getting well. The extra shot I take for my rbc's has made a huge difference in my sides. I feel human again. I felt like I was dieing b4 I got that. Ally >> How bad are your sides? How long >> did it take for your VL to show none detected? The good news is you're [quoted text clipped - 6 lines] >(when it tests negative). It took till my 20th week to get below 25 and >come back as a negative. Let's not screw around with accepted terminology, lest the seed of confusion be sown. Your doc was using two HCV viral load test, one for its greater sensitivity as the actual "detectable virions: yes/no" test; the other for its greater dynamic range (at the expense of sensitivity) to "quantify" the viral load. That has been a common practice for some time, because of the nature of the available tests. However, there are now viral load tests that are sensitive to as low as 10 copies/ml while still providing the dynamic range needed to quantify up into the many-million copies/ml. But these tests cost more than the older, 600 IU/ml test (I had one of those a couple of years before starting tx) so some services are reluctant to use them. The bottom line is you were detectable until that 20th week test. To state anything else is to confuse the meaning of "undetectable" - a rather sacred word 'round here... Cheers /greyhackles > Well, my blood test finally came back negative for the virus so YAY! > Since it took so long, they are recommending I do the full 72 weeks of [quoted text clipped - 4 lines] > > Thanks for any inspiration, Ally Ally,It's becoming fairly common for HCV docs to offer extended treatment for people that are slow responders.I am on my 3rd attempt.I'm taking daily Infergen now.I became undetectable at around 12 weeks.My doc wants me to do 2 years starting at the undetectable point.It's been a year now so 1 more year to go,if I can tolerate it.The sides are close to being unbearable.But I do have good days now and then. Good luck to you and may this journey be kind to you.Remember the benefits will out weigh the bad. Peace & SVR, BrianD -------------------------------------------------------------------------------- I am using the free version of SPAMfighter for private users. It has removed 2000 spam emails to date. Paying users do not have this message in their emails. Try SPAMfighter for free now! > Ally,It's becoming fairly common for HCV docs to offer extended treatment > for people that are slow responders.I am on my 3rd attempt.I'm taking daily [quoted text clipped - 7 lines] > Peace & SVR, > BrianD Wow, 2 years!?!? I can't imagine but then I couldn't imagine doing 72 weeks either and am doing that. Well, I wish you the best and good for you for sticking it out and actually doing it. So many people won't even do treatment or won't retreat of there first one fails, I can't understand that. If treatment is available then I'm all for it despite the sides. I hope your 2nd years goes faster then the first! Ally man you got balls to do 72 weeks of that, I got to hand it to ya. If the sides are managable, go for it. (did 48 weeks, motherf..ker!!!!!!!!!!!!)  SignatureRuss http://www.tannersacre.com sourdo55 at yahoo.com > Well, my blood test finally came back negative for the virus so YAY! > Since it took so long, they are recommending I do the full 72 weeks of [quoted text clipped - 4 lines] > > Thanks for any inspiration, Ally > Well, my blood test finally came back negative for the virus so YAY! > Since it took so long, they are recommending I do the full 72 weeks of [quoted text clipped - 4 lines] > > Thanks for any inspiration, Ally Hey Ally! I'm right behind you dear. Week 23 of 72. Type 1b relapser after the 48 week regimen. I didn't go undetectable this time around until 2 weeks ago. I almost decided to throw in the towel when I was still getting positive pcr results. Although I hate it, feel like sh.t all the time, I'm gonna put up the with the sides ( alot worse than the first time around ) and make every effort to stick with it for the next year. If I relapse after that, I'm done - no matter what. Keep your chin up - better to see what's coming at ya. Thom > Well, my blood test finally came back negative for the virus so YAY! > Since it took so long, they are recommending I do the full 72 weeks of [quoted text clipped - 4 lines] > > Thanks for any inspiration, Ally the inspiration is all from you thanx, bg |
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