Medical Forum / Diseases and Disorders / Hepatitis / July 2006
Considering giving up on Tx.
|
|
Thread rating:  |
ChefX - 08 Jul 2006 22:43 GMT I've been doing pretty wee so far on tx, I just took my 13th shot and am awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, VL945,000). I had been feeling damn good about things until all at once everything changed. I won full custody of my kids (daughter 6, son 4) I had to drive 800miles each way in two days to retrieve them, that ordeal took more out of me than I was expecting. and last week my Dr. increases my riba dose to 1600mg/day. All these responsabilities and I'm really feeling the sides now. I just don't know if this is the right time for me to be on tx. I couldn't keep up w/ the kids before tx, how am I supposed to do it now???
ChefX
Puckertoe - 09 Jul 2006 00:37 GMT That's going to be really tough ChefX.
You'd be surprised at what you can do even under your conditions. I suspect that once your paternal instincts kick in that the tx won't be that bad.
I think you can stick it out. It won't be easy. I'd hate to see you regret it later.
> I've been doing pretty wee so far on tx, I just took my 13th shot and am > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 11 lines] > > ChefX anonymousone - 09 Jul 2006 00:40 GMT > That's going to be really tough ChefX. > [quoted text clipped - 12 lines] > > of > > me than I was expecting. and last week my Dr. increases my riba dose to
> > 1600mg/day. All these responsabilities and I'm really feeling the sides > > now. [quoted text clipped - 3 lines] > > > > ChefX Hows your Liver?
ChefX - 09 Jul 2006 00:57 GMT > > That's going to be really tough ChefX. > > [quoted text clipped - 23 lines] > > Hows your Liver? AST 79 ALT 85
NTB???
anonymousone - 10 Jul 2006 04:48 GMT > > > That's going to be really tough ChefX. > > > [quoted text clipped - 35 lines] > > NTB??? In my opinion, you need a liver biopsy. You cant make an informed decision without knowin the condition of your liver. VX-950 is coming on strong. I would have waited if I could have, but stage 3 liver disease did not allow for it.
ChefX - 10 Jul 2006 13:24 GMT I did have a biopsy, Stage 2, grade 2 But at the time(before tx) my enzymes were off the chart... AST 179 ALT 300 BTW... I will NEVER have another biopsy..... I'm a recovering drug addict, and in my moment of holier than tho'ism. I refused any narcotics or sedatives. Basically, I got stabbed in the liver twice as clear headed as could be. NOT something I recommend by the way. My advice (dare I dispense any) TAKE THE DAMN DRUGS!
> > > > That's going to be really tough ChefX. > > > > [quoted text clipped - 40 lines] > on strong. I would have waited if I could have, but stage 3 liver > disease did not allow for it. anonymousone - 10 Jul 2006 14:31 GMT > I did have a biopsy, Stage 2, grade 2 > But at the time(before tx) my enzymes were off the chart... [quoted text clipped - 58 lines] > > on strong. I would have waited if I could have, but stage 3 liver > > disease did not allow for it. In that case, I would opt for continuing treatment. You'll work out the details somehow. Your children need somebody alive not dead.
Paul - 10 Jul 2006 14:38 GMT On Mon, 10 Jul 2006 08:24:07 -0400, "ChefX" <ChefTomAnson@insightbb.com>, in message ID <1NednUNep5IW2i_ZnZ2dnUVZ_u-dnZ2d@insightbb.com>, in the newsgroup alt.support.hepatitis-c wrote:
>I did have a biopsy, Stage 2, grade 2 >But at the time(before tx) my enzymes were off the chart... [quoted text clipped - 6 lines] >NOT something I recommend by the way. My advice (dare I dispense any) TAKE >THE DAMN DRUGS! Oh dear. I'm in the same position as you. Didn't anyone mention that a local anasthetic needn't get you stoned? I had a local and it numbed the area beautifully. Didn't feel the tiniest bit mood altered (stress excepted). I've had teeth pulled as well after my years of self neglect were over. Never got stoned once - damned dentist :-)
Waterspider - 11 Jul 2006 08:23 GMT > On Mon, 10 Jul 2006 08:24:07 -0400, "ChefX" > <ChefTomAnson@insightbb.com>, in message ID [quoted text clipped - 14 lines] > > Oh dear. I'm in the same position as you. No, no and no.
Burke Gilman - 10 Jul 2006 18:48 GMT > I did have a biopsy, Stage 2, grade 2 > But at the time(before tx) my enzymes were off the chart... [quoted text clipped - 58 lines] > > on strong. I would have waited if I could have, but stage 3 liver > > disease did not allow for it. Those improved AST and ALT levels indicate inflammation is down, but where does it say that we can reasonably draw correlations to SVR based on those liver enzyme levels? Seems to me that what matters as far as forecasting goes is the very early virological response that you have!
In my opinion, to keep pointing at the improved liver enzyme levels is to keep reaching for denial. You might as well be saying the moon is in the seventh house. Such musings may entertain, depending upon your personal disposition, but they are no rationale to stop treatment.
You know the fight is not over because the battle plans are already drawn and you know those plans are based on solid intelligence gained by the fate of those who have gone before you. From this you know the rule: Those who strike upon the dragon a deadly blow are those who go the distance.
To be sure, one day you can look yourself in the mirror and know you did all you can.
One day at a time.
- BG
Richard Klein - 10 Jul 2006 19:19 GMT I'm a recovering drug addict too. I woke up from my biopsy with no recall of the feelings associated with the sedative. I don't think there is any risk of relapse related to the sedative they use during surgery. At least there wasn't any with me.
>I did have a biopsy, Stage 2, grade 2 > But at the time(before tx) my enzymes were off the chart... [quoted text clipped - 58 lines] >> on strong. I would have waited if I could have, but stage 3 liver >> disease did not allow for it. anonymousone - 10 Jul 2006 14:33 GMT > > > > That's going to be really tough ChefX. > > > > [quoted text clipped - 40 lines] > on strong. I would have waited if I could have, but stage 3 liver > disease did not allow for it. Stupid Doctors btw. Why the would allow someone to undergo a biopsy wthout a local is beyond me.
Burke Gilman - 10 Jul 2006 19:41 GMT > > > > > That's going to be really tough ChefX. > > > > > [quoted text clipped - 43 lines] > Stupid Doctors btw. Why the would allow someone to undergo a biopsy > wthout a local is beyond me. Anonymouse,
Please note the biopsy procedure as it was done was performed with success and safety, and that it would have been battery to administer that local without consent.
-BG
Abby - 10 Jul 2006 16:42 GMT > > > That's going to be really tough ChefX. > > > [quoted text clipped - 35 lines] > > NTB??? My AST = 99 ALT = 72
Burke Gilman - 09 Jul 2006 01:43 GMT > I've been doing pretty wee so far on tx, I just took my 13th shot and am > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 8 lines] > > ChefX Now that, I dare say, is a true problem -- how to continue to cope with Tx sides while at once adapting your household and behavior to accomodate a young daughter and son.
I hope you don't have to give up Tx, but imagine the idea must present quite a dilemna for you, given the choice of giving up Tx to take care of your kids or not giving up Tx -- to take care of your kids.
My son is now 19, and I got custody when he was 6, as things turned out back then. Now I'm on Tx, and gotta say I'm glad that I did not go through Tx when my son was 6. At the same time, I recall that young children can be incredibily understanding of caregiving adults who are sick.
Can you find and/or afford a regular nanny or household assistant to help keep your responsibilities to a tolerable level while you continue with Tx?
- BG
ChefX - 09 Jul 2006 13:13 GMT Hell no I can't afford a nanny(Oh to dream the impossible dream...) I'm only 35yo I have been a chef all of my adult life, (hell I've been cooking longer than I've been f***ing). If it wasn't for the minimal assistance I get from my family and state resources, I'd be in a shelter. What I need is an independently wealthy, attractive young single mother who's lookin' for a babies daddy...Any Takers????? I do cook...
Feeling a bit better today, maybe I have simply been knocked out of my comfortable equilibrium....
Thanx for the support, ChefX
> > I've been doing pretty wee so far on tx, I just took my 13th shot and am > > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 28 lines] > > - BG Paul - 09 Jul 2006 12:18 GMT On Sat, 8 Jul 2006 17:43:28 -0400, "ChefX" <ChefTomAnson@insightbb.com>, in message ID <39WdndHzFK3Rui3ZnZ2dnUVZ_qadnZ2d@insightbb.com>, in the newsgroup alt.support.hepatitis-c wrote:
>I've been doing pretty wee so far on tx, I just took my 13th shot and am >awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 8 lines] > >ChefX Yeah I believe ya. I remember doing a 150 mile drive while on tx and that wiped me out. Also, it sounds like you may need help with those kids - at least until tx has been over for a few weeks. I don't understand where your doc is coming from - though obviously he knows more about you than I do. The tx sounds like it's working really well and he/she has upped the riba dose. I thought the usual maximum was 1200mg a day (6 pills). I see your virus is undetectable in under 4 weeks. Some places try for a shorter tx when this happens. Is the doc hoping to do a shorter tx with you than the standard 48 weeks? That's the only possible reason I can think of for upping the riba and, even then, it may not be of benefit.
ChefX - 09 Jul 2006 13:25 GMT Well, I asked about shortening the tx to 24 wks, he and his "boss" who happens to be the dir. of liver disease research here at the university hospital I goto decided it wasn't worth the risk. Again, I am eagerly awaiting the results of my 12 wk labs. If I'm still Undetectable, we may revisit the concept of shortening tx. As for the high dose riba, I'm a big guy, 6'7" 258lbs.(117kgs for you euro types) and I'm not very obese.I'm down about 32lbs since I began tx. My Dr. told me that the max dose of riba (and most meds.) is weight-based. So my max dose is about 1578mg/day. He also told me that the riba is what keeps the virus from returning (replicating). I'ts been 10 days at this new dose and if the sides don't balance back out soon I'm going back to 1400mg.
ChefX
> On Sat, 8 Jul 2006 17:43:28 -0400, "ChefX" > <ChefTomAnson@insightbb.com>, in message ID [quoted text clipped - 25 lines] > weeks? That's the only possible reason I can think of for upping the > riba and, even then, it may not be of benefit. Paul - 09 Jul 2006 13:58 GMT On Sun, 9 Jul 2006 08:25:57 -0400, "ChefX" <ChefTomAnson@insightbb.com>, in message ID <NJCdnROIOLymay3ZnZ2dnUVZ_vudnZ2d@insightbb.com>, in the newsgroup alt.support.hepatitis-c wrote:
>Well, I asked about shortening the tx to 24 wks, he and his "boss" who >happens to be the dir. of liver disease research here at the university [quoted text clipped - 9 lines] > >ChefX I'm inclined to agree that shortening the tx to 24 weeks is too risky. I feel that tx should only be shortened if it's medically or psychiatrically impossible to continue. Your bodyweight may well be the reason for upping the dose - though I had always believed the absolute maximum to be 1200mg a day regardless of weight. Anyway, as you say,if it gets too much you can always drop down a pill or two.
elmoemerson@webtv.net - 09 Jul 2006 13:29 GMT Whatever you do, ChefX, DON'T stop tx!! You've got the dragon on the run....it'd be crazy to stop now. Get help with the children from wherever you can get it. It's not going to be easy raising kids while on tx, but you CAN do it. You'll find the inner strength you need. elmo
http://community.webtv.net/elmoemerson/DocElmosHepFile
http://community.webtv.net/elmoemerson/TheFamilyAlbum
Paul - 09 Jul 2006 13:59 GMT On Sun, 9 Jul 2006 07:29:56 -0500, elmoemerson@webtv.net, in message ID <19261-44B0F6C4-377@storefull-3254.bay.webtv.net>, in the newsgroup alt.support.hepatitis-c wrote:
>Whatever you do, ChefX, DON'T stop tx!! You've got the dragon on the >run....it'd be crazy to stop now. Get help with the children from >wherever you can get it. It's not going to be easy raising kids while >on tx, but you CAN do it. You'll find the inner strength you need. >elmo Yeah. What he said.
ChefX - 09 Jul 2006 16:04 GMT Thanks Elmo...
> Whatever you do, ChefX, DON'T stop tx!! You've got the dragon on the > run....it'd be crazy to stop now. Get help with the children from [quoted text clipped - 5 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum john - 10 Jul 2006 01:27 GMT Hi Chefx, I must be one of the lucky ones.2nd tx and i commute 120 miles a day 5days a week. You must be a real big guy too get 1600m of rib.i am only doing 1200m.Slay the dragon and do the best you can.youll get thru it.best wishes. john...........................
> On Sat, 8 Jul 2006 17:43:28 -0400, "ChefX" > <ChefTomAnson@insightbb.com>, in message ID [quoted text clipped - 25 lines] > weeks? That's the only possible reason I can think of for upping the > riba and, even then, it may not be of benefit. pajaritaflora - 09 Jul 2006 15:07 GMT > I've been doing pretty wee so far on tx, I just took my 13th shot and am > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 8 lines] > > ChefX imho I don't think you should give up either. Kids will be difficult I'm sure, but there is also some inate ability that they have to be cool when it is absolutely most needed.....maybe not always when you "want " them to. I'm sure that ride to get them sucked, but that part is over and you made it through....on to the next challenge.:).....Do they know how to make sandwiches yet? That will be helpful.
Mary Ann
Richard Klein - 09 Jul 2006 16:44 GMT You owe it to yourself and your kids to continue with the TX. If you don't see it through to the end you risk ending up with a virus in your body that has built up a bit of tolerance to the TX and would be harder to eliminate if you decide to try again.
> I've been doing pretty wee so far on tx, I just took my 13th shot and am > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 11 lines] > > ChefX brian - 09 Jul 2006 16:52 GMT > I've been doing pretty wee so far on tx, I just took my 13th shot and am > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 11 lines] > > ChefX If there is anything that I can do to help you let me know.I don't have kids but many of my single friends do.So I kind of understand the ordeal of raising them alone.I can't imagine doing it on tx.You know what's best for you,but try not to make any decision without a clear head.What is your BCLD's opinion? I didn't make it to last weeks meeting.I had a 3:40 doc appt.Hopefully I'll be there next month.
Peace, BrianD
Waterspider - 09 Jul 2006 20:59 GMT > I've been doing pretty wee so far on tx, I just took my 13th shot and am > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 9 lines] > I couldn't keep up w/ the kids before tx, how am I supposed to do it > now??? DO NOT GIVE UP!
We're talking about the rest of *your life* here, Cheffie, not just the few mere months of remaining treatment, and if you were undetectable at four weeks you're in damn fine shape! You'll find a way to do it, maybe with the help of a friend or neighbour, maybe with the help of social services or maybe with some strenght inside you that you'll never know exists until you call on it. Finishing tx is not only the smartest thing you can do right now but, in the long term, the absolute best thing you can do for your kidlets.
Try it this way: come shot day, decide if you can do just one more, or not. If not, do it anyway cuz you can always pack it in the next week. Yeah, it's a silly head game, but it got me through treatment (which worked) and my life has never been finer.
One day at a time.
Waterspider
Richard Klein - 10 Jul 2006 02:12 GMT You owe it to yourself and your kids to continue with the TX. If you don't see it through to the end you risk ending up with a virus in your body that has built up a bit of tolerance to the TX and would be harder to eliminate if you decide to try again.
> I've been doing pretty wee so far on tx, I just took my 13th shot and am > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 11 lines] > > ChefX Sourdo - 10 Jul 2006 07:48 GMT take a deep breath, saddle up, cowboy up, pull up your boots, grip a little harder, and keep going man. One day at a time man. Talk to your kids, let them know your having a tough time, they are smarter then you think.
Best of luck to you, I know how it is.
 Signature Russ
http://www.tannersacre.com sourdo55 at yahoo.com
> I've been doing pretty wee so far on tx, I just took my 13th shot and am > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 8 lines] > > ChefX Sourdo - 10 Jul 2006 07:48 GMT take a deep breath, saddle up, cowboy up, pull up your boots, grip a little harder, and keep going man. One day at a time man. Talk to your kids, let them know your having a tough time, they are smarter then you think.
Best of luck to you, I know how it is.
 Signature Russ
http://www.tannersacre.com sourdo55 at yahoo.com
> I've been doing pretty wee so far on tx, I just took my 13th shot and am > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 8 lines] > > ChefX ChefX - 10 Jul 2006 13:28 GMT Thanx everyone, I really needed to hear that stuff. I'm feeling much more positive today. As WS said, just like everything else in my life, gotta take it one day at a time.( I have a nagging tendency to forget that sometimes.;-)
Damn the Dragon! Save the Empire!!!
> take a deep breath, saddle up, cowboy up, pull up your boots, grip a little > harder, and keep going man. One day at a time man. Talk to your kids, let [quoted text clipped - 22 lines] > > > > ChefX Stretch - 11 Jul 2006 19:43 GMT > I've been doing pretty wee so far on tx, I just took my 13th shot and am > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 8 lines] > > ChefX er, why did your doc up your does to 1600? what changed?
ChefX - 11 Jul 2006 20:39 GMT > > I've been doing pretty wee so far on tx, I just took my 13th shot and am > > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 10 lines] > > > er, why did your doc up your does to 1600? what changed? I had hardly any sides, I'm big and was undetectable @4wks.
greyhackles - 11 Jul 2006 21:20 GMT >> > I've been doing pretty wee so far on tx, I just took my 13th shot and am >> > awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 13 lines] > >I had hardly any sides, I'm big and was undetectable @4wks. With all due respect to the treating physician, that makes no sense at all.
It's as if he's measuring effectivity by the degree of side effects, instead of recognizing that you *already* did the heavy lifting, as measured by viral load, and now you should be cruising at whatever levels you were at for the first 12 weeks, for the rest of your journey...
Cheers
/greyhackles
Stretch - 12 Jul 2006 01:03 GMT >>>>I've been doing pretty wee so far on tx, I just took my 13th shot and am >>>>awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, [quoted text clipped - 24 lines] > > /greyhackles Agreed. Never heard of this method. Your doctor is a hack.
Cactus Jammies - 12 Jul 2006 02:01 GMT It seems to me from what I've read that the standard weight based dosage that Phizer et al set out on the market underappreciated the fact that many of us do not fit in the constraints of the weight catagories. Many of us are not spot on their BMI numbers. Like me. Many, and I know two, are under and it damn near rubs them out. It was my concern when the treatment was laid out for me, and I was told not to worry about it, but I was on the Orange dosage, which at the time was six caps a day. I thought then that because of my outside the boundaries physical size that I would not be successful. And I was right although perhaps not for that reason. Now that the numbers are rolling back to the physicians, vis a vis the success rate at the rx dosage, they are venturing to add more riba and maybe even space out the IFN through the week, too. It will come to that I believe, subjective dosing, not off the shelf crap. hasta vx 950 or statins or whathaveyou. combo tx can and is a torture to many of us. I would not willingly go into a longer treatment cycle with that stuff. (pardon if I misquote the originals) His doctor is not a hack. he is trying to help ChefX succeed. Stretch, do you read any of the current Hepatology journals on line? It might be time for you to do that, imho.
cactus jammies ------------------------ "Stretch" <lonepawn@mail.com> wrote in message Greyhackles asked:
>>>>er, why did your doc up your does to 1600? what changed?
>>> ChefX replied.... >>>I had hardly any sides, I'm big and was undetectable @4wks. [quoted text clipped - 14 lines] >> /greyhackles > Agreed. Never heard of this method. Your doctor is a hack. greyhackles - 12 Jul 2006 02:59 GMT >"Stretch" <lonepawn@mail.com> wrote in message >Greyhackles asked: [quoted text clipped - 37 lines] >ChefX succeed. Stretch, do you read any of the current Hepatology journals >on line? It might be time for you to do that, imho. This is not the old fixed dosage vs weight based dosage argument revisited. I think that's been fairly well resolved in favor of WBD.
Some of us are well aware of recent studies showing elevated Ribavirin dosages beyond the standard weight-based dosage regimens provides incremental increases in SVR rates. I've made that point - when appropriate - quite often, as you are likely aware.
If you actually read such studies, what you usually see are patients that failed conventional therapy and/or slow responders to conventional therapy, going through for another try, not patients that are "super responders" on their first go-around using fairly standard weight-based dosage as is our ChefX.
The point remains: he was undetectable at week 4, and he's still undetectable at week 12. It makes no sense - nada, zilch, gesphincto - to be boosting his Ribavirin dosage *now*. At best, it's gilting the lily.
The good news is his blood work to this point is freakin' miraculous! It's like he isn't on treatment at all! So another 200 mg is unlikely to put him in the dumpster. But it's also not likely to help him at all...
Cheers
/greyhackles
Stretch - 12 Jul 2006 04:25 GMT > It seems to me from what I've read that the standard weight based dosage > that Phizer et al set out on the market underappreciated the fact that many [quoted text clipped - 40 lines] >> >>Agreed. Never heard of this method. Your doctor is a hack. No, he's a hack. He's experimenting where he should not be. If I hear that he's one of the top hep-c docs in the field and he increased the dosage based upon careful consideration then I might change my opinion. Until then, he's a hack.
ChefX - 12 Jul 2006 05:01 GMT > > It seems to me from what I've read that the standard weight based dosage > > that Phizer et al set out on the market underappreciated the fact that many [quoted text clipped - 45 lines] > dosage based upon careful consideration then I might change my opinion. > Until then, he's a hack. I'm certainly not going to defend the credentials, or judgment of my physician. As far as I'm concerned, the results speak for themselves. The way I understand the pharmicodynamics of the meds. Interferon mobilizes the immune system to destroy the virus cells. Ribavirin, inhibits the process by which the virus replicates. The logic works for me....Better too much than not enough.(my life's credo).
I'm fortunate enough to have a Dr. who respects me and my opinions/concerns enough to allow my course of treatment to be a collaborative effort.
If it ain't broke don't fix it.... ChefX
Cactus Jammies - 12 Jul 2006 16:37 GMT Hey stretch try this: http://clinicaloptions.cn/Hepatitis/Conference%20Coverage/Shanghai%202006.aspx
or if your Chinese isn't very good, then try this:
http://clinicaloptions.com/Hepatitis/Conference%20Coverage/Vienna%202006.aspx
clinical care options CCO the .cn stands for China. There is more out there. The lid appears to be off the standardized combo tx approach. Perhaps I was a little pointed in my remark about reading more up to date info. Did you ever think that using the IFN - Riba 48 week tx was written in stone for ever? I don't think it is. No slagging from this computer.
cheers
cactus jammies ==================
>> It seems to me from what I've read that the standard weight based dosage >> that Phizer et al set out on the market underappreciated the fact that [quoted text clipped - 46 lines] > based upon careful consideration then I might change my opinion. Until > then, he's a hack. Paul - 13 Jul 2006 08:40 GMT >>>Agreed. Never heard of this method. Your doctor is a hack. >> >No, he's a hack. He's experimenting where he should not be. If I hear >that he's one of the top hep-c docs in the field and he increased the >dosage based upon careful consideration then I might change my opinion. >Until then, he's a hack. The way I read Chefx's original post indicates that he *is* having a bit of trouble with some side effects - to the point where he was thinking of quitting tx. It's not clear if this has only happened since the riba dose increased. I understand where his doc is coming from (I think) but it does look like he is trying to fix something that isn't broken. I wouldn't call him a hack but it does look like he may be causing a bit of extra pain for what is almost certainly no extra gain. I could understand it better if he upped the dose for a patient who was clearing the virus more slowly.
Stretch - 12 Jul 2006 04:28 GMT > It seems to me from what I've read that the standard weight based dosage > that Phizer et al set out on the market underappreciated the fact that many [quoted text clipped - 40 lines] >> >>Agreed. Never heard of this method. Your doctor is a hack. "Stretch, do you read any of the current Hepatology journals on line? It might be time for you to do that, imho."
Oh, and BTW, go f.ck yourself.
elmoemerson@webtv.net - 12 Jul 2006 13:37 GMT Re: Considering giving up on Tx. Group: alt.support.hepatitis-c Date: Tue, Jul 11, 2006, 8:03pm (CDT+1) From: lonepawn@mail.com (Stretch) greyhackles wrote: On Tue, 11 Jul 2006 15:39:43 -0400, "ChefX" <ChefTomAnson@insightbb.com> wrote: "Stretch" <lonepawn@mail.com> wrote in message news:12b7sbbegikk5ff@corp.supernews.com... ChefX wrote: I've been doing pretty wee so far on tx, I just took my 13th shot and am awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, VL945,000). I had been feeling damn good about things until all at once everything changed. I won full custody of my kids (daughter 6, son 4) I had to drive 800miles each way in two days to retrieve them, that ordeal took more out of me than I was expecting. and last week my Dr. increases my riba dose to 1600mg/day. All these responsabilities and I'm really feeling the sides now. I just don't know if this is the right time for me to be on tx. I couldn't keep up w/ the kids before tx, how am I supposed to do it now??? ChefX er, why did your doc up your does to 1600? what changed? I had hardly any sides, I'm big and was undetectable @4wks. With all due respect to the treating physician, that makes no sense at all. It's as if he's measuring effectivity by the degree of side effects, instead of recognizing that you *already* did the heavy lifting, as measured by viral load, and now you should be cruising at whatever levels you were at for the first 12 weeks, for the rest of your journey... Cheers /greyhackles Agreed. Never heard of this method. Your doctor is a hack. <Stretch> ///////////// I don't think so. elmo
http://community.webtv.net/elmoemerson/DocElmosHepFile
http://community.webtv.net/elmoemerson/TheFamilyAlbum
elmoemerson@webtv.net - 12 Jul 2006 13:35 GMT Re: Considering giving up on Tx. Group: alt.support.hepatitis-c Date: Tue, Jul 11, 2006, 4:20pm (CDT+1) From: greyhackles@NOSPAMyahoo.com (greyhackles) On Tue, 11 Jul 2006 15:39:43 -0400, "ChefX" <ChefTomAnson@insightbb.com> wrote: "Stretch" <lonepawn@mail.com> wrote in message news:12b7sbbegikk5ff@corp.supernews.com... ChefX wrote: I've been doing pretty wee so far on tx, I just took my 13th shot and am awaiting my 12 week lab results, I was undetectable at 4 weeks, (Gn 1a, VL945,000). I had been feeling damn good about things until all at once everything changed. I won full custody of my kids (daughter 6, son 4) I had to drive 800miles each way in two days to retrieve them, that ordeal took more out of me than I was expecting. and last week my Dr. increases my riba dose to 1600mg/day. All these responsabilities and I'm really feeling the sides now. I just don't know if this is the right time for me to be on tx. I couldn't keep up w/ the kids before tx, how am I supposed to do it now??? ChefX er, why did your doc up your does to 1600? what changed? I had hardly any sides, I'm big and was undetectable @4wks. With all due respect to the treating physician, that makes no sense at all. It's as if he's measuring effectivity by the degree of side effects, instead of recognizing that you *already* did the heavy lifting, as measured by viral load, and now you should be cruising at whatever levels you were at for the first 12 weeks, for the rest of your journey... Cheers /greyhackles ///////// Chef's doc just wants to see him suffer, like everyone else. Or maybe his doctor realizes that Chef tolerates the medicine so well, that he can handle the higher dose. He probably knows that more is better when it comes to percentages and genotype 1 cases. Statistical advantage and all that rot. elmo
http://community.webtv.net/elmoemerson/DocElmosHepFile
http://community.webtv.net/elmoemerson/TheFamilyAlbum
|
|
|