Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Hepatitis / April 2006

Tip: Looking for answers? Try searching our database.

What would you do?

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
Mojo - 22 Apr 2006 02:20 GMT
ok  This is my story in a nutshell.  I experimented with drugs in high
school, IV.  Fast forward 20 years... I start vomiting once a month for
no reason, have right sided dull ache that never goes away, confess to a
doctor about my past and get tested for Hep C and BINGO diagnosis confirmed.

I do 18 months of Interferon/Ribovirn and am able to clear the virus.  I
had to actually end the treatment early due to severe anemia and my
thyroid gland going chaotic due to my immune system atacking it.  Those
18 months were the hardest I ever went through.  Took many months to
recoup from the depresson, hairloss, weightloss etc.

Now its 7 years later,  I haven't gotten retested in the last 4 years
because I am honestly afraid to find out that the virus has returned.  I
honestly don't know if I could ever endure treatement again.

My question:  If after going through all the interferon/ribovirin Rx, if
you found out many years later that the virus had returned, would you go
through it all again, or would you just leave it to fate.
greyhackles - 22 Apr 2006 02:55 GMT
>ok  This is my story in a nutshell.  I experimented with drugs in high
>school, IV.  Fast forward 20 years... I start vomiting once a month for
[quoted text clipped - 14 lines]
>you found out many years later that the virus had returned, would you go
>through it all again, or would you just leave it to fate.

If I'm reading this correctly, there's little reason for you to be worrying
yourself. That said, your story does beg the question: do you have any reason
to believe you'd test positive for replicating virus?

Recognizing it's easy to postulate hypotheticals, here's what I think I'd do
in the same situation:

- first, I'd get a CBC, LFT and viral load test done. If negative, it's over
for good, no more worrying, eh? Have a party and stop looking over your
shoulder forever.

- if positive, I'd get hooked up with a liver doc, get the ultrasound, get the
biopsy, and see where things stand.

- I'm guessing you're 48 years old, give or take a year or two. Statistically,
you've got a good 20-something years of living ahead of you. If the biopsy
indicates significant damage, I'd get geared up for a round with peg-IFN and
Riba, with Procrit standing by, and a few weeks head start with an
anti-depressant before the first shot night.

But back to my original observation: you say you cleared the virus 7 years
ago, and stopped testing 4 years ago. By my math, that means you tested up to
3 years after End Of Therapy, and unless you just forgot to mention otherwise,
you were still clear.

In my book, unless you reinfected yourself (goes back to my first question)
you should be spending your time finding ways to enjoy an HCV-negative life.

Cheers

/greyhackles
Burke Gilman - 22 Apr 2006 03:37 GMT
One point: Being afraid that you may have the virus is not a good
reason to avoid determining if you have the virus.

BG in Seattle
Dwight - 22 Apr 2006 05:55 GMT
> ok  This is my story in a nutshell.  I experimented with drugs in high
> school, IV.  Fast forward 20 years... I start vomiting once a month for
[quoted text clipped - 15 lines]
> you found out many years later that the virus had returned, would you go
> through it all again, or would you just leave it to fate.

I've already been through it twice. I would go through it again right
now if it wasn't so hard on my family, instead I'll wait a few years if
possible for something else, if not, I'll be going through it again.

Dwight
The Magician - 22 Apr 2006 07:03 GMT
>ok  This is my story in a nutshell.  I experimented with drugs in high
>school, IV.  Fast forward 20 years... I start vomiting once a month for
[quoted text clipped - 14 lines]
>you found out many years later that the virus had returned, would you go
>through it all again, or would you just leave it to fate.

Just to throw my 2 cents in... even if ya hadda go thru it all over...
it isn't as bad as it used to be from what I gather.
(I'm an ex-junkie with 10 yrs clean, and have had lots of friends from
Narcotics Anonymous in treatment over the years who had nightmare
stories about the old juice)
The new Pegasys is only a shot a week, and although I went thru some
fairly unpleasant side effects... (rashes, mouth sores& nail splitting
from Lichen Planus, a lip cancer scare, some hair loss, usual aches,
pains, fatigue...)
but from what I understand, it ain't half as bad as da old stuff.
So... what's better...  48 weeks on Pegasus...
or a rotting liver and on a donor list praying for one to come thru?
Ya do wut ya gotta do to survive... yanno?
Datz just my take on it.
Puckertoe - 22 Apr 2006 11:41 GMT
Him Mojo,

Get checked first. Make sure your self diagnosis is clear. If you have it
you're still young enough to go through the new tx's.

I'm on my second tx as well. If this fails I'll have to do it again.

Good luck and I surely hope it didn't retun. On a positive note, if you
reinfected yourself chances are good you got a 2 or 3 genotype and they're
the easiest to treat. Only 24 weeks of tx.

-Puckertoe

> ok  This is my story in a nutshell.  I experimented with drugs in high
> school, IV.  Fast forward 20 years... I start vomiting once a month for no
[quoted text clipped - 15 lines]
> you found out many years later that the virus had returned, would you go
> through it all again, or would you just leave it to fate.
elmoemerson@webtv.net - 22 Apr 2006 13:51 GMT
I'd stop counting chickens before they're hatched.  Go get yourself
another test to see if you have virus.
elmo

http://community.webtv.net/elmoemerson/DocElmosHepFile

http://community.webtv.net/elmoemerson/TheFamilyAlbum
rattyrabbit - 22 Apr 2006 22:18 GMT
Hi, sounds like you got it licked. I'd probly have it checked, like the
others say. I'm in stage 4, with tx not recommended, by 2nd. opinion.
However, my bloodwork was better last winter than the summer before. I
hope something new comes out, but am thinking maybe I should try
treatment. Not now though. I rather foolishly agreed to take in 4 rats
that were in desperate need of immediate re-homing. It might be good
though. Helping animals makes me feel good. I'm a vegetarian, live
mainly on whole grains, apples and soymilk and soyprotein, with a
weakness for sugar. So a question, does sugar turn into alcohol? That
article about that b19 was interesting. I thought parvo was a dog
disease. I'm hoping, with a positive outlook, like, who? PT? maybe I'll
just get well. So I too don't know about trying treatment. It's hard
they say if you live alone. Probably harder if you live alone with 6
ratties.
ri-cardo - 23 Apr 2006 04:22 GMT
> ok  This is my story in a nutshell.  I experimented with drugs in high
> school, IV.  Fast forward 20 years... I start vomiting once a month
[quoted text clipped - 15 lines]
> if you found out many years later that the virus had returned, would
> you go through it all again, or would you just leave it to fate.

i'm on my second round, so i must believe that hope springiest
eternal..but if i couldn't do the treatment again i would go live the
best i could while i felt good...so i would get tested, find out where i
was as far a damage and figure out how long i had before i was going to
start having problems. Then do all the things everyone says "I wish I
had"
Mojo - 24 Apr 2006 16:54 GMT
> ok  This is my story in a nutshell.  I experimented with drugs in high
> school, IV.  Fast forward 20 years... I start vomiting once a month for
[quoted text clipped - 15 lines]
> you found out many years later that the virus had returned, would you go
> through it all again, or would you just leave it to fate.

Thanks so much for all your replies.  I really don't have any symptoms
that would lead me to believe that the virus is back, except that
occasionally I do get an occasional ache on my right side, but it is
absolutely nothing compared to what it used to be before treatment.  I
think I will just go back and get tested once and for all, instead of
wondering.  Thanks again. :)
anonymousone - 24 Apr 2006 18:44 GMT
The ache on your right side can be other things as well. A gall stone
to name just one.

No harm in getting tested for the virus, but you might want to get a
scan to get to the source of the pain.
anonymousone - 24 Apr 2006 18:44 GMT
The ache on your right side can be other things as well. A gall stone
to name just one.

No harm in getting tested for the virus, but you might want to get a
scan to get to the source of the pain.
anonymousone - 24 Apr 2006 18:44 GMT
The ache on your right side can be other things as well. A gall stone
to name just one.

No harm in getting tested for the virus, but you might want to get a
scan to get to the source of the pain.
dortski - 25 Apr 2006 01:54 GMT
> > ok  This is my story in a nutshell.  I experimented with drugs in high
> > school, IV.  Fast forward 20 years... I start vomiting once a month for
[quoted text clipped - 22 lines]
> think I will just go back and get tested once and for all, instead of
> wondering.  Thanks again. :)

That's what I'm tawlkin' about! Hope you get your results soon so you can
relax and not worry about it anymore. That's my job! lol....

dort
maha - 25 Apr 2006 00:31 GMT
>ok  This is my story in a nutshell.

I tend to agree with what most people are telling you - at this point,
all you have is fear - no basis for worry.

If it was me - I'd go through it all again.  Like the magician said,
the inconvenience is a lot better than being on a donor list.

Graham
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2009 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.