 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Hepatitis / August 2006Any Poisitive Points?
Hi, I have just started Neupogen and will be on 3 times a week. I came to this forum to find more information but mostly I found are negative comments. All the side effects, aching bones and feeling sick. It just made me more depressed and it's not my intention to come to this forum. Doesn't anyone has any positive things to say about Neupogen, how much it has helped you, etc.? Aren't we supposed to cheer each other up instead of making others feel depressed? Thomas > Hi, I have just started Neupogen and will be on 3 times a week. I came > to this forum to find more information but mostly I found are negative [quoted text clipped - 5 lines] > > Thomas Um, I've not required Neupogen, as far as I know, but I understand it can keep you from being dead. Nothing personal, but that could be a positive point. Sorry your stuck at home on Friday night. Cheers -BG > Hi, I have just started Neupogen and will be on 3 times a week. I came > to this forum to find more information but mostly I found are negative [quoted text clipped - 5 lines] > > Thomas I had low white and red counts. I really felt the low red counts, but the doc said the white count was disturbing him even more. I got taken off treatment around Week 18. I started doing some research and got the doc to check into Neupogen and Procrit. I was on both drugs for nearly two weeks without the treatment, and so got familiar with their side effects. The only side effect I noticed was a dull ache in the tops of my hip bones and in my joints. That's the Nupogen. It's nothing Tylenol can't manage. Keep in mind that the typical Neupogen patient is a cancer patient on chemotherapy. What *isn't* going to be wrong with that population? My only real complaint is the syringe. The needles are as dull as a stick pin. For the price of that stuff, the needle should be gold plated titanium sharpened at a molecular level by nanobots! I'm now taking Neupogen on Tuesday, Thursday and Saturday, Procrit on Wednesday, and Interferon on Friday. I feel like a pin cushion, and I still am borderline low on the red count, but whites are right where they should be. Without both drugs, I might have been off treatment for good or had my dose reduced without them. So yeh, I feel pretty positive. I'm now counting down from 18. Hang in there. If you can handle Interferon and Ribavirin, Neupogen is a cakewalk. Any Poisitive Points? Group: alt.support.hepatitis-c Date: Fri, Aug 18, 2006, 9:32pm (CDT-2) From: silkunicorn@gmail.com Hi, I have just started Neupogen and will be on 3 times a week. I came to this forum to find more information but mostly I found are negative comments. All the side effects, aching bones and feeling sick. It just made me more depressed and it's not my intention to come to this forum. Doesn't anyone has any positive things to say about Neupogen, how much it has helped you, etc.? Aren't we supposed to cheer each other up instead of making others feel depressed? Thomas ////////////// Wellllll....if it wasn't your 'intention', then why in the hell are you here? You accidently typed a message and hit the wrong button and sent it? :-) If the posts in this forum make you depressed, then you need a good anti-d. This place is full of love and a source of great support, as well as a reservoir of information and experience you won't find anywhere else. Quit complaining and sit down and listen for awhile. Neupogen is good. :-) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Well, you are sure full of positive feelings, love and caring. The way you response to my post, I just wonder how caring are you! And don't forget, this is a free country, if I want to come to any forum, I'm free to do so. AND, if I want to express any of my opinion, I'm free to do so as well. Why are you to judge me! > Any Poisitive Points? > [quoted text clipped - 25 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum And who are you to judge this group from the few posts you have read? and for what it's worth, Elmo is one of the MOST caring folks in this group -- and if you read his stuff for a while you'll see how much he really does care about ALL of us. He's our rock. He keeps us laughing. Laughing is a good thing :) He has a way of making fun of himself and of us, that makes us realize what is really important in this life. Sara > Well, you are sure full of positive feelings, love and caring. > The way [quoted text clipped - 47 lines] >> >> http://community.webtv.net/elmoemerson/TheFamilyAlbum You beat me to this Sara! Well said. There are many people in this group who offer support, advice and a smack up the side of the head when necessary. I finish week 48 on Tuesday and if it were not for the fine folks in this group such as Sara, Elmo, KJ, Dort, Greyhackles, Russ, Eileen, Thip,Stretch, Dwight, Thomas, Canadave, Waterspider and many many more (too brain fogged to remember) Everyone in here has something to offer. If you are taking treatment you might want to hang in here and it will help you. We do overlook riba rages! Mags life is the positive point > And who are you to judge this group from the few posts you have > read? [quoted text clipped - 59 lines] > >> > >> http://community.webtv.net/elmoemerson/TheFamilyAlbum Yeah, Mags. I agree about all those fine people you mentioned, including myself. ahahahahahahaha!! Well, maybe with the exception of Greyhackles. :-) Don't forget CJ and Doogie Doo!! elmo ////////// You beat me to this Sara! Well said. There are many people in this group who offer support, advice and a smack up the side of the head when necessary. I finish week 48 on Tuesday and if it were not for the fine folks in this group such as Sara, Elmo, KJ, Dort, Greyhackles, Russ, Eileen, Thip,Stretch, Dwight, Thomas, Canadave, Waterspider and many many more (too brain fogged to remember) Everyone in here has something to offer. If you are taking treatment you might want to hang in here and it will help you. We do overlook riba rages! Mags life is the positive point Sara wrote: And who are you to judge this group from the few posts you have read? and for what it's worth, Elmo is one of the MOST caring folks in this group -- and if you read his stuff for a while you'll see how much he really does care about ALL of us. He's our rock. He keeps us laughing. Laughing is a good thing :) He has a way of making fun of himself and of us, that makes us realize what is really important in this life. Sara <silkunicorn@gmail.com> wrote in message news:1156004399.727241.62380@b28g2000cwb.googlegroups.com... Well, you are sure full of positive feelings, love and caring. The way you response to my post, I just wonder how caring are you! And don't forget, this is a free country, if I want to come to any forum, I'm free to do so. AND, if I want to express any of my opinion, I'm free to do so as well. Why are you to judge me! elmoemerson@webtv.net wrote: Any Poisitive Points? Group: alt.support.hepatitis-c Date: Fri, Aug 18, 2006, 9:32pm (CDT-2) From: silkunicorn@gmail.com Hi, I have just started Neupogen and will be on 3 times a week. I came to this forum to find more information but mostly I found are negative comments. All the side effects, aching bones and feeling sick. It just made me more depressed and it's not my intention to come to this forum. Doesn't anyone has any positive things to say about Neupogen, how much it has helped you, etc.? Aren't we supposed to cheer each other up instead of making others feel depressed? Thomas ////////////// Wellllll....if it wasn't your 'intention', then why in the hell are you here? You accidently typed a message and hit the wrong button and sent it? :-) If the posts in this forum make you depressed, then you need a good anti-d. This place is full of love and a source of great support, as well as a reservoir of information and experience you won't find anywhere else. Quit complaining and sit down and listen for awhile. Neupogen is good. :-) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Please Elmo, not in the same sentence! cj ============ Don't forget CJ and Doogie Doo!! elmo ////////// See I needed a slap up the side of the head - thanks Elmo and sorry CJ and Doogie doo! Mags is it Tuesday yet > Please Elmo, not in the same sentence! > cj ============ > > Don't forget CJ and Doogie Doo!! > elmo > ////////// > See I needed a slap up the side of the head - thanks Elmo and sorry CJ > and Doogie doo! > > Mags > is it Tuesday yet that's okay mags, got my fingers crossed for you. doogie doo > Please Elmo, not in the same sentence! > cj ============ sacre bleu, pepe le peu! don't boof in my direction doogie Aw..... c'mon, CJ. You know you love Doogie too. The guy's got a heart of gold. elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum He's our rock. Sara ////////// Is that why they tell me I've got rocks in my head? elmo stoned http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum On Sat, 19 Aug 2006 12:54:25 -0400, "Sara" <puffler@wowway.com>, in message ID <PfSdnQ8Ng7ja33rZnZ2dnUVZ_r2dnZ2d@wideopenwest.com>, in the newsgroup alt.support.hepatitis-c wrote: >And who are you to judge this group from the few posts you have >read? [quoted text clipped - 5 lines] >making fun of himself and of us, that makes us realize what is >really important in this life. Too right. Elmo is so caring that he goes into old peoples' homes and gives viagra to the old men so they don't roll out of bed. Re: Any Poisitive Points? Group: alt.support.hepatitis-c Date: Sat, Aug 26, 2006, 5:43pm (CDT+6) From: dontspamme@westgreen.freeserve.co.uk (Paul) On Sat, 19 Aug 2006 12:54:25 -0400, "Sara" <puffler@wowway.com>, in message ID <PfSdnQ8Ng7ja33rZnZ2dnUVZ_r2dnZ2d@wideopenwest.com>, in the newsgroup alt.support.hepatitis-c wrote: And who are you to judge this group from the few posts you have read? and for what it's worth, Elmo is one of the MOST caring folks in this group -- and if you read his stuff for a while you'll see how much he really does care about ALL of us. He's our rock. He keeps us laughing. Laughing is a good thing :) He has a way of making fun of himself and of us, that makes us realize what is really important in this life. Too right. Elmo is so caring that he goes into old peoples' homes and gives viagra to the old men so they don't roll out of bed. ///////// Yep....I still haven't figured out how to keep the little old ladies in bed, tho. Maybe get em each a 'strap on' and make em wear it. :-) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum I was merely giving my opinion on your negative comments that you really didn't intend to post in our forum and that we depressed you. Like you said, it's a free country and you can post negative comments anywhere you like. Anyway, I empathize with you that the Neupogen is making your bones ache. I never had to do the stuff, but I've done quite a bit of Procrit. You are fortunate to have the opportunity to get Neupogen, that it will hopefully help you enough that your doc won't reduce your tx drug dosages and you'll get your SVR. Welcome to the forum. Got your toga on? elmo /////////// Well, you are sure full of positive feelings, love and caring. The way you response to my post, I just wonder how caring are you! And don't forget, this is a free country, if I want to come to any forum, I'm free to do so. AND, if I want to express any of my opinion, I'm free to do so as well. Why are you to judge me! elmoemerson@webtv.net wrote: Any Poisitive Points? Group: alt.support.hepatitis-c Date: Fri, Aug 18, 2006, 9:32pm (CDT-2) From: silkunicorn@gmail.com Hi, I have just started Neupogen and will be on 3 times a week. I came to this forum to find more information but mostly I found are negative comments. All the side effects, aching bones and feeling sick. It just made me more depressed and it's not my intention to come to this forum. Doesn't anyone has any positive things to say about Neupogen, how much it has helped you, etc.? Aren't we supposed to cheer each other up instead of making others feel depressed? Thomas ////////////// Wellllll....if it wasn't your 'intention', then why in the hell are you here? You accidently typed a message and hit the wrong button and sent it? :-) If the posts in this forum make you depressed, then you need a good anti-d. This place is full of love and a source of great support, as well as a reservoir of information and experience you won't find anywhere else. Quit complaining and sit down and listen for awhile. Neupogen is good. :-) elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum Yeah, what they said. Show us your unicorn. kj I don't even know what Neupogen is, so I can't answer that but I can answer why you are seeing "negative" commnets. It's mostly because, I am new here and not on tx and have been asking a lot of questions about side effects and these good people are answering me with their honesty and yes, their compassion and encouragement. The side effects do sound depressing but the fact remains they are there but these people have pulled through it and I believe should I take tx, they would help me through it. I wish you the best in your tx. Barbara > Hi, I have just started Neupogen and will be on 3 times a week. I came > to this forum to find more information but mostly I found are negative [quoted text clipped - 5 lines] > > Thomas > Hi, I have just started Neupogen and will be on 3 times a week. I came > to this forum to find more information but mostly I found are negative [quoted text clipped - 5 lines] > > Thomas Hey Thomas - I'm on neupogen and I usually feel bad after the first shot of hte week, but not the second (go figure), but my doc doesn't even think my feeling bad is from the neupogen (and my friends that are nurses say it's not supposed to make you feel bad). It should make you feel better when your white count gets more normalized. It's not as bad as the interferon that's for sure. Someone mentioned that the needles suck for the neupogen and I agree. I got these things that you put into the neupogen bottle (instead of using the needle to draw it out) and then draw the med up into the syringe with it and then put the needle on. It's called a "interlink vial access cannula", so see if you can get those. The other thing is it hurts more to inject (at least for me), I think because it's thick, so I found out you're supposed to inject it real slow - up to a minute and a half - and that makes it not hurt. I did it that way last night and it was much, much better. The positive thing about neupogen is it will get your white count up and you should feel better or at least you won't get some other infection because your white blood cells can't fight off infection. I think it's a good thing. The other thing is > it hurts more to inject (at least for me), I think because it's thick, > so I found out you're supposed to inject it real slow - up to a minute > and a half - and that makes it not hurt. I did it that way last night > and it was much, much better. Yeah, it stings that is for sure! Thanks for the tip, I am going to give it a try on Monday. I didn't realize it was thicker, I figured it was because I was injecting a full ml. The aranesp hurts too but nothing like the Neup. Ally Re: Any Poisitive Points? Group: alt.support.hepatitis-c Date: Sat, Aug 19, 2006, 10:09am (CDT-2) From: 4thMoon@gmail.com (Ally) Di Di wrote: The other thing is it hurts more to inject (at least for me), I think because it's thick, so I found out you're supposed to inject it real slow - up to a minute and a half - and that makes it not hurt. I did it that way last night and it was much, much better. Yeah, it stings that is for sure! Thanks for the tip, I am going to give it a try on Monday. I didn't realize it was thicker, I figured it was because I was injecting a full ml. The aranesp hurts too but nothing like the Neup. Ally //////// Perhaps if after you draw up your injection, you let it warm up really well by rolling the syringe back and forth in the palms of your hands for a minute, it won't sting quite as much when you inject it. Give it a try....what a ya have to lose? elmo http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > Perhaps if after you draw up your injection, you let it warm up really > well by rolling the syringe back and forth in the palms of your hands > for a minute, it won't sting quite as much when you inject it. Give it > a try....what a ya have to lose? > elmo Thanks Elmo, I will definitley give that a try too. So on Monday I'll be rolling, warming and waiting, lol. ;-) Ally > The other thing is > > it hurts more to inject (at least for me), I think because it's thick, [quoted text clipped - 8 lines] > > Ally Ally - I was thinking it was thicker when I first injected it, cuz I had such a hard time getting those damn bubbles out of the syringe. But my best friend is a nurse who works in an outpatient treatment center (and she injects stuff like neupogen) and she just told me last night to do it real slow, that where she works, they go by what the patient tells them - if it hurts, they go even slower. We were trying to do it fast to get it over with! Di Smiling Wickedly, silkunicorn@gmail.com answered: > Hi, I have just started Neupogen and will be on 3 times a week. I came > to this forum to find more information but mostly I found are negative [quoted text clipped - 5 lines] > > Thomas Thomas, I don't have any experience with neupogen, but I will say this. Everything I went through, was worth it. I was a genotype 3a, and should have done the 24 week regimen. BUT, unfortunately I was a slow responder, and didn't clear at 24 weeks. That being said, apparently I have a BCLD that has a brain, and he said "what the f.ck, I know you can do it mike" and he had me continue for the whole 48 weeks. Actually because of sheduling snafu's I actually did 52 weeks of the sh.t. Not only did I clear, I got my SVR, and am now feeling GREAT. Don't get me wrong, I have some ups and downs, every so often I feel run down etc.. I'm thinking it may STILL be my Immune system recovering from all the TX meds pumped into me. After all, they STILL don't really know what exactly ALL the things that stuff does to us. I guess my point being... Don't be afraid, you can do it. and once completed, you'll be glad you did.  Signature*..· ´¨¨)) ¸.·´ .·´¨¨)) ((¸¸.·´ .·´-:¦:-((¸¸.·´(º·.¸(¨*·.¸ ¸.·*¨)¸.·º) «.·°·. Michael .·°·-:¦:- |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.