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Medical Forum / Diseases and Disorders / Hepatitis / July 2006

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less days than my age

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mags - 06 Jul 2006 01:27 GMT
49 days to go - 7 shots.  Not sure how I can continue.  I seem to be
hanging on to a ledge by my fingertips.  Nuets dropped to .5 - now an
astonishing count of .8 and went back to full dosing of interferon
today (2 weeks at lower doses).  Increased my eprex to 40,000 weekly
from 10,000 and nothing has changed with my blood count - still remains
at 11.1 which is not good. I am not about to do cartwheels.  Hell I
couldn't push the cart.  I am very frightened that my brain will never
work again - this to me, is alarming when I seem to have a sane moment.


Mags
existing like a zombie
Dwight - 06 Jul 2006 01:51 GMT
> 49 days to go - 7 shots.  Not sure how I can continue.  I seem to be
> hanging on to a ledge by my fingertips.  Nuets dropped to .5 - now an
[quoted text clipped - 8 lines]
> Mags
> existing like a zombie

Hang in there, remember one day at a time. You're on the downhill slope
now. It's been almost two years since I ended my last round of tx and
I'm still wondering if my brain will ever return to normal (every one
around me is wondering as well). Good luck.

Dwight
mags - 06 Jul 2006 14:27 GMT
I replied to this but don't see it - wonder why?  Before I was
diagnosed with this I noticed problems thinking and remembering - I
thought it was aging.  I do believe now that it was a symptom on hep c.

Mags
hope those kids are on holidays Dwight - enjoy your summer
> > 49 days to go - 7 shots.  Not sure how I can continue.  I seem to be
> > hanging on to a ledge by my fingertips.  Nuets dropped to .5 - now an
[quoted text clipped - 14 lines]
>
> Dwight
kjoh - 06 Jul 2006 03:48 GMT
Hi Mags!  What can I say to reassure you except  that I know what you are
experiencing, and that your brain will return to normal. I know you can
finish tx because I did.  Imho, full dose combo tx is much harder for
women than men simply because of the amount of physical strength required
to endure a full year of chemical abuse.  So this is where you rely on
sheer grit, baby.

During tx my brain was so scrambled I was certain that I had lost my
marbles forever. I lost my ability to read paragraphs in the newspaper and
I couldn't understand the evening news or generate ordinary conversation at
a grocery store.

I got better.  During my recent trip to Portland I tested myself by
dragging myself out into unfamiliar environments and chatting with
strangers.  It went fine. My verbal and listening skills were as good as
ever, maybe better, because I paid more attention. I discovered that I
still think humans in general are a shallow and boring lot. I appreciate
them more though :-)  I know you are too tired now, but when but when you
get nearer the end of tx I will call you on the telly a few times, hear
you out, and tell you about how it was for me, and you will know that I am
telling the truth.  It will help you recover.  Honest. I have a new Verizon
cell phone with tons of international minutes.  So hang in there, brave
cookie.  Then end is in site.  Keep in touch via the snickerdoodle
channel, okay?

kj
mags - 06 Jul 2006 14:20 GMT
KJ I would love to chat.  I miss you girl.  I think you are right about
the strength issue.  I am a skeleton with skin (and boobs Elmo).
Muscle has wasted away from me.

Mags
can't remember who didn't have a brain in the W. of Oz

> Hi Mags!  What can I say to reassure you except  that I know what you are
> experiencing, and that your brain will return to normal. I know you can
[quoted text clipped - 22 lines]
>
> kj
pajaritaflora - 06 Jul 2006 04:22 GMT
> 49 days to go - 7 shots.  Not sure how I can continue.  I seem to be
> hanging on to a ledge by my fingertips.  Nuets dropped to .5 - now an
[quoted text clipped - 7 lines]
> Mags
> existing like a zombie

Hey Mags hang in there chickee. ...This part can suck. .....Been there,
done that and it still sucked. Your brain will fix itself later. It's a
long haul and you need not be worrying about anything but getting
there. I can dig on kj's comment about strength. I do believe it was
endurance and persisstance that got me through....and a needle and
thread so I could sit and still feel something of a human while I
stitched. There was no way I was pushing a cart but i could do the
smallest of things a step at a time and got some things done that I
thought would take more strength...I decided it came down to
persistance.

anyway chin up :)
(hug)
Mary Ann
elmoemerson@webtv.net - 06 Jul 2006 13:34 GMT
What they said, Mags!!  Your sanity will return after you finish
treatment.  Look at me, after all, I'm as sane as they come!!  And I did
3 rounds.  
Just think about how miserable you would have been if you hadn't had
your breast reduction surgery before starting tx.  It'd be REALLY hard
with huge boobs.  You probably improved your chances for SVR by lopping
those babies off too!  
I'm nominating you for 'Dragon Warrior of the Year'.  You're a shoe-in!
elmo
   

http://community.webtv.net/elmoemerson/DocElmosHepFile

http://community.webtv.net/elmoemerson/TheFamilyAlbum
mags - 06 Jul 2006 14:24 GMT
Well I had a good cry this morning and now I am crying with tears of
laughter.  Elmo your the best.

Mags
red shoe in i hope

> What they said, Mags!!  Your sanity will return after you finish
> treatment.  Look at me, after all, I'm as sane as they come!!  And I did
[quoted text clipped - 9 lines]
>
> http://community.webtv.net/elmoemerson/TheFamilyAlbum
elmoemerson@webtv.net - 06 Jul 2006 23:59 GMT
OH MY GOSH!!  Did you say 'red' shoes?  You have to know I LOVE girls
with red shoes.  If you weren't happily married, I'd be groping you left
and right.  You sure you don't want to dump your hubby and come hang out
with me?  I can ALWAYS appreciate a good woman with big boobs and red
shoes.  :-)
elmo
twitching britches  
////////////////
Well I had a good cry this morning and now I am crying with tears of
laughter. Elmo your the best.
Mags
red shoe in i hope
elmoemerson@webtv.net wrote:
What they said, Mags!! Your sanity will return after you finish
treatment. Look at me, after all, I'm as sane as they come!! And I did 3
rounds.
Just think about how miserable you would have been if you hadn't had
your breast reduction surgery before starting tx. It'd be REALLY hard
with huge boobs. You probably improved your chances for SVR by lopping
those babies off too!
I'm nominating you for 'Dragon Warrior of the Year'. You're a shoe-in!
elmo
http://community.webtv.net/elmoemerson/DocElmosHepFile
http://community.webtv.net/elmoemerson/TheFamilyAlbum

http://community.webtv.net/elmoemerson/DocElmosHepFile

http://community.webtv.net/elmoemerson/TheFamilyAlbum
mags - 06 Jul 2006 14:22 GMT
Thanks Mary Ann.  What is really throwing me here is changing my dose.
It is like day one all over again.

Mags
starting pity party very early today

> > 49 days to go - 7 shots.  Not sure how I can continue.  I seem to be
> > hanging on to a ledge by my fingertips.  Nuets dropped to .5 - now an
[quoted text clipped - 22 lines]
> (hug)
> Mary Ann
 
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