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Medical Forum / Diseases and Disorders / Hepatitis / June 2006

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Planning my return to work

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mags - 11 Jun 2006 16:08 GMT
As soon as this hell is over :).   I went to see the BCLD for my 36
week checkup last week.  I was given the rest of my drugs, weighed in,
blood pressure tests, blood tests and usual questions.  They were
concerned that I have lost over 40 pounds but I associate some of that
with some personal issues I have been facing lately as well, which is
why I havent been online much.  I asked about my last shot day (August
23rd) and if I could go back to work on the following Monday.  They
said I will still be sick from side effects for 4 to 6 weeks?  What is
your experience out there in hepper land.

Mags
73 days to go
Cactus Jammies - 11 Jun 2006 16:28 GMT
mags, you have amazing reslience.  good on you.  forty lbs is a bunch, wow.
but your figure of four to six weeks recuperation from tx is what my bcld
told me too.  at least, in my case, but anyway, life does go on.  good luck
through the rest of it.  btw, they never suggested that you reduce any of
your meds, did they?  did you ever use Procrit while on tx?

cactus jammies-----------------------------------
> As soon as this hell is over :).   I went to see the BCLD for my 36
> week checkup last week.  I was given the rest of my drugs, weighed in,
[quoted text clipped - 8 lines]
> Mags
> 73 days to go
mags - 11 Jun 2006 16:42 GMT
Hi CJ nice to see you :)  How are you doing these days?   A long time
ago I had to reduce my interferon for 2 weeks because of my blood
counts.  I am on Eprex and take a needle every other week.  I have
remained on the full riba dosage the entire time although I plan to not
take pills for the last 3 days - and told my nurse that lol.

Mags

> mags, you have amazing reslience.  good on you.  forty lbs is a bunch, wow.
> but your figure of four to six weeks recuperation from tx is what my bcld
[quoted text clipped - 15 lines]
> > Mags
> > 73 days to go
greyhackles - 11 Jun 2006 17:44 GMT
>As soon as this hell is over :).   I went to see the BCLD for my 36
>week checkup last week.  I was given the rest of my drugs, weighed in,
[quoted text clipped - 8 lines]
>Mags
> 73 days to go

Everyone is different, of course, but within 2 weeks of the last handful of
Riba pills I was feeling *worlds* better than I ever did on therapy. I no
longer trudged everywhere I went, I could actually climb a couple of flights
of stairs instead of taking the elevator, and my appetite started coming back
in a hurry.

That said, I'm still getting over some of the lingering effects, mostly muscle
tone related. Like you I was 40+ pounds lighter post-tx than before - I
started with a BMI of 28 and ended at 23 - but that's all getting better, too.

Clearly you're not going to jump right back to your pre-tx stamina, so begin
the recuperation process in a non-aggressive fashion. *Do* stuff, just don't
set the bar too high to quickly...

Cheers - and welcome back.

/greyhackles
mags - 11 Jun 2006 17:59 GMT
Thanks Grey.  I can't even lift a bar never mind setting one lol.  I
think 2 weeks sounds reasonable as well.  I will return to the gym in 6
weeks instead of right after I finish to help my muscle tone.  I asked
about blood work after my last shot.  They need to see me in 2 weeks, 4
weeks 12 and 24 weeks.  They said in the first 2 visits if my enzyme
levels begin to rise it means I probably still have the virus.
Interesting.  She said its the only advantage of being in a study as
these tests are not normally performed at these intervals.

Mags

> >As soon as this hell is over :).   I went to see the BCLD for my 36
> >week checkup last week.  I was given the rest of my drugs, weighed in,
[quoted text clipped - 26 lines]
>
> /greyhackles
elmoemerson@webtv.net - 12 Jun 2006 03:20 GMT
Beg your doc to do a viral load check at 4 weeks post tx, Mags, your
insurance will almost certainly cover it.  If you're going to relapse,
it's almost for sure that you'll do it in the first 30 days after you
finish your last meds.  You'll know almost for certain one way or the
other, knowing the results will take you off the hook mentally. But I've
got this real good feeling that you'll be getting the 'good word', gal.  
:-)
Elmo
\//////////
Thanks Grey. I can't even lift a bar never mind setting one lol. I think
2 weeks sounds reasonable as well. I will return to the gym in 6 weeks
instead of right after I finish to help my muscle tone. I asked about
blood work after my last shot. They need to see me in 2 weeks, 4 weeks
12 and 24 weeks. They said in the first 2 visits if my enzyme levels
begin to rise it means I probably still have the virus. Interesting. She
said its the only advantage of being in a study as these tests are not
normally performed at these intervals.
Mags
greyhackles wrote:
As soon as this hell is over :).   I went to see the BCLD for my 36
week checkup last week. I was given the rest of my drugs, weighed in,
blood pressure tests, blood tests and usual questions. They were
concerned that I have lost over 40 pounds but I associate some of that
with some personal issues I have been facing lately as well, which is
why I havent been online much. I asked about my last shot day (August
23rd) and if I could go back to work on the following Monday. They said
I will still be sick from side effects for 4 to 6 weeks? What is your
experience out there in hepper land.
Mags
 73 days to go
Everyone is different, of course, but within 2 weeks of the last handful
of Riba pills I was feeling *worlds* better than I ever did on therapy.
I no longer trudged everywhere I went, I could actually climb a couple
of flights of stairs instead of taking the elevator, and my appetite
started coming back in a hurry.
That said, I'm still getting over some of the lingering effects, mostly
muscle tone related. Like you I was 40+ pounds lighter post-tx than
before - I started with a BMI of 28 and ended at 23 - but that's all
getting better, too.
Clearly you're not going to jump right back to your pre-tx stamina, so
begin the recuperation process in a non-aggressive fashion. *Do* stuff,
just don't set the bar too high to quickly...
Cheers - and welcome back.
/greyhackles

http://community.webtv.net/elmoemerson/DocElmosHepFile

http://community.webtv.net/elmoemerson/TheFamilyAlbum
Michael Arends - 11 Jun 2006 18:21 GMT
Smiling Wickedly,  mags answered:
> As soon as this hell is over :).   I went to see the BCLD for my 36
> week checkup last week.  I was given the rest of my drugs, weighed in,
[quoted text clipped - 8 lines]
> Mags
>  73 days to go

It DOES take, (for me at least) around a month or so before you feel a
lot better.

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                            «.·°·. Michael .·°·-:¦:-

mags - 11 Jun 2006 20:38 GMT
Hi Michael.  Were you able to work in that first 4 weeks after
treatment?

Mags
> Smiling Wickedly,  mags answered:
> > As soon as this hell is over :).   I went to see the BCLD for my 36
[quoted text clipped - 18 lines]
>    ((¸¸.·´  .·´-:¦:-((¸¸.·´(º·.¸(¨*·.¸  ¸.·*¨)¸.·º)
>                              «.·°·. Michael .·°·-:¦:-
Michael Arends - 12 Jun 2006 17:14 GMT
Smiling Wickedly,  mags answered:
> Hi Michael.  Were you able to work in that first 4 weeks after
> treatment?

Yes i was, I just had to take it easy.  I had worked on and off
throughout my treatment, towards the end ( of the 48 weeks) it
got much harder, but when treatment was done, I kept at it, and
it slowly got better and better.

Take care.

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    ¸.·´ .·´¨¨))
  ((¸¸.·´  .·´-:¦:-((¸¸.·´(º·.¸(¨*·.¸  ¸.·*¨)¸.·º)
                            «.·°·. Michael .·°·-:¦:-

dortski - 11 Jun 2006 21:39 GMT
> As soon as this hell is over :).   I went to see the BCLD for my 36
> week checkup last week.  I was given the rest of my drugs, weighed in,
[quoted text clipped - 8 lines]
> Mags
>  73 days to go

Hey Mags, it's so nice to hear from you!

I went to work a week after I finished tx. Keep in mind I only went 24
weeks, it was rough. Strange aches and pains, and I was exhausted afterwork.
I am on my feet 9 to 10 hours a day though. It's been a little over 2 months
post tx for me and I can say that I finally feel pretty damn good.

So given your experience with how long and how hard treatment was for you,
it may be wise to consider part time at first.

Good luck with the home stretch there girl!

dort
mags - 11 Jun 2006 23:52 GMT
Thanks Dortlet.  I will be talking to my boss tomorrow and see if I can
arrange to work in my hometown for 4 weeks so I can go home if it gets
bad.  Commutting adds an extra 3 hrs a day - yikes!

Mags

> > As soon as this hell is over :).   I went to see the BCLD for my 36
> > week checkup last week.  I was given the rest of my drugs, weighed in,
[quoted text clipped - 22 lines]
>
> dort
elmoemerson@webtv.net - 12 Jun 2006 03:09 GMT

Planning my return to work  

Group: alt.support.hepatitis-c Date: Sun, Jun 11, 2006, 8:08am (CDT-2)
From: Chillnil@rogers.com (mags)
As soon as this hell is over :).   I went to see the BCLD for my 36
week checkup last week. I was given the rest of my drugs, weighed in,
blood pressure tests, blood tests and usual questions. They were
concerned that I have lost over 40 pounds but I associate some of that
with some personal issues I have been facing lately as well, which is
why I havent been online much. I asked about my last shot day (August
23rd) and if I could go back to work on the following Monday. They said
I will still be sick from side effects for 4 to 6 weeks? What is your
experience out there in hepper land.
Mags
 73 days to go
////////////////
Your doc is absolutely right, Mags.  Don't even think about going back
to work for at least a month after finishing tx.  It takes weeks and
months for you to get back to where you were.  Don't rush it.  Hope all
is well on the 'home front'.  You're a sweetheart!
Elmo

http://community.webtv.net/elmoemerson/DocElmosHepFile

http://community.webtv.net/elmoemerson/TheFamilyAlbum
Dolphy - 12 Jun 2006 03:24 GMT
Hi Mags,

What do you do for work?

I've been on tx for five weeks and I've already missed two days of
work.

My wife is currently on maternity leave and I don't have the luxury of
not having to work.

Rgds
Dolphy
mags - 12 Jun 2006 13:06 GMT
I manage a department that deals with lawyers, media - high profile
issues.  I lasted 5 months into tx and became so ill that I had to stay
home.

Mags
couldn't do anything physical and for that matter mental

> Hi Mags,
>
[quoted text clipped - 8 lines]
> Rgds
> Dolphy
mags - 12 Jun 2006 13:00 GMT
Thanks Elmo.  I will be answering cookie mail soon as I pick up the
crumbs.

Mags

> Planning my return to work
>
[quoted text clipped - 21 lines]
>
> http://community.webtv.net/elmoemerson/TheFamilyAlbum
Cactus Jammies - 12 Jun 2006 16:00 GMT
re-entry burn getting you anxiious, Mags?  heh heh no offense meant.

layers of it peel off like the proverbial onion, there is no real way to
predict your landing back to 'normalcy' 100%  but we all adjust and you will
too.  Something I should have done (and will remember next time) is to try
and get out and socialize and live in the 3D world as much as possible, get
a little sun for the vitamins, etc.  While on tx and when trying to recover
from it as well, or perhaps even moreso, because as in my case, I was in my
own reverse isolation during the actual 48 weeks.  Eat your fave foods,
(forty blink blink lost pounds, wow, woman wow that is MUCHO)

stick it in your belly and stick around  8-)

cactus jammies

> Thanks Elmo.  I will be answering cookie mail soon as I pick up the
> crumbs.
[quoted text clipped - 26 lines]
>>
>> http://community.webtv.net/elmoemerson/TheFamilyAlbum
 
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