Hi, new here. I just thought I might take a minute to share my
thoughts. I am on week 4, I went to the doctor a couple of months ago
for high cholesterol, a few blood tests later and all of a sudden I
don't belong to my body anymore. Last week I thought I was doing
better until I took my 4th shot Wednesday night. I am a contractor and
had concrete scheduled for Thursday morning, I don't know what I was
thinking but the rest of Thursday really sucked. I am used to physical
work everyday and now I find that I can exert myself for about ten
minutes and I am wiped out. I feel that if I could just literally crawl
out of my skin I would feel ok. Luckily I have 2 employees right now
but I seem to be having a hard time trying to keep up with what they
are doing. I show up to work and do my best to help but they keep
telling me to go home and don't worry about things. Ok, so I go home,
now what the hell am I suppose to do? Stare at the wall? Watch CNN? I
know I'll work in the yard, that's great until I bend over to pick
something up. Whoa, I'm tired I better go back inside. My wife is
very understanding but she is also an ER nurse and maybe not quite as
compassionate as my delusional mind thinks she could be. So, how am I
doing so far, does it sound like I am going to breeze right through
this? I think so, no problem.
Paul - 15 Jul 2006 06:54 GMT
On 14 Jul 2006 19:07:57 -0700, "Jeffrey" <Jeffrey98837@gmail.com>, in
message ID <1152929277.819792.174530@m79g2000cwm.googlegroups.com>, in
the newsgroup alt.support.hepatitis-c wrote:
>Hi, new here. I just thought I might take a minute to share my
>thoughts. I am on week 4, I went to the doctor a couple of months ago
[quoted text clipped - 16 lines]
>doing so far, does it sound like I am going to breeze right through
>this? I think so, no problem.
Hard to say how you're going to do on tx as it's early days. It's
hard to accept the inactivity when you are used to being active but
that's exactly how those tx drugs can be. I used to get fatigued just
by thinking too hard. You'll probably need to pursue interests that
are less physically demanding by the sound of it.
It may sound a bit corny but I sometimes spent an idle hour or two
feeding the ducks in the park or reading a book if my concentration
levels were up to it. There is a price to pay for getting rid of this
disease but if used positively, you can discover things about yourself
that you never knew before (such as feeling angry because the person
behind you wants to walk faster than you or the idiot in front dared
to brake at red traffic lights :-) ). Yes I know it's hard when you
feel unwell. I had a bumpy ride at times too.
elmoemerson@webtv.net - 15 Jul 2006 15:15 GMT
Hey, Jeffrey! Welcome to the group. Sounds like you're having a pretty
normal response to the meds, side effect wise, to this point. Don't
expect to feel any more energetic than you do now, it'll probably get
harder, especially since you're doing physical labor. Drink a whole lot
of water at work and take naps in your truck if it gets too bad. I know
it sounds ridiculous, but you'll know where I'm coming from soon enough.
Best of luck to you and keep the concrete coming. Stick around and
whine with Puckertoe for awhile. :-)
elmo
http://community.webtv.net/elmoemerson/DocElmosHepFile
http://community.webtv.net/elmoemerson/TheFamilyAlbum
Ally - 15 Jul 2006 18:28 GMT
Wow, I don't know how you can work on this stuff but good luck, I know
that some do. The exhaustion in the beginning was way too much for me.
I would go to the gym, stop by Panera's and drink 2 cups of their
strongest coffee in hopes of actually doing something for the day then
go back home to bed to sleep for several hours. I complained to my Dr
that I was sleeping all day long everyday and she gave me something
called Provigil. I highly recommend it if you can get it. It was
originally created for ppl who have sleep apnea but works wonderfully
for this. Not only does it help me stay awake when I need to but cuts
right thru the brain fog so I can, imagine this, have an intelligent
conversation.
Ally
Burke Gilman - 15 Jul 2006 18:59 GMT
> Hi, new here. I just thought I might take a minute to share my
> thoughts. I am on week 4, I went to the doctor a couple of months ago
[quoted text clipped - 16 lines]
> doing so far, does it sound like I am going to breeze right through
> this? I think so, no problem.
Jeffrey,
Good of you to bust that denial about having a delusional mind now. I
got used to it after the first weeks, the problem with taking myself
seriously at a time when I shouldn't be taking myself so seriously.
I'm at shot 16 now, and I remember it was most difficult to adjust to
role-performance issues when the side effects kicked in during the
first weeks. I felt better when I learned to do other things, even if
that meant just doing less. By the way, it was and remains important to
separate mental anxiety from the actual weakness and fatigue, because
one is not necessarily the cause of the other.
I think you are doing well. You are aware that you not only are not up
to speed physically, but also appreciably impaired emotionally. Thus,
you are in a good position to adapt to what comes. That said, I don't
think you will find the experience to be like a breeze. For what its
worth, my fatigue really kicked in around the 4th shot too. After that,
there have been episode when things got worse. Those episodes resolved
after a few days each, but I can't say I breezed through it as the
experience was more like wading knee-deep through a pile of bricks
while puking my guts out.
Anyway, you are aware that 10 minutes of physical work, or whatever
exercise you get, is a good thing. Keep doing it. Know that you are not
playing games here, and keep foremost in your working mind that you are
engaged in a regimen of intensive antiviral chemotherapy that could be
the biggest job you've ever taken on. Your pursuit of the goal to save
your liver takes a lot, so much, in fact, that other projects may just
have to get out of the way.
You will continue to adapt.
- BG
Jeffrey - 15 Jul 2006 21:24 GMT
Thank all of you for your encouraging words. It is nice to be able to
come in here and realize that I am not doing this alone.
Sourdo - 19 Jul 2006 10:21 GMT
>Ok, so I go home,
> now what the hell am I suppose to do? Stare at the wall?
about what I did for months. Movies sometimes, mostly just stared out the
window waiting for night.
I lasted 3 months working construction. After that no way. I was just too
wasted. Sounds like the animea is catching up with you. Perhaps try a little
more time in the pickup truck and less working. You can still manage your
job for a bit without the physical labor.
Best of luck, it will probably get worse so take it easy ok? You'll make it.

Signature
Russ
http://www.tannersacre.com
sourdo55 at yahoo.com
> Hi, new here. I just thought I might take a minute to share my
> thoughts. I am on week 4, I went to the doctor a couple of months ago
[quoted text clipped - 16 lines]
> doing so far, does it sound like I am going to breeze right through
> this? I think so, no problem.