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Medical Forum / Diseases and Disorders / Hepatitis / June 2006Day After First Injection
I tried to respond to a post that had the same subject except I couldn't because it was over 30 days old. I have Hep C - Genotype 3 and I don't know how many viral loads or whatever. I could use a tip or two in deciphering the tests. I have copies and can't read them. At any rate, I was wondering if maybe this stuff isn't working because I feel OK. Is numbness that feels like poor circulation a side effect? My history with meds has been that if there is a bizarre side effect unknown to man - I will get it. Confusingly, the sides that are typical I normally do not get. I think a lot of that has to do with my screwed up thyroid. I'm glad people are talking about the thyroid because the thyroid is critically important when you are dealing with any health issue. Your thyroid is the thermostat of your body. It can slow you down to a crawl or just the opposite. When trying to metabolize anything - food - drugs - whatever - if you have a low thyroid function everything else will be slow to respond in your system. I know I'm not explaining this well. So, after the initial hysteria of actually going into treatment, I feel a little bit alone. My doctor told me if I was going to have bad side effects they would begin immediately. Nothing much happened. Is it luck? I hope and pray it is. I'll go get another thyroid blood test on Monday. Peace & Love - Abby Welcome to the Jungle, Abby!!! Like I tell most folks....put on your spacehelmet, strap yourself in and enjoy the ride. Consider yourself lucky that you're a geno 3 and are only going to have to take the 'short' voyage on Starship Dragonbuster. With a little luck, you won't get slammed too hard by side effects. I'm guessing you won't feel the full effect of the first shot til tomorrow or so. LOL. Some of the early sides get better, then you'll start trading one side effect for another. It'll be a new and exciting week each week with different fun stuff, kind of reminiscent of a trip to the amusement park and riding the rollercoaster (and noone will let you off). You might want to keep a barf bag on hand. And don't get too far away from a bathroom. ahahahahahaha!! It's always a good idea to keep a spare set of undies in the trunk of your car.....just in case. I'm certain others will have suggestions on how to handle this trip too. Drink a bunch of water and GET SOME REST, would ya? Elmo virus free for more than 2 years http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum > I tried to respond to a post that had the same subject except I > couldn't because it was over 30 days old. I have Hep C - Genotype 3 [quoted text clipped - 16 lines] > much happened. Is it luck? I hope and pray it is. I'll go get > another thyroid blood test on Monday. Peace & Love - Abby Abby, I also experienced minimal sides after the 1st injection. (As far as sides go it's probably not relevant, but I also have geno-3.) By my experience both personal and vicarious, I've found that sides experienced will vary throughout treatment and that you can pretty well count on fatigue being a problem that gets worse as Tx goes on. Also, severity in general may present at times later on, even if you experienced only mild sides at first. But it seems true that if you were going to get really hammered by severe sides, especially ones like depression, high-grade fever, and rigor, that these unfortunate symptoms will present right away. Don't worry about whether Tx is working or not based on the mild sides you have experienced after your 1st injection. You are a lucky winner in the side-effects lottery, that's all. You won't know if Tx is working until you get tested again for viral load to see if it is going down. For what its worth, I experienced only mild side effects for my first month, but also apparently cleared the virus during that short time. Lab results from blood drawn at four weeks showed I'd attained what they call an early virological response (EVR), meaning my viral load was already down to an undetectable level -- it doesn't get better than that. Technical disclosure: Now in week #13 and still cookin' like a hot pot of corn beef and cabbage. Yum. BG Re: Day After First Injection Group: alt.support.hepatitis-c Date: Sat, Jun 24, 2006, 7:30am (CDT-2) From: burkegilman@moxmail.net (Burke Gilman) Abby wrote: I tried to respond to a post that had the same subject except I couldn't because it was over 30 days old. I have Hep C - Genotype 3 and I don't know how many viral loads or whatever. I could use a tip or two in deciphering the tests. I have copies and can't read them. At any rate, I was wondering if maybe this stuff isn't working because I feel OK. Is numbness that feels like poor circulation a side effect? My history with meds has been that if there is a bizarre side effect unknown to man - I will get it. Confusingly, the sides that are typical I normally do not get. I think a lot of that has to do with my screwed up thyroid. I'm glad people are talking about the thyroid because the thyroid is critically important when you are dealing with any health issue. Your thyroid is the thermostat of your body. It can slow you down to a crawl or just the opposite. When trying to metabolize anything - food - drugs - whatever - if you have a low thyroid function everything else will be slow to respond in your system. I know I'm not explaining this well. So, after the initial hysteria of actually going into treatment, I feel a little bit alone. My doctor told me if I was going to have bad side effects they would begin immediately. Nothing much happened. Is it luck? I hope and pray it is. I'll go get another thyroid blood test on Monday. Peace & Love - Abby Abby, I also experienced minimal sides after the 1st injection. (As far as sides go it's probably not relevant, but I also have geno-3.) By my experience both personal and vicarious, I've found that sides experienced will vary throughout treatment and that you can pretty well count on fatigue being a problem that gets worse as Tx goes on. Also, severity in general may present at times later on, even if you experienced only mild sides at first. But it seems true that if you were going to get really hammered by severe sides, especially ones like depression, high-grade fever, and rigor, that these unfortunate symptoms will present right away. Don't worry about whether Tx is working or not based on the mild sides you have experienced after your 1st injection. You are a lucky winner in the side-effects lottery, that's all. You won't know if Tx is working until you get tested again for viral load to see if it is going down. For what its worth, I experienced only mild side effects for my first month, but also apparently cleared the virus during that short time. Lab results from blood drawn at four weeks showed I'd attained what they call an early virological response (EVR), meaning my viral load was already down to an undetectable level -- it doesn't get better than that. Technical disclosure: Now in week #13 and still cookin' like a hot pot of corn beef and cabbage. Yum. BG //////// Actually, Burke, depression is more common the further you get into treatment, as are many of the more severe side effects, particularly the ones associated with anemia and such. Once your corn beef and cabbage get cooked sufficiently, it's all downhill from there. That usually happens about week #14 (just kidding). :-) Bet you're cranking out some good farts with that diet. elmo poots http://community.webtv.net/elmoemerson/DocElmosHepFile http://community.webtv.net/elmoemerson/TheFamilyAlbum When I called that "Be In Charge" nurse last night she told me the depression is actually caused by the interferon. I find that hard to believe but that doesn't mean its not true. I hate to assume anything but I was thinking that the depression happens because we are dealing with a life threatening disease and there are major major lifestyle issues to be resolved whether they are current or past history. Depression has always been a problem with me and having learned eons ago that thryoid disease and depression are hand in hand - I juess I just added the Hep C onto the common denominator and came up with that theory. Depression & Thyroid Disease & Hep C. However, if Interferon does actually cause depression my theory is wrong. Any thoughts? Peace & Love - Abby > Re: Day After First Injection > [quoted text clipped - 58 lines] > > http://community.webtv.net/elmoemerson/TheFamilyAlbum > Re: Day After First Injection > Actually, Burke, depression is more common the further you get into > treatment, as are many of the more severe side effects, particularly the > ones associated with anemia and such... Small wonder then, that my care provider took a close look at me for signs of depression when I went in for my 12-week labs review. Also small wonder that she expressed no surprise when I expressed feeling beaten up like never before. Regarding depression, I said to PA that I've been able to adapt to the physio changes so that Riba irritability hasn't progressed into problems, but for sure I was seriously bummed out for a day or two last week when I learned my time away from work experience had cost me a seat in the academic program I'd hoped to re-enter this Fall. The PA made sure I'd gotten over it, that I viewed it as a setback for which I'm now seeing ways to adust for later on. Then she emphasized that if I got into a depression that I seemed unable to get out of, to call her and she'd fix me up with something. > Once your corn beef and cabbage > get cooked sufficiently, it's all downhill from there. That usually > happens about week #14 (just kidding). :-) Bet you're cranking out > some good farts with that diet. > elmo > poots Corn beef and cabbage I am cooking until I am cooked. BG > > Re: Day After First Injection > > Actually, Burke, depression is more common the further you get into [quoted text clipped - 26 lines] > > BG I find your situation interesting. You are adapting well, and your PA seems to be willing to help. But this thing is affecting more than your physical well being. It's affecting your profession. They don't seem to help with that. Is it just me, or does it appear that the medical profession and the community within we conduct our lives seems to view all of what we go through as trivial? I mean if we had cancer it seems to me that a lot of the bullshit would be dealt with more compassion and tolerance. Or am I just crazy? Anyway, I think you will win at this game and be all the better for it. So keep on kicking the dragon in the a.s! You got the smarts to outsmart whatever get's thrown at you. Plus you are funny...that always helps. dort BG that is absolutely awesome!!! Thank you for telling me about the EVR (early virulogic response) is that right? You should broadcast your experience because there is not very much good news for Hep patients out there at all. That's putting it mildly. I will be sure to have a good day now and I hope you do too. Please keep me posted about your "excellent adventures" with this thing. Peace & Love - Abby > > I tried to respond to a post that had the same subject except I > > couldn't because it was over 30 days old. I have Hep C - Genotype 3 [quoted text clipped - 48 lines] > > BG >I tried to respond to a post that had the same subject except I >couldn't because it was over 30 days old. I have Hep C - Genotype 3 [quoted text clipped - 16 lines] >much happened. Is it luck? I hope and pray it is. I'll go get >another thyroid blood test on Monday. Peace & Love - Abby Hi, Abby, and welcome to our little disfunctional group :-) If you transcribe your lab test results and post them here, I'm sure someone will be able to assist in interpreting your numbers. There's a *lot* of experience represented by the group in such matters. Cheers /greyhackles Hi Abby, I was the same, I had no side effects after doing the first shot till the next day. That was the pattern for the first 10 weeks and only on the 11th did I start getting immediate reaction and that is mostly sudden fatigue, as if that made any day different from the rest, lol, but enjoy the side effect free day as long as you can. This group is a great group, glad you made it here... Ally > I tried to respond to a post that had the same subject except I > couldn't because it was over 30 days old. I have Hep C - Genotype 3 [quoted text clipped - 16 lines] > much happened. Is it luck? I hope and pray it is. I'll go get > another thyroid blood test on Monday. Peace & Love - Abby Hey Abby, It's good that you found this group! Elmo pretty much said it all. You do have a great bunch of folks on your side here in this group so stay tuned! Here is a web site that I found very helpful.... http://janis7hepc.com/ I didn't experience much in the way of side effects the first few months of tx. I am geno 2 and only had to do 24 wks. It was only when my blood counts started dropping that thing's got rough. That was around month 5, so try not to worry so much and take each day as it comes. You've got a bunch of support here for what ever changes you may go through. Focus on slaying that dragon! dort |
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